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Topic: oncotype dx roll call

Forum: Stage II Breast Cancer — Meet, share and support others with Stage II Breast Cancer

Posted on: Mar 24, 2018 03:20PM

Adelozier wrote:

I'm looking to find out what's others oncotype was and wha t they decided to do.. How old were you? I've now read so much in regards to oncotype and know they recently changed staging of breast cancer based on the onco type.

Dx 5/2/2017, DCIS/IDC, Right, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2-
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Mar 24, 2018 03:45PM - edited Mar 24, 2018 03:47PM by pupmom

Mine was 14. I was 61 years old, and didn't receive any chemo, despite 2 positive nodes. But, I did not make the decision. My oncologist said chemo would not give me any benefit. So I dodged that bullet.

Life is what happens while we're making other plans. Dx 10/18/2011, IDC, Right, 1cm, Stage IIA, Grade 1, 2/21 nodes, ER+/PR+, HER2-
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Mar 24, 2018 04:27PM AdAstra wrote:

My oncotype was 17. Single mastectomy. No radiation nor chemo. Tamoxifen for 5 - 10 years. Dx at 42. Follow up appts with MO every six months.


(This is my first post, but I've been reading the messages for about 6 months now. Thanks for the question that gave me a gentle way to speak up and say hi.)

Dx 4/6/2016, ILC, Right, 2cm, Stage IIA, Grade 2, 0/5 nodes, ER+/PR+, HER2- (FISH) Surgery 4/22/2016 Mastectomy: Right Hormonal Therapy 5/22/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 7/15/2019 Arimidex (anastrozole)
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Mar 24, 2018 06:35PM Kath1228 wrote:

I am 54 now. Diagnosed 7 weeks before my 50th birthday. My Oncotype was 11 - so no chemo. Did lumpectomy, radiation and have been on anti-hormonals for 4 years (Tried tamoxifen and it didn’t agree with me, so on Femara since November 2014).


Dx 11/7/2013, IDC, Left, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 12/4/2013 Lumpectomy: Left Radiation Therapy 1/22/2014 Whole-breast: Breast Hormonal Therapy 11/4/2014 Femara (letrozole)
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Mar 24, 2018 06:49PM Cowboy-Up wrote:

I was 46 and oncotype DX of 17. Lumpectomy and radiation. No chemo.

Dx 11/22/2016, IDC, Right, Stage IB, Grade 2, 0/6 nodes, ER+/PR+, HER2- Surgery 1/16/2017 Lumpectomy: Right; Lymph node removal: Sentinel; Reconstruction (left); Reconstruction (right) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast: Breast
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Mar 24, 2018 08:00PM carmstr835 wrote:

I was 61 at Diagnosis. Onco score was 17 and 19. I had bilateral cancer. Both breasts. I did adjuvant Hormone therapy (arimidex) from March 22-May 15. Bilateral mastectomy and lymph dissection on right only, chemo and radiation. My oncologist did not want me to have chemo, but I insisted. I was very concerned about my lymph nodes that were extranodal extension. My 2nd opinion oncologist was very adamant I have chemo. It was not as bad as I thought it would be. I am still on targeted therapy for HER2+ and will be completed with that in June. I won't be taking anti-hormone therapy when my treatment is completed in June.

Dx 3/1/2017, DCIS/IDC, Both breasts, 1cm, Stage IIB, Grade 2, 2/17 nodes, ER+/PR-, HER2+ (FISH) Hormonal Therapy 3/21/2017 Arimidex (anastrozole) Surgery 3/26/2017 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy 5/17/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Targeted Therapy 6/26/2017 Herceptin (trastuzumab) Targeted Therapy 6/27/2017 Perjeta (pertuzumab) Chemotherapy 6/27/2017 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 9/10/2017 Breast, Lymph nodes, Chest wall Surgery 7/9/2018 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Surgery 10/15/2018 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Surgery 9/17/2019 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Targeted Therapy Nerlynx
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Mar 24, 2018 08:15PM - edited Mar 24, 2018 08:16PM by MettaMary4

I have ILC with oncotype 23 age 66 so I was told that I could skip chemo but risk of recurrence less if I did both that and radiation. So I did opt for it even though no lymph nodes or spreading detected. I am 2/3 through my chemo. It has been challenging but did it for my children and need to keep working. After radiation I will have hormone therapy as well for a few years.

Dx 11/6/2017, ILC, Right, 2cm, Stage IIA, Grade 2, ER+/PR+, HER2- (IHC) Chemotherapy 2/6/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Mar 24, 2018 08:36PM Okkate75 wrote:

Hi! I'm 42 and had an Oncotype of 29, doing lumpectomy, chemo, radiation, and hormonal treatment. I think my low PR (5%) is a big part of the aggressiveness of the tumor and my MO pushing chemo.

Dx 11/17/2017, IDC, Left, <1cm, ER+/PR-, HER2- Surgery 12/7/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 1/5/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 5/15/2018 Hormonal Therapy 5/24/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 24, 2018 10:59PM Meow13 wrote:

My oncodx was 34, and I believe it was due the absence of progesterone receptors. I was 95% er positive and barely grade 2. I didn't do chemo that was recommended but did 4 years AI drugs. I am year 7 NED.

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Mar 24, 2018 11:07PM MO-Beth wrote:

Hi. I was 56 at time of diagnosis. Onco score was 19. After a long discussion and explanation with charts and numbers/statistics, my oncologist left the decision up to me. I chose not to have chemo. After I told the oncologist my decision, she said, "That's what I would have chosen too, if I were you."

Radiation: No side effects. Letrozole: No side effects.

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Mar 24, 2018 11:20PM - edited Mar 24, 2018 11:22PM by LiMa66

Dx at 51. Bilateral mastectomy. 2 postive lymph nodes, one with extranodal extension. Oncotype score 16. No chemo but do start radiation first week in April. Started Tamoxifen March 1st.

I believe I can Dx 10/26/2017, ILC/IDC, Left, 2cm, Stage IIB, Grade 2, 2/6 nodes, ER+/PR+, HER2- (IHC) Surgery 1/31/2018 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 3/1/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 4/9/2018 Whole-breast: Breast, Lymph nodes, Chest wall Surgery 11/5/2018 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Mar 25, 2018 06:23AM Loki wrote:

Okate- I am 62, and chose lumpectomy done 1/29. My Oncotype is 29 like yours. Of course radiation and Aromatase inhibitors are part of the treatment plan. I had lots of delays- inconsistencies with test results from Her 2 positive to equivocal and then positive. Fish sent and then Oncotype. I had seromas that had to be drained a few times but finally went down and stayed. Then chemo was recommended as I have a high risk of recurrence and the Oncotype is 2points from the high range. Aftervstruggling with decision I am starting TC Wed. Scared on a lot of levels but inspired by all of you. Plan on working but concerned. Did you finish your chemo treatment?

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Mar 25, 2018 06:49AM Sjacobs146 wrote:

I was 48 at diagnosis, Oncotype 23, positive node. I was borderline for chemo, but docs recommended it due to the combo of relatively young age, intermediate Oncotype and positive node. Even though my cancer was grade 2, it managed to spread to a node fairly quickly. My tumor was caught on my annual mammogram, there was nothing there the year before.

Dx 8/26/2014, IDC, Right, 1cm, Stage IIA, Grade 2, 1/3 nodes, ER+/PR+, HER2- Surgery 9/22/2014 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 10/23/2014 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 1/25/2015 Breast Hormonal Therapy 4/16/2015 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 25, 2018 07:17AM mightygnat wrote:

I was 59 when I was diagnosed. ER 96%, PR 12%, KI-67 31%. Oncotype 31. Grade 3. I did chemo with no regrets. TC X 4. No more eyebrows but my head hair did grow back. I believe that no one really knows what course this disease will take, and I chose to use all the available tools.

Dx 3/2/2016, IDC, Right, 2cm, Stage IIA, Grade 3, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 3/15/2016 Mastectomy: Right Chemotherapy 4/22/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 8/12/2016 Arimidex (anastrozole)
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Mar 25, 2018 07:59AM OCDAmy wrote:

Good thread, interesting to see the different treatment plans. I had a score of 18 but had a large tumor and 2 lymph nodes so I got it all, BMX, four rounds of TC, rads and now AI. I can't ever have regrets that I didn't give it my all.

Dx 2/2017, IDC, Left, 4cm, Stage IIB, Grade 2, 2/13 nodes, ER+/PR+, HER2- Surgery 11/14/2018 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting, Silicone implant Surgery Lymph node removal; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy Arimidex (anastrozole) Surgery Reconstruction (left): DIEP flap Radiation Therapy Whole-breast
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Mar 25, 2018 09:08AM Peregrinelady wrote:

I was diagnosed at 52, but had the lump for over a year and a half prior. My score was 12. No chemo but there were micromets in one node so I thought I needed radiation, but 3 different radiation oncologists said no. BMX, Tamoxifen for a year, now on an AI.
Dx 4/24/2015, IDC, Left, 2cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Surgery 5/18/2015 Mastectomy: Left Hormonal Therapy 6/1/2015 Liquid tamoxifen (Soltamox) Surgery 4/19/2016 Mastectomy: Right; Prophylactic ovary removal; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy 8/1/2016 Arimidex (anastrozole) Hormonal Therapy 7/20/2020 Femara (letrozole)
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Mar 25, 2018 11:38AM Nas wrote:

pupmom

Do u remember ur er nad pr percentage???

Dx 12/5/2017, IDC, Right, 1cm, Stage IIA, Grade 1, 1/8 nodes, ER+/PR+, HER2- Surgery 12/13/2017 Mastectomy: Left, Right Radiation Therapy 2/6/2018 Breast, Lymph nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 25, 2018 01:36PM letsgogolf wrote:

I was 60 years old, Oncotype score 3. I had 36 radiation treatments which included lymph nodes due to 1 micromet. Now on Arimidex.

Oncotype DX = 3. IDC with Lobular Features. Sentinel Node had Micrometastases - Estrogen 100%, Progesterone 99.89%, Ki67= 3.3% Dx 2/14/2017, IDC, Left, 1cm, Stage IB, Grade 1, 0/8 nodes, ER+/PR+, HER2- Surgery 2/26/2017 Lumpectomy: Left Radiation Therapy 4/5/2017 Whole-breast: Lymph nodes Hormonal Therapy 5/31/2017 Arimidex (anastrozole) Targeted Therapy
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Mar 25, 2018 01:49PM Adelozier wrote:

Thanks everyone ... keep it coming ... I saw an old thread much like this but it's nice to know what people are doing more recently ...


Dx 5/2/2017, DCIS/IDC, Right, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2-
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Mar 25, 2018 02:17PM rgoossen wrote:

Onco type DX score 18, no chemo, radiation begins first week in April, followed by Tamoxifen. I am 53 years old

Dx 12/19/2017, DCIS/IDC, Right, 1cm, Stage IIIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- (IHC) Surgery 1/24/2018 Lumpectomy: Right; Lymph node removal: Sentinel, Underarm/Axillary Radiation Therapy 4/1/2018 Whole-breast: Breast, Lymph nodes
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Mar 25, 2018 02:32PM JadeShiva wrote:

I was diagnosed just after turning 46. My onctypeDX was 12. I had a lumpectomy and an additional surgery as my margins were not clear. One positive lymph node with 2 mm macromet. I did 4 rounds of chemo, taxotere and cytoxan. 28 whole breast radiation followed by 5 boosts to the tumor bed. I started taking tamoxifen in January, 2 weeks before starting radiation.

Finished treatments 3/22! I don't even know what to do with myself since I don't have a doctor's appointment to schedule around!

Dx 7/13/2017, DCIS/IDC, Left, <1cm, Grade 1, ER+/PR+, HER2- Dx 8/9/2017, DCIS/IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- (FISH) Surgery 8/9/2017 Lumpectomy: Left; Lymph node removal: Sentinel, Underarm/Axillary Radiation Therapy Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Mar 26, 2018 08:51PM LimnoGal wrote:

I was 56 at diagnosis, weakly ER+/PR -/HER2-, clean margins. Oncotype score a whopping 49. I did LX, brachytherapy radiation, TC x 4, and am 2 years into Femara.

Moving on.... Dx 11/2016, DCIS/IDC: Papillary, Left, 1cm, Stage IA, Grade 3, 0/6 nodes, ER+/PR-, HER2- Surgery 2/11/2016 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy Balloon-catheter: Breast
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Mar 28, 2018 01:28PM ctmbsikia wrote:

Oncotype DX score 17.   I was told they may push chemo at a score of 18 and if your are HER2+.

I'm 56 had lumpectomy, starting radiation this afternoon, hormone therapy after radiation-which hopefully will help my other breast which is LCIS.  

Dx 12/14/2017, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 1/16/2018, LCIS, Right Surgery 1/31/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/11/2018 Whole-breast: Breast Hormonal Therapy 6/25/2018 Arimidex (anastrozole)
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Mar 28, 2018 01:32PM gigibee wrote:

age 43 , oncotype 15, lumpectomy, 23 full breast and 7 boost radiation treatments and hormone therapy

Dx 8/31/2017, DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery 10/30/2017 Lumpectomy: Right; Lymph node removal: Underarm/Axillary Radiation Therapy 12/12/2017 Whole-breast: Breast
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Mar 28, 2018 03:06PM JKL2017 wrote:

Diagnosed with stage IIA ILC at 67 just a year ago. My lumpectomy was quick & easy & I'm more symmetrical now than before surgery. Oncotype was a low 7 so MO didn't feel chemo would help. Was fortunate to qualify for APBI with the SAVI & experienced only minimal discomfort from the device. Radiation was quick (4 minutes, twice a day for 5 days) with no pain or side effects except a little fatigue. I still enjoy eating a bit too much but anastrozole, regular exercise & wonderful grandchildren are keeping me healthy & happy.

Dx 2/2/2017, ILC, Right, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 3/7/2017 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 3/19/2017 Multi-catheter: Breast Hormonal Therapy 5/23/2017 Arimidex (anastrozole), Aromasin (exemestane)
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Apr 8, 2018 07:50AM ClareCo wrote:

I'm 53 years old. My score is 19 and I meet with MO this coming week to discuss. According to the oncotype report, there is no difference for me if I do chemo or skip. I did have one of three nodes affected... I'm hoping they say no chemo, but that's scary too!

Dx 1/31/2018, IDC, Left, Stage IIA, 1/3 nodes, ER+/PR-, HER2- Surgery 3/15/2018 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 5/1/2018 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide) Radiation Therapy Breast, Lymph nodes
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Apr 8, 2018 02:59PM - edited Apr 8, 2018 03:01PM by LeesaD

Dx at 49 yrs old a year ago. Oncotype score a 3. Had two sentinel nodes with micromets and MO ordered Oncotype. In the interim I pushed for ALND as I wouldn't have been able to sleep not knowing status of axillary nodes. 2 of 14 additional nodes came back fully positive. So 4 of 18 involved' nodes total including the micromets. MO and tumor board recommended chemo even though I was a very low 3 Oncotype as Oncotype relevant for 3 nodes or less. Chemo regime was changed though from AC+T to TC. I had four rounds of TC and then radiation. I was ok throwing all we could at it. MO encouraged by the 3.

Oncotype Score 3, 2/4 Sentinal Nodes micromestasis so pushed for ALND for 'peace of Mind' and surprise found 2/14 positive axillary nodes Dx 2/3/2017, IDC, Right, 3cm, Stage IIB, Grade 2, 4/18 nodes, ER+/PR+, HER2- Surgery 3/26/2017 Lymph node removal: Right, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 4/17/2017 Lymph node removal: Underarm/Axillary Chemotherapy 5/8/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 8/1/2017 Hormonal Therapy 9/7/2017 Arimidex (anastrozole), Zoladex (goserelin) Surgery 11/16/2017 Prophylactic ovary removal Surgery 1/29/2018 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant
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Apr 8, 2018 03:01PM Meow13 wrote:

Clareco, ask about doing AI drugs, post menopausal. I have seen studies that er+ and pr - cancers respond better than tamoxifen. Did you oncodx of 19, was that given you would take tamoxifen?

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Apr 8, 2018 04:49PM jallyson wrote:

Hi, I was 47 when dx.  Had a bilateral mastectomy. No positive nodes.  Onco score was 10.  No chemo recommended.  Been on Tamoxifen for almost 3 years.

Dx 2/5/2015, IDC, Left, 2cm, Stage IIA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 3/11/2015 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 5/20/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 8/4/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Apr 8, 2018 07:42PM ClareCo wrote:

meow13 what are AI drugs? My oncotype 19 showed the same risk on radiation and tamoxifan vs. radiation, tamoxifan plus chemo. I finally see an MO late this week

Dx 1/31/2018, IDC, Left, Stage IIA, 1/3 nodes, ER+/PR-, HER2- Surgery 3/15/2018 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 5/1/2018 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide) Radiation Therapy Breast, Lymph nodes
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Apr 8, 2018 09:02PM Cnewcom wrote:

I am new to all of this. I was diagnosed on 1/2/18, just before my 42nd birthday. My lumpectomy was 1/18. The tumor was 2.5cm, clear margins and 0/7 nodes. So I thought that was good. I am ready for my 4th and last dose of A/C and then I move on to the Taxol phase. My ONCA type was 53 and ER+/PR-/HER2-. I was ER+ by over 50%. Now I am a little freaked out because everyone seems to be low on the ONCA type.

I am deciding on mastectomy or radiation. Any opinions on that with this high ONCA type? The secondary cancers concern with in addition to recurrence.


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