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Topic: Luminal b anyone

Forum: Stage II Breast Cancer — Meet, share and support others with Stage II Breast Cancer

Posted on: Dec 10, 2019 04:58PM - edited Dec 10, 2019 05:12PM by Swko

Swko wrote:

hi just found out I am luminal b. I am her 2 negative er 99% pr 30%. My mammaprint stated I am high risk at 29% chance of recurrence but endocrine therapy and chemo would bring it down to 5 percent so I guess that's decent Anyone else with a similar situation? Any words of encouragement would be great!

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Dec 10, 2019 08:52PM windingshores wrote:

How did you find out you are Luminal B? Did you have a Prosigna Assay?

Dx 2/2015, DCIS/ILC/IDC, Right, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery Lymph node removal; Mastectomy: Right Surgery Mastectomy: Left; Prophylactic mastectomy: Left Hormonal Therapy
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Dec 10, 2019 10:05PM margo53 wrote:

That’s me! Just learning all this myself.... I still don’t understand how Mammoprint is chosen over Oncotype. My oncologist gave me the exact percentages you stated and I have had one treatment of four.... I’m also under the impression I will also need radiation and hormone therapy. I was delayed with starting chemo due to surgical complications so I didn’t want to take the extra time to get a second opinion. I don’t feel very helpful to you but I’m in the same boat

Margo Dx 8/13/2019, IDC, Left, <1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR-, HER2- Surgery 9/23/2019 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 12/2/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 3/12/2020 Whole-breast: Breast Hormonal Therapy 5/8/2020 Femara (letrozole)
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Dec 11, 2019 05:20AM Swko wrote:

found out from the mammaprint testing. They didn’t run the oncotype because it gives an intermediate score and only runs 21 genes compared to the 71 on mammaprint

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Jan 5, 2020 10:24PM havefaithtoday wrote:

Margo53,

You and I have somewhat similar diagnosis (not completely though). But I see that you started TC on 12/2. I started on 12/23. How you feeling? Are you doing 4 treatments?

Have Faith Today! Dx 10/29/2019, IDC, Right, 2cm, Stage IIB, Grade 3, 1/3 nodes, ER+/PR+, HER2- Surgery 11/19/2019 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 12/23/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 3/23/2020 Whole-breast: Breast, Lymph nodes
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Jan 5, 2020 11:22PM margo53 wrote:

I’m doing better than expected, have Faith today......every day Is different but it seems to follow pattern of first week days are terrible. Much more diarrhea this time, 2 Nd and 3 rd week much better. My biggest issue has been bone pain from the Neulasta....Excruciating. Nothing helps but OxyContin. My 3 rd treatment is Jan 13 and lastone on Feb 3.

Margo Dx 8/13/2019, IDC, Left, <1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR-, HER2- Surgery 9/23/2019 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 12/2/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 3/12/2020 Whole-breast: Breast Hormonal Therapy 5/8/2020 Femara (letrozole)

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