Mar 15, 2020 06:28PM sugarcactus wrote:
This sounds like the study I joined about five months ago. I had stage II with a high chance of recurrence and a level 3 grade tumor. It was in one lymph node. I had a left mastectomy, then four rounds of chemo, then a ton of radiation. Then, I had a month or so off to recover before starting therapy. I decided to go all out because I figured I could scale back the medicine but couldn't join the study later. I am therefore doing ovarian suppression shots monthly (the needle is huge but actually doesn't really hurt), an AI once every day, and the 4mg Ribociclib. I also take Effexor and barely notice hot flashes.
Frankly, I'm surprised at how well I'm doing. The main side effects I have had are some fatigue, some vaginal dryness, and perhaps hair thinning, but I exercise about 45 min of cardio a day plus yoga and weights regularly. I still have a sex life. The weird thing is I now sleep about 8-9 hours a night at the minimum, which is weird as most people sleep less in menopause. I also got local vaginal estrogen to use which is not supposed to get into your bloodstream and cause problems. Also I am on the younger side of things, 42.
Also, you immunity can get lowered, which is the main draw back for me, especially with the virus outbreak. My immunity is lower than normal but my oncologist insists that the numbers look good still and I haven't been sick in over a year and a half (knock on wood). I am being very careful and self-quarantining right now as much as possible (but I also am a teacher and live in the middle of the Seattle outbreak!).
I am thankful for this decision as I had a high chance of recurrence and the longer I can push of recurrence, the more treatments there will hopefully be. The Kisquali is only for 3 years and then just the AI for up to 5 or maybe 10 years.
Hope that helps a little bit. :)