Log in to post a reply
Nov 30, 2017 06:09PM
Nov 30, 2017 06:12PM
Just chiming in to agree. And it is confusing! The Oncotype DX gives you a score, as plumster points out. That number puts you into one of three categories: low (risks of chemo outweigh the benefits); intermediate; and high, where chemo is recommended. My score was 18, which is on the border between low and intermediate. I really, really didn't want to have chemo so I was happy with that score. And fyi in talking it through with my medical oncologist, she shared that the break point where she starts thinking about chemo is 25.
Then in addition you get a risk percentage, which is your risk of a distant recurrence within 10 years. Mine is 11 percent. That's based on a large sample of women who had masectomies (mostly) and five years of Tamoxifen. So it's not perfect but the best way currently available to forecast risk of metastasis.
Also confusing: your doctor can make a separate risk estimate of cancer in the same breast being treated now. That's called local recurrence and it's different. So, for example I'm having radiation to lower the risk of local recurrence and will likely take Tamoxifen to lower the risk of distant recurrence.
Hope that helps and so sorry you are stressed. We've all been there. But you should have other results (tumor size, lymph node status, ER status) which are arguably more important than the Oncotype DX.
Cancer touched my breast so I kicked its ass.
9/3/2017, ILC/IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2-
10/10/2017, LCIS, Right, 0/1 nodes
10/10/2017 Lumpectomy; Lymph node removal: Right, Sentinel
11/27/2017 Whole-breast: Breast
1/2/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)