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Topic: Waiting on oncotype score after BMX

Forum: Diagnosed and Waiting for Test Results —

Share with and support others all waiting for test results from CAT scan, PET scan, Oncotype tests, Mammaprint, FISH, IHC, and other diagnostic tests.

Posted on: Nov 1, 2018 09:54AM - edited Nov 1, 2018 09:56AM by Dovely

Dovely wrote:

So I'm waiting on the oncotype score of my three small tumors. Being grade 1, stage 1, and hormone receptive, my BS thinks Chemo is unlikely but not out of the question. I just had a BMX with negative nodes. I have not seen an oncologist yet, waiting to have all the info. I guess im wondering, reoccurrence where? I have no breast tissue. Chest wall? Nodes? I just don't understand it fully, despite my research

Dx 10/9/2018, DCIS/IDC, Left, 2cm, Stage IB, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 10/18/2018, IDC, Right, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 10/23/2018 Lymph node removal: Left, Right; Mastectomy: Left, Right Surgery 11/6/2018 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Nov 1, 2018 04:00PM Peregrinelady wrote:

Dovely, the Oncotype is mainly to see if you would benefit from chemo. Depending on your tumor biology, the risk of chemo may not outweigh the benefit. Are they oncotyping all 3 of your tumors? Recurrence can be local (in the breast) or distant (bones, lungs, liver, and brain). The Oncotype is predicting the benefit of chemo to prevent distant recurrence. This is my understanding, anyway. Other people may have more to add. I am a fellow Idahoan, but way up north. Snow expected next week.
Dx 4/24/2015, IDC, Left, 2cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Hormonal Therapy 6/1/2015 Liquid tamoxifen (Soltamox) Surgery 4/18/2016 Mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy Arimidex (anastrozole)
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Nov 4, 2018 01:33AM beach2beach wrote:

Hi, tissue is so fine there is no guarantee that every bit is gone. Plus a recurrence as stated above could happen along the mastectomy line, or distant. I liken it as dormant cells that if something awakens them it depends where they go. Sounds like you have a very good chance of it coming back without needing chemo.

Dx 7/28/2017, LCIS/DCIS/ILC, Right, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 8/8/2017 Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Hormonal Therapy 9/12/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Nov 4, 2018 04:08AM edwards750 wrote:

My sister’s came back after 4 years along the MX scar so obviously it can happen. There are no guarantees. The first time she didn’t have chemo or radiation. This time she had radiation and has shots every month.

Diane

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Nov 4, 2018 05:34AM Palesa2018 wrote:

Hi Dovely, just to share, when my Oncotype came back 12 which is on the low side of the scale, I didn't do Chemo but insisted on Radiation because I didn't want to do nothing. And my DCIS was scattered across the breast. The radiation was after BMX with direct to implant. Hoping I lowered risk of it coming back along the mastectomy scar. I guess we can only try our best.

All the best!

Dx 6/7/2018, DCIS/IDC, Right, <1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 6/11/2018 Lymph node removal: Sentinel Surgery 7/8/2018 Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 8/8/2018 Hormonal Therapy 9/11/2018 Zoladex (goserelin) Radiation Therapy 9/15/2018 Whole-breast: Breast, Chest wall Hormonal Therapy 11/3/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Nov 7, 2018 07:57PM PollyOne wrote:

Hi Dovely, we had our surgeries two days apart. I got my oncotype results back yesterday but don't meet with onco about follow up treatment until next week. Hope all is well with you after your second surgery today. 

Dx 10/16/2018, DCIS/IDC, Left, 2cm, Grade 1, 0/2 nodes, ER+/PR+, HER2- (IHC) Surgery 10/16/2018 Lymph node removal: Sentinel; Mastectomy: Left
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Nov 8, 2018 12:45AM - edited Nov 8, 2018 03:38AM by Dovely

Hi polyone, Hope you are recovering well and your oncotype results were good. Surgery yesterday went well, implants put in (had two week delay, expected DTI). Pretty uncomfortable at this point but it's manageable. I'm supposed to meet with my Oncologist on 11/20

Dx 10/9/2018, DCIS/IDC, Left, 2cm, Stage IB, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 10/18/2018, IDC, Right, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 10/23/2018 Lymph node removal: Left, Right; Mastectomy: Left, Right Surgery 11/6/2018 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Nov 8, 2018 01:47PM - edited Nov 8, 2018 01:48PM by PollyOne

Hi dovely, glad your second surgery went well. I can't imagine having to go back so soon. If I had it to do over, I would have taken way more pain meds in the beginning. I'm eperiencing pretty constant low level oain, and finding it exhausting My oncotyoe result was 15. I'm not sure what that means but the nurse told me it was good and I won't need chemo. After trying to work four hours on Tuesday from home I realized the pain and fatigue mean I'm a ways away from returning to work so am planning to be out through the end of next week. Sending you a big soft air hug. 

Dx 10/16/2018, DCIS/IDC, Left, 2cm, Grade 1, 0/2 nodes, ER+/PR+, HER2- (IHC) Surgery 10/16/2018 Lymph node removal: Sentinel; Mastectomy: Left
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Nov 8, 2018 03:38PM - edited Nov 8, 2018 03:41PM by Dovely

Pollyone, well that's good news about the Oncotype. Yeah... I don't react well to opioids so I try to be minimal with them but in this case I'm just going for it because this hurts. I do have anti nausea meds that help. I feel ok when I'm still, I just have to have my husband do everything for me because it hurts to use my upper body at all. I hope your constant pain resolvessoon, that is exhausting. Air hug to you back! Take care

Dx 10/9/2018, DCIS/IDC, Left, 2cm, Stage IB, Grade 1, 0/1 nodes, ER+/PR+, HER2- Dx 10/18/2018, IDC, Right, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 10/23/2018 Lymph node removal: Left, Right; Mastectomy: Left, Right Surgery 11/6/2018 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant

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