Feb 5, 2019 08:58PM 1redgirl wrote:
I refused treatment after surgery and I am still alive.
It is not possible to stage a patient before tests and surgery. In my case, lymph nodes seemed fine pre surgery, but sentinel node had cancer. I was told pre surgery ONLY 3 lymph nodes would be taken. Wrong. The policy is then to remove 1st level lymph nodes which number can vary. In my case 12 were removed. No cancer except sentinel. Lymph node dissection is miserable. I live with a compression wrap on my right arm. I also sleep with a compression wrap around my chest. I rarely think about it anymore. I have adjusted. It is however, life altering.
My left breast had two lumpectomies. Cancer has not come back - yet. It has been 26 yrs. DCIS supposedly rarely becomes invasive regardless of grading.
It should be mentioned that cancer is graded 1,2,3. 3 being aggressive as cells look crazy.
Upon leaving hospital, I was given a thick book about cancer. In that book, it said a 1 cm tumor had probably been growing for 8-10 yrs. My oncologist told me that is bunk. He told me my cancer formed in 3 mos. I say b.s. to that as well.
When I got cancer first time, I knew I was sick. I was freezing all the time. After surgeries, freezing went away. 2nd cancer, same exact story. I know when I am sick.
Read all you can. I wanted lumpectomy with 2nd cancer, but I had 3 small tumors and thus nothing much would be left of breast after cutting 3 out.
Removing lymph nodes is very serious. I was not nearly informed enough about the ramifications after dissection.