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Topic: Tomorrow cannot come soon enough!

Forum: Diagnosed and Waiting for Test Results —

Share with and support others all waiting for test results from CAT scan, PET scan, Oncotype tests, Mammaprint, FISH, IHC, and other diagnostic tests.

Posted on: Mar 26, 2019 02:51PM

Catob1969 wrote:

I know you all know what I am feeling but I wanted to write it out and vent a little.

I feel like I have been waiting forever to meet with the medical oncologist for Oncotype testing results when in reality, it has only been two weeks since the surgeon referred me to a medical oncologist and sent my sample for Oncotype testing.

So many decisions are riding on this appointment.

I met with the surgeon twice and had the usual batches of testing, from genetic testing for BRCA status(negative) to MRI and core biopsy.

When I went for my 2nd appointment with the surgeon, I was stunned when she told me it wasn't 1.3 cm, it was 3.8 CM! and she wanted me to consult with a medical oncologist to see if it can/should be shrunk before lumpectomy.

As a backstory, I also have an autoimmune disease, so I am petrified that some therapies, like immunotherapy, are not available to me. (not that I am a doctor, I just google too much, as we all do :) ). My rheumatologist took me off my biologic treatment to prep for surgery. Surgery is scheduled for 4/11/19 but could be canceled based on the medical oncologist appointment tomorrow.

The tumor is Estrogen and progesterone positive ( over 90%), HER2 - so I have my fingers crossed that I can take hormone therapy not chemo.-there I go again playing doctor :)

So, here I sit, until 9 AM tomorrow morning, rolling all the options over in my head again and again, and trying to plan for every eventuality. I know it is impossible.

I will think positive thoughts, keep my fingers crossed a little while longer, that chemo is not the plan just hormone therapy, and then a lumpectomy.

I never thought I would be HOPING for such things.

I am keeping you all in my thoughts, as we all struggle with the waiting,

Thank you for being here so I can vent!


Dx 2/20/2019, IDC, Right, 5cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH) Hormonal Therapy 4/2/2019 Surgery Lumpectomy: Right; Lymph node removal
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Mar 26, 2019 04:01PM FrenchPorsche wrote:

Hi Catherine (same name as me - lovely name obviously).

I feel for you. Waiting is so hard. I am due to get results of my second biopsy tomorrow afternoon and just want to get on with things! I believe we might not even get to talking about treatment options then, so will have to wait even longer. It’s torture!

Sending positive vibes for your appointment tomorrow. I hope you get the best news as can be under the circumstances.

Dx 3/13/2019, DCIS, Right, Stage 0 Dx 3/27/2019, DCIS, Right, 6cm+, Stage 0 Surgery 4/17/2019 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Silicone implant
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Mar 26, 2019 04:13PM Moderators wrote:


We're so very sorry for the anguish you're experiencing in making your treatment decisions -- we know this is a very difficult time, between diagnosis and treatment, and we're all here for you!

Just know you'll feel much better once you have a plan in place. Keep us posted on what you decide!

--The Mods

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Mar 27, 2019 07:59AM Catob1969 wrote:

Thank you! I will keep you in my thoughts as well!

Dx 2/20/2019, IDC, Right, 5cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH) Hormonal Therapy 4/2/2019 Surgery Lumpectomy: Right; Lymph node removal
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Mar 27, 2019 08:01AM Beatmon wrote:

Catob, I hope you get your plan in place soon because it does relieve some anxiety and part of the fears goes away

Dx 7/27/2012, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2+ Surgery 8/9/2012 Lymph node removal: Left, Sentinel; Mastectomy: Left, Right Surgery 12/1/2013 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 7/1/2014 Reconstruction (left); Reconstruction (right) Dx 8/9/2014, IDC, Both breasts, Stage IV, metastasized to lungs, Grade 3, ER-/PR-, HER2+ Targeted Therapy 8/27/2014 Herceptin (trastuzumab) Targeted Therapy 8/27/2014 Perjeta (pertuzumab) Chemotherapy 8/27/2014 Taxotere (docetaxel)
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Mar 27, 2019 08:13AM April0315 wrote:

hoping you get some good news soon (it’s amazing what we think “good” news is at this point!). Hang in there

Dx 2/28/2019, IDC/IDC: Papillary, Right, Stage IB, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 4/12/2019 Lumpectomy: Left, Right Dx 4/18/2019, ILC, Left, 2cm, Stage IB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Chemotherapy 5/12/2019 AC + T (Taxol) Hormonal Therapy 10/15/2019 Femara (letrozole) Surgery 11/15/2019 Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right)
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Mar 27, 2019 10:48AM edwards750 wrote:

Oh Catherine we truly do feel your pain. No words can begin to describe how nerve wracking it is to wait on test results. I am the poster person for worrying so it’s especially difficult for me. My internist prescribe the generic version of Prozac and it does helptake the edge off.

I waited 2 weeks for my test results too. Pure unadulterated hell. The results of my test would determine whether I needed chemo or not so I can definitely relate. My results came in the day before I was supposed to meet with my oncologist. She ordered the test. My score came back@11 so I dodged chemo. Whew! I did have radiation treatments but they weren’t bad at all.

Hoping you get a similar result. Keep the faith and keep us posted.


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Mar 28, 2019 04:44PM beach2beach wrote:

It was nerve wracking. Every time my cell would ring I'd jump,.torture. I actually missed the call and heard my dr's voicemail. Then I called her to make sure I heard her correctly . I hope all goes well for you.

Dx 7/28/2017, LCIS/DCIS/ILC, Right, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 8/8/2017 Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Hormonal Therapy 9/11/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 29, 2019 01:41PM Catob1969 wrote:

Thank you all. I have a very solid treatment plan that I am comfortable with. Your support and kind words helped get me there :)


Dx 2/20/2019, IDC, Right, 5cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH) Hormonal Therapy 4/2/2019 Surgery Lumpectomy: Right; Lymph node removal

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