I know you all know what I am feeling but I wanted to write it out and vent a little.
I feel like I have been waiting forever to meet with the medical oncologist for Oncotype testing results when in reality, it has only been two weeks since the surgeon referred me to a medical oncologist and sent my sample for Oncotype testing.
So many decisions are riding on this appointment.
I met with the surgeon twice and had the usual batches of testing, from genetic testing for BRCA status(negative) to MRI and core biopsy.
When I went for my 2nd appointment with the surgeon, I was stunned when she told me it wasn't 1.3 cm, it was 3.8 CM! and she wanted me to consult with a medical oncologist to see if it can/should be shrunk before lumpectomy.
As a backstory, I also have an autoimmune disease, so I am petrified that some therapies, like immunotherapy, are not available to me. (not that I am a doctor, I just google too much, as we all do :) ). My rheumatologist took me off my biologic treatment to prep for surgery. Surgery is scheduled for 4/11/19 but could be canceled based on the medical oncologist appointment tomorrow.
The tumor is Estrogen and progesterone positive ( over 90%), HER2 - so I have my fingers crossed that I can take hormone therapy not chemo.-there I go again playing doctor :)
So, here I sit, until 9 AM tomorrow morning, rolling all the options over in my head again and again, and trying to plan for every eventuality. I know it is impossible.
I will think positive thoughts, keep my fingers crossed a little while longer, that chemo is not the plan just hormone therapy, and then a lumpectomy.
I never thought I would be HOPING for such things.
I am keeping you all in my thoughts, as we all struggle with the waiting,
Thank you for being here so I can vent!
2/20/2019, IDC, Right, 5cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH)
Lumpectomy: Right; Lymph node removal
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