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Topic: Newly diagnosed with some questions

Forum: Diagnosed and Waiting for Test Results —

Share with and support others all waiting for test results from CAT scan, PET scan, Oncotype tests, Mammaprint, FISH, IHC, and other diagnostic tests.

Posted on: Mar 27, 2019 04:02PM

EngJojo wrote:

Hi there. I have ILC and was DX on MAR 12. I had a breast MRI yesterday and need to have two places biopsied with MRI guidance and a axillary lymph node looked at via ultrasound and possibly biopsied. Anyone have a lymph node biopsied? It seems they said it looked "thickened" or something similar. What was the outcome? Why do they do that when they will be taking the sentinel node at surgery?

Also, they talk about lymph system, but do they ever tell you if the tumor(s) are vascular? If so, when and how do they know?

I was looking in the mirror last evening and I can see many more veins in my affected breast then the other. Is that normal and why is that?

Thanks!

Routine mammogram found ILC and breast MRI found a second location very close to the first. Age 50 at diagnosis. ILC is multifocal with extensive LCIS. Surgery 4/17/2019 Lumpectomy: Left; Lymph node removal: Sentinel Dx 4/23/2019, LCIS/ILC, Left, 3cm, Stage IIB, Grade 2, 2/4 nodes, ER+/PR+, HER2- (FISH) Surgery 6/3/2019 Lumpectomy: Left Radiation Therapy Whole-breast: Breast, Lymph nodes Hormonal Therapy Femara (letrozole), Zoladex (goserelin)
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Mar 27, 2019 08:31PM Wigging2000 wrote:

Hello!

I did have a lymph node biopsied, it was thickened and the radiologist did not like the way it looked. However it came back clear and I had no positive nodes from surgical pathology either! They look at the lymph node prior to surgery to help guide treatment decisions.

I’m not quite sure about your second question. I do know that prominent veins in a breast with cancer are common. I am not sure of the reason.

Very sorry to hear about your diagnosis. I hope for clear lymph nodes for you and for you to have a clear treatment path very soon. Waiting for all of these answers is so terribly hard!


Dx 10/31/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (FISH) Surgery 11/30/2018 Lymph node removal: Sentinel; Mastectomy: Left, Right Dx 12/6/2018, LCIS/DCIS, Left, Stage 0, 0/1 nodes Surgery 12/7/2018 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 27, 2019 08:57PM edwards750 wrote:

I had what was thought to be clear nodes when I had my lumpectomy but when the Path report came back it showed a micromet in my SN. My BS was surprised; I was stunned. The Path report is the tell all.

I am doing fine - so far, so good 8 years out this August God willing.,

Diane

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Mar 29, 2019 11:09PM EngJojo wrote:

Thank you Wigging2000 and edwards750 for your responses. I am really scared of this ILC but am taking it in stride. I hope next week's biopsies are benign and we only have to worry about the one tumor.

Routine mammogram found ILC and breast MRI found a second location very close to the first. Age 50 at diagnosis. ILC is multifocal with extensive LCIS. Surgery 4/17/2019 Lumpectomy: Left; Lymph node removal: Sentinel Dx 4/23/2019, LCIS/ILC, Left, 3cm, Stage IIB, Grade 2, 2/4 nodes, ER+/PR+, HER2- (FISH) Surgery 6/3/2019 Lumpectomy: Left Radiation Therapy Whole-breast: Breast, Lymph nodes Hormonal Therapy Femara (letrozole), Zoladex (goserelin)
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Mar 30, 2019 11:36AM vlnrph wrote:

I responded to your other thread regarding imaging but wanted to mention here that, as you may have learned, ILC tends to be multifocal/centric, often with more than one location apparent due to the ability to grow in sheets or by cells lining up in single file. It does not form a tight, palpable lump like IDC. That is why getting clean margins is more difficult and size can seem to vary from mammogram to ultrasound or MRI.

All that to say, don't be surprised if mastectomy becomes an option for you. After surgery pathology will report if lymphovascular invasion is detected. It's good that your wait time until the next set of biopsies is not terribly long!

IDC too! 🎻💊👪🐩 🇫🇮 🌹🦋 Rt MX+DIEP 4-2011; ALND 5-2011 d/t micromets; TC X 4; tamoxifen; lymphedema 9-2011; switch to letrozole 3-2014 for 1 yr; bone mets 8-2018: Zometa, rads to spine, Faslodex/Versenio Dx 3/7/2011, ILC, 2cm, Stage IIA, Grade 2, 1/25 nodes, ER+/PR+, HER2-
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Mar 30, 2019 03:29PM Meow13 wrote:

My ILC was a tight lump, I did have 2 tumors that were discovered to be totally separate the other IDC. The e-cadherin test distinquished the types.

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