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Topic: Clarification of what I've been told?

Forum: Diagnosed and Waiting for Test Results —

Share with and support others all waiting for test results from CAT scan, PET scan, Oncotype tests, Mammaprint, FISH, IHC, and other diagnostic tests.

Posted on: Jun 11, 2019 03:09PM - edited Jun 11, 2019 03:42PM by Mebechamp

Mebechamp wrote:

Hi all. I'm here asking questions about my mom, 62, who was diagnosed yesterday. She spoke with her nurse who said she has I guess two types of cancer. I am a bit confused so please help decode this.


She has DCIS grade 3. And was told she has an invasive growth right next to it which is grade 2.

So, Doesn't DCIS specifically mean it's NOT invasive?Is it two cancer types right next to each other? I'm soooo confused. We don't know anything else yet besides size, which is somewhere between 2-3mm (quite small).

We don't know receptor results yet or anything else. Just trying to clarify this new bit of info. Also any info on what the grading means in terms of treatment? So far it's looking like lumpectomy with radiation and possibly hormone stuff afterwards (we don't have those results yet). I'll be consulting google I'm sure but if someone can break it down at all, or of it means she's better off requesting more aggressive treatment, I'm sure she'd like to know. Thanks!



Dx 6/10/2019, DCIS/IDC, Right, <1cm, Grade 3
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Jun 11, 2019 04:09PM Moderators wrote:

Hi Mebechamp,

We're so sorry to hear of your mom's diagnoses. Yes, it is possible for her to have two separate types of cancer, and her doctors will likely treat her based on the more serious diagnosis. Once her pathology report comes in from the biopsy and the final pathology after lumpectomy, you'll have more information about the cancer and the recommended treatment.

The Your Diagnosis section on the main Breastcancer.org site is a great place to start putting the pieces together, including what size and grade may mean for treatment. We may be a bit partial to our own website and medically-vetted information, but try to stay off of Dr. Google, and get your information from a reputable source, such as our own site, within this community, or American Cancer Society, National Institute of Heath, and other reliable sources.

We hope this helps and that you get some answers and direction soon. Please keep us posted!

--The Mods

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Jun 11, 2019 04:35PM - edited Jun 11, 2019 04:36PM by Beesie

Invasive cancer (IDC) usually develops from DCIS, so it's very common (about 80% of diagnoses, I think) to find DCIS and IDC together in one tumor.

The IDC is the more serious condition, so while the DCIS needs to be removed, the staging and treatment plan is based on the pathology of the IDC. With a small IDC tumor, it sounds like your mother will be a Stage I, although final staging can't be done until after the surgery, which determines the actual tumor size and the nodal status. The amount of DCIS doesn't count towards the size of the cancer when determining tumor size and staging. Whatever is recommended to treat the IDC will be more than sufficient for treating the DCIS.

Good luck to your mother with her surgery. Hopefully the final pathology confirms that she has just a tiny, easily treated invasive cancer.


“No power so effectually robs the mind of all its powers of acting and reasoning as fear.” Edmund Burke
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Jun 11, 2019 04:47PM - edited Jun 11, 2019 04:47PM by Mebechamp

You are all so sweet for answering. I'm on the verge of tears and it's because of this compassion and not fear for the first time since her first mammo can back suspicious. Thank you. And no Dr google! I will stay here and do my research. 😁

Dx 6/10/2019, DCIS/IDC, Right, <1cm, Grade 3
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Jun 11, 2019 04:57PM edj3 wrote:

Yep, research here. This site was a fantastic resource for me after my diagnosis two months ago. I found it so helpful and it's not alarmist crap either.

Dx 4/9/2019, DCIS/IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Dx 5/6/2019, LCIS, Left, <1cm, 0/1 nodes Surgery 5/6/2019 Lumpectomy; Lymph node removal: Sentinel Radiation Therapy 6/1/2019 Whole-breast: Breast
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Jun 11, 2019 08:31PM - edited Jun 11, 2019 08:31PM by Mebechamp

I have a new question. They said something about inserting a wire before lumpectomy....that's all I got. Can anyone tell me what that is/when it may happen compared to lumpectomy?

Dx 6/10/2019, DCIS/IDC, Right, <1cm, Grade 3
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Jun 11, 2019 09:13PM OTMom wrote:

That is usually done to mark the tumor for the surgeon. My hospital injected a radioactive seed to aid in localization, but some use a wire. I'm less familiar with how that one works, but I think in most cases it's done right before surgery. The morning of my lumpectomy they first injected the tracker seed, then took me to nuclear medicine for dye injections to map sentinel lymph nodes, then finally took me in for the actual surgery.

diagnosed at 41 Dx 11/15/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 12/5/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 1/13/2019 Whole-breast: Breast Hormonal Therapy 3/3/2019 Arimidex (anastrozole)
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Jun 12, 2019 01:27AM Cowgirl13 wrote:

I had it done years ago for an excisional biopsy. It sounds terrible but it wasn't.

Be the kind of woman that when your feet hit the floor each morning the Devil says: 'Oh crap! She's up! Dx 5/28/2009, IDC, Left, 2cm, Stage IIA, Grade 3, 0/4 nodes, ER+/PR+, HER2+ Surgery 6/16/2009 Chemotherapy 8/3/2009 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 12/21/2009 Hormonal Therapy 2/23/2010 Arimidex (anastrozole)
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Jun 12, 2019 01:28AM - edited Jun 12, 2019 01:29AM by Cowgirl13

I had it done years ago for an excisional biopsy. It sounds terrible but it wasn't and it didn't hurt.

Be the kind of woman that when your feet hit the floor each morning the Devil says: 'Oh crap! She's up! Dx 5/28/2009, IDC, Left, 2cm, Stage IIA, Grade 3, 0/4 nodes, ER+/PR+, HER2+ Surgery 6/16/2009 Chemotherapy 8/3/2009 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 12/21/2009 Hormonal Therapy 2/23/2010 Arimidex (anastrozole)
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Jun 12, 2019 01:44AM Elephant wrote:

I had a wire inserted the day of my surgery as you could not feel the tumor. The wire was placed so that the surgeon knew exactly where the tumor was. The procedure was not very pleasant, but it did not hurt.

Dx 11/5/2018, IDC, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 12/16/2018 Lumpectomy: Left Radiation Therapy 2/19/2019 Whole-breast: Breast Hormonal Therapy 4/14/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jun 12, 2019 02:52AM - edited Jun 12, 2019 02:53AM by AliceBastable

I was lucky and had the same-day wire insertion after I was conked out for surgery. My surgeon said that going through the dye injection is enough (for lymph node location) so she does the wire when her patients are blissfully unaware. I REALLY like her.

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Cancer's a bitch, but I'm a bigger one with more practice. Dx 5/2018, ILC/IDC, Left, 2cm, Stage IA, Grade 2, 1/1 nodes, ER+/PR+, HER2- Surgery 7/11/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/8/2018 Radiation Therapy 10/29/2018 Whole-breast: Breast, Lymph nodes
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Jun 12, 2019 07:12AM Ingerp wrote:

I've had pre-lumpectomy wires inserted. As said above, it's inserted with an US to help them locate the surgery site. It's not a big deal at all.

Dx 3/11/2016, DCIS, Left, 6cm+, Stage 0, Grade 3, ER-/PR- Surgery 3/22/2016 Lumpectomy Surgery 4/19/2016 Lumpectomy: Left Radiation Therapy 5/17/2016 Whole-breast: Breast Dx 3/2/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 3/12/2018 Lumpectomy: Right; Lymph node removal: Sentinel Targeted Therapy 5/17/2018 Herceptin (trastuzumab) Chemotherapy 5/17/2018 Taxol (paclitaxel) Radiation Therapy 8/19/2018 Whole-breast: Breast
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Jun 12, 2019 12:14PM edj3 wrote:

Ha AliceBastable, I had the wire before surgery (so awake but thankfully numbed up) and the dye injected after I was under anesthesia. I was SO GRATEFUL for that, that part had been a real worry for me. Glad I wasn't awake or aware.

Dx 4/9/2019, DCIS/IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Dx 5/6/2019, LCIS, Left, <1cm, 0/1 nodes Surgery 5/6/2019 Lumpectomy; Lymph node removal: Sentinel Radiation Therapy 6/1/2019 Whole-breast: Breast
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Jun 12, 2019 02:32PM rbreny wrote:

I've had both and found neither of them horrible. The wire localization was done years ago while in a mammo machine. The seed implant was done last Nov. also with a mammo machine. My surgery was the day after with the seed and the same day with the wire.


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