Aug 13, 2019 02:19PM - edited Aug 13, 2019 02:28PM by mom2bunky
Okay. Some of this seems iffy to me, especially staging from a mammogram and ultrasound, but I'll let others with far more experience respond to that.
What I do want to comment on is this: You are right to wonder about the accuracy of the doctor's comments so far. Doens't mean they're not right, just that it's too early to be sure. When I was at your stage of the nightmare (and it's the worst, you don't know much yet, you've not planned next steps yet) all the sonogram told the doctor was that it "looked concerning" and "the nodes look clear." That's it. They estimated the size, but that's all it was, an estimation. When I had the biopsy, the doctor told me she thought it was cancer for sure, but again, not confirmed till the biopsy results are back. You won't know all the details for sure until the thing is out after surgery. Even the biopsy, while mostly accurate, details may change after surgery. Mine was downgraded from a Grade 2 to a 1 for example. It was also slightly smaller than it appeared in imaging. After surgery is also when you get the actual details of what is going on and are staged. That doesn't mean you wait for surgery to have your plan in place. They recommended a plan for me based on imaging and biopsy results, and it was what we ended up doing, with surgery as the first step. Each case is different, though often similar depending on the details of your cancer diagnosis, if it's confirmed.
Also, I particularly want you to know that after I knew it was cancer and before the surgery I had pains all over the place. I too thought "OMG it's spreading." I have a friend who is an oncologist and tells me many of her patients experience this. Sure enough, once it was out and I had answers, the pains were gone.
It's sooooooooooooooo hard, but try not to worry too much right now until you have more concrete answers. At least do not drive yourself crazy with so little information to go on. The anxiety is awful, I get it, I do.