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Topic: Terrified continued

Forum: Diagnosed and Waiting for Test Results —

Share with and support others all waiting for test results from CAT scan, PET scan, Oncotype tests, Mammaprint, FISH, IHC, and other diagnostic tests.

Posted on: Oct 16, 2019 06:02PM - edited Oct 16, 2019 10:27PM by Slg1324

Slg1324 wrote:

Here's my update continued from the " not Diagnosed but worried"section

I did get the call yesterday - the doc said they found a small cancer (1/3 inch biopsy but 1/2 inch on mammogram)that doesn't seem very aggressive.He did say it was a hormone sensitive cancer(something about a grade 2) and that it's not good news but not awful . They are still waiting on the HER2 result and that should be no later than Friday.
Treatment prediction so far would be lumpectomy, radiation and hormone therapy but it also depends on HER2 result.sorry about any ignorant wording here ; obviously very new at this. I'm very overwhelmed and not sure how well and when I can reply on this board- I just wanted to update. I will do more updating if I can and may have questions .any words of wisdom and guwelcome Thank you for all the loving support always and sending love and support to everyone !❤️

I am attaching my original post here from “not diagnosed but worried section :

“Posted on: Sep 29, 2019 01:19PM - edited a few seconds ago by Slg1324

Joined: Sep 2019Posts: 37Latest activity: Oct 16, 2019

Slg1324 wrote:

I admire and appreciate all people's bravery and support of each other in this online community.

Im a 52 years old wife and mother (of 2 two wonderful now young ladies) For various reasons I have not had routine mammograms

Some of the reasons include, financial, a life long struggle with sometimes emotionally and physically crippling depression and anxiety.I have quite a bit guilt about not having done these mammograms over the years and am in need of some support not judgement.

I'm pretty terrified and depressed right now. I have a history of cancer in my family but no breast or ovarian cancer that I know of.recently I've discovered a mass , heaviness, thickness and pressure in my left breast at about 3 o'clock. It feels very different than my right breast.I can really tell how big it is .What first made me notice was i felt something when I sleep on my left side . I am emailing(it's Sunday so medical offices Are closed )my doctor to get the ball rolling on what tests and evaluating need to be done . The anxiety about being evaluated is sky high.

I work out of town and it's very stressful traveling everyday but there are so many bills to pay.I'm trying to manage the household with my husband and college freshman daughter ( who still has a lot of needs) .

I feel like I can't even function and tomorrow starts a brand new work week . I can't sleep .I'm in a very bad way. I'm thinking the worst. If this is cancer I've really messed up because I may not have caught it early.

Any words of wisdom is greatly appreciated .Anyone gone through or going through something similar?”

Dx 10/15/2019, ILC, Left, 1cm, Grade 2, ER+/PR+, HER2- (FISH) Surgery 12/5/2019 Lumpectomy: Left Hormonal Therapy Radiation Therapy
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Posts 181 - 197 (197 total)

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Nov 15, 2019 07:47AM rlmessy wrote:

Slg...I am scheduled for Dec. 18...71 days from dx!! For the most part I am at peace with that. On the dark days I freak out about how long it is.

But like you with your daughters birthday, my surgery will be during my oldest son's winter break from college. Any earlier and it would have been right during his finals. He was already planning to come home even though we had tried to reassure him that his Dad would take care of me.

I am determined to lessen the impact on my family as much as I can. I am not an great sick person and I hate being a burden on someone. So this is all taking me into a place where I have alot to learn.

Holding your virtual hand while we wait!!

My DX appears below but I am also a caregiver to my awesome Mom, a 13 year (2006) BC Survivor, IIIa IDC, ER/PR+, HER2+, R MX, Lymphedema R Arm ---- I am scheduled for a complete hysterectomy 12/2020 Dx 10/10/2019, IDC: Papillary, Right, 2cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 12/18/2019 Lymph node removal: Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left Hormonal Therapy 2/22/2020 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy Herceptin (trastuzumab)
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Nov 15, 2019 11:25AM Slg1324 wrote:

awww Rlm virtually holding your hand as well.

Sorry you have to wait so long (mine is 51 days from DX) but happy you are at peace with it for the most part and trust in your team . I’m so glad you have your husband for help as I do .I like that your son will be home too . Here’s to more waiting 🌿

Dx 10/15/2019, ILC, Left, 1cm, Grade 2, ER+/PR+, HER2- (FISH) Surgery 12/5/2019 Lumpectomy: Left Hormonal Therapy Radiation Therapy
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Nov 16, 2019 12:44PM L-O-R-I wrote:

Hi Slg, Will they be doing the surgery regardless of how the 2nd MRI guided biopsy comes back?

Philippians 4:13 Surgery 4/19/2018 Lumpectomy: Right Dx 4/21/2018, IDC/IDC: Cribriform, Right, <1cm, Stage IA, Grade 2, ER+/PR+, HER2- (IHC)
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Nov 16, 2019 04:12PM - edited Nov 16, 2019 04:16PM by Slg1324

Hi L.O.R.I

yes I will be having surgery regardless of the upcoming biopsy i am having on Monday Nov 18th - theplan so far is a lumpectomy on December 5th.

Dx 10/15/2019, ILC, Left, 1cm, Grade 2, ER+/PR+, HER2- (FISH) Surgery 12/5/2019 Lumpectomy: Left Hormonal Therapy Radiation Therapy
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Nov 17, 2019 11:56AM L-O-R-I wrote:

The reason I am asking, Slg, is because I'm wondering why they are doing the biopsy if they already know it is cancer and know that they will be removing it. Why don't they just do the surgery and then test the specimen at that point? The 2 MRI's are delaying your surgery and causing a lot of stress to you, and the outcome to have surgery has already been decided. Am I missing something?

Philippians 4:13 Surgery 4/19/2018 Lumpectomy: Right Dx 4/21/2018, IDC/IDC: Cribriform, Right, <1cm, Stage IA, Grade 2, ER+/PR+, HER2- (IHC)
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Nov 17, 2019 03:51PM Slg1324 wrote:

hi L.O.R.I

It is quite confusing really. The mri guided biopsy I am having tomorrow(Nov. 18th) is actually a re-biopsy of a second spot that was found via MRI in the same breast(left) that the cancer was found.i had a mammogram guided biopsy for that second spot back on November 8th - it came back benign BUT the doctors are not confident that they got the right spot so they want to go in again more accurately with the MRI guided biopsy.so really I don’t know what kind of surgery I’ll be having at this point -VERY UNNERVING!!! So as I said earlier the plan so far is a lumpectomy on December 5th to remove what has already been found .I hope i’mmaking sense .

Dx 10/15/2019, ILC, Left, 1cm, Grade 2, ER+/PR+, HER2- (FISH) Surgery 12/5/2019 Lumpectomy: Left Hormonal Therapy Radiation Therapy
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Nov 17, 2019 03:55PM Slg1324 wrote:

L.O.R.i ,

Also yes this re-biopsy did delay my surgery- it was originally scheduled for Nov 19 th . Thank you for thinking of me

Dx 10/15/2019, ILC, Left, 1cm, Grade 2, ER+/PR+, HER2- (FISH) Surgery 12/5/2019 Lumpectomy: Left Hormonal Therapy Radiation Therapy
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Nov 23, 2019 11:08AM L-O-R-I wrote:

Hi Slg, I usually only go on the site when I'm sitting at work waiting to get busy, so I just saw this now. How did your guided biopsy go this time? Hoping they didn't find anything more!

Philippians 4:13 Surgery 4/19/2018 Lumpectomy: Right Dx 4/21/2018, IDC/IDC: Cribriform, Right, <1cm, Stage IA, Grade 2, ER+/PR+, HER2- (IHC)
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Nov 23, 2019 01:42PM Slg1324 wrote:

Hi L-O-R-I

Thanks for checking back 😊

Although the procedure was physically painful and emotionally stressful, I’m very happy and grateful to report the results were benign for that second spot in question

Dx 10/15/2019, ILC, Left, 1cm, Grade 2, ER+/PR+, HER2- (FISH) Surgery 12/5/2019 Lumpectomy: Left Hormonal Therapy Radiation Therapy
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Nov 23, 2019 02:44PM L-O-R-I wrote:

That is great Slg! I guess the first biopsy was accurate. It's hard when Dr.'s doubt their own tests. It kind of shakes your faith a bit. Now you can move forward and get the surgery done. What a relief!

Philippians 4:13 Surgery 4/19/2018 Lumpectomy: Right Dx 4/21/2018, IDC/IDC: Cribriform, Right, <1cm, Stage IA, Grade 2, ER+/PR+, HER2- (IHC)
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Nov 23, 2019 05:29PM - edited Nov 23, 2019 05:30PM by Slg1324

L-O-R-I

Actually what was discovered with that prior biopsy is that they got the wrong spot - so yes that did shake my faith in that doctor some but moving forward.It's good that both spots were benign anyway. 😃yes now I can plan for the surgery.

Dx 10/15/2019, ILC, Left, 1cm, Grade 2, ER+/PR+, HER2- (FISH) Surgery 12/5/2019 Lumpectomy: Left Hormonal Therapy Radiation Therapy
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Nov 26, 2019 05:01AM WorryThePooh wrote:

That's good news Sig! I don't blame you for being concerned they got it wrong.

Dx 11/2018, IDC, Right, Stage IA, Grade 2, 0/1 nodes, ER+/PR-, HER2- Surgery 11/21/2018 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 12/13/2018 Whole-breast Hormonal Therapy 2/28/2019 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Nov 26, 2019 09:30AM Slg1324 wrote:

thank you Worry! Yes it did make me question that doctor a little bit but it also make me feel like they are really paying attention because, there were 3 doctors involved in saying it needs to be biopsied again.

How are you doing? Feeling any better

Dx 10/15/2019, ILC, Left, 1cm, Grade 2, ER+/PR+, HER2- (FISH) Surgery 12/5/2019 Lumpectomy: Left Hormonal Therapy Radiation Therapy
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Nov 28, 2019 09:47PM WorryThePooh wrote:

Thanks for asking Sig, some days I think I am better than others. The Tamoxifen has some annoying side effects such as big mood swings and hot flushes, which often come over me very unexpectedly. Just have to live with it.

Loopy

Dx 11/2018, IDC, Right, Stage IA, Grade 2, 0/1 nodes, ER+/PR-, HER2- Surgery 11/21/2018 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 12/13/2018 Whole-breast Hormonal Therapy 2/28/2019 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 9, 2021 01:59AM Slg1324 wrote:

wow! I haven’t written on here in a very long time . I’ve been reading through some of the posts and have never forgotten how supportive so many people are on here.forever grateful to all who all whosupport me , shared stories , wisdom and beyond to everyone here .

It’s almost the two year mark for me since my diagnosis . I would say I’m no longer terrified (very thankful for that ) I am however somewhat scared at getting my annual check ups that are coming up and I am like everyone else on the planet FOREVER CHANGED since 2019 . Not just because of Covid but I lost my dad on Christmas Eve 2019 (in the middle of getting fully diagnosed )to complications of dementia. I’m still in grief over the loss, still trying to understand that I was diagnosed with cancer and went through treatment . I also lost my job because of my diagnosis as I had I long commute that I could no longer do .I am so grateful that I got through surgery and radiation . I am doing well now and much better🙏but not super great . I’m now taking care of my mom partime as she has been diagnosed with dementia and Alzheimer’s 😔😔😔last year my siblings and decovered that she had been scammed out of most of her life savings so we’ve had To make some big changes.We can no longer allow her to drive. My sister who has power of attorney has had to take over her finances. My mom has a PhD in psychology and I had been estranged from her for quite a few years because she was not interested in being a part of my children’s lives but now here I am caring for her .it’s so beautiful ( new bond with mom❤️)but so painful at the same time This is where I am now . Just wanted to give an update. Anyone experiencing something similar?

Love and healing to all on here !

Dx 10/15/2019, ILC, Left, 1cm, Grade 2, ER+/PR+, HER2- (FISH) Surgery 12/5/2019 Lumpectomy: Left Hormonal Therapy Radiation Therapy
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Sep 10, 2021 12:35PM - edited Sep 10, 2021 12:36PM by edwards750

Wow you are going through a lot. So sorry for the loss of your Dad and your mother being so ill. My MIL died from Alzheimer's. It's such a cruel and insidious disease.

I lost my sister 2 years ago last month to breast cancer. It has been beyond painful for me. She was DX in 2012 - me in 2011. Her's came back twice and the last time it moved to her kidneys. She was my only sister.

My husband has been DX with Parkinson's disease but is still working and thankfully only showing mild symptoms of the disease. Hopefully that's all he hasto deal with.

My family is fractured probably forever from the loss of my sister. She was the glue that held us together after our parents died.

I have 3 brothers still living but one ditched the family and haven't heard from him in years.

Not trying to compare pain just letting you know I feel yours too.

Diane

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Sep 14, 2021 02:28AM Slg1324 wrote:

Nice hearing from you Diane . Sounds like you have been through and are going through a lot . I’m so sorry about your losses . I know losing your sister must be so difficult for you and your family .💔that must have been really something with the both of you having bc . This such an awful disease :

I hope your husband’s symptoms continue to be mild.My husband had a stroke in 2017 and it was so scary .thankfully he’s pretty much made a full recovery .I’m am also not comparing pain just reaching out and letting you know that I feel you too,Diane 💜

Dx 10/15/2019, ILC, Left, 1cm, Grade 2, ER+/PR+, HER2- (FISH) Surgery 12/5/2019 Lumpectomy: Left Hormonal Therapy Radiation Therapy

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