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Topic: Circulating Tumor Cells (CTC) test?

Forum: Diagnosed and Waiting for Test Results —

Share with and support others all waiting for test results from CAT scan, PET scan, Oncotype tests, Mammaprint, FISH, IHC, and other diagnostic tests.

Posted on: Oct 28, 2019 06:55PM

Cutie wrote:

I am looking to have a test for CTC in a lab. Does anyone know where I can do this and how much it will cost. My oncologist sent to Quest Diagnosis but they stop doing it

If you have done it, please let me know the procedure. My insurance will not cover and I want to know how much it will be. I have done treatment and want to know how this test will eveluate.

Thanks so much in advance.

Cutie


Dx 12/28/2018, IDC, Right, 3cm, Stage IIIA, Grade 3, ER-/PR+, HER2+
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Oct 28, 2019 09:53PM jessie123 wrote:

I sure hope you get an answer soon. I haven't heard of this test, but if it's available I also want one.

Dx 11/2018, LCIS/ILC, Left, 2cm, Stage IB, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 2/21/2019 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/14/2019 Whole-breast: Breast
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Oct 29, 2019 05:06PM edwards750 wrote:

It’s a blood test that can identify tumors in the blood system - Circulating Tumor Test. I’ve read the cost can range from $400 to several thousand. Costs depend on what is done in your case. I’m guessing insurance won’t pay because they don’t deem it necessary. What reason did your insurance company give for denying coverage and can you appeal their decision?

FYI my husband and I appealed a decision from BC/BS and won. To me it’s always worth trying if you can. Good luck.

Diane

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Nov 2, 2019 11:47AM Cutie wrote:

Thank you for your information. I am still looking for the lab. Quest Diagnosis said they no longer do it. :(

Cutie

Dx 12/28/2018, IDC, Right, 3cm, Stage IIIA, Grade 3, ER-/PR+, HER2+
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Nov 2, 2019 06:10PM jessie123 wrote:

www.cellsearchctc.com/about-ce... --- this is for metastatic BC and prostate cancer, but yesterday I found one for colon polyps and colon cancer. How would the test be used for early stage BC?

Dx 11/2018, LCIS/ILC, Left, 2cm, Stage IB, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 2/21/2019 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/14/2019 Whole-breast: Breast
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Nov 2, 2019 09:14PM Cutie wrote:

I don't know. I m still working with my MO. Will post if I know in detail.

Cutie

Dx 12/28/2018, IDC, Right, 3cm, Stage IIIA, Grade 3, ER-/PR+, HER2+
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Jan 20, 2020 04:51PM Murfy wrote:

Cutie, did you get the blood CTC test? If I am still NED at 5 yrs, I'm thinking of having the test performed, along with BCI test, to determine if I can go off AIs. From my reading, if CTC <1, then no metastatic disease. Appear to be several vendors for CTC test, and cheapest price was $350, which I would be happy to pay for peace of mind!

Dx at 62: Oncotype=52; Path (ER=99%, PR=0%, Ki67=55%) Dx 10/2017, DCIS/IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER+/PR-, HER2- Surgery 11/14/2017 Mastectomy: Left Chemotherapy 1/13/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 3/31/2018 Aromasin (exemestane)
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Jan 20, 2020 07:03PM jessie123 wrote:

Murfy -- Who gave you the quote of $350? I talked to my oncologist last week and he is willing to order the blood draw and send the test if I can find who to send it to. I meant to call CellSearch today, but have instead had to work on home insurance quotes -- that's pretty hard with my brain fog.

Dx 11/2018, LCIS/ILC, Left, 2cm, Stage IB, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 2/21/2019 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/14/2019 Whole-breast: Breast
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Feb 6, 2020 11:29AM Cutie wrote:

Sorry for delayed response due to log in issues and had some contamination of probably mites from restaurant thayi am now dealing with.

To answer your question, yes I had CTC test done by Mayo clinic via Stanford. Because my oncologist is from Stanford and she ordered request. The results came back as none. My insurance paid some and I have to pay some portion.

I hope everything goes well with you. I m dealing with mite issues. Please be careful when you go to public areas.

Wishing you all the best.

Cute

Dx 12/28/2018, IDC, Right, 3cm, Stage IIIA, Grade 3, ER-/PR+, HER2+
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Feb 6, 2020 12:38PM WC3 wrote:

Cutie:

I'm glad your test came back negative. I have to ask, what kind of mites? Do you mean something like scabies or internal parasites?

Pathologic complete response (pCR) to chemotherapy. Dx 2018, IDC, Left, 3cm, Grade 3, ER+/PR+, HER2+ (FISH) Chemotherapy 6/1/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 11/15/2018 Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Feb 7, 2020 10:35PM jessie123 wrote:

I called all the labs that Cellsearch uses and none would give me a price. You have to go through your provider for the price. I talked to the lab manager at the hospital that I will use and my price will be $650. Since CTC's are just prognostic in early breast cancer my insurance won't pay for it. I don't know what's wrong with me --- I just can't stop until I know everything I can about my cancer prognosis.

Dx 11/2018, LCIS/ILC, Left, 2cm, Stage IB, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 2/21/2019 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/14/2019 Whole-breast: Breast
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Feb 7, 2020 10:44PM jessie123 wrote:

I posted too soon ----Cutie - so glad you don't have CTC's. Aren't you relieved!

Edwards750 -- My husband and I did the same thing - appealed a BCBS denial and won.


Dx 11/2018, LCIS/ILC, Left, 2cm, Stage IB, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 2/21/2019 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/14/2019 Whole-breast: Breast
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Feb 12, 2020 07:32PM SuzJ wrote:

Biocept.com has a CTC test. I am in the process of having the test run but don’t have all the details. I would encourage you to have a detailed conversation with your caregiver and investigate what information is reported back to you. I originally thought it could tell me what kind of cancer I have and if it had spread to other parts of my body but I was wrong. My naturopathic doctors will use it to determine the effectiveness of treatments. I would also be clear about the cost of the test before ordering it.

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Feb 12, 2020 10:23PM Moderators wrote:

Welcome, SuzJ, and thank you so much for sharing your story and insight. We hope the test is helpful in determining which treatments will be most effective for you!

The Mods

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Feb 13, 2020 07:31PM jessie123 wrote:

SuzJ

Have you had a biopsy? Why don't the doctors know what kind of breast cancer you have? That must be stressful. If I don't have the CTCs then I may decide never to take the estrogen blocking drugs. Still can't decide. However, since this test is prognostic I want to know.

Dx 11/2018, LCIS/ILC, Left, 2cm, Stage IB, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 2/21/2019 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/14/2019 Whole-breast: Breast
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Feb 15, 2020 10:33PM SuzJ wrote:

I did recently have a biopsy and have invasive ductal carcinoma, estrogen & progesterone positive, HER2 negative. The Biocept CTC test is supposed to drill down even further and allow docs to determine effectiveness of treatments. First test is baseline, thenthe treatment and then another CTC. Still unclear about costs but understand its atleast $1,000. I have really bad insurance which probably won't pay for it. Still working out all the details.

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Feb 16, 2020 06:56PM jessie123 wrote:

I know that they use the CTC for metastatic patients to see if the drugs are working. I think insurance pays for those patients. However, for early stage the CTC's are just prognostic . Will you be having surgery?

Dx 11/2018, LCIS/ILC, Left, 2cm, Stage IB, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 2/21/2019 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/14/2019 Whole-breast: Breast
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Apr 21, 2020 07:34PM Cutie wrote:

Sorry for late response due to battling with mites issues at home. I think it may be related to immune. But still dealing with this. I kept thinking to get back to you.

My CTC was to see if there was any issues. Yes I did surgery for BMX in July 2019 but still not feeling pain sometimes from scars. Hope all are well with you.

Cutie

Dx 12/28/2018, IDC, Right, 3cm, Stage IIIA, Grade 3, ER-/PR+, HER2+

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