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Topic: Waiting for pathology after mastectomy

Forum: Diagnosed and Waiting for Test Results —

Share with and support others all waiting for test results from CAT scan, PET scan, Oncotype tests, Mammaprint, FISH, IHC, and other diagnostic tests.

Posted on: May 17, 2020 11:13AM

ijl wrote:

I had a lumpectomy a month ago for my IDC tumor and they also found DCIS so the margins were not clean.

They did sentinel node dissection that came back negative

I decided to go ahead with mastectomy and TE and had my surgery few days back.

I spoke with the oncologist and at the moment my Onctotype test does indicate chemo just Arimidex.

But now all of the sudden I worry that they can find something else there that was missed by 3D mammogram and breast MRI.

And then I would have to do chemo.

Have anyone had it happened to them . My post-op appointment is on Tuesday ,so I have a few days to worry.

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May 17, 2020 05:06PM BCat40 wrote:

it seems pretty unlikely because they’d have to find another invasive tumor and that tumor would have to be fairly aggressive for chemo to be recommended. Not sure I’ve ever heard of chemo just for DCIS

Dx at 40 Dx 2/4/2020, LCIS/ILC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 3/25/2020 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 6/1/2020 Whole-breast: Breast
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May 17, 2020 05:47PM Beesie wrote:

Chemo is never given for DCIS. Chemo is a systemic treatment, and DCIS is a localized condition.

ijl, I agree with BCat40. Since you had both a 3D mammo and an MRI, and since the entirety of your known invasive cancer has been removed, it would pretty shocking for a significant new invasive cancer to show up out of nowhere. To change your treatment plan so that chemo would be recommended, this new invasive cancer would have to be large and/or aggressive, different biologically from the already removed invasive cancer that received the Oncotype score that indicated no need for chemo.

Could there be more DCIS, or even some tiny invasions mixed in with the DCIS? That's possible, but it wouldn't change your diagnosis, staging or treatment plan. Anything more than that... not impossible but extremely unlikely.

Hope you get only good news on Tuesday. Let us know.

“No power so effectually robs the mind of all its powers of acting and reasoning as fear.” Edmund Burke
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May 17, 2020 08:44PM ijl wrote:

Bessie and bcat40

Thank you for encouraging replies.

12 years ago I had mastectomy because the lumpectomy did not obtain clear margins due to DCIS being more extensive than was seen on mammo and MRI. After the mastectomy they also found 2mm microinvasion.

Now I was diagnosed with IDC and was contemplating getting a lumpectomy with 5 days radiation. Alas once DCIS showed up this was out of question. Hence I had another mastectomy. And of all sudden I started worrying that there is another IDC tumor and then having multi focal one would lead to chemo.

I know probability is in my favor but I am a bit nervous . Well I will have to wait till Tuesday to find out for sure.

Meanwhile I find your replies very reassuring.



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May 19, 2020 07:39PM ijl wrote:

just came back from post-op and the pathology report is clean!

Thank you for your suppor

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May 19, 2020 10:11PM Beesie wrote:

Yay!! Congrats!

“No power so effectually robs the mind of all its powers of acting and reasoning as fear.” Edmund Burke
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May 27, 2020 07:32AM fightingbreastc8 wrote:

Hello! - first post but wanted some advice/guidance. My mom had her final chemo scans for stage 3 breast cancer last Friday. How soon should she hear back from the doctor/meet with her to get results? Anxious and would love to know what a normal response time is. Thanks!

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May 27, 2020 08:29AM Moderators wrote:

Hi fightingbreastc8! We're sorry you have to be here for your mom's diagnosis, but glad that you reached out to our members. Hope you get responses soon. In the mean time, we encourage you to check out our For Caregivers, Family, Friends and Supporters forum where other family members of persons having breast cancer diagnosis can talk, vent and support one another.

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