Share with and support others all waiting for test results from CAT scan, PET scan, Oncotype tests, Mammaprint, FISH, IHC, and other diagnostic tests.
moth
BC
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Dec 2017
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Jan 20, 2021
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Jul 27, 2020 04:04PM
moth
wrote:
long and boring.
In my facility they have you lie face down and your breasts kind of dangle in a gap in the bed. Your shoulders and head are supported and there's a cutout for your face so you're not suffocating. They took a long time positioning me. Make sure you speak up if you want more pillows for your legs or arms or want a slight shift because small bit of discomfort will be a lot of discomfort when you have to lie still for 30+ minutes. MRI is loud and the noise is random which annoys my brain which tries to find a pattern. They give earplugs and music headphones but the noise is so loud you can still hear it.
Initial dx at 50. Seriously???? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: nevertellmetheodds2017.tumblr....
Dx
12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC)
Surgery
12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel
Chemotherapy
2/14/2018 AC + T (Taxol)
Radiation Therapy
8/13/2018 Whole-breast: Breast
Dx
2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2-
Chemotherapy
3/18/2020 Taxol (paclitaxel)
Immunotherapy
3/19/2020 Tecentriq (atezolizumab)
Chemotherapy
11/26/2020 Abraxane (albumin-bound or nab-paclitaxel)
Dx
12/10/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC)
Radiation Therapy
12/10/2020 External
Hormonal Therapy
12/16/2020 Femara (letrozole)
edj3
Leawood, Kansas
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May 2019
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Jul 27, 2020 05:46PM
edj3
wrote:
Yup and I have one tomorrow also.
My first one and presumably tomorrow's were as moth described--face down with the gaps for your breasts. I'm an odd one, I find the sound of the magnets soothing so I always refuse music (but never ear plugs, I'm not stupid).
Tried the tamoxifen, no thanks.
Dx
4/9/2019, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC)
Dx
5/6/2019, LCIS, Left, <1cm, 0/1 nodes
Surgery
5/6/2019 Lumpectomy; Lymph node removal: Sentinel
Radiation Therapy
6/3/2019 Whole-breast: Breast
Hormonal Therapy
9/23/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
ctmbsikia
PA
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Mar 2018
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643
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Jan 19, 2021
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Jul 27, 2020 07:07PM
ctmbsikia
wrote:
Hi. I have had several. Face down (prone) boobs hanging down. The magnets or whatever they are holding your boobs are not painful at all. Agree please speak up if your chest bone -forehead-shoulders or legs are un comfortable. Let them re position you. Arms are by your side usually. I’m always afraid they will fall asleep but better there than over your head. I use the ear plugs , music, and yes it is noisey! I also follow the pattern of 3 different sounds. Then the contrast goes in, same pattern of noise and done. You will have a sqeezey thing in your hand to squeeze if you need anything they will stop and pull you out. I so far have not had to. I keep my eyes closed the entire time and try to go someplace else. Like remember when I first heard that song? Once you get used to the noise it isan opportune time to take a nap! Good luck to you!
Dx
12/14/2017, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2-
Dx
1/16/2018, LCIS, Right
Surgery
1/31/2018 Lumpectomy: Left; Lymph node removal: Sentinel
Radiation Therapy
4/11/2018 Whole-breast: Breast
Hormonal Therapy
6/25/2018 Arimidex (anastrozole)
Luckynumber…
Seattle area
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Aug 2016
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384
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Sep 18, 2020
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Jul 27, 2020 07:49PM
Luckynumber47
wrote:
Aaaarrrggghh. The noise made me crazy!! It felt like I was in a nuclear reactor that was imploding. I’m usually pretty laid back but I really struggled with this. And wouldn’t you know it, they found something, so I had to do it all over again for a biopsy. This time they gave me an Xanax (you need a driver to go home) and 2 sets of ear plugs/headphones. Much better experience!
So happy I did it since they found the dcis that the mammogram missed. Glad I got rid of everything at once
My avatar is a Blue Footed Boobie. Cracked me up.
Dx
2/15/2016, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2-
Dx
3/16/2016, DCIS, Right, <1cm, Stage 0, Grade 3, 0/1 nodes, ER-/PR-
Surgery
4/6/2016 Mastectomy: Left, Right
Hormonal Therapy
5/16/2016 Femara (letrozole)
KBL
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Jun 2019
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742
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Jan 20, 2021
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Jul 27, 2020 08:27PM
KBL
wrote:
I had a different MRI a few weeks ago, and just to let you know, they piped in the music to the room because they weren’t giving headphones during the pandemic. I did have ear plugs, though. Just wanted to let you know just in case your facility does that.
Dx
5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- (FISH)
Hormonal Therapy
6/23/2019 Femara (letrozole)
Targeted Therapy
6/23/2019 Ibrance (palbociclib)
mtspacekace…
Montana
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Jun 2020
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139
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Jan 20, 2021
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Jul 28, 2020 12:16AM
mtspacekace
wrote:
Yes. On your knees boobs dangle through a hole..face on a thing, eyes closed, arms above head...not very comfy position to be in for the 30 minutes. When they ask if the music is loud enough...say no. The tech talked to me too, but I feel like my headphones weren’t loud enough to hear exactly what she was saying. It would have been a better experience if my music was louder and I could hear it during the scans...the banging and clicking is loud! Turn the music up and rip the knob off!!
Diagnosed at 38. Dog mom. Wife. Rancher turned warrior, currently busy kicking cancers ass.
Dx
6/3/2020, IDC, Left, 2cm, Grade 3, 0/1 nodes, ER-/PR-, HER2+ (FISH)
Dx
6/3/2020, IDC, Left, 2cm, ER-/PR-, HER2+ (IHC)
Targeted Therapy
7/7/2020 Perjeta (pertuzumab)
Chemotherapy
7/7/2020 Carboplatin (Paraplatin), Taxotere (docetaxel)
Targeted Therapy
7/7/2020 Herceptin (trastuzumab)
Surgery
12/16/2020 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
renbird
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Jul 2020
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77
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Jan 17, 2021
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Jul 28, 2020 09:05AM
renbird
wrote:
Oh my gosh! Wow!
Thank you all so much. This helps a lot. : )
One last question: does the dye feel creepy when it goes in?
Thank you! -Renbird
MelissaDall…
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Apr 2012
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Jul 28, 2020 09:19AM
MelissaDallas
wrote:
My advice: the most uncomfortable part is lying on the metal bar on your sternum. If it hurts when you try to get positioned, it will hurt a lot more in thirty minutes. Ask them to help with this.
Some people experience a “wet pants or need to pee” sensation when the contrast is injected. Weird feeling, but harmless
LCIS, extensive sclerosing adenosis, TAH/BSO & partial omentectomy for mucinous borderline ovarian tumor.
Mangosan99
Georgia
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Jun 2020
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58
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Nov 14, 2020
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Jul 28, 2020 09:32AM
Mangosan99
wrote:
My tech was really good at letting me know what to expect. For my scan, she said she would let me know when she was going to inject the dye (done remotely) and said then it would be 9 more minutes until the scan was over. I tasted a slight metallic taste in my mouth which is also a known side effect. The dye and the machine made me a little warm though.
She also warned me that I might feel dizzy right after entering the machine. Later she asked me if that happened and when I said it did she explained that is because the magnets are lining up the cells in your body. I thought that was interesting because I assumed the dizziness was just from the motion of being moved.
Later in the day, I still had trouble regulating my own body temp; it took me longer to cool off from my dog walk. And, I was still clearly a little fuzzy or 'off' the next day but back to normal the second day after but I'm sensitive to most medications/treatments.
Dx
7/7/2020, DCIS, Left, 1cm, Stage 0, Grade 2, 0/6 nodes, ER+/PR-
Surgery
9/17/2020 Lymph node removal; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
edj3
Leawood, Kansas
Joined:
May 2019
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1,699
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Jul 28, 2020 09:38AM
edj3
wrote:
I'm the world's biggest wimp with needles and drugs that get injected. I barely felt the dye, did experience the slight metallic taste in my mouth and had the initial "OMG I need to pee!" sensation (I didn't need to pee).
Tried the tamoxifen, no thanks.
Dx
4/9/2019, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC)
Dx
5/6/2019, LCIS, Left, <1cm, 0/1 nodes
Surgery
5/6/2019 Lumpectomy; Lymph node removal: Sentinel
Radiation Therapy
6/3/2019 Whole-breast: Breast
Hormonal Therapy
9/23/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
beach2beach…
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Jul 2017
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946
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Jan 19, 2021
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Jul 29, 2020 07:56AM
beach2beach
wrote:
id agree., long and boring. Trying to lay still face down just doesnt work well for me. When they injected dye I just felt the rushing sensation right straight through to the groin. Otherwise,,,uneventful.
Dx
7/28/2017, LCIS/DCIS/ILC, Right, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2-
Surgery
8/8/2017 Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right)
Hormonal Therapy
9/12/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
LynnVB
Virginia Beach , Virginia , USA
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Mar 2017
Posts:
23
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Jan 13, 2021
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Jul 29, 2020 09:14AM
LynnVB
wrote:
I have a dx of ALH and have had 4 MRI's with the most recent a couple weeks ago. Some things I have found helpful.
I take a couple Motrin the morning of my appointment.
I have a light breakfast with no coffee-keeps the jitters/nerves at bay.
Ask the technician for extra padding/washcloth for your sternum.
I've had no issues with the dye, just a metal taste. But, I don't drink a lot of liquid just in case I have to pee.
Head phones are helpful, but I prefer no music since you can't hear anyway with the machine. Seems annoying to me.
The technician will talk to you and tell you how long the next scan is. At that point I tell myself I can do anything for how ever long she says ex-7 minutes or whatever.
But, THE most important thing on my mind during the MRI is reminding myself that I cannot control the fact that it may find something but I am just so thankful for the technology.
1/2017 -Biopsy results Focal Atypical Lobular Hyperplasia involving adnosis with calcification.
edj3
Leawood, Kansas
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Jul 29, 2020 10:42AM
edj3
wrote:
I fell asleep three or four times during my MRI yesterday. Those magnets are hypnotic to me.
Tried the tamoxifen, no thanks.
Dx
4/9/2019, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC)
Dx
5/6/2019, LCIS, Left, <1cm, 0/1 nodes
Surgery
5/6/2019 Lumpectomy; Lymph node removal: Sentinel
Radiation Therapy
6/3/2019 Whole-breast: Breast
Hormonal Therapy
9/23/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
edj3
Leawood, Kansas
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May 2019
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Jul 29, 2020 11:33AM
edj3
wrote:
And it's a good thing I like MRIs OK because the images didn't line up and it needs to be redone on Friday. Yay? Hope my vein heals enough for another IV. On the positive side, I don't have to pay for this one so that's good.
Tried the tamoxifen, no thanks.
Dx
4/9/2019, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC)
Dx
5/6/2019, LCIS, Left, <1cm, 0/1 nodes
Surgery
5/6/2019 Lumpectomy; Lymph node removal: Sentinel
Radiation Therapy
6/3/2019 Whole-breast: Breast
Hormonal Therapy
9/23/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Jettie
Joined:
Feb 2020
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81
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Sep 24, 2020
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Jul 29, 2020 09:20PM
Jettie
wrote:
EDJ3, I feel alseep in mine last week too even with all that noise, but its is kinda rythmic :D
Renbird, depending on what type of MRI machine it is, i think the extra wide one I went in feet first, and the normal head first, I must admit i preferred the extra wide.
Dx
2/14/2020, IDC, Right, 5cm, Stage IIIB, Grade 2, ER+/PR+, HER2+ (IHC)
Chemotherapy
3/11/2020 Carboplatin (Paraplatin), Taxotere (docetaxel)
Targeted Therapy
3/11/2020 Herceptin (trastuzumab)
Targeted Therapy
3/11/2020 Perjeta (pertuzumab)
Surgery
8/11/2020 Lymph node removal: Right; Mastectomy: Right
Radiation Therapy
Whole-breast: Breast
renbird
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Jul 2020
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77
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Jan 17, 2021
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Jul 29, 2020 10:31PM
renbird
wrote:
Thanks, LynnVB!
Those all sound like great tips. Much appreciated! : ) -Renbird
renbird
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Jul 29, 2020 10:32PM
renbird
wrote:
Hi Jettie -
Thanks for your post... huh, I guess I can look at it as a chance to catch a few winks... : ) I tend to be a bit anxious about these things. You have a far better attitude! : ) -Renbird
renbird
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Jul 29, 2020 10:37PM
renbird
wrote:
Hi edj3-
Sorry you've had to got through all this stuff. An MRI re-do! Ugh!
I think your diagnosis and mine are similar, except my tumor is 1.3 cm and only in the right breast. I am just starting the process of trying to decide between a uni-mastectomy and lumpectomy (with rad, like you had). I see you disliked the Tamoxifen. That's also in my future. Any other wisdom to offer? -Renbird
edj3
Leawood, Kansas
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Jul 30, 2020 04:37AM
edj3
wrote:
I had concerns about long term side effects from tamoxifen (which was indicated for me because turns out I have osteoporosis). But I did give it a try.
I'm an avid runner and within 10 days of starting tamoxifen, I experienced dangerously high heart rates within about 30 seconds of starting my runs (over 180 bpm). I've run all my life and so I know what my heart rate does on all sorts of runs, and those numbers were not at all normal for me, not to mention unsafe.
Everyone is different though. As someone on the care team told me, others might also have that same side effect but not be runners so not have that be a showstopping side effect. I urge to you to carefully consider all your options and at least give your doctor's recommendation a try. You can always stop if you do have any issues.
I'm good with my decision, and should a recurrence happen I will not beat myself up with shoulds and oughts. I did try it, it greatly interfered with things that make my life very enjoyable and I made the conscious decision to stop.
Tried the tamoxifen, no thanks.
Dx
4/9/2019, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC)
Dx
5/6/2019, LCIS, Left, <1cm, 0/1 nodes
Surgery
5/6/2019 Lumpectomy; Lymph node removal: Sentinel
Radiation Therapy
6/3/2019 Whole-breast: Breast
Hormonal Therapy
9/23/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
renbird
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Jul 2020
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77
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Jan 17, 2021
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Jul 30, 2020 01:50PM
renbird
wrote:
Hi edj3-
Thanks for this follow up. I hear you... it'll be a tough decision to stop Tamoxifen if my system doesn't handle it well. I'm glad you've found comfort with your decision. Sounds like you take good care of yourself too. Thanks again. -Renbird
wallycat
Port Townsend, WA
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Apr 2007
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2,596
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Jan 19, 2021
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Aug 14, 2020 11:16AM
wallycat
wrote:
I've had two and my twin sister has had several. Just as described. For my sister, she had painful positioning/sternum pain. For me, I had zero issues. THe machine broke down and had to be repaired while I was in it so I spent an extra 40 minutes tacked on to the procedure. Slept through all of it mostly.
I will say that I worked at GE when they were first building MRI machines and I often volunteered to be a guinea pig for scans (no dye with those) and even then, I slept through it all (great way to get paid!).
I had no reaction to the dye.
Best to you.
Dx 4/07 1 month before turning 50; ILC 1.8cm, ER+/PR+, HER2 neg., Stage 1, Grade 2, 0/5 nodes. Onco score 20, Bilateral Mast., tamoxifen 3-1/2 years, arimidex-completed 4/20/2012
Ladyc2020
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Jul 2020
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127
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Jan 20, 2021
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Aug 15, 2020 12:38AM
Ladyc2020
wrote:
i must be a scardy cat for sure, cos I can’t imagine falling asleep! I had to focus very deep to remain calm. Ha mine today.
Dx
8/6/2020, IDC, Left, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- (FISH)
Hormonal Therapy
8/21/2020 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Surgery
9/18/2020 Lumpectomy: Left
Dx
9/23/2020, DCIS, Left, 2cm, Stage 0, Grade 1
Radiation Therapy
10/30/2020 Whole-breast: Breast, Chest wall