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Topic: How do you learn of your test results?

Forum: Diagnosed and Waiting for Test Results —

Share with and support others all waiting for test results from CAT scan, PET scan, Oncotype tests, Mammaprint, FISH, IHC, and other diagnostic tests.

Posted on: Dec 4, 2020 03:58PM

berries wrote:

I had a bone and CT yesterday around Noon and into the afternoon and am just playing the crazy waiting game right now.

Question for you ladies:

1. How does your MO provide your results? Over the phone the next day? Do you have to wait more than a day?

2. Do you call to bug them? I feel like the longer goes by past the test, maybe it is bad news

3. Do you read into the timing? I would think if it were GOOD news, she'd want to call me right away so I don't sit in a puddle of anxiety for a while day.... thoughts?

Any help is VERY appreciated as it sit here and wait wait wait...

Dx 8/6/2019, DCIS/IDC, Left, 5cm, Stage IB, Grade 1, 4/4 nodes, ER+/PR+, HER2- Surgery 9/18/2019 Mastectomy: Left; Reconstruction (right) Chemotherapy 10/24/2019 AC + T (Taxol) Surgery 2/17/2020 Reconstruction (left): Silicone implant Radiation Therapy 3/31/2020 Whole-breast: Breast, Lymph nodes Chemotherapy 4/30/2020 Xeloda (capecitabine) Hormonal Therapy 5/8/2020 Arimidex (anastrozole)
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Dec 4, 2020 05:31PM - edited Dec 4, 2020 05:31PM by SATresident

I learned early on to request that all test results also be sent to my primary's office. My primary will let me know the results over the phone, asap, even if she did not order the test. I don't think my MO or my SO ever give results over the phone, I've asked, and I get too nervous having to wait until my next app with them. ... Wishing you the best with your results!

Dx 2/2018, IDC, Left, 2cm, Stage IIA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Surgery 4/19/2018 Mastectomy: Left; Reconstruction (left): Tissue expander placement Chemotherapy 6/17/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 11/15/2018 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Dec 4, 2020 06:46PM AliceBastable wrote:

My results are posted to my patient portal as soon as they're available. I like seeing them first so I can make a list of questions to ask my doctor. I think when I was going through the diagnosis stage, I'd get calls from whatever doctor had ordered the test or scan. Never try to read anything into how long it takes because you have no idea how busy the radiologist is, or the person who sends the results to your doctor, or your doctor. You aren't their only patient, and this year, some places are super busy and some have less traffic than usual.

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Boring. Hope it stays that way. Dx 5/2018, ILC, Left, 2cm, Stage IA, Grade 1, 1/1 nodes, ER+/PR+, HER2- Surgery 7/10/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/7/2018 Radiation Therapy 10/28/2018 Whole-breast: Breast, Lymph nodes
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Dec 5, 2020 05:47AM Jelson wrote:

Initially, when first diagnosed by needle biopsy, the surgeon called me and told me over the phone. I live relatively close to the two hospitals where I get my care and I got in the habit of going to the hospitals to pick-up the doctor's reports and copies of the scans in person at medical records. I am followed most closely by my RO who calls me within a day or two with the results of scans. If they aren't busy and are fully staffed, the breast imaging unit in the same hospital as the RO actually allows patients to wait while their radiologist checks the mammos and I can therefore get my results that day. My RO still calls though. When I had a D&C for endometrial cancer though in December several years ago, I didn't hear from the OB/GYN so I got the report myself and at my visit in January at which he confirmed what I already knew, that I had endometrial cancer, I confronted him with the date on the report and he said he hadn't called me because he didn't want to spoil my Christmas. I actually snarled back, I am Jewish!!!! I agree with Alice, being able to read the results on my own several times and to have time to formulate questions has worked for me. My primary's portal is still being set up and I my cancer care has been through different facilities so I haven't bothered setting up portals nor have I walked to get scan results during Covid, so I think I need to set up access to their portals now, a good reminder.

Dx 4/17/2009, DCIS, <1cm, Stage 0, Grade 3, 0/0 nodes, ER+/PR+
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Dec 5, 2020 08:27AM LivinLife wrote:

With biopsies I typically just wait for the call - I've not had anything like that appear in my portal prior to hearing. I believe they are fairly timely with calling... With scans, other tests and such sometimes these are posted in the portal and sometimes they are held. I have many health issues requiring various testing over time. I no longer wait on these things. I request a copy of results within a day or so after the scan or test. Part of this is b/c I want to know as soon as possible. There was another time when there was a concerning finding and no-one notified me - 3 months later an unrelated doc just happened to ask if I knew about........ Additionally, I've been told of important findings during an appointment and I'm one who needs time to process. During such times I'm just taking it in and then don't have the headspace to consider questions or make sure I understand things properly. Having the information before appointments allows me to take it in, develop some understanding and come up with questions before my related appointment.

Everyone has their own idea of what works best for them.... You're getting some ideas about what you thinks will work best for you...

with expansive comedo necrosis & weak ER/PR Dx 7/2020, DCIS, Left, 2cm, Stage 0, Grade 3, 0/1 nodes, ER+/PR+ Surgery 8/31/2020 Mastectomy: Left; Prophylactic mastectomy: Right
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May 25, 2021 06:29PM - edited May 25, 2021 06:31PM by BlueStar14

This Post was deleted by BlueStar14.

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