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Topic: How do I retest for IDC?

Forum: Diagnosed and Waiting for Test Results —

Share with and support others all waiting for test results from CAT scan, PET scan, Oncotype tests, Mammaprint, FISH, IHC, and other diagnostic tests.

Posted on: May 30, 2021 01:46AM

Sharon_8 wrote:

Last month I had excisional biopsy, after which the specimen was sent to the lab and I was diagnosed with invasive ductal carcinoma grade 1

Please is there a way to verify the result?

Is there a way to have a retest?(in the absence of any other lump).

I have undergone other blood tests, xrays and scans, and the results came out good. (confirming that the supposed cancer cells has not spread to any other part of my body)

A mastectomy has been recommended by the doctor, but I need to verify the diagnosis before making such a decision.

I am 26yrs

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May 30, 2021 06:00AM Rah2464 wrote:

Sharon you should be able to request that your slides be sent to another facility to evaluate. Please discuss with your doctor getting a second read on the pathology by a different lab and discuss where best to send the sample to. Sorry you are having to deal with this at your age. You don't mention the size of the mass or your receptor status (ER/PR/HER2) but the grade sure is some good news. I wish you all the best. Please keep us updated on how you are doing.

Dx 5/23/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 6/26/2018 Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 7/26/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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May 30, 2021 08:41AM flashlight wrote:

When I changed my MO and went to a different hospital she had my frozen specimen retested. I didn't know this was being done until I received the results. I thought I was PR+ and it was confirmed I was PR-. IDC was never in question. Why do you feel your diagnosis is incorrect?

Dx 11/15/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR-, HER2- Dx DCIS, Left, <1cm, Stage 0, Grade 1, 0/1 nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast Surgery Lumpectomy: Left
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May 30, 2021 10:01AM - edited May 30, 2021 12:39PM by exbrnxgrl

As others have said, you should have no problem getting a second opinion because your tissue samples can be used. Getting second opinions is very common and both your facility and the receiving facility should be very familiar with how to proceed. Take care.

Bilateral mx 9/7/11 with one step ns reconstruction. As of 11/21/11, 2cm met to upper left femur Dx 7/8/2011, IDC, Left, 4cm, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Surgery 9/7/2011 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Dx 11/2011, IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 11/21/2011 Arimidex (anastrozole) Radiation Therapy 11/21/2011 Bone Hormonal Therapy 6/19/2014 Femara (letrozole) Hormonal Therapy Aromasin (exemestane)
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May 30, 2021 11:45AM Beesie wrote:

Sharon, I am so sorry you are facing breast cancer at such a young age.

Breast cancer often does not form as a lump. So the absence of a lump does not put into question a breast cancer diagnosis. Similarly, it is very normal to be diagnosed with breast cancer and have blood tests, xrays and scans come back clear.

That said, if you have any uncertainty about your diagnosis, it's an good idea to have the biopsy pathology slides reread by a different pathologist. My situation was similar to flashlight's - when I changed surgeons and went to a different hospital, they automatically requested the biopsy sample from my original facility and retested it. In my case, all the results were the same. As others have said, you should put this request to your doctor.



Dx 9/15/2005 Right, 7cm+, DCIS-Mi, Stage IA, Gr 3, 0/3 nodes, ER+/PR- ** Dx 01/16/2019 Left, 8mm, IDC, Stage IA, Gr 2, 0/3 nodes, ER+/PR-, HER2- (FISH) ** Surgery 11/30/2005 MX Right, 03/06/2019 MX Left ** Hormonal Therapy 05/2019 Letrozole
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May 31, 2021 01:41AM Sharon_8 wrote:

Thanks everyone for taking the time to reply, I didn't know the specimen would still be available after 1 month. I appreciate the insights and suggestions,would request for the specimen as soon as possible.

Btw,the diagnosis only read "invasive ductal carcinoma;NOS;SBR grade1, Score 5/9".

Hormone receptor and HER2 status wasn't provided. Mass size wasn't also mentioned in the biopsy result, but the ultrasound I had earlier showed 1.73*1.25cm.

The diagnosis may not be wrong,guess I just want it to be, for one reason;there is no known case of cancer in my both parents family, for another I fear losing a part of my body and chemotherapy. The report alone multiplied my age, affected my sleep, daily activities and mental wellbeing.

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May 31, 2021 02:49AM AliceBastable wrote:

Sharon_8

The majority of breast cancers don't have a genetic or family history connection. And the mass size comes from imaging and final pathology, not from the biopsy. But you should have more information from the biopsy, such as the hormone receptor status. Don't get ahead of yourself, though; you may not need chemo, although it's more likely if you're younger. But a lot of women do just fine with it and continue working and doing other normal activities, including sports.

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Boring. Hope it stays that way. Dx 5/2018, ILC, Left, 2cm, Stage IA, Grade 1, 1/1 nodes, ER+/PR+, HER2- Surgery 7/10/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/7/2018 Radiation Therapy 10/28/2018 Whole-breast: Breast, Lymph nodes
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May 31, 2021 11:26AM flashlight wrote:

Sharon, There are threads here with young women in their 20s that maybe the mods can direct you to. It may be helpful. You are so young and I know it is overwhelming. Could you have a lumpectomy and then decide on a mastectomy? Can you go for a 2nd opinion?

Dx 11/15/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR-, HER2- Dx DCIS, Left, <1cm, Stage 0, Grade 1, 0/1 nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast Surgery Lumpectomy: Left

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