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Jul 18, 2021 01:45PM
I just wanted to add my experience. I also was diagnosed with DCIS, Grade 3, comedo necrosis and ER-/PR-. My surgeon actually recommended mastectomy and asked if I would like to have a bilateral mastectomy. I had a second opinion, who at first suggested lumpectomy and rads, but after looking at my MRI, which appeared to show the potential for spread in my lymph nodes, he also suggested mastectomy. (Fortunately, my lymph nodes were clear). As my surgeon pointed out, if there is a recurrence or new cancer that is hormone receptor negative, there are fewer tools in the toolbox for fighting it.
For me, I feel I have done my best to treat what I had and keep it from recurring. That doesn't mean it won't happen, but if it does, I will know that I did what I could. And people have more recurrences after mastectomy than is commonly discussed, so I never think of it as a complete “cure."
Obviously every situation and person is different, but I think it is important that your surgeon listens to you and your concerns. They are your breasts, after all!
Re-excision for close anterior margin 10 days after BMX.
10/31/2018, DCIS, Left, Stage 0, Grade 3, ER-/PR-
12/10/2018, DCIS, Left, 2cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR-
12/10/2018 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Latissimus dorsi flap; Reconstruction (right): Latissimus dorsi flap
9/13/2019 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant