Topic: Waiting on HER 2 results

Forum: Diagnosed and Waiting for Test Results — Share with and support others all waiting for test results from CAT scan, PET scan, Oncotype tests, Mammaprint, FISH, IHC, and other diagnostic tests.

Posted on: Sep 8, 2021 12:46PM

Posted on: Sep 8, 2021 12:46PM

bcnewbie wrote:

Hello everyone! I am newly diagnosed with Invasive ductal carcinoma, grade 2, and ductal carcinoma in situ (DCIS), nuclear grade 3, solid and cribriform patterns with focal necrosis and microcalcifications.

I just received word that I am ER+/PR+ and my HER 2 results with a score of 2 and so now I am waiting for additional staining (FISH).

Has anyone been in this situation? I'm curious how significant a score of 2 is? How likely is it to come back positive? I am also waiting to schedule genetic testing and wondering how any of this might affect the path of my treatment. Any information would be helpful!

Also just wanted to say how informative and helpful this forum is! It has answered so many questions for me!

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Sep 8, 2021 02:08PM minustwo wrote:

BC - welcome although we're sorry you have to be here. I was ER/PR negative but HER2+, but you'll find lots of women who are triple positive. I just wanted to say that it's not a bad thing to be HER2+. There are so many treatments now that are not otherwise available. One frequent result is that you have chemo before surgery (neoadjuvant), but each MO is different.

The waiting is terrible we know. Try to keep your mind occupied with walks or binge watching TV. Hope the wait isn't too long.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Sep 8, 2021 02:53PM livinlife wrote:

Just want to welcome you BCnewbie! I can't really add anything to what MinusTwo said.... At this point you're waiting on more results to firm up a plan and the waiting is soooo difficult. Do the best at taking care of you during this time.....

with expansive comedo necrosis & weak ER/PR Dx 7/2020, DCIS, Left, 2cm, Stage 0, Grade 3, 0/1 nodes, ER+/PR+ Surgery 8/30/2020 Mastectomy; Mastectomy (Left); Prophylactic mastectomy; Prophylactic mastectomy (Right)
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Sep 8, 2021 03:23PM - edited Sep 8, 2021 03:23PM by bcnewbie

Thank you for your responses LivinLife and MinusTwo! Just got the call and I AM HER2 negative! I'm so grateful at how quickly my healthcare provider is able to give me answers! It's also nice to hear the encouragement and feedback of those who have experienced this already! Thank you so much!

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Sep 8, 2021 04:12PM moderators wrote:

Hi BCnewbie and welcome to,

We're so very sorry to hear of your diagnosis, but we're really glad you've found us. As you can already see, our Community is full of amazing members always willing to offer advice, information, encouragement, and support -- we're all here for you!

You mention waiting for genetic testing and what that could mean for your treatment. The main site has an extensive section on Genetic Testing that could give you some great insight on what this could all mean.

We hope this helps and please let us know if there's anything at all we can do to help! Welcome again!

--The Mods

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Dec 24, 2021 12:34AM cinnkat wrote:

My results were thesame as yours. I just got the official they the Her2 FISH came back negative.

Dx 11/2013, DCIS, Left, 6cm+, Stage 0, ER+/PR-
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Jan 17, 2022 11:31AM mmbrown wrote:

I'm in the same boat now as you were in & hopefully my result also comes back negative! So happy for you. 💖

Surgery 3/9/2022 Lymph node removal (Left): Underarm/Axillary; Mastectomy (Left): Nipple Sparing, Radical, Skin Sparing; Mastectomy (Right): Simple; Reconstruction (Left): Tissue Expander
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Jan 18, 2022 07:49PM MomofFarmBoys wrote:

Yep, I'm new and not even sure of all my numbers. Had many appointments last week but we are still waiting for my HER2 results. This waiting is so hard! I was told today that maybe by Friday I'll have results. I had my regular screening mammagram the 9th of December. It seems like such a long time ago.

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Jan 18, 2022 08:53PM moderators wrote:

Welcome, MomofFarmBoys! We're so sorry you find yourself here in this waiting game, we know it's not easy. We hope you get your results soon, please do keep us posted!

The Mods

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Jan 22, 2022 12:49PM - edited Jan 22, 2022 12:50PM by blinx

MomofFarmBoys - It's excruciating waiting, I know. I have 3 tumors and got HER2 results in for 2 of them fairly quickly. The 3rd one they wanted to run several times, because it didn't make sense. 2 tumors were TNBC and the 3rd one tumor turned out to be HER2+. Had to wait 5 weeks for that result. It delayed, and then changed my planned chemo treatment. Hoping you get results and a treatment plan soon.

Dx July 2007 DCIS Grade 3 (at age 46); Lumpectomy Sept 2007. ER+/PR-; Finished 33 rad tx Jan 2008. 3.5 years of Tamoxifen then quit.. Chemotherapy 3/1/2022 Other Dx DCIS, Right, <1, Stage 0, ER+ Dx IDC, Both breasts, 6cm+, Stage IIIC, Grade 3, ER-/PR-, HER2+, ISH
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Mar 1, 2022 05:57PM sarahmaude wrote:

I’m also waiting on FISH results. Have been since 2/17. Apparently there are a lot of delays. My hospital sends them out. It’s so hard to wait for so long when it determines the timing and types of treatment.

You are not alone

Hormonal Therapy 2/17/2022 Arimidex (anastrozole) Surgery 3/31/2022 Lumpectomy (Left) Chemotherapy 5/4/2022 Taxotere (docetaxel), Cytoxan (cyclophosphamide) Dx IDC, Left, 4cm, Stage IIA, Grade 3, ER+/PR-, HER2- Radiation Therapy Left breast

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