Topic: I'm Back after 16 years!

Forum: Diagnosed and Waiting for Test Results — Share with and support others all waiting for test results from CAT scan, PET scan, Oncotype tests, Mammaprint, FISH, IHC, and other diagnostic tests.

Posted on: Jan 7, 2022 04:06PM

Posted on: Jan 7, 2022 04:06PM

chuckee1104 wrote:

Well, here I am againSad. First diagnosis was 2004, ER+, PR+, Her 2+, chemo (Adriamycin/Ctyoxin/Taxotere, Herceptin), radiation, removal of scar tissue (and breast lift) 5 years ago. Now new cancer ER-, PR-, Her2 2+ waiting for FISH results and PET scan. I was hoping to have the option to use the immuno onc drugs which seem easier, but may need to go back on the "Red Devil". I was told by a nurse practitioner, that I should get a different treatment if I previously had the first 3 due to risk of cardio toxicity. My Onc (who is the same as 16 years ago and is wonderful) says that it really depends on my echo gram which is being scheduled. Just wanted to hear from other treating physicians, what is the normal treatment for Triple Negative if AD/CY/TX were previously used.


I've already wrapped my mind around this chemo thing again. As my oncologist says, "I'm experienced":-).

Immunotherapy 1/25/2022 Chemotherapy 1/25/2022 Taxotere (docetaxel), Carboplatin (Paraplatin) Chemotherapy 1/25/2022 Other
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Jan 7, 2022 05:38PM moth wrote:

I'm sorry you find yourself here again

protocols for triple negative are being rewritten as we speak. carboplatin + taxol + Keytruda is what I see most often, with or without xeloda/capecitabine for a year after depending on risk stratification. I suggest you have a look at this thread https://community.breastcancer.org/forum/72/topics...

and make sure your oncologist is looking at the very latest guidelines for TN as it's literlly changed just in the past 6 months or so...

fingers crossed for good PET results

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- Surgery 12/12/2017 Lumpectomy; Lumpectomy (Left); Lymph node removal Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole breast: Breast Dx 2/2020, IDC, Left, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/18/2020 Tecentriq (atezolizumab) Chemotherapy 11/25/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 12/9/2020 External Hormonal Therapy 12/15/2020 Femara (letrozole) Radiation Therapy 3/3/2021 External Local Metastases 3/3/2021 Radiation therapy: Bone Targeted Therapy 1/1/2022 Trodelvy (sacituzumab govitecan-hziy)
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Jan 8, 2022 10:31AM chuckee1104 wrote:

Thank you for the information. Just found out that I am Her2+, so different treatment altogether.. PET was good. Getting ready to start right after port placement on Friday. Now wondering about the treatments and how they will affect me.

Immunotherapy 1/25/2022 Chemotherapy 1/25/2022 Taxotere (docetaxel), Carboplatin (Paraplatin) Chemotherapy 1/25/2022 Other
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Jan 8, 2022 11:40AM elainetherese wrote:

chuckee,

Ugh, sorry to hear that you're back after 16 years. Lucky you, there are some new HER2+ treatments since you last were here -- Perjeta, Kadcyla, Enhertu, Nerlynx. I'm not sure you'd do full-strength AC again -- that's got a lifetime limit. Hope you figure out your treatment plan soon! ((Hugs))

DX IDC June 28, 2014, 5 cm., 1 node tested positive (fine needle biopsy); 0/20 after neoadjuvant chemo + ALND; Grade 3; ER+ PR+ HER2+ Neoadjuvant chemotherapy starting 7/23/14 ACX 4, Taxol X 12, Perjeta X 4; Herceptin: one year Chemotherapy 7/22/2014 AC Targeted Therapy 9/16/2014 Perjeta (pertuzumab) Targeted Therapy 9/16/2014 Herceptin (trastuzumab) Chemotherapy 9/16/2014 Taxol (paclitaxel) Surgery 1/11/2015 Lumpectomy; Lumpectomy (Right); Lymph node removal; Lymph node removal (Right): Underarm/Axillary Hormonal Therapy 2/24/2015 Aromasin (exemestane), Zoladex (goserelin) Radiation Therapy 3/8/2015 Breast, Lymph nodes
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Jan 8, 2022 12:00PM moderators wrote:

Chuckee, we're so sorry you're back, and dealing with this new diagnosis. Please, remember that If you need us, we're here to help.

Best wishes,

From the Mods

To send a PM to the Mods: community.breastcancer.org/my/...
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Jan 12, 2022 02:32PM elderberry wrote:

Chuckee: I am sorry that you have to return to Cancerlandia after 16 years. It must be such a shock. HER2+ has options. Is Herceptin/Perjeta on the table for you?

De Novo - this isn't a "brave battle" - it is a "furious struggle" Dx 3/6/2019, IDC, Left, 5cm, Stage IV, metastasized to liver, HER2+ Targeted Therapy Herceptin (trastuzumab) Chemotherapy Taxol (paclitaxel) Targeted Therapy Perjeta (pertuzumab)
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Jan 12, 2022 03:32PM chuckee1104 wrote:

Treatment plan is Taxotere/Carboplatin and Herceptin/Perjeta. My fingers and toes are still numb (neuropathic pain) from the Taxotere. Are these drugs going to take my hair out again? Wondering what to do about my diet. Is there a place to go here where I can find more details. I guess I'll get the deep powder taken off my nails. Last time they separated from the nail bed.

Thanks for your assistance. Really appreciated


Immunotherapy 1/25/2022 Chemotherapy 1/25/2022 Taxotere (docetaxel), Carboplatin (Paraplatin) Chemotherapy 1/25/2022 Other
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Jan 12, 2022 09:28PM sun-shine wrote:

Hi Chuckee - Sorry to hear you are back after 16 years. Many people use DigniCap, Penguin Cold Caps or other cold caps to save some of their hairs successfully during chemo treatment. You may give a try if you want. You can find lots of useful information on this website shared by other people.

Surgery 10/29/2021 Mastectomy (Left): Simple Hormonal Therapy 3/26/2022 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy 3/31/2022 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Dx IDC, Left, 2cm, Stage IB, Grade 2, ER+/PR+, HER2-
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Jan 15, 2022 01:51PM jasmin2020 wrote:

chuckee1104 So sorry you are back on this forum after all these years. Glad to hear your PET scan was good. I am also ER/PR negative and HER2 positive. They caught it early so I only had to do weekly Taxol for 12 weeks and Herceptin for a year (after the double mastectomy). About hair loss, I had great success with the Paxman cold capping system. I kept most of my hair. They have a Facebook group that has been a wonderful source of information and inspiration, Paxman Scalp Cooling Group , I would highly recommend checking it out. Best of luck to you, sending lots of positive vibes!!!!

Dx 12/15/2020, DCIS with multifocal microinvasion, Left, 6cm+, Grade 3, ER-/PR-, HER2+ Surgery 1/20/2021 Mastectomy; Mastectomy (Right); Reconstruction (Right): Tissue Expander Surgery 1/20/2021 Mastectomy; Mastectomy (Left); Reconstruction (Left): Tissue Expander Targeted Therapy 2/28/2021 Herceptin (trastuzumab) Chemotherapy 2/28/2021 Taxol (paclitaxel)
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Jan 22, 2022 01:00PM blinx wrote:

Chuckee1104 - It stinks, doesn't it? I managed to make it to 14 years without a recurrence, and then boom! At least last time I didn't have chemo. This time around I have a mixed bag of pos/neg. AC for 4 treatments, then taxol/heraceptin for 12, with perjeta every 3 weeks. Almost went on the immunotherapy until they found out the HER+ bit. But so glad that there are many new options along with the old standbys. The old drugs are nothing to sneeze at either -- they're still quite effective. At least this time, additional drugs like Emend make chemo more doable. Hopefully you'll be on your way to starting treatment soon.

Dx July 2007 DCIS Grade 3 (at age 46); Lumpectomy Sept 2007. ER+/PR-; Finished 33 rad tx Jan 2008. 3.5 years of Tamoxifen then quit.. Chemotherapy 3/1/2022 Other Dx DCIS, Right, <1, Stage 0, ER+ Dx IDC, Both breasts, 6cm+, Stage IIIC, Grade 3, ER-/PR-, HER2+, ISH
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Feb 25, 2022 03:39PM whatnow wrote:

I am so sorry you are facing this again. My dx was 2005, and my onc said I was “basically cured,” but here I am on here researching again as I am facing a lung nodule that my PET scan didn’t like (5.0 SUV uptake). So I wish you all the best, all the hugs, all the support, all the good wishes that you can tolerate. 🙂

Age 46 at dx. Initial finding 1.8 cm. MRI found a 2nd, smaller primary tumor in same breast the day before mastectomy ("close to, but not touching chest wall"). Stopped chemo after 1 treatment due to unease with risk:benefit ratio. Dx 4/1/2005, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+ Surgery 4/30/2005 Mastectomy: Right Chemotherapy 6/30/2005 AC + T (Taxol) Hormonal Therapy 12/31/2005 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 12/31/2007 Aromasin (exemestane)

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