Share with and support others all waiting for test results from CAT scan, PET scan, Oncotype tests, Mammaprint, FISH, IHC, and other diagnostic tests.
Posted on:
Jan 7, 2022 05:06PM
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Jan 13, 2022
chuckee1104
wrote:
Well, here I am again
. First diagnosis was 2004, ER+, PR+, Her 2+, chemo (Adriamycin/Ctyoxin/Taxotere, Herceptin), radiation, removal of scar tissue (and breast lift) 5 years ago. Now new cancer ER-, PR-, Her2 2+ waiting for FISH results and PET scan. I was hoping to have the option to use the immuno onc drugs which seem easier, but may need to go back on the "Red Devil". I was told by a nurse practitioner, that I should get a different treatment if I previously had the first 3 due to risk of cardio toxicity. My Onc (who is the same as 16 years ago and is wonderful) says that it really depends on my echo gram which is being scheduled. Just wanted to hear from other treating physicians, what is the normal treatment for Triple Negative if AD/CY/TX were previously used.
I've already wrapped my mind around this chemo thing again. As my oncologist says, "I'm experienced":-).
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moth
BC
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Jan 18, 2022
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Jan 7, 2022 06:38PM
moth
wrote:
I'm sorry you find yourself here again
protocols for triple negative are being rewritten as we speak. carboplatin + taxol + Keytruda is what I see most often, with or without xeloda/capecitabine for a year after depending on risk stratification. I suggest you have a look at this thread https://community.breastcancer.org/forum/72/topics...
and make sure your oncologist is looking at the very latest guidelines for TN as it's literlly changed just in the past 6 months or so...
fingers crossed for good PET results
I take weekends off Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds
Dx
12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC)
Surgery
12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel
Chemotherapy
2/14/2018 AC + T (Taxol)
Radiation Therapy
8/13/2018 Whole-breast: Breast
Dx
2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2-
Chemotherapy
3/18/2020 Taxol (paclitaxel)
Immunotherapy
3/19/2020 Tecentriq (atezolizumab)
Chemotherapy
11/26/2020 Abraxane (albumin-bound or nab-paclitaxel)
Dx
12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, PR-, HER2- (IHC)
Radiation Therapy
12/9/2020 External: Chest wall
Dx
1/28/2021, IDC, Left, Stage IV, metastasized to bone
Radiation Therapy
3/3/2021 External: Bone
chuckee1104…
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Jan 8, 2022 11:31AM
chuckee1104
wrote:
Thank you for the information. Just found out that I am Her2+, so different treatment altogether.. PET was good. Getting ready to start right after port placement on Friday. Now wondering about the treatments and how they will affect me.
ElaineThere…
OK
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Jan 17, 2022
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Jan 8, 2022 12:40PM
ElaineTherese
wrote:
chuckee,
Ugh, sorry to hear that you're back after 16 years. Lucky you, there are some new HER2+ treatments since you last were here -- Perjeta, Kadcyla, Enhertu, Nerlynx. I'm not sure you'd do full-strength AC again -- that's got a lifetime limit. Hope you figure out your treatment plan soon! ((Hugs))
DX IDC June 28, 2014, 5 cm., 1 node tested positive (fine needle biopsy); 0/20 after neoadjuvant chemo + ALND; Grade 3; ER+ PR+ HER2+ Neoadjuvant chemotherapy starting 7/23/14 ACX 4, Taxol X 12, Perjeta X 4; Herceptin: one year
Chemotherapy
7/22/2014 AC
Targeted Therapy
9/16/2014 Perjeta (pertuzumab)
Targeted Therapy
9/16/2014 Herceptin (trastuzumab)
Chemotherapy
9/16/2014 Taxol (paclitaxel)
Surgery
1/11/2015 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary
Hormonal Therapy
2/24/2015 Aromasin (exemestane), Zoladex (goserelin)
Radiation Therapy
3/8/2015 Breast, Lymph nodes
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Jan 18, 2022
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Jan 8, 2022 01:00PM
Moderators
wrote:
Chuckee, we're so sorry you're back, and dealing with this new diagnosis. Please, remember that If you need us, we're here to help.
Best wishes,
From the Mods
Elderberry
BC
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Jan 17, 2022
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Jan 12, 2022 03:32PM
Elderberry
wrote:
Chuckee: I am sorry that you have to return to Cancerlandia after 16 years. It must be such a shock. HER2+ has options. Is Herceptin/Perjeta on the table for you?
De Novo - this isn't a "brave battle" - it is a "furious struggle"
Dx
3/6/2019, IDC, Left, 5cm, Stage IV, metastasized to liver, HER2+
Targeted Therapy
Herceptin (trastuzumab)
Chemotherapy
Taxol (paclitaxel)
Targeted Therapy
Perjeta (pertuzumab)
chuckee1104…
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Jan 12, 2022 04:32PM
chuckee1104
wrote:
Treatment plan is Taxotere/Carboplatin and Herceptin/Perjeta. My fingers and toes are still numb (neuropathic pain) from the Taxotere. Are these drugs going to take my hair out again? Wondering what to do about my diet. Is there a place to go here where I can find more details. I guess I'll get the deep powder taken off my nails. Last time they separated from the nail bed.
Thanks for your assistance. Really appreciated
Sun-Shine
Sacramento, CA, US
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Jan 18, 2022
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Jan 12, 2022 10:28PM
Sun-Shine
wrote:
Hi Chuckee - Sorry to hear you are back after 16 years. Many people use DigniCap, Penguin Cold Caps or other cold caps to save some of their hairs successfully during chemo treatment. You may give a try if you want. You can find lots of useful information on this website shared by other people.
Dx
10/7/2021, IDC, Left, 2cm, Stage IB, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC)
Surgery
10/29/2021 Mastectomy: Left
Chemotherapy
12/10/2021 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Jasmin2020
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Jan 15, 2022
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Jan 15, 2022 02:51PM
Jasmin2020
wrote:
chuckee1104 So sorry you are back on this forum after all these years. Glad to hear your PET scan was good. I am also ER/PR negative and HER2 positive. They caught it early so I only had to do weekly Taxol for 12 weeks and Herceptin for a year (after the double mastectomy). About hair loss, I had great success with the Paxman cold capping system. I kept most of my hair. They have a Facebook group that has been a wonderful source of information and inspiration, Paxman Scalp Cooling Group , I would highly recommend checking it out. Best of luck to you, sending lots of positive vibes!!!!
Dx 12/15/2020, DCIS with multifocal microinvasion, Left, 6cm+, Grade 3, ER-/PR-, HER2+
Dx
12/15/2020, DCIS/IDC, Left, <1cm, Stage IA, Grade 3, 0/2 nodes, ER-/PR-, HER2+
Surgery
1/21/2021 Mastectomy: Left; Reconstruction (left): Tissue expander placement
Surgery
1/21/2021 Mastectomy: Right; Reconstruction (right): Tissue expander placement
Targeted Therapy
3/1/2021 Herceptin (trastuzumab)
Chemotherapy
3/1/2021 Taxol (paclitaxel)
Surgery
11/18/2021 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant