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Mar 18, 2023 08:19PM
I'm sorry you're in this position with so many unknowns and no doctor to ask for even basic info. That's not right. The beginning is always hard and this makes it harder.
I'm not an expert so this is just my guesses based on what I've picked up over the years.
It sounds like they know you have at least one malignant tumor, and it's small. Usually the next info that comes is the pathology of the biopsy, which can tell you the hormonal status of the tumor and some info about the grade. But all of that is still preliminary and can change based on final pathology of the tumor or other later info.
It sounds like the MRI picked up some other suspicious stuff that they want a closer look at. Those lesions *could* be cancerous. In that case, it could either be the same cancer that broke or is breaking out of the duct in different places (if the genetic profile of the tumor is the same) or different cancers growing at the same time. They could also be absolutely nothing, or something that may need to be taken out but is not actually malignant.
Nothing that is in your breast would be considered metastatic. But if you do have multiple tumors or things that need to be taken out, I think it increases the chances that you will be recommended/required to have a mastectomy instead of a lumpectomy. Also if they were different cancers (like one was hormonal and one was not, or one was HER+ and one was not) they'd need to treat according to all of them. (Ie, if any one of them indicated chemo, you'd be recommended for chemo, even though the others alone might not have called for it).
During the early stages you're always waiting for another test result, and the next test result could always make things either worse, better, or stay the same. It makes it very hard because of the uncertainty, unknowns, and fear. But none of it means you'll necessarily have a worse outcome in the long term.
I had a really good experience with the organization Sharsheret. They'll match you to a social worker with experience with breast cancer. Social workers are the best. They have enough background knowledge and health resources that they can help explain medical things. They are a wealth of info for support programs, resources, funding, etc. They can also just be a listening ear or a supportive voice. I only spoke with mine a couple of times, but she helped me with understanding some test results and really made me feel less alone. It's all free. It's a Jewish organization but they work with everybody. I think there are other similar organizations, but this is the one I know and have personal experience with.
Hang in there. It WILL get easier.
Dx at 39. 1.8cm. Oncotype 9.
9/19/2018, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2-
10/18/2018 Lumpectomy; Lymph node removal
11/1/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
12/3/2018 Whole breast: Breast
12/19/2019 Fareston (toremifene)