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All TopicsForum: Benign Breast Conditions → Topic: Anyone ever get Discordant Results from CNB

Topic: Anyone ever get Discordant Results from CNB

Forum: Benign Breast Conditions —

A safe place to worry for members who have not been diagnosed with breast cancer, but have concerns about their breasts.

Posted on: Jul 14, 2017 01:15PM

mommakat wrote:

Hi Ladies,

In your journeys, have you ever had someone say they saw discordant results? My CNB came back B9 last week, and now they called today and said the doc feels the results are discordant with her findings. I am BIRADS 4. So this seems like she suspects a false negative from what I've read.

I have an appt on 8/10 with a BS anyway, since there was a finding of PASH and my GYN wanted me to follow up. And I'm happy that they're looking into it and I want to know the answers. Sounds like they'll likely excise the whole 5cm area.

Just curious if anyone has experience with the discordant results. As I sit and wonder for the next month....


Thanks.

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Jul 14, 2017 01:38PM Michelle_in_cornland wrote:

I have not experienced what you are going through, but I would suggest that you start one new thread under the "just diagnosed" forum. Whether it is pash, or something else, staying on one thread so people can look and respond will be important. It makes conversations very confusing to have several different threads going at the same time and, therefore, some people will not comment.

If they excise the area, you will have a better understanding of what your diagnosis is and what to do about it.

Live free - Oncotype 14, Take things as they come and you can do it!!! Dx 8/8/2016, IDC, Right, 2cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 8/29/2016 Radiation Therapy 10/6/2016 Whole-breast: Breast Hormonal Therapy 2/15/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Prophylactic ovary removal
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Jul 14, 2017 01:43PM MinusTwo wrote:

Momkat - it works better to stick to one thread so we can all follow the back story and previous comments. The three new threads you started are all asking the same question, but we'd have to research back further to understand what's going on.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Jul 14, 2017 07:30PM - edited Jul 14, 2017 07:33PM by EpicSquirrel

I had discordant findings from a CNB. In my case it turns out the radiologist suspected cancer, the pathology showed benign. In that case I had it surgically excised and it turned out to be benign, it turned out to be exactly what pathology said it was, some weird infarcted tissue. (My cancer was found later in a different location)


History of fibrocystic and dense breasts (pain, cysts, aspirations, biopsies). 1.4 cm IDC at age 49 after "benign" flare up earlier this year (2017) Healthy lifestyle, no genetic mutations. Sometimes it is just bad luck. Dx 5/5/2017, IDC, Left, 1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 5/24/2017 Lumpectomy: Left; Lymph node removal: Sentinel Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 17, 2017 07:24AM mommakat wrote:

thanks ladies. Sorry for the extra posts. I'm not even sure which topic I belong in right now. Hate the state of limbo.

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Jul 17, 2017 07:38AM NotVeryBrave wrote:

The radiologist called my benign lymph node CNB pathology "discordant" and it drove me crazy. Basically - he was pretty confident that what he was seeing by US should indicate cancer and the pathology said no. MRI later showed a hole right through the lymph node so it wasn't missed or anything.

So I went into treatment with this big question mark about whether or not I had lymph node involvement. Since I was HER2 positive, I had to have chemo regardless and it wasn't pursued any further. At the time if surgery, the SNB showed no cancer in 3 nodes. But there was also no cancer remaining in the breast.


TCHP x 6 rounds - Complete Pathological Response! Still have to finish the year of Herceptin ... Dx 11/21/2016, DCIS/IDC, Left, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2+ (IHC) Targeted Therapy 12/19/2016 Herceptin (trastuzumab) Chemotherapy 12/19/2016 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 12/19/2016 Perjeta (pertuzumab) Surgery 5/9/2017 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 9/9/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 17, 2017 09:57AM mommakat wrote:

Thanks NotVeryBrave. It is nerve wracking, but I do think it's better to be safe and keep looking, medically speaking. Just hard on the mental part. Happy to hear there wasn't any cancer remaining in the breast! Sending you you healing thoughts and hope the worst is behind you xo

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Jul 17, 2017 11:57AM JoniB wrote:

I had a biopsy with b9 results and was also called back because of discordant results. Unfortunately, it did turn out to be cancer. The good news is they didn't simply accept the b9 results. Things would have been much worse had they not dug deeper (in my case an MRI guided biopsy).

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Jul 18, 2017 03:22PM mommakat wrote:

Thanks JoniB. I whole heartedly agree that it's worse if they don't keeping checking. Thank you for sharing!

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Jul 18, 2017 10:55PM JoniB wrote:

Mommakat I'll be thinking of you and hoping for good results.

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Jul 19, 2017 07:11AM mommakat wrote:

thank you! Smile

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Jul 19, 2017 10:47AM HeartdesiresLife wrote:

My first posting and very scared while waiting for an appointment for mastectomy due to size of DCIS and sentinel node biopsy...needle biopsy result found no node involvement but DCIS, high grade - no well defined tumor, lots of calcification in dense breast. Then the MRI of breast with and without contrast showed 1 axillary lymph node with "eccentric and asymmetric cortex" and gave intermediate level of concern for metastasis and reaffirmed the size of DCIS, largest at 8cm. Needle biopsy done July 6th and MRI done July 13th and the earliest pre-op is August 2nd, so my anxiety level is very high fearing the worst of all possibilities.

I'm hoping with all my might that there is no lymph involvement and that it is DCIS and not an invasive cancer which was misdiagnosed in needle biopsy pathology report as DCIS or just didn't find the invasive part. Also I'm kicking myself for having missed last year's mammogram, which adds to my worry because this wasn't present in October 2015 mammogram and it appears to be fast growing. I'm almost 47 years old. This waiting game is gruesome.

In reading other postings, it appears DCIS may be found along with invasive cancer...so many different ramifications, it is maddening. But this forum has been a mood stabilizer for me, knowing that there are many others and that people are living despite metastasis. So thank you very much!

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Jul 19, 2017 09:50PM mommakat wrote:

I'm sorry heartsdesire! There's so much info here and I hope for the best for you. Hopefully it's purely DCIS which while you never want to hear, it is he earliest BC from what I've learned. Waiting is the worst. Hang in there and keep us posted

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Jul 20, 2017 09:21AM HeartdesiresLife wrote:

Thank you very much mommakat! The surgical oncologist wants another ultrasound guided biopsy of the left side's abnormal lymph node and the mass on the right breast. Hopefully this will all come back negative. It looks like according to the first pathology report, I'm ER- and PR-, I don't see HER result.

At moments I wonder when this whole thing will end and how much I'm bringing down my husband and son. But I must say this scary process has made me more patient and kinder towards others because you don't know what battles everyone is facing.

So cheers to facing the future with optimism and humility.

PS I realize I'm posting this to the wrong forum, so I will move myself to another category. : )

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Aug 10, 2017 12:06PM mommakat wrote:

hi ladies. So my long awaited surgical consult was today...FINALLY! they will call to schedule my surgical biopsy, sometime in September. She was very reassuring that everything is more than likely b9 and fine. Glad that visit is done and looking forward to the surgery. Thanks for your support eveyone

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Aug 10, 2017 04:51PM HeartdesiresLife wrote:

Wonderful mammakat...moving forward with promising prognosis!!!

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Aug 10, 2017 05:45PM MTwoman wrote:

great news mommakat!

Dx 12/10/2002, DCIS, Right, 1cm, Stage 0, Grade 2, 0/3 nodes, ER-/PR-, HER2- Surgery 12/20/2002 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 12/23/2003 Reconstruction (right): Nipple reconstruction Surgery Reconstruction (right): Saline implant Surgery Reconstruction (right): Tissue expander placement Surgery Mastectomy: Right
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Sep 28, 2017 04:25PM mommakat wrote:

FINALLY!

Got my excisional biopsy results. All benign. Some new things not found on the needle biopsy, I'll paste below if anyone has insight. I looked it up. Seems all uneventful. Follow up on 6 months. Yay! Such a relief afte over 3 months of my merry go round.

We were talking about whether I had a family risk of BC, which would perhaps warrant an MRI at some point given my breast density. I reiterated I have no available family history, since I'm adopted. It's frustrating to me, in general. In theory, every biological female relative of mine could have BC and I'd have no idea. Anyone know of anyone who found a place to do genetic testing outside of the normal insurance approval? She seemed to think it was $4k out of pocket. That a eels criminal. I'd love to know....like a missing piece the puzzle.


Intraductal papilloma with focal usual epithelial hyperplasia, radial sclerosing lesion and fibrocyostoc changes including adenosis adenosiis with intraluminal calcifocations, columnar cell hyperplasia and prominent mammary duct ecstasia.

Thanks for your support ladies

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Sep 28, 2017 05:58PM Snosafred wrote:

Great news!!!!! So happy for you!!

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Sep 28, 2017 08:21PM bew66 wrote:

Great to hear, mommakat!  Just want to add, I was adopted too, by maternal family members....so I have no paternal family health info....it really sucks, doesn't it?   If you by chance find any place that can do any sort of testing for genetic or familial health issues (at a reasonable price), please share!

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