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Jan 11, 2021 09:28AM
Here’s an update on quitting Raloxifene: it has been a little more than a month since I quit. Initially, I felt improvement. With sporadic Advil maybe a couple times a week, I felt okay during the day and stiffness would set in late afternoon and evening. I tried a lot of things like increasing water intake, coconut water, tart cherry juice, cut back on processed foods, chamomile tea. I also tried acupuncture and deep tissue massage which hepled some. I felt much better after two acupuncture treatments plus a few days recovery from that. But I have not recovered from the 3rd and 4th treatments. I may cancel this week’s appointment. Saturday, I tried running in the neighborhood, but it was too much and felt a setback in my recovery. So I continue to walk for exercise, ride my bike when the weather allows, stretching and light weights, but I wish I could do more.
I was on Raloxifene for 8.5 months and the drug has a 27-32 hour half life so at this point, I should be back to how I felt before the worst pain started, but I’m not. For it to be completely cleared out, I calculate that day to be mid November, 2021.
I have not read much on this board about Raloxifene side effects (and some people have zero problems), but in case someone else has a similar experience to mine, just thought I would update.
Dx: January 2017, IDC, Stage IIa, 1/23 nodes, <1cm Chemo 2/16/17 Cytoxan Taxotere x4 Radiation 6/8/2017, natural alternative to tamoxifen 3/2021 Stage 4 - mets to bones. Ibrance and Letrozole and Xgeva
1/2017, IDC, Right, <1cm, Stage IIA, Grade 2, 1/23 nodes, ER+/PR+, HER2-