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Jul 31, 2020 07:41PM
Jul 31, 2020 07:46PM
It was pink (I have pale skin), in the light it had a shiny surface, and it had defined borders. It was not scaly or super red, or any of the more extreme things doctors say it should look like. It was not too bothersome in the first few years, but eventually developed a rather constant pin-prick sensation.
Yes, a dermatologist was the route I should have started with, but I didn't know that and it seems like my doctor didn't either. I thought I was doing the right thing by seeing the breast cancer team she sent me to. Turns out they have a pretty poor record on this kind of thing. I sat in front of doctors, radiologists, NPs who didn't know what they were looking at - even someone on the breast cancer team said, "You'd hardly think it's anything." And at that point it was extensive - inches wide.
Hopefully it's not at all the same thing - odds are good it's not - but I just wanted to share that bit of knowledge, that if you have a weird colored patch they can take a small piece of skin and look at it under a microsope and tell you whether it's cancer or eczema or psoriasis, and better to know so you can treat it correctly. Mammos and other breast diagnostic tests are just not helpful for diagnosing Paget's, and many doctors don't know this. Sigh. :(
Diagnosed at 42. Had symptoms of Paget's for years prior to positive biopsy. No Tamox because low% ER.
11/2/2018, Paget's, Right, Stage 0, Grade 3, ER-/PR-, HER2+ (IHC)
11/10/2018 Lumpectomy: Right
11/29/2018, DCIS/Paget's, Right, 1cm, Stage 0, Grade 3, ER-/PR-
12/18/2018 Lumpectomy: Right; Lymph node removal: Sentinel
12/21/2018, DCIS, Right, 2cm, Stage 0, Grade 3, 0/2 nodes, ER-/PR-
1/15/2019 Mastectomy: Right