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Topic: Do most people with intraductal papilloma(s) get them removed?

Forum: Benign Breast Conditions —

A safe place to discuss benign (non-cancerous) breast conditions. Benign breast conditions are unusual growths or other changes in the breast tissue that are not cancer, though some may be associated with an increase in breast cancer risk. Benign breast conditions are quite common.

Posted on: Apr 20, 2021 06:03PM

sadwife wrote:

I am trying to decide between surgery and a wait and watch approach. Might get a second opinion.

My case - 2 papillomas. Surgeon recommended removing them as both are > 1.5 cm in diameter. I have no family history and the pathology is concordant but she thinks they are too big to be left alone. My concerns - I have small breasts plus one of them is right below the nipple so she thinks I might lose sensation and worse, blood flow could get cut off causing me to lose a nipple. She does say that that is extremely rare but.... :(

Hearing stories from both sides (removed vs not removed and the reasons why) would be so helpful to anyone in the same boat!

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Apr 20, 2021 11:01PM kathabus wrote:

I don’t know what most people would do in general...but a lot of us here, maybe most of us, have had a breast cancer diagnosis. With that being said, I have to think a lot of us would want it gone if we knew it was there.

I had a papilloma that was found after my IDC was found. Same breast. So it wasn’t a big deal. We were already going in. So I did not have to think too much on it.

You could watch and wait...but the issue I would have would be this....it’s only going to get bigger. And if you’re worried about the size of it wouldn’t it be best to do it sooner than later? That’s how I would personally think about it.

I’m sorry. I know even though it’s benign it’s still a decision you are struggling with. It might be wise to get a second opinion. It might help you feel more decisive one way or another. Good luck to you


Diagnosed at 43 Years Old, Oncotype DX 10 Dx 2/17/2020, IDC, Right, 2cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2- Surgery 3/23/2020 Lumpectomy; Lymph node removal Radiation Therapy 5/14/2020 Whole-breast: Breast, Lymph nodes, Chest wall Surgery 7/20/2020 Prophylactic ovary removal Hormonal Therapy 8/20/2020 Femara (letrozole)
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Apr 21, 2021 03:46PM flashlight wrote:

I agree with kathabus. Won't the possible complications be worse if the 2 papillomas grow larger? Getting a second opinion from another BS is a good idea. Maybe, he/she would have another thought on the procedure and possible side effects.

Dx 11/15/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR-, HER2- Dx DCIS, Left, <1cm, Stage 0, Grade 1, 0/1 nodes Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast Surgery Lumpectomy: Left
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Apr 22, 2021 12:18PM Monarchandthemilkweed wrote:

I had a papilloma removed 13 years prior to my recent breast cancer diagnosis. I had initially found a lump in the armpit opposite the breast that had the papilloma. I was pregnant at the time. because a lump was found in my armpit they performed an ultrasound on my breasts and found another lump. At the time of the ultrasound they didn’t know what it was. Needle biopsy of both that day. It was a Birads 4. Came back both lumps were benign. The armpit lump was fibroademo with lactational changes. And the one in my breast was a papilloma with other stuff thrown in. They recommended surgery. And I did experience bleeding from my nipple prior to the surgery. The surgery was easy and I was 27 weeks pregnant. I have a scar half way around my nipple. This is the same breast that I later developed breast cancer in. I don’t think there’s an association with papilloma and later developing breast cancer. I have another cyst found in the same breast a few years ago that is benign. This breast is busy. The other breast no issues with ever

Sarah, Chek2 positive Dx 3/11/2021, IDC, Left, <1cm, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 5/9/2021 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 6/27/2021 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Apr 22, 2021 12:21PM Monarchandthemilkweed wrote:

also I was able to breast feed after the surgery to removed the papilloma. That breast did make less milk. But it was fine. That breast was a little smaller but nothing terrible. Still a nice shape.

Sarah, Chek2 positive Dx 3/11/2021, IDC, Left, <1cm, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 5/9/2021 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 6/27/2021 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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May 6, 2021 07:16PM sadwife wrote:

Thanks to everyone who responded! Wanted to update you all that I am done with the lumpectomy. My experience here - community.breastcancer.org/for... Hope it is one (or 2 in my case) and done!

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