Topic: UDH fibroadenoma

Forum: Benign Breast Conditions — A safe place to discuss benign (non-cancerous) breast conditions.

Posted on: Aug 20, 2021 09:20AM

Posted on: Aug 20, 2021 09:20AM

Sunandstars wrote:

Hello! I was just diagnosed with benign fibroadenoma and UDH hyperplasia.

Does anyone know, how much does this increase my cancer risk in the future?

I want it removed because of the elevated risk and visibilitybut my doctor wasn’t really concerned 😟

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Aug 20, 2021 09:35AM beesie.is.out-of-office wrote:

"how much does this increase my cancer risk in the future?"

Probably not at all. If you have no family history of breast cancer or other conditions that increase your risk, with these two conditions your lifetime breast cancer risk could still be below average.

"Mild hyperplasia of the usual type: This does not increase the risk for breast cancer." https://www.cancer.org/cancer/breast-cancer/non-cancerous-breast-conditions/hyperplasia-of-the-breast-ductal-or-lobular.html

"Simple fibroadenomas do not seem to increase breast cancer risk by much, if at all. Complex fibroadenomas seem to increase the risk slightly more than simple fibroadenomas." https://www.cancer.org/cancer/breast-cancer/non-cancerous-breast-conditions/fibroadenomas-of-the-breast.html


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Aug 20, 2021 10:08AM moderators wrote:

Hi Sunandstars, and welcome. In addition to the helpful info Beesie provided above, you might be interested in checking out the main Breastcancer.org site's pages on Fibroadenoma and Usual Ductal or Lobular Hyperplasia.

We hope this helps put you at ease!

--The Mods

To send a PM to the Mods: community.breastcancer.org/my/...
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Aug 20, 2021 11:01AM - edited Aug 20, 2021 11:01AM by Sunandstars

Thank you for replying!

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Aug 20, 2021 05:14PM threetree wrote:

Sunandstars - As with the info Beesie provided, it's my understanding that the general thought out there is that a benign fibroadenoma puts you at no real increased risk, however, I did have a benign fibroadenoma way back in 1972 and I developed breast cancer (diagnosed in 2018) in the exact same spot all these years later.

Times and medical procedures were different in 1972, but I was told at the time that I was at no higher risk of getting breast cancer due to the fibroadenoma. They had removed it and I was left with some ongoing nerve pains and hard scar tissue. Any time I complained about anything in that area over the years, I was told not to worry that it was just old nerve damage and scar tissue. Consequently, when I first noticed something new going on in that area of my breast I chalked it up to the old fibroadenoma and presumed it was just more scar tissue and nerve trouble; even thought some of it was changes in the area due to aging of the scar tissue, breast "sagging", etc. Admittedly, I had stopped getting routine mammograms, but I will say that if what I experienced in 2018 had happened to any other part of that breast or the other breast, I would have gone to get it checked out immediately. I kept presuming they would tell me as in the past, that it was just the old fibroadenoma scar tissue acting up/changing with aging, etc.

Boy, was I ever wrong and I'm paying a price for it. My tumor was pretty large and advanced by the time I finally did go get it checked out.

My point is to do watch that spot of yours and even if they say you are at no higher risk, if anything changes at all, go get it checked out. In my case, I just couldn't believe that cancer would develop in the exact same spot where the excision had been, but it did.

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Aug 20, 2021 05:31PM monarchandthemilkweed wrote:

I had a fibroadenoma removed in the same breast I later developed breast cancer. I also had a regular cyst. No one had every suggested they are related. But thought I’d share my expe

Dx 3/11/2021, IDC, Left, <1, Stage IA, Grade 2, ER+/PR+, HER2- Hormonal Therapy 3/11/2021 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 10/5/2021 Cryotherapy (Left); Cryotherapy (Right); Lumpectomy (Left); Lumpectomy (Right); Lymph node removal (Left): Sentinel, Underarm/Axillary; Lymph node removal (Right): Sentinel, Underarm/Axillary; Mastectomy (Left): Modified Radical, Nipple Sparing, Partial, Radical, Simple, Skin Sparing; Mastectomy (Right): Modified Radical, Nipple Sparing, Partial, Radical, Simple, Skin Sparing; Prophylactic mastectomy (Left); Prophylactic mastectomy (Right); Reconstruction (Left): Aesthetic Flat Closure, Fat grafting, Nipple reconstruction, Nipple tattoo, Removal (Left), Tissue Expander; Reconstruction (Right): Aesthetic Flat Closure, Fat grafting, Nipple reconstruction, Nipple tattoo, Removal (Right), Tissue Expander Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Aug 20, 2021 05:57PM beesie.is.out-of-office wrote:

At least 50% of women (some sites suggest more than 60% of women) have fibrocystic breasts. Many of these women develop breast cysts. Approximately 10% of women develop fibroadenomas. These conditions are driven by estrogen and specifically, by estrogen level fluctuations, which as women we experience often as we go through life.

Given how common these benign breast conditions are, it's not surprising that many women who develop breast cancer also at some point in their lives have had fibroadenomas, cysts and fibrocystic breasts. These are all common conditions so there will naturally will be a lot of overlap. It is also true that many women who never develop breast cancer at some point in their lives will have cysts, fibroadenomas and fibrocystic breasts.

That said, any breast change that does not go away on it's own within a short period of time should be checked out.

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Aug 21, 2021 01:42AM Sunandstars wrote:

ThreeTree - I’m sorry to hear about your experience. Can I ask, did you have any epithelia hyperplasia (UDH) in your fibroadenoma back then? My doctor says that increases my risk slightly, but not fibroadenoma on its own.

I will definetly watch the spot for any changes and get regular ultrasounds at least,

Thank you!

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Aug 21, 2021 01:46AM Sunandstars wrote:

Monarchandthemilkweed - I’m sorry to hear about your bc diagnosis. Thank you for sharing

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Aug 21, 2021 01:51AM Sunandstars wrote:

Beesie - that is also true. I think I was more concerned about the epithelial hyperplasia on my fibroadenoma because my doctor said it increases the bc risk slightly. Anyhow, I think every worrysome change in breasts would be wise to get checked out!

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Aug 21, 2021 08:58AM threetree wrote:

Sunandstars - I'm sorry, but I have no idea about the UDH. I was only ever told that it was a benign fibroadenoma and at that time (I was 19) there was no real imaging like they have today and they had to remove it to distinguish it from a cyst. They couldn't decide without removing it, if it was a cyst or a tumor. I don't know if UDH was even anything known or considered back then. Wish I could help more.

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