About 3 yrs ago I had my 1st mammogram, shortly after my hysterectomy, along w/ an ultrasound bcuz my breast r apparently very dense. The radiologist found a 'spot' on my left breast they said was of interest. I knew this spot was there; I had felt this lump before but I have lumps all over my body that are always dissmissed by my primary care as little benign tumors. Though, I some times have pain in a few of them, they are explained away as hormonal changes. None the less, the radiologist wanted to keep an eye on it. So I was supposed to go back after 6 months for a follow-up mammogram & ultrasound but forgot about the appointment. I mentioned it to my primary care a few months after my missed appointment & she said after reading the radiologist report that it probably wasn't anything I should be concerned about, just make sure I get a mammogram yearly since I'm over 45. Well, then COVID happened. So, I decided it was best that if as long as I wasn't having any symptoms that couldn't be explained away, I would stay away from all hospitals & dr offices. If it's not broke, don't fix it. Which was working pretty well until June.
Of course the lump from the 'spot' on my left breast has been there for a few years now. But in June, I started noticing, on a daily basis, at the end of the day, when I took off my bra, my left nipple would look scaly or crusty, if u will. When I cleaned it, it felt like ripping my skin off. In addition to this sensation, once all the flakes were cleaned off, my nipple appears to be raw & bleed a little. By July, in addition to the symptoms I described, I started having a tingling sensation in the same nipple. So, I went to my primary care, who sent me to an OB/GYN, who sent me for a mammogram. Went to the mammogram & the same lump they were concerned about from 3 yrs ago is still there, but slightly bigger. So they do an ultrasound to get a better look, then decided I needed to see a breast surgeon. The breast surgeon ordered an MRI. So I did that. Now the breast surgeon wants another ultrasound & possiblely another MRI.
My biggest problem is... I can't afford all these imaging tests & co-pays. I have 4 kids, 2 of them in college. If I keep this up, its gonna break me financially. I'm up to about a grand in & all anyone will tell me is.. its just my hormones raging bcuz I'm in the throws of menopause. Everything is being downplayed like its nothing I should be worried about, yet they keep ordering test. I'm confused & considering 2 just say 'fuck it'; I'm done w/ the run around & downplaying. I'll just deal w/ the symptoms myself.
I'm open to suggestions or ideas. Anyone have this experience? Think I might have posted this in the wrong section!
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