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Topic: I WANT MY MOJO BACK!

Forum: Sex & Relationship Matters —

A safe place to talk candidly about how your romantic relationships and/or your sex life has changed following your diagnosis and treatment.

Posted on: Oct 17, 2004 11:45AM - edited Feb 9, 2016 11:04AM by Moderators

Mena wrote:

Hey girls,

You know, this loss of libido thing is just unnacceptable. I was in the chat room earlier today and mentioned it and man, you should've heard how many of us are experiencing this problem. I promised the ladies I'd post my rant, so here it comes (or....doesn't ).

If bc were a man's disease, not only would there be a cure for bc by now, but certainly there'd be a plethora of non-hormonal therapies available for whatever the female version is of "erectile dysfuntion". I don't think I'm exaggerating. I'll make the damn commercials myself (no pride here lol).

Prior to the news of my recurrence/mets (August) my husband and I had a phenomenal sex life. I absofreakinlutely loved making love to my husband. (Btw, I'm 43; and as part of tx for mets, I was chemically oopherized with Zoladex and take Femara daily).

I still enjoy loving my love. Emotionally, spiritually, mentally, I do. Even physically I still like it. It's just not rockin' my world, as they say, like it used to. I miss that. And I refuse to accept this as acceptable. It is not. If the genders were reversed, this would be the first &%$#* problem they'd address! Well, ok, the second.

I know the clinical reasons for the low libido, but there's got to be something out there for us that's not contraindicated with treatment. Here's what I've tried so far: a Zen approach; a "go w/the flow" attitude; a "get started and it'll all just kick in" mindset; a "try not to think about it at all" focus; et al.

I'm interested in hearing what the rest of you have to say about this matter, and I know it is an intimate one. But we're all sisters and I do hope some of you will share your experiences and whatever help you've found for missing mojo.

Thanks for letting me vent. God Bless.

Mena

****************************Addition from February 4, 2016***********************************

Hi All,

We've gone through a lot (not all) of the pages on this topic, and tried to compile your suggestions.

Do you feel that this is a complete list of what has been discussed here? Please help us make a comprehensive list of your ideas!


Member suggestions for helping the libido:

Watch romantic movie or soft-porn on Netflix

Romantic music

Watch porn or visit short videos on Tumblr, YouTube, or other internet site

A little wine, or other substance to help relax (e.g. medical marijuana)

Sexual photos

Massage and massage oils

Literotica: Erotic/sexual stories as an alternative to images

Super sexy lingerie or fun clothing

Have partner practice foreplay and/or oral sex

Practice masturbation on a regular basis

Mindfulness, i.e. focus on what your five senses are experiencing in the moment --To keep your thoughts from dwelling on cancer and scars


Member suggestions to improve vaginal moisture:

Coconut oil works best as a moisturizer (freeze small balls to make suppositories)

Vitamin E suppositories

Almond oil

Replens long-lasting moisturizer

Luvena vaginal moisturizer

Shea butter melted into olive oil at a 2:1 ratio

Cocoa butter

Olive oil

Gynatrof gel

DHEA vaginal suppositories

Tip to use an applicator to insert moisturizers and apply a few times a week.


Member suggestion for lubrication during sexual activity:

Astroglide Natural (free from glycerin, fragrance, flavorings, and hormones)

Slippery Stuff (free from glycerin and parabens)

K-Y warming Jelly

K-Y Sensual Silk Liquid (paraben-free)

K-Y Liquibeads

K-Y UltraGel (paraben-free)

Astroglide, X (silicone-based)

Platinum Wet (silicone-based)

Replens silky smooth lubricant (silicone-based)

Sliquid natural lubricants (free from DEA, gluten, glycerine, glycerol, parabens, PEG, propylene glycol, sorbitol & sulphates)


Additional member suggestion to reduce pain:

Topical Lidocaine solution for use at the entrance of the vagina


Member suggestion for sex toys:

Vibrators (e.g. Hitachi Magic Wand, Pink Dot Vibe, Pocket Rocket, the Rabbit)

Dildos for pleasure, to stretch the entrance, prevent vaginal atrophy and strengthen muscles


Member suggestion for estrogen or hormone-based treatments

(MUST discuss first with oncologists as not typically recommended for women who have had breast cancer)

Vagifem® (estradiol vaginal tablets) inserts

Testosterone patch or gel

ESTRING® (estradiol vaginal ring)

ESTRACE® CREAM (estradiol vaginal cream)

Scream Cream - contains a combination of prescription and non-prescription components described as blood flow enhancers and vasodiolators to apply to your clitoris (adding here, as it contains a bit of Testosterone- 0.25mg per dose)


Other member suggestions:

Kegel exercises to strengthen pelvic muscles

Pelvic physical therapy

Dilators to stretch the skin in your vaginal area and re-train the pelvic floor muscles to relax

Observe which antidepressant you take, and make necessary changes

MonaLisa Touch: A minimally invasive laser treatment for vaginal rejuvenation.

Easier if she "goes first".

Regular activity is important.

Read the book, COUPLES CONFRONTING CANCER: KEEPING YOUR RELATIONSHIP STRONG, by Fincammon & Bruss, published by the American Cancer Society.

Share this thread with your husband/lover to create a new bond of intimacy, normalize what others are going through and open communication.

Take a look at this resource: https://sexualityresources.com

Dx 8/8/2004, IDC, Stage IV, Grade 3, 1/20 nodes, mets, ER+/PR+, HER2+
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Page 125 of 131 (3,901 results)

Posts 3721 - 3750 (3,901 total)

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May 26, 2017 01:29AM ShetlandPony wrote:

A word of encouragement. Personally I did not find that tamoxifen caused bad vaginal problems. From the first day I started Tam, I always always without fail used generous lubricant. The idea was to not even start a pain/fear cycle. For me that worked. I had to get to know my body again and what was too much, just right, not enough. But I did not feel all dried up.

2011 Stage I ILC ER+PR+ Her2- 1.5 cm grade 1, ITCs sn . Lumpectomy, radiation, tamoxifen. 2014 Stage IV ILC ER+PR+Her2- grade 2, mets to breast , liver. Taxol NEAD. 2015,2016 Ibrance+letrozole. 2017 Faslodex+Afnitor; Xeloda. 2018 Xeloda NEAD
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May 26, 2017 07:26AM Trvler wrote:

A cocktail or 6 might also help the first few times. It helps to be relaxed. I am going to my first OB visit since all this nonsense on Tuesday to get an Est-ring or whatever it's called. I will report back. I have not had a lot of issues with dried up vagina but it doesn't FEEL as good. I can still O so I am very thankful for that.

Allison Dx 1/16/2015, ILC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- Dx 2/26/2015, ILC, Left, 4cm, Stage IIIA, Grade 2, 2/2 nodes, ER+/PR+, HER2- Chemotherapy 3/23/2015 AC + T (Taxol) Surgery 8/31/2015 Mastectomy; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Radiation Therapy 10/14/2015 Whole-breast: Breast, Lymph nodes Hormonal Therapy 12/31/2015
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May 26, 2017 10:48AM - edited May 27, 2017 10:39PM by karen1956

I've been using Gyntrof for the past several weeks with great success. My husband buys it when he goes to Canada on business trips. It is well worth trying. Kar

Karen in Denver, Dx 02/03/2006, ILC, stage IIIa, ER/PR+, HER2-,
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May 26, 2017 11:52AM Castigame wrote:

well, we tried last night hubby was tired and i was bleeping dry. Learned a simple lesson which was the importance of daily moisturization. Ordered vitamin D suppositories from Amazon. Still damned port is an inconvenience.

Mimi Dx 1/11/2017, IDC, Left, <1cm, Stage IA, 0/2 nodes Dx 1/11/2017, IDC: Papillary/IDC: Cribriform, Right, 3cm, Stage IIIA, Grade 2, 4/17 nodes, ER+/PR+, HER2- (IHC) Surgery 2/15/2017 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy Chemotherapy 3/21/2017 Radiation Therapy 7/31/2017 Whole-breast: Breast, Lymph nodes, Chest wall Surgery 10/30/2017
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Jun 5, 2017 07:28AM Suz-Q wrote:


I had my second Thermiva treatment a week ago and vaginal dryness is improving. We use a lubricant, but made it through without reapplying which was a miracle. I have one more treatment to go in a month. I'm determined not to let the AI side effects rob me of my sex life. My gyno started using this in his practice and I was lucky enough to catch a sale price of $1,000 for three treatments. I'm hoping to avoid estrogen therapy, but I'm not opposed to estrogen replacement now that the The American College of Obstetricians and Gynecologists approve it for estrogen dependent BC. I use the Gynatrof too and I like it

http://www.acog.org/Resources-And-Publications/Committee-Opinions/Committee-on-Gynecologic-Practice/The-Use-of-Vaginal-Estrogen-in-Women-With-a-History-of-Estrogen-Dependent-Breast-Cancer

56 at diagnosis. Oncotype DX 10 Dx 9/17/2015, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 11/3/2015 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 12/14/2015 Whole-breast: Breast Hormonal Therapy 1/21/2016 Arimidex (anastrozole) Surgery 8/4/2016 Reconstruction (right): Fat grafting Hormonal Therapy 10/7/2017 Aromasin (exemestane)
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Jun 11, 2017 11:52AM Luckynumber47 wrote:

I just watched the funniest show - Grace and Frankie on Netflix, Season 3 episode 3. It was all about vibrators. Such a hoot

The unexamined life is not worth living. (Socrates) My avatar is a Blue Footed Boobie. Cracked me up. Dx 2/15/2016, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Dx 3/16/2016, DCIS, Right, <1cm, Stage 0, Grade 3, 0/1 nodes, ER-/PR- Surgery 4/5/2016 Mastectomy: Left, Right Hormonal Therapy 5/16/2016 Femara (letrozole)
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Jun 12, 2017 10:32AM Mominator wrote:

Luckynumber: all three seasons of Grace and Frankie are funny. Part of the first season is Frankie trying to market her lube.

Mominator, BRCA2+, STK-11 VUS, wife, mom to 3 children of various special needs, musician, volunteer. My Mom dx DCIS age 62, ILC stage IIIA age 79; Mom just passed 2/28/18. My Grandmother died of ovarian cancer age 48. Friend to Lori M, died 5/25/16. Surgery 11/11/2015 Prophylactic mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 1/18/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 6/30/2017 Reconstruction (left): Silicone implant
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Jun 12, 2017 11:08AM Luckynumber47 wrote:

Yam lube! That doesn't seem so far fetched since we all talk about coconut oil Happy

The unexamined life is not worth living. (Socrates) My avatar is a Blue Footed Boobie. Cracked me up. Dx 2/15/2016, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Dx 3/16/2016, DCIS, Right, <1cm, Stage 0, Grade 3, 0/1 nodes, ER-/PR- Surgery 4/5/2016 Mastectomy: Left, Right Hormonal Therapy 5/16/2016 Femara (letrozole)
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Jun 12, 2017 11:29AM TarheelMichelle wrote:

hey everybody, I'm responding a couple of months late to people who asked me about Ritalin. (I hadn't marked this discussion for notifications and had forgotten I posted.) It might still be of interest.

My doctor prescribed Ritalin to help with my fatigue issues brought on by Femara, and an unexpected side effect was more lubrication (that I produced) and just better sex all around. Oncologists know that fatigue is crushing so many of us. I wasn't new to ADD medicines. After my son was born, my doctor prescribed it to help me focus at work. It's definitely something to consider.

I'm on Wellbutrin now, and off Ritalin, hoping that will help my sex life too. I considered myself pretty damned sexy but went down to 0 sexy thoughts on these damned AIs. I've used it before. It's helping.

Thanks everyone, for sharing. I hope everyone has a better day today than yesterday.

Ronda - Extensive mets to lungs & bones. 9/13, subcutaneous skin mets. My life is Stage IV precious. Celebrating 6 years with Stage IV 12/2017. Ev Dx 2/14/2008, IDC, Left, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 3/10/2008 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 4/16/2008 Dx 12/19/2011, Stage IV, metastasized to bone/lungs, mets, ER+/PR+, HER2- Hormonal Therapy 1/31/2012 Aromasin (exemestane) Hormonal Therapy 12/19/2012 Faslodex (fulvestrant) Hormonal Therapy 7/16/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 4/23/2014 Reconstruction (left) Radiation Therapy 11/21/2014 External: Bone Targeted Therapy 11/17/2015 Afinitor (everolimus) Targeted Therapy 5/19/2016 Hormonal Therapy 5/31/2016 Femara (letrozole) Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Ibrance (palbociclib)
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Jun 12, 2017 11:40PM zinny wrote:

TarheelMichelle - OOOh. I have been trying to get the courage to ask my doc about Ritalin! I feel like I just barely held it together with undiagnosed ADHD, but post chemo, I am not holding it together. Yet another benefit?


Dx 9/2/2015, LCIS/DCIS/ILC/IDC, Both breasts, 2cm, Stage IIB, Grade 3, 2/3 nodes, ER+/PR+, HER2- Surgery 9/2/2015 Lumpectomy: Left, Right; Lymph node removal: Sentinel Hormonal Therapy 10/7/2015 Femara (letrozole), Zoladex (goserelin) Radiation Therapy 10/29/2015 3DCRT: Breast, Lymph nodes Chemotherapy 1/4/2016 AC + T (Taxol) Surgery 5/31/2016 Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Jun 13, 2017 08:11AM Trvler wrote:

My daughter takes Ritalin for her ADD. Maybe I will give one a try. I tried a few things different drugs back in the day but for some reason, stimulants kind of scare me. Maybe I can get my house cleaned all the way, too. :)


Allison Dx 1/16/2015, ILC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- Dx 2/26/2015, ILC, Left, 4cm, Stage IIIA, Grade 2, 2/2 nodes, ER+/PR+, HER2- Chemotherapy 3/23/2015 AC + T (Taxol) Surgery 8/31/2015 Mastectomy; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Radiation Therapy 10/14/2015 Whole-breast: Breast, Lymph nodes Hormonal Therapy 12/31/2015
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Jun 13, 2017 04:41PM TarheelMichelle wrote:

As my doctor points out, stimulants work for just about anyone, ADHD or no ADHD. You are more alert, productive, etc. The big issue is, at what cost? I can't take stimulants for a long time. They make me moody. Had I stayed on them, I probably would have tried to take them when needed, not every day. But it's hard to not want to be that alert and productive EVERY day. I miss the old me

Ronda - Extensive mets to lungs & bones. 9/13, subcutaneous skin mets. My life is Stage IV precious. Celebrating 6 years with Stage IV 12/2017. Ev Dx 2/14/2008, IDC, Left, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 3/10/2008 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 4/16/2008 Dx 12/19/2011, Stage IV, metastasized to bone/lungs, mets, ER+/PR+, HER2- Hormonal Therapy 1/31/2012 Aromasin (exemestane) Hormonal Therapy 12/19/2012 Faslodex (fulvestrant) Hormonal Therapy 7/16/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 4/23/2014 Reconstruction (left) Radiation Therapy 11/21/2014 External: Bone Targeted Therapy 11/17/2015 Afinitor (everolimus) Targeted Therapy 5/19/2016 Hormonal Therapy 5/31/2016 Femara (letrozole) Hormonal Therapy Faslodex (fulvestrant) Targeted Therapy Ibrance (palbociclib)
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Jun 14, 2017 11:01AM Trvler wrote:

I am wondering can anyone who is doing topical estrogen tell me what your dosage is? My doctor put me on .5 mg and it doesn't even register on the tube. I am not sure it is enough to do anything. I just started and haven't had sex yet since I had surgery in early May.

Allison Dx 1/16/2015, ILC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- Dx 2/26/2015, ILC, Left, 4cm, Stage IIIA, Grade 2, 2/2 nodes, ER+/PR+, HER2- Chemotherapy 3/23/2015 AC + T (Taxol) Surgery 8/31/2015 Mastectomy; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Radiation Therapy 10/14/2015 Whole-breast: Breast, Lymph nodes Hormonal Therapy 12/31/2015
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Jun 15, 2017 10:06PM - edited Jun 18, 2017 11:10PM by Pamela23

Trvler--my dr.'s written orders on my box read ".pea sized amount twice a week". According to the Estrace instructions: 2-4g every day for 1-2 weeks then gradually reduce to half the initial dose for a similar period. Then maintenance dosage of 1g 1-3x/week. after restoration of the mucosa has been achieved. I read the article from ACOG who approved this cream for women w/ BC and it stated the same directions. I'm thinking a pea sized amount twice a week will take MONTHS to get the mucosa I desire (LOL--never thought I'd say that phrase!) so I took it upon myself to use 1g every other night for the last 3 weeks and I'm seeing improved results!! I will do this 1 more week and then go to the pea sized amount twice a week to maintain. This is TOTALLY my opinion though. Please ask your doctor, if you have questions.

9/15/2016, IDC, Left, 5mm, Stage IA, Grade 3, ER+/PR+, HER2- Dx 9/15/2016, IDC, Left, <1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 10/5/2016 Lumpectomy: Left Chemotherapy 11/15/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 2/19/2017
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Jun 16, 2017 12:15AM runor wrote:

I had a vaginal issue (prior to knowing I had breast cancer which at that time I most certainly had it, and didn't know it). I was told to use .5 of Premarin until symptoms resolved. I used it three times over the course of two weeks and a problem that had plagued me for months was gone. That stuff is like magic! So I think yes it is very possible for those tiny amounts to be very effective.

Dx 3/23/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 4/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 7/5/2017 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jun 18, 2017 11:13PM Pamela23 wrote:

Runor-- I have definitely seen, felt improvement. Intercourse has gone from painful to just uncomfortable. I will switch to a pea size amount twice a eek this week ad hope things continue to improve. I still feel like the lack of sensitivity in that area is problematic when it comes to physical arousal. Will that ever come back?

9/15/2016, IDC, Left, 5mm, Stage IA, Grade 3, ER+/PR+, HER2- Dx 9/15/2016, IDC, Left, <1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 10/5/2016 Lumpectomy: Left Chemotherapy 11/15/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 2/19/2017
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Jun 23, 2017 08:53AM - edited Jun 23, 2017 08:59AM by MamaOz

I used to use etrace and it worked wonders for vaginal area and kept me from getting the horrendous bladder infections however once diagnosed with estrogen pos cancer I was told to stop back in dec

And of course symptoms have returned

I am seeing my ob/ gyn , who both he and my onc suggest ,about mona lisa touch

Its a vaginal laser treatment.

Mamaoz : chemo 1/.17-4/17 AC/.paxitacil : 3/29 nodes Dx 12/5/2016, IDC, Right, 3cm, Stage IIB, Grade 2, 3/29 nodes, ER+/PR+, HER2- Surgery 5/19/2017 Lymph node removal: Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left Radiation Therapy 8/7/2017 Hormonal Therapy Arimidex (anastrozole)
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Jun 23, 2017 03:13PM Trvler wrote:

Yes, we have talked about Mona Lisa a lot in here. Reviews over all have been pretty good. Can you tell me your Estrace dose?

Allison Dx 1/16/2015, ILC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- Dx 2/26/2015, ILC, Left, 4cm, Stage IIIA, Grade 2, 2/2 nodes, ER+/PR+, HER2- Chemotherapy 3/23/2015 AC + T (Taxol) Surgery 8/31/2015 Mastectomy; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Radiation Therapy 10/14/2015 Whole-breast: Breast, Lymph nodes Hormonal Therapy 12/31/2015
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Jun 24, 2017 09:43AM MargoChanning wrote:

hi MamaOz,

There is an ASCO statement on the use of estrogen for ER+ breast cancer patients that basically approves use of vaginal estrogen after other non-hormonal methods have failed: https://www.acog.org/Resources-And-Publications/Co...

You may want to show to your MO; mine approved use of vaginal estrogen and I'm so relieved because I was prone to UTI's after menopause so this was a big issue for me in terms of life quality. I can't imagine working the hours I do and dealing with chronic pain from infections, in addition to the other side effects I'm dealing with.

Best to you and everyone.

Dx 2/2012, IDC, Right, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 3/12/2012 Lumpectomy: Right Chemotherapy 5/3/2012 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 7/28/2012 Breast Hormonal Therapy 10/9/2012 Femara (letrozole)
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Jun 25, 2017 09:28AM Trvler wrote:

Does it mean the dosage it is saying on there is 'low' or is that the normal dosage? My doctor has me on .5 twice a week and it seems like it's too low. Or maybe not?

Allison Dx 1/16/2015, ILC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- Dx 2/26/2015, ILC, Left, 4cm, Stage IIIA, Grade 2, 2/2 nodes, ER+/PR+, HER2- Chemotherapy 3/23/2015 AC + T (Taxol) Surgery 8/31/2015 Mastectomy; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Radiation Therapy 10/14/2015 Whole-breast: Breast, Lymph nodes Hormonal Therapy 12/31/2015
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Jun 25, 2017 11:24AM - edited Jun 25, 2017 07:24PM by Pamela23

Trvler--mine said the same thing but the study didn't manipulate from the instructions which are :2-4g daily for 1-2 weeks then gradually reduce to half the initial dose for a similar period. Maintenance dose of 1g 1-3x/week. I took it upon myself to do 1g every other day for 4 weeks and this week I'm doing .5 g twice a week. It seems per directions you need to build up then maintain. i just can't see that happening on .5g twice a week. So doing 1/2-1/4 prescribed dose for half the time suggested was a comfortable decision I made for myself. It really improved, but I wonder how great it would have been to even do it every day? Better safe than sorry!


9/15/2016, IDC, Left, 5mm, Stage IA, Grade 3, ER+/PR+, HER2- Dx 9/15/2016, IDC, Left, <1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 10/5/2016 Lumpectomy: Left Chemotherapy 11/15/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 2/19/2017
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Jun 25, 2017 11:26PM karen1956 wrote:

I saw my pcp about 10 days go for my annual check up. We talked about the e-string or vaginal cream. Decided to go with the e-string. 3 or 4 days after inserting it I had developed a yeast infection that did not respond to monistat, so I went in to see her and confirmed it was pretty bad and Rx an oral drug to take for 5 days. She is culturing it to be sure its not any else but it sure looked like yeast!!! Coincidence between the e-string and yeast infection, can't know for sure! PCP gave me an Rx for Estrace cream to use 3x/week. Hope it is better.

Karen in Denver, Dx 02/03/2006, ILC, stage IIIa, ER/PR+, HER2-,
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Jun 26, 2017 02:51PM Ken1212 wrote:

  • Thank you for opening your love for each other so honestly...it does not get any more wonderful than that. It certainly shows that cancer has no hope against that spirit of real love.X
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Jul 29, 2017 05:22PM Suz-Q wrote:

I had my last Thermiva treatment over a month ago. I'd like to report back that the results are nothing less than amazing! Sex is better than the pre-cancer levels. Very satisfied with the moisture, the sensitivity, and my husband says I'm not so tight and short, in other words the vaginal vault is able to stretch again. We are very happy! I was really getting depressed about the loss o sensitivity and the amount of time and work it was taking to reach a climax. I hope this review might help some of you.

56 at diagnosis. Oncotype DX 10 Dx 9/17/2015, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 11/3/2015 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 12/14/2015 Whole-breast: Breast Hormonal Therapy 1/21/2016 Arimidex (anastrozole) Surgery 8/4/2016 Reconstruction (right): Fat grafting Hormonal Therapy 10/7/2017 Aromasin (exemestane)
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Jul 29, 2017 10:19PM Falconer wrote:

Ok, SuzQ, here's the big question: did insurance pay for it? Glad to know you're satisfied regardless of how the dr was paid.
Strong is the new strong. Dx at 45. Onco 16. Monthly Lupron shots Nov. 2016-December 2017 Dx 7/2016, IDC, Left, 1cm, Stage IB, Grade 2, 0/3 nodes, ER+/PR+, HER2- Dx 7/2016, DCIS, Left, 5cm, Stage 0, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 5/29/2017 Reconstruction (left): DIEP flap Surgery Lymph node removal: Sentinel; Mastectomy: Left Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Aromasin (exemestane), Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 29, 2017 11:03PM Suz-Q wrote:

Hi Falconer,

Of course my insurance did NOT pay for it. We are females remember!

I was happy that my gynecologist had a "special" on it so instead of $1500 for three treatments I paid $1000. Thank goodness I keep a savings account. He happens to be the least expensive of the doctors I've read about on Realself (plastic surgery community

56 at diagnosis. Oncotype DX 10 Dx 9/17/2015, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 11/3/2015 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 12/14/2015 Whole-breast: Breast Hormonal Therapy 1/21/2016 Arimidex (anastrozole) Surgery 8/4/2016 Reconstruction (right): Fat grafting Hormonal Therapy 10/7/2017 Aromasin (exemestane)
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Jul 31, 2017 09:20AM Trvler wrote:

Is Thermiva similar to Mona Lisa?

Allison Dx 1/16/2015, ILC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- Dx 2/26/2015, ILC, Left, 4cm, Stage IIIA, Grade 2, 2/2 nodes, ER+/PR+, HER2- Chemotherapy 3/23/2015 AC + T (Taxol) Surgery 8/31/2015 Mastectomy; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Radiation Therapy 10/14/2015 Whole-breast: Breast, Lymph nodes Hormonal Therapy 12/31/2015
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Jul 31, 2017 09:47AM Falconer wrote:

Suz-q, ugh. Viagra certainly is covered. Well glad something exists to help!
Strong is the new strong. Dx at 45. Onco 16. Monthly Lupron shots Nov. 2016-December 2017 Dx 7/2016, IDC, Left, 1cm, Stage IB, Grade 2, 0/3 nodes, ER+/PR+, HER2- Dx 7/2016, DCIS, Left, 5cm, Stage 0, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 5/29/2017 Reconstruction (left): DIEP flap Surgery Lymph node removal: Sentinel; Mastectomy: Left Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Aromasin (exemestane), Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Aug 1, 2017 10:07PM Suz-Q wrote:

Thermiva is different than Mona Lisa touch. ThermiVa® applications use radiofrequency energy to gently heat vaginal tissues. Mona Lisa touch uses laser energy to treat the vavinal atrophy.

56 at diagnosis. Oncotype DX 10 Dx 9/17/2015, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 11/3/2015 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 12/14/2015 Whole-breast: Breast Hormonal Therapy 1/21/2016 Arimidex (anastrozole) Surgery 8/4/2016 Reconstruction (right): Fat grafting Hormonal Therapy 10/7/2017 Aromasin (exemestane)
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Aug 2, 2017 10:15PM Kali44 wrote:

Suz-Q.... I just searched and found somewhere nearby I can have this procedure done. Oh my gosh! If this is really so good I am quite excited by this possibility. How wonderful if we can all have this same experience. I am willing to try it....anyone else has tried this and had similar results????

Going to research this to see what others have said about their experiences as well. Thank you for sharing this possibility!!!!!

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