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Topic: I WANT MY MOJO BACK!

Forum: Sex & Relationship Matters —

A safe place to talk candidly about how your romantic relationships and/or your sex life has changed following your diagnosis and treatment.

Posted on: Oct 17, 2004 12:45PM - edited Feb 9, 2016 12:04PM by Moderators

Mena wrote:

Hey girls,

You know, this loss of libido thing is just unnacceptable. I was in the chat room earlier today and mentioned it and man, you should've heard how many of us are experiencing this problem. I promised the ladies I'd post my rant, so here it comes (or....doesn't ).

If bc were a man's disease, not only would there be a cure for bc by now, but certainly there'd be a plethora of non-hormonal therapies available for whatever the female version is of "erectile dysfuntion". I don't think I'm exaggerating. I'll make the damn commercials myself (no pride here lol).

Prior to the news of my recurrence/mets (August) my husband and I had a phenomenal sex life. I absofreakinlutely loved making love to my husband. (Btw, I'm 43; and as part of tx for mets, I was chemically oopherized with Zoladex and take Femara daily).

I still enjoy loving my love. Emotionally, spiritually, mentally, I do. Even physically I still like it. It's just not rockin' my world, as they say, like it used to. I miss that. And I refuse to accept this as acceptable. It is not. If the genders were reversed, this would be the first &%$#* problem they'd address! Well, ok, the second.

I know the clinical reasons for the low libido, but there's got to be something out there for us that's not contraindicated with treatment. Here's what I've tried so far: a Zen approach; a "go w/the flow" attitude; a "get started and it'll all just kick in" mindset; a "try not to think about it at all" focus; et al.

I'm interested in hearing what the rest of you have to say about this matter, and I know it is an intimate one. But we're all sisters and I do hope some of you will share your experiences and whatever help you've found for missing mojo.

Thanks for letting me vent. God Bless.

Mena

****************************Addition from February 4, 2016***********************************

Hi All,

We've gone through a lot (not all) of the pages on this topic, and tried to compile your suggestions.

Do you feel that this is a complete list of what has been discussed here? Please help us make a comprehensive list of your ideas!


Member suggestions for helping the libido:

Watch romantic movie or soft-porn on Netflix

Romantic music

Watch porn or visit short videos on Tumblr, YouTube, or other internet site

A little wine, or other substance to help relax (e.g. medical marijuana)

Sexual photos

Massage and massage oils

Literotica: Erotic/sexual stories as an alternative to images

Super sexy lingerie or fun clothing

Have partner practice foreplay and/or oral sex

Practice masturbation on a regular basis

Mindfulness, i.e. focus on what your five senses are experiencing in the moment --To keep your thoughts from dwelling on cancer and scars


Member suggestions to improve vaginal moisture:

Coconut oil works best as a moisturizer (freeze small balls to make suppositories)

Vitamin E suppositories

Almond oil

Replens long-lasting moisturizer

Luvena vaginal moisturizer

Shea butter melted into olive oil at a 2:1 ratio

Cocoa butter

Olive oil

Gynatrof gel

DHEA vaginal suppositories

Tip to use an applicator to insert moisturizers and apply a few times a week.


Member suggestion for lubrication during sexual activity:

Astroglide Natural (free from glycerin, fragrance, flavorings, and hormones)

Slippery Stuff (free from glycerin and parabens)

K-Y warming Jelly

K-Y Sensual Silk Liquid (paraben-free)

K-Y Liquibeads

K-Y UltraGel (paraben-free)

Astroglide, X (silicone-based)

Platinum Wet (silicone-based)

Replens silky smooth lubricant (silicone-based)

Sliquid natural lubricants (free from DEA, gluten, glycerine, glycerol, parabens, PEG, propylene glycol, sorbitol & sulphates)


Additional member suggestion to reduce pain:

Topical Lidocaine solution for use at the entrance of the vagina


Member suggestion for sex toys:

Vibrators (e.g. Hitachi Magic Wand, Pink Dot Vibe, Pocket Rocket, the Rabbit)

Dildos for pleasure, to stretch the entrance, prevent vaginal atrophy and strengthen muscles


Member suggestion for estrogen or hormone-based treatments

(MUST discuss first with oncologists as not typically recommended for women who have had breast cancer)

Vagifem® (estradiol vaginal tablets) inserts

Testosterone patch or gel

ESTRING® (estradiol vaginal ring)

ESTRACE® CREAM (estradiol vaginal cream)

Scream Cream - contains a combination of prescription and non-prescription components described as blood flow enhancers and vasodiolators to apply to your clitoris (adding here, as it contains a bit of Testosterone- 0.25mg per dose)


Other member suggestions:

Kegel exercises to strengthen pelvic muscles

Pelvic physical therapy

Dilators to stretch the skin in your vaginal area and re-train the pelvic floor muscles to relax

Observe which antidepressant you take, and make necessary changes

MonaLisa Touch: A minimally invasive laser treatment for vaginal rejuvenation.

Easier if she "goes first".

Regular activity is important.

Read the book, COUPLES CONFRONTING CANCER: KEEPING YOUR RELATIONSHIP STRONG, by Fincammon & Bruss, published by the American Cancer Society.

Share this thread with your husband/lover to create a new bond of intimacy, normalize what others are going through and open communication.

Take a look at this resource: https://sexualityresources.com

Dx 8/8/2004, IDC, Stage IV, Grade 3, 1/20 nodes, mets, ER+/PR+, HER2+
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Nov 18, 2017 12:57PM Rosabella wrote:

merchie, I think what you are feeling is normal. You have a bad ex who knocked you down so you are more apt to notice such stuff and worry. I do know some couples do look at porno and members of the opposite sex on the street and are fine. I've had it explained to me that porn can enhance the relationship by teaching techniques. I guess it depends on the guy or gal. Hard to tell. As said it would benefit you to see a therapist and if suggested a marriage counselor. Good luck.

Dx 6/2/2015, IDC, Left, 6cm+, Stage IIIA, Grade 3, 1/4 nodes, PR+, HER2- Surgery 8/6/2015 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Chemotherapy 11/3/2015 AC + T (Taxotere) Radiation Therapy 5/4/2016 Whole-breast: Breast, Lymph nodes Hormonal Therapy 6/28/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy
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Nov 19, 2017 01:54PM chicopeach57 wrote:

Lula, just started Intrarosa a couple of weeks ago, can actually skip lube sometimes, feels good to produce my own. Two draw backs - gives me weird dreams, messes with my sleep and it makes me not taste good. It is a vaginal suppository with a petroleum base I think, but it seems like it is too much per dose, I feel like it is all over the place in the morning. Thinking about cutting it in half. It is also a little pricy

A strong person is not the one that does't cry. A strong person is one who is quiet and sheds tears for a moment and then picks up her sword and fights again. Ash Sweeney Dx 11/13/2013, IDC, Right, 1cm, Stage IIIA, Grade 3, 4/11 nodes, ER+/PR+, HER2- Surgery 11/21/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 12/12/2013 AC Chemotherapy 2/27/2014 Taxol (paclitaxel) Radiation Therapy 5/18/2014 Breast Hormonal Therapy 5/22/2014 Femara (letrozole) Surgery 12/8/2014 Reconstruction (right)
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Nov 19, 2017 10:38PM Lula73 wrote:

thanks for sharing your infrareds experience Chicopeach! We’re you having issues and then you started it? Any comments made by your Doc about it? I’m really worried my OB/GYN at home may have a problem with it since it’s newer.


Merchie-all porn is not created equal. Women & men are very different when it comes to what that visual preference is. However if you were to ask your DH if you could look together and you googled key words based on what you’d like to see (i.e. ‘romantic erotic images’ vs just ‘porn’). your DH may actually end up more turned on than he is just looking at his usual ...all because you’re taking an interest and he doesn’t feel judged. Good luck to you

-Lula Dx 1/2017, DCIS/IDC, Right, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 2/14/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy 3/3/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 11/1/2017 Prophylactic ovary removal Hormonal Therapy 1/3/2018 Femara (letrozole)
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Nov 20, 2017 11:38AM chicopeach57 wrote:

Lula, my gyn is the one that told me about Intrarosa. I have been using estrace cream for a couple of years, it works pretty well but thought we should try something new. Also it is supposed to be less risky than the estrace, which my MO is fine with since I take Femara. I was post menopausal when I was diagnosed and still did not have ANY problems with dryness, which I really appreciated. Discovered during chemo what can happen to the hoohaw. Even with the estrace and lube I can have some tearing and friction burn now. Have to have the correct angle of entry and not too fast. Mind you, hopefull this isn't TMI, my honey is on the smaller side of average, if he was large I think I would give it up and cry :) Cancer just sucks.

Merchie, I find that just listening to good porn is enough for me, can't see without my glasses anyway. Will watch some but it cannot look like the women are unwilling. Have found that men that watch porn are not expecting the same looks from their girlfriend, most know this is a fantasy world. Just like we would not expect them to look like the firefighter calendar. I should do an erotic audio tape for myself. Have you thought about maybe a beautiful tattoo, there are some awesome mastectomy tattoos. Maybe talk to a therapist about that.

A strong person is not the one that does't cry. A strong person is one who is quiet and sheds tears for a moment and then picks up her sword and fights again. Ash Sweeney Dx 11/13/2013, IDC, Right, 1cm, Stage IIIA, Grade 3, 4/11 nodes, ER+/PR+, HER2- Surgery 11/21/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 12/12/2013 AC Chemotherapy 2/27/2014 Taxol (paclitaxel) Radiation Therapy 5/18/2014 Breast Hormonal Therapy 5/22/2014 Femara (letrozole) Surgery 12/8/2014 Reconstruction (right)
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Nov 26, 2017 05:51PM hope70 wrote:

Hello Ladies! I have been on Aromasin( Exemestane) for over 2 years. I had my ovaries out 2 yrs ago . So, in total, I am in menopause for over 2 years now. Had no issues with vaginal dryness up until now. I did loose my libido ever since I went through all the treatments, surgeries...but I never had painful intercourse . My OBGYn confirmed vaginal atrophy and joked that he was expecting my call ( he was surprised that I did not have any dryness last year at my annual exam). I am puzzled. Why now and not a year or two ago.I am in tremendous discomfort. Burning and stinging down there ( day and night) making me miserable and depressed. Looking for suggestions, sisters. (OBGYN suggested vaginal estrogen cream, but I am afraid to use it. ALso, he gave me Metrogel (he noticed some "bacterial overgrowth") and during the use of Metrogel and for a few days after....I had no burning and was so happy. Now the burning is back....

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Nov 26, 2017 07:24PM Trvler wrote:

Hope: Did you stop intercourse for any time period?

Allison Dx 1/16/2015, ILC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- Dx 2/26/2015, ILC, Left, 4cm, Stage IIIA, Grade 2, 2/2 nodes, ER+/PR+, HER2- Chemotherapy 3/23/2015 AC + T (Taxol) Surgery 8/31/2015 Mastectomy; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Radiation Therapy 10/14/2015 Whole-breast: Breast, Lymph nodes Hormonal Therapy 12/31/2015
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Nov 28, 2017 10:27PM - edited Dec 10, 2017 10:50AM by Logang

I still swear by using coconut oil a few times a day to prevent vaginal dryness. I have been using it twice daily for over a year now and never have any discomfort. We have even skipped additional lube a few times.

Married mother of 2 boys (16 & 20). Diagnosed at age 39, Oncotype- 57, extensive family history, no genetic mutations found. Dx 1/8/2016, IDC, Right, 3cm, Stage IIA, Grade 3, 0/31 nodes, ER+/PR-, HER2- Surgery 1/25/2016 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Right Chemotherapy 3/11/2016 AC + T (Taxol) Hormonal Therapy 7/26/2016 Zoladex (goserelin) Hormonal Therapy 9/19/2016 Aromasin (exemestane) Surgery 11/3/2016 Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 4/9/2017 Reconstruction (left): Nipple tattoo, Silicone implant; Reconstruction (right): Nipple tattoo, Silicone implant Surgery 9/6/2017 Prophylactic ovary removal
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Nov 30, 2017 10:40PM - edited Dec 1, 2017 12:44PM by bc101

Hi ladies,

I was so happy to find this thread. I started taking DHEA suppositories a few weeks ago. Anyone else here taking it? Not sure, but I believe it's the same as Intrarosa. Sounds like a wonder drug and I'm feeling cautiously optimistic, but studies and information on this new drug is lacking, which is so frustrating. The only thing I've read is that it doesn't increase estrogen levels systemically. But then again, it hasn't been studied in women with breast cancer.


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Dec 1, 2017 10:02PM Kali44 wrote:

Hello,

I asked my team about using DHEA and because I am er+ I was told no 😕 Good luck! Maybe someone else has tried it ☺

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Dec 2, 2017 06:21PM ckfelix79 wrote:

Hi all my low libido ladies, I'm 38 and sex has not been great since I started all these treatments. I used to be a microwave and now am a crockpot, it takes a lot to warm me up and I still have little desire to climax. I use coconut oil for lube so am oK in that area but not OK with initiating or having the desire. I mean magic Mike could be in front if me and I'd flatline, its like dead down there! I'm currently on aromasin and lupron shot. I appreciate any and all behind bedroom door advice!!


Dx 2/28/2016, IDC, Right, 4cm, Grade 2, ER+/PR+, HER2-
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Dec 3, 2017 07:18PM corky60 wrote:

Hope 70, I use one part aloe vera gel and one part prescription-strength Lidocaine ointment 5%. I mix these together and apply internally 2-3 times per day with clean fingers. This was recommended by my PCP and helps with the burning.

I also use Estriol suppositories. These were prescribed by my naturopath and are made in a compounding pharmacy. This is to combat urovaginal atrophy. I was getting so many UTIs due to the atrophy. Now so far I've only had one this year.

Dx 3/25/2013, IDC, Right, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 4/25/2013 Lumpectomy: Right; Lymph node removal: Right Radiation Therapy 5/28/2013 Breast
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Dec 4, 2017 08:55PM runor wrote:

I saw a new doctor today after deciding that my other doctor was seriously falling down on the job. Has never once asked me how I'm doing, how is the LE, are you in pain, do you have full arm mobility, how are you doing with the tamoxifen - nothing!

This new doc had to give me the results of my mamm - the new lump in my good boob is just a cyst, but the bad boob looks like it might have more cancer. Or scars. We don't know if it's cancer or scars, so we'll wait and see - ugh.

When I told him that tamoxic was giving me night sweats, hot flahes, creaky joints and stopped my periods he said "How is your sex life?" And I thought, wow, the ladies at bc.org would appreciate that question! I said it was okay. He asked if I was having problems with lubrication and I said not so far, although I can't use soap anymore or I pay for it. He said, if things get miserable, come see him, no sense suffering in silence.

I think I like this doc much, much better.

Dx 3/23/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 4/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 7/5/2017 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Dec 5, 2017 04:17PM Trvler wrote:

Runor: I am so happy you got a new doctor. I am a firm believing in firing doctors who don't do a good job. Someday when I have an hour, I will tell you about my nightmare of an oncologist. ;)

Allison Dx 1/16/2015, ILC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- Dx 2/26/2015, ILC, Left, 4cm, Stage IIIA, Grade 2, 2/2 nodes, ER+/PR+, HER2- Chemotherapy 3/23/2015 AC + T (Taxol) Surgery 8/31/2015 Mastectomy; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Radiation Therapy 10/14/2015 Whole-breast: Breast, Lymph nodes Hormonal Therapy 12/31/2015
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Jan 4, 2018 02:25PM - edited Jan 4, 2018 02:26PM by honeybair

I was just prescribed Estrace vaginal cream, 1 gram vaginally three times per week to help alleviate urinary tract discomfort. Has anyone else used this product, and would you share your experiences with it? When I read the information warning insert, it scared the bejeepers out of me. Has anyone experienced anything of a negative nature with this drug? I also would love to hear about positive outcomes.

When I look into the future, it's so bright it burns my eyes... Oprah Winfrey Dx 12/6/2012, 6cm+, Stage IIIB, Grade 3, ER+/PR+, HER2+ Chemotherapy 1/29/2013 AC + T (Taxol) Targeted Therapy 4/2/2013 Herceptin (trastuzumab) Surgery 8/18/2013 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Radiation Therapy Breast, Lymph nodes
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Jan 4, 2018 08:53PM - edited Jan 4, 2018 08:59PM by bc101

I don't know anything about that product, but you might want to ask your doc about DHEA suppositories (also called Intrarosa). It's supposed to be a good alternative to estrogen creams as it does not get absorbed into the bloodstream. I've been taking it for about a month and it works wonders! That being said, I'm a huge advocate of doing your homework in order to make an informed decision. Get a second opinion from someone you trust, although you'll probably get a different answer depending on who you ask.


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Jan 5, 2018 12:37AM corky60 wrote:

Estrace increased my migraine headaches. I switched to compounded estriol suppositories to help urogenital atrophy.

Dx 3/25/2013, IDC, Right, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 4/25/2013 Lumpectomy: Right; Lymph node removal: Right Radiation Therapy 5/28/2013 Breast
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Jan 6, 2018 12:31PM - edited Jan 6, 2018 12:31PM by Trvler

I have been using Estrace for about 6 months. I just increased my dose from .5 2x week to .5 3x a week and have had no side effects. Sex has been better for us. I haven't had to use any lube at all anymore. I also freaked a little when reading the package insert. It said blood clots as a side effect and Tamoxifen has that and so does flying. So you would think I would have had one by now because I flew a lot last year.

Allison Dx 1/16/2015, ILC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- Dx 2/26/2015, ILC, Left, 4cm, Stage IIIA, Grade 2, 2/2 nodes, ER+/PR+, HER2- Chemotherapy 3/23/2015 AC + T (Taxol) Surgery 8/31/2015 Mastectomy; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Radiation Therapy 10/14/2015 Whole-breast: Breast, Lymph nodes Hormonal Therapy 12/31/2015
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Jan 6, 2018 09:32PM Diana67 wrote:

ESTRACE® CREAM or Scream Cream - are these allowed for triple negative cancer?

My gyn recommended only coconut oil.


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Jan 9, 2018 10:53AM Trvler wrote:

I have no idea but one would think estrogen cream would be ok if you are not hormone positive, especially if it's ok for ER/PR +?

Allison Dx 1/16/2015, ILC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- Dx 2/26/2015, ILC, Left, 4cm, Stage IIIA, Grade 2, 2/2 nodes, ER+/PR+, HER2- Chemotherapy 3/23/2015 AC + T (Taxol) Surgery 8/31/2015 Mastectomy; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Radiation Therapy 10/14/2015 Whole-breast: Breast, Lymph nodes Hormonal Therapy 12/31/2015
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Jan 9, 2018 02:42PM honeybair wrote:

Thanks, ladies, for all your information in response to my question about Estrace. It was very encouraging.

When I look into the future, it's so bright it burns my eyes... Oprah Winfrey Dx 12/6/2012, 6cm+, Stage IIIB, Grade 3, ER+/PR+, HER2+ Chemotherapy 1/29/2013 AC + T (Taxol) Targeted Therapy 4/2/2013 Herceptin (trastuzumab) Surgery 8/18/2013 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Radiation Therapy Breast, Lymph nodes
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Jan 17, 2018 09:44AM chicopeach57 wrote:

I quit using DHEA and went back to Estrace. Had bad sleep issues with it, it was messy, greasy and I developed an odor. The inactive ingredient is off white fat, wth??? It is also more expensive. I use .5 grams of Estrace a couple of times a week and use coconut oil after every shower. Still have to use lube, but at least I have desire

A strong person is not the one that does't cry. A strong person is one who is quiet and sheds tears for a moment and then picks up her sword and fights again. Ash Sweeney Dx 11/13/2013, IDC, Right, 1cm, Stage IIIA, Grade 3, 4/11 nodes, ER+/PR+, HER2- Surgery 11/21/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 12/12/2013 AC Chemotherapy 2/27/2014 Taxol (paclitaxel) Radiation Therapy 5/18/2014 Breast Hormonal Therapy 5/22/2014 Femara (letrozole) Surgery 12/8/2014 Reconstruction (right)
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Jan 17, 2018 01:23PM - edited Jan 17, 2018 01:23PM by Trvler

Is estrace supposed to effect libido? I didn't think so.

Allison Dx 1/16/2015, ILC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- Dx 2/26/2015, ILC, Left, 4cm, Stage IIIA, Grade 2, 2/2 nodes, ER+/PR+, HER2- Chemotherapy 3/23/2015 AC + T (Taxol) Surgery 8/31/2015 Mastectomy; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Radiation Therapy 10/14/2015 Whole-breast: Breast, Lymph nodes Hormonal Therapy 12/31/2015
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Jan 17, 2018 01:49PM - edited Mar 11, 2018 03:28PM by bc101

Hmmm...that's interesting about the sleep issue thing. DHEA isn't supposed to absorb into your bloodstream. But now that you mention it, I've been having crazy dreams lately - even though I cut my dose in half to every other night. It works so well for the dryness. Gotta love that!

It's also supposed to help with sex drive and incontinence. But I haven't noticed any difference one way or another with libido.

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Jan 17, 2018 02:45PM chicopeach57 wrote:

Crazy dreams and restless sleep, could not feel rested. The libido part I have to work on, with and without my DH. Sometimes it takes creativity but I still want to have desire. Makes it easier when it doesn’t hurt to have sex

A strong person is not the one that does't cry. A strong person is one who is quiet and sheds tears for a moment and then picks up her sword and fights again. Ash Sweeney Dx 11/13/2013, IDC, Right, 1cm, Stage IIIA, Grade 3, 4/11 nodes, ER+/PR+, HER2- Surgery 11/21/2013 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 12/12/2013 AC Chemotherapy 2/27/2014 Taxol (paclitaxel) Radiation Therapy 5/18/2014 Breast Hormonal Therapy 5/22/2014 Femara (letrozole) Surgery 12/8/2014 Reconstruction (right)
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Jan 21, 2018 07:25PM Falconer wrote:

Sex After Cancer

https://www.nytimes.com/2018/01/18/well/live/sex-a...

In today's Times. Anyone of us could've written it!

Strong is the new strong. Dx at 45. Onco 16. Monthly Lupron shots Nov. 2016-December 2017 Dx 7/2016, IDC, Left, 1cm, Stage IB, Grade 2, 0/3 nodes, ER+/PR+, HER2- Dx 7/2016, DCIS, Left, 5cm, Stage 0, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 5/30/2017 Reconstruction (left): DIEP flap Surgery Lymph node removal: Sentinel; Mastectomy: Left Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Aromasin (exemestane), Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 21, 2018 10:19PM anotherNYCGirl wrote:

Falconer, - I just signed on to post that article, too!

Dx 1998, DCIS, Stage 0 Surgery 3/18/1998 Lumpectomy: Left Dx 6/2000, ILC, Stage IA, 0/3 nodes, ER+/PR+, HER2- Surgery 7/11/2000 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 8/1/2000 CMF Hormonal Therapy 2/11/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 2/12/2001 Breast Hormonal Therapy 2/12/2006 Femara (letrozole) Dx 2/2014, ILC, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 3/25/2014 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 5/2/2014 AC + T (Taxol) Surgery 11/20/2014 Reconstruction (left); Reconstruction (right) Surgery 1/14/2015 Reconstruction (right): Tissue expander placement Surgery 5/28/2015 Reconstruction (right): Latissimus dorsi flap, Silicone implant Surgery 2/22/2016 Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction
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Jan 22, 2018 07:38AM - edited Jan 25, 2018 07:00PM by bc101

This Post was deleted by bc101.
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Jan 25, 2018 07:01PM bc101 wrote:

Has anyone tried any moisturizing products from the MiddlesexMD.com site?

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Mar 1, 2018 08:56PM PinkWarriorPrincess wrote:

I’m posting this for information on the subject of painful sex since chemotherapy and keeping me in menopause. I’ve seen a specialist, a urogynecologist which I didn’t know existed. I am currently having pelvic floor therapy because my muscles are in continuous spasms. He also prescribed Valium suppositories. If this doesn’t help then there is a fairly new procedure called thermiva!

Look it up! I’m seriously considering it. I was diagnosed at 49 now I’m going on 52 and have a very unhappy sex life!

Dx 2/10/2016, IDC, Right, 2cm, Stage IIA, Grade 2, 2/19 nodes, ER+/PR+, HER2- Surgery 3/22/2016 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 4/15/2016 Lymph node removal: Right Chemotherapy 5/2/2016 AC + T (Taxol) Hormonal Therapy 10/19/2016 Aromasin (exemestane) Surgery 12/22/2016 Reconstruction (left): Nipple tattoo, Silicone implant; Reconstruction (right): Nipple tattoo, Silicone implant
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Mar 11, 2018 12:31AM kae_md99 wrote:

can anyone recommend something for vaginal dryness without using an applicator?just a cream maybe? and a good vaginal wash?thanks

kae, 1-10-17, IDC,2.5 cm, right,er,pr,her2 (+),grade 2;DCIS, left, er,per(+),grade 2; 2-17-17- Taxotere, Carboplatin ; 2-17-17- Herceptin , Perjeta; july 14,2017,BMX,TE's,SNB,0/3;8/2017,Zoladex;1/26/2018,Arimidex

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