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Help with Abbreviations

Topic: I WANT MY MOJO BACK!

Forum: Sex & Relationship Matters —

A safe place to talk candidly about how your romantic relationships and/or your sex life has changed following your diagnosis and treatment.

Posted on: Oct 17, 2004 11:45AM - edited Feb 9, 2016 11:04AM by Moderators

Mena wrote:

Hey girls,

You know, this loss of libido thing is just unnacceptable. I was in the chat room earlier today and mentioned it and man, you should've heard how many of us are experiencing this problem. I promised the ladies I'd post my rant, so here it comes (or....doesn't ).

If bc were a man's disease, not only would there be a cure for bc by now, but certainly there'd be a plethora of non-hormonal therapies available for whatever the female version is of "erectile dysfuntion". I don't think I'm exaggerating. I'll make the damn commercials myself (no pride here lol).

Prior to the news of my recurrence/mets (August) my husband and I had a phenomenal sex life. I absofreakinlutely loved making love to my husband. (Btw, I'm 43; and as part of tx for mets, I was chemically oopherized with Zoladex and take Femara daily).

I still enjoy loving my love. Emotionally, spiritually, mentally, I do. Even physically I still like it. It's just not rockin' my world, as they say, like it used to. I miss that. And I refuse to accept this as acceptable. It is not. If the genders were reversed, this would be the first &%$#* problem they'd address! Well, ok, the second.

I know the clinical reasons for the low libido, but there's got to be something out there for us that's not contraindicated with treatment. Here's what I've tried so far: a Zen approach; a "go w/the flow" attitude; a "get started and it'll all just kick in" mindset; a "try not to think about it at all" focus; et al.

I'm interested in hearing what the rest of you have to say about this matter, and I know it is an intimate one. But we're all sisters and I do hope some of you will share your experiences and whatever help you've found for missing mojo.

Thanks for letting me vent. God Bless.

Mena

****************************Addition from February 4, 2016***********************************

Hi All,

We've gone through a lot (not all) of the pages on this topic, and tried to compile your suggestions.

Do you feel that this is a complete list of what has been discussed here? Please help us make a comprehensive list of your ideas!


Member suggestions for helping the libido:

Watch romantic movie or soft-porn on Netflix

Romantic music

Watch porn or visit short videos on Tumblr, YouTube, or other internet site

A little wine, or other substance to help relax (e.g. medical marijuana)

Sexual photos

Massage and massage oils

Literotica: Erotic/sexual stories as an alternative to images

Super sexy lingerie or fun clothing

Have partner practice foreplay and/or oral sex

Practice masturbation on a regular basis

Mindfulness, i.e. focus on what your five senses are experiencing in the moment --To keep your thoughts from dwelling on cancer and scars


Member suggestions to improve vaginal moisture:

Coconut oil works best as a moisturizer (freeze small balls to make suppositories)

Vitamin E suppositories

Almond oil

Replens long-lasting moisturizer

Luvena vaginal moisturizer

Shea butter melted into olive oil at a 2:1 ratio

Cocoa butter

Olive oil

Gynatrof gel

DHEA vaginal suppositories

Tip to use an applicator to insert moisturizers and apply a few times a week.


Member suggestion for lubrication during sexual activity:

Astroglide Natural (free from glycerin, fragrance, flavorings, and hormones)

Slippery Stuff (free from glycerin and parabens)

K-Y warming Jelly

K-Y Sensual Silk Liquid (paraben-free)

K-Y Liquibeads

K-Y UltraGel (paraben-free)

Astroglide, X (silicone-based)

Platinum Wet (silicone-based)

Replens silky smooth lubricant (silicone-based)

Sliquid natural lubricants (free from DEA, gluten, glycerine, glycerol, parabens, PEG, propylene glycol, sorbitol & sulphates)


Additional member suggestion to reduce pain:

Topical Lidocaine solution for use at the entrance of the vagina


Member suggestion for sex toys:

Vibrators (e.g. Hitachi Magic Wand, Pink Dot Vibe, Pocket Rocket, the Rabbit)

Dildos for pleasure, to stretch the entrance, prevent vaginal atrophy and strengthen muscles


Member suggestion for estrogen or hormone-based treatments

(MUST discuss first with oncologists as not typically recommended for women who have had breast cancer)

Vagifem® (estradiol vaginal tablets) inserts

Testosterone patch or gel

ESTRING® (estradiol vaginal ring)

ESTRACE® CREAM (estradiol vaginal cream)

Scream Cream - contains a combination of prescription and non-prescription components described as blood flow enhancers and vasodiolators to apply to your clitoris (adding here, as it contains a bit of Testosterone- 0.25mg per dose)


Other member suggestions:

Kegel exercises to strengthen pelvic muscles

Pelvic physical therapy

Dilators to stretch the skin in your vaginal area and re-train the pelvic floor muscles to relax

Observe which antidepressant you take, and make necessary changes

MonaLisa Touch: A minimally invasive laser treatment for vaginal rejuvenation.

Easier if she "goes first".

Regular activity is important.

Read the book, COUPLES CONFRONTING CANCER: KEEPING YOUR RELATIONSHIP STRONG, by Fincammon & Bruss, published by the American Cancer Society.

Share this thread with your husband/lover to create a new bond of intimacy, normalize what others are going through and open communication.

Take a look at this resource: https://sexualityresources.com

Dx 8/8/2004, IDC, Stage IV, Grade 3, 1/20 nodes, mets, ER+/PR+, HER2+
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Sep 22, 2018 08:25AM coachvicky wrote:

LillyDuff ... tell me about this coconut oil ... the kind from the grocery store? Where and how do you apply it? If this is too personal, please PM me. I am doing the Juliet Laser Treatment and vaginal expanders (those were a strange Amazon purchase, LOL).

Coach Vicky

Dx 6/2016, DCIS/IDC, Both breasts, Stage IIA, Grade 3, ER+/PR+, HER2+ (FISH) Dx 6/7/2016, LCIS/DCIS/IDC, Right, 4cm, Stage IIA, Grade 3, ER+/PR+, HER2+ (FISH) Surgery 7/11/2016 Mastectomy; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 8/21/2016 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 8/22/2016 Herceptin (trastuzumab) Surgery 1/20/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 2/22/2017 Prophylactic ovary removal Hormonal Therapy 4/4/2017 Arimidex (anastrozole) Surgery 10/19/2017 Surgery Targeted Therapy
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Sep 22, 2018 08:46AM bella2013 wrote:

Coach Vicky, I have wanted to order those too from Amazon but it will be in our purchase history for all eternity 😱😳😂. My husband not knowing this said last night, do you know Amazon has the history of all our purchases going back to 2008? Coach, ifyou can do I can do it LOL!

I hope Lillyduff will respond here. Inquiring BC sisters need to know this stuff. I have started using coconut oil. It’s the organic coconut oil I buy from COSTCO. I keep a small container next to my shower. I currently use long Q-tip swabs. I get as much coconut oil on the swab and up it goes. I feel like I am hydrating my veejayjay! I don’t feel like a 100 year old woman “down there”.

Cheers!


Diagnosed at 60 years old. Oncotype Score=14. Dx 12/4/2017, IDC, Left, 4cm, Stage IB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 1/4/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 2/22/2018 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy Arimidex (anastrozole)
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Sep 22, 2018 11:22AM coachvicky wrote:

Thanks Bella. I will get the coconut oil.

I am moist after my first laser treatment, thankfully.

Here is what I ordered:

VIBIO Active Kegel Exerciser Set with Powered Handle and 4 Graduated Tips Physician Recommended for Bladder Control and Pelvic Floor Exercises + Discreet... by IntiMD

It is in our history.

Coach Vicky


Dx 6/2016, DCIS/IDC, Both breasts, Stage IIA, Grade 3, ER+/PR+, HER2+ (FISH) Dx 6/7/2016, LCIS/DCIS/IDC, Right, 4cm, Stage IIA, Grade 3, ER+/PR+, HER2+ (FISH) Surgery 7/11/2016 Mastectomy; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 8/21/2016 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 8/22/2016 Herceptin (trastuzumab) Surgery 1/20/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 2/22/2017 Prophylactic ovary removal Hormonal Therapy 4/4/2017 Arimidex (anastrozole) Surgery 10/19/2017 Surgery Targeted Therapy
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Sep 22, 2018 01:33PM - edited Sep 23, 2018 08:37AM by LillyDuff

Coachvicky:

I use Organic Unrefined Virgin Coconut Oil Expeller Pressed (Walmart-Great Value). Very economical!!! I buy a big jar and spoon it out then add to a smaller plastic container to keep in the bathroom. I have since stored the plastic container in a zip lock bag in case of leaks. The coconut oil can melt easily in warmer temps. so then leaks can occur.) I then just keep the big jar in the kitchen and fill my smaller container when needed. I use a small plastic spatula that I had from another skin care jar that I keep clean and just for the coconut oil. Just scoop out a small amount and apply to the outer and inner vulva area in the morning after shower and at night before bedtime. I use it about three times a day after the Mona Lisa Touch treatments for a few days until the tissue calms down a bit. The coconut oil can get messy, so I usually have a towel handy to place on the floor in case it drips. Also,end up wearing panty liners for the same reason.

Besides that, I spoon out coconut oil in smaller cylinder shaped ice cube trays and freeze overnight. When frozen, I cut smaller pieces (like sugar cube size) and store in a plastic container in the refrigerator. A coconut oil cube can be inserted at bedtime into the vagina for an all natural moisturizer. So soothing and no chemicals to worry about. I read about this idea on hystersisters.com website. My Gynecologist also recommended using coconut oil as a natural moisturizer.

Great for skin too! I have also ended up using the coconut oil on my legs after shaving as a moisturizer and it's great. Such an inexpensive way to go too!!!!!!!!! All in all it takes a little preparation to divide up the amounts for the smaller container and to freeze etc. but it's worth the effort. Maybe give it a try?

Dx 4/25/2017, IDC, Left, 2cm, Stage IIB, Grade 3, 0/4 nodes, ER+/PR-, HER2+ (FISH) Targeted Therapy 5/15/2017 Herceptin (trastuzumab) Chemotherapy 5/15/2017 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 5/15/2017 Perjeta (pertuzumab) Surgery 11/13/2017 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 11/14/2017 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Radiation Therapy 1/25/2018 Whole-breast: Breast, Lymph nodes, Chest wall Surgery 7/18/2018 Prophylactic ovary removal Hormonal Therapy 9/29/2018 Arimidex (anastrozole)
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Sep 22, 2018 01:40PM LillyDuff wrote:

Bella2013:

Just posted my coconut oil process on this thread, so hope that helps. (I like your comment about not feeling like a 100 year old woman "down there!"Happy)This is a wonderful thread that is so important to BC patients but also post hysterectomy and menopausal woman as well. Keep the sharing of ideas coming!!! Quality of life!ThumbsUp

Dx 4/25/2017, IDC, Left, 2cm, Stage IIB, Grade 3, 0/4 nodes, ER+/PR-, HER2+ (FISH) Targeted Therapy 5/15/2017 Herceptin (trastuzumab) Chemotherapy 5/15/2017 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 5/15/2017 Perjeta (pertuzumab) Surgery 11/13/2017 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 11/14/2017 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Radiation Therapy 1/25/2018 Whole-breast: Breast, Lymph nodes, Chest wall Surgery 7/18/2018 Prophylactic ovary removal Hormonal Therapy 9/29/2018 Arimidex (anastrozole)
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Sep 22, 2018 02:21PM coachvicky wrote:

The things I have learned! Thank you so very much. I bought some pumpkin ice cube trays. They are very small. I think I will do the ice in those. It should make for a good night time conversation with DH.

Thank you, LillyD!

Coach Vicky

Dx 6/2016, DCIS/IDC, Both breasts, Stage IIA, Grade 3, ER+/PR+, HER2+ (FISH) Dx 6/7/2016, LCIS/DCIS/IDC, Right, 4cm, Stage IIA, Grade 3, ER+/PR+, HER2+ (FISH) Surgery 7/11/2016 Mastectomy; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 8/21/2016 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 8/22/2016 Herceptin (trastuzumab) Surgery 1/20/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 2/22/2017 Prophylactic ovary removal Hormonal Therapy 4/4/2017 Arimidex (anastrozole) Surgery 10/19/2017 Surgery Targeted Therapy
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Sep 22, 2018 06:24PM PoseyGirl wrote:

I may try the coconut oil cubes too.

Ladies, one word of caution about kegels. Make sure you are not tightening if you should be relaxing. See your gyn before self prescribing exercises...


Radiation Therapy 1/11/2016 Whole-breast: Breast, Lymph nodes, Chest wall Dx 6/23/2016, IDC, Right, 6cm+, Stage IIIA, Grade 3, ER+/PR+, HER2+ (IHC) Chemotherapy 7/11/2016 AC + T (Taxol) Targeted Therapy 9/15/2016 Herceptin (trastuzumab) Surgery 11/29/2016 Lymph node removal: Right; Mastectomy: Right Hormonal Therapy 12/21/2016 Femara (letrozole)
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Sep 22, 2018 08:15PM LillyDuff wrote:

PoseyGirl and coachvicky: Great! Good luck with the homemade coconut oil inserts. Please post your recommendations/tips for improvements if you have anything else to add. Sharing our experiences can help us all!Smile

Dx 4/25/2017, IDC, Left, 2cm, Stage IIB, Grade 3, 0/4 nodes, ER+/PR-, HER2+ (FISH) Targeted Therapy 5/15/2017 Herceptin (trastuzumab) Chemotherapy 5/15/2017 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 5/15/2017 Perjeta (pertuzumab) Surgery 11/13/2017 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 11/14/2017 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Radiation Therapy 1/25/2018 Whole-breast: Breast, Lymph nodes, Chest wall Surgery 7/18/2018 Prophylactic ovary removal Hormonal Therapy 9/29/2018 Arimidex (anastrozole)
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Sep 23, 2018 01:12AM runor wrote:

With an increase in discharge, be it from tamoxifen or from coconut oil, the use of panty liners can become its own problem. Panty liners are a paper product. Made from wood fibre. They can irritate tender tissue.

I used to (but no longer do) make and sell cotton feminine products and one of the items I made was a re-usable, washable cotton panty liner. And if you're thinking eww, that's gross ...think again. The difference between wearing a soft piece of cotton against your body or a paper product is a huge difference, especially if you wear one all day, every day. Not to mention the whole environmental issue of throwing plastic backed items, by the TON into dumps.

If anyone is interested I can explain how I made them. But it's something to consider when we are talking about tissues that are battling the odds. Paper is made of wood. It will never be as kind to your lady bits as cotton.

Dx 3/23/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 4/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 7/5/2017 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 23, 2018 08:35AM LillyDuff wrote:

I actually use Organyx brand panty liners. They are 100% organic cotton and breathable. Have used them for years. CVS pharmacy generic brand pure cotton panty liners are the exact same and less expensive.I do not use anything at night but loose p.j. bottoms to let things "air out." Years ago,I purchased cloth panty liners on amazon that snapped in place around the center panel of my underwear. I still have them and they are machine washable.

Dx 4/25/2017, IDC, Left, 2cm, Stage IIB, Grade 3, 0/4 nodes, ER+/PR-, HER2+ (FISH) Targeted Therapy 5/15/2017 Herceptin (trastuzumab) Chemotherapy 5/15/2017 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 5/15/2017 Perjeta (pertuzumab) Surgery 11/13/2017 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 11/14/2017 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Radiation Therapy 1/25/2018 Whole-breast: Breast, Lymph nodes, Chest wall Surgery 7/18/2018 Prophylactic ovary removal Hormonal Therapy 9/29/2018 Arimidex (anastrozole)
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Sep 23, 2018 08:37AM Jjewel wrote:

Good morning ladies! I love this thread. I used coconut oil because after menopause I started the dryness problem. Chemo made it worse......Sometimes it just felt irritated down there and it was soothing.

On a funny note, my best friend and I discovered our mutual love for coconut oil. Now when we talk about anything related to our sex lives, we call it, "Coconut Oil time!"

😉 We love the stuff!!!!

Jenny



Dx IDC, ER+/PR+, HER2+
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Sep 29, 2018 08:28PM Wanderingneedle wrote:

LillyDuff I am trying to figure out how to do this and keep the rest of the household out of my business! I live where it’s warm most of the year so keeping coconut oil in the bathroom is not feasible. I will figure something out! Thanks for the idea

Libby - Just trying to figure it all out and keep up with daily life. Dx 11/9/2017, IDC, Right, 6cm+, Stage IV, metastasized to bone, Grade 3, ER+/PR+, HER2- (IHC) Hormonal Therapy 1/23/2018 Femara (letrozole) Targeted Therapy 1/23/2018 Ibrance (palbociclib) Chemotherapy 9/14/2018 Abraxane (albumin-bound or nab-paclitaxel)
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Oct 6, 2018 11:06AM bc101 wrote:

A while back someone asked about VMagic. I've used it in the past and liked it - very nice, soothing balm. The ingredients are olive oil, avocado oil, sea buckthorn oil, beeswax, propolis and honey. It works great, but at 2 oz for $29.99 I think I'll try either olive or coconut oil.

Dx 6/2013, ILC, 5cm, Stage IIB, Grade 1, 1/18 nodes, ER+/PR+, HER2-
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Oct 20, 2018 09:58AM Peaceful02 wrote:

I was diagnosed in August with a very small - DCIS Stage 0. Lumpectomy-no radiation. Just started anastrozole a week ago. I am older than many on here - 68. Had to have a total hysterectomy in my late 30's and went on HRT (probably too long thus possibly causing breast cancer). When I was told at 53 by my ob/gyn I had to stop HRT as I had been on it too long I was very worried about my intimate relationship with my husband. I loved sex! The doctor put me on Estrace vaginal cream at that time and it has worked very well for me. I also had a history of UTI's and the Estrace helps that also. As far as helping libido, not so much, and I miss that "feeling" very much! But you adapt with an understanding husband and positive thinking. When I was first diagnosed with BC in August I assumed the first thing the doctor would tell me would be stop using Estrace. However, my breast surgeon and my oncologist have told me they are totally comfortable for me to continue using Estrace as long as I use the least amount to achieve comfort. The downside,Estrace is extremely expensive ($230/tube), however, a tube lasts for many months. I guess the insurance companies don't feel that it is important for women to continue to enjoy sex after menopause even though they will pay for Viagra for a man - totally unfair in my opinion. Each of our cancers are different but, that being said, my doctors both said they believe in a quality of life.

Dx 8/2018, DCIS, Right, <1cm, Stage 0, Grade 1, ER+/PR+, HER2- Surgery 9/5/2018 Lumpectomy Hormonal Therapy 10/11/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Nov 10, 2018 11:31PM Molly50 wrote:

Have any of you tried Imvexxy? My gyn just prescribed it. It's 10mcg vaginal estrogen in small pill size insert. Not messy like Estrace and very low dose. I have severe atrophy even after working so hard to keep things moisturized.

54 years old. Chek2 mutation. Family history of BC. Oncotype Dx 13 Extensive LVI Dx 6/8/2015, IDC, Left, 2cm, Stage IIB, Grade 2, 2/9 nodes, ER+/PR+, HER2- (FISH) Dx 7/29/2015, DCIS, Left, <1cm, Stage 0, Grade 2, ER+/PR+ Surgery 7/29/2015 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Surgery 9/4/2015 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 10/13/2015 Arimidex (anastrozole) Radiation Therapy 10/20/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 4/22/2016 Aromasin (exemestane) Surgery 7/22/2016 Prophylactic mastectomy: Right; Reconstruction (right): Tissue expander placement Surgery 3/21/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Nov 14, 2018 11:38PM Lamp wrote:

Hi Molly50 this product sounds very similar to vagifem! Are you having much success?

All the best!


Dx 10/15/2012, IDC, 1cm, Stage II, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 11/8/2012 Lymph node removal: Left, Sentinel; Mastectomy: Left, Right Hormonal Therapy 1/3/2013 Arimidex (anastrozole)
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Nov 15, 2018 12:10PM corky60 wrote:

Vagifem now has a generic called Yuvafem.  I tried them both and neither did anything.  10mcg is such a miniscule amount of hormone.  I know that hormones are powerful but that teeny, tiny amount didn't work.  Instead I see a naturopath who prescribes a suppository: 0.5 mg of estriol compounded in a cocoa butter base.  Estriol is a very weak form of estrogen but has made a difference.  I still don't have any "oomph" but things aren't so dry and I no longer need to wear a pad to catch all the leaks.

Dx 3/25/2013, IDC, Right, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 4/25/2013 Lumpectomy: Right; Lymph node removal: Right Radiation Therapy 5/28/2013 Breast
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Nov 16, 2018 10:55AM Molly50 wrote:

Lamp, yes I having great success so far and it is not messy like Estrace and much smaller dosage than Vagifem. It comes in 10 mcg or 4 mcg.

54 years old. Chek2 mutation. Family history of BC. Oncotype Dx 13 Extensive LVI Dx 6/8/2015, IDC, Left, 2cm, Stage IIB, Grade 2, 2/9 nodes, ER+/PR+, HER2- (FISH) Dx 7/29/2015, DCIS, Left, <1cm, Stage 0, Grade 2, ER+/PR+ Surgery 7/29/2015 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Surgery 9/4/2015 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 10/13/2015 Arimidex (anastrozole) Radiation Therapy 10/20/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 4/22/2016 Aromasin (exemestane) Surgery 7/22/2016 Prophylactic mastectomy: Right; Reconstruction (right): Tissue expander placement Surgery 3/21/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Nov 16, 2018 10:56AM Molly50 wrote:

Corky that is great you have something that works for you!. I use a lot of other product in addition to the tiny bit of estrogen. Honestly I am relieved to be out of constant pain.

54 years old. Chek2 mutation. Family history of BC. Oncotype Dx 13 Extensive LVI Dx 6/8/2015, IDC, Left, 2cm, Stage IIB, Grade 2, 2/9 nodes, ER+/PR+, HER2- (FISH) Dx 7/29/2015, DCIS, Left, <1cm, Stage 0, Grade 2, ER+/PR+ Surgery 7/29/2015 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Surgery 9/4/2015 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 10/13/2015 Arimidex (anastrozole) Radiation Therapy 10/20/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 4/22/2016 Aromasin (exemestane) Surgery 7/22/2016 Prophylactic mastectomy: Right; Reconstruction (right): Tissue expander placement Surgery 3/21/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Nov 17, 2018 12:50PM bc101 wrote:

Just curious - has anyone tried Ospemifene?


Dx 6/2013, ILC, 5cm, Stage IIB, Grade 1, 1/18 nodes, ER+/PR+, HER2-
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Dec 1, 2018 04:44AM Cyto_Destructo wrote:

Im having more of a problem with my mind than my body.

I'm surprisingly still not dry after 3 years of arimidex. My pelvic muscles are in great shape.

I just have no desire. I almost feel prepubescent. It doesn't cross my mind. I don't desire to masturbate. Which is such a bummer of a turn around of how I used to be.

The doctors were all so concerned with my ability to have a child, they never talked about the hormone related loss of sex drive. It's like they think our sexual function is only for conception. But I just want to genuinely enjoy myself.

How do you get back that instinct?

It's beyond frustrating.



Dx 2/2015, Right, <1cm, Stage IIA, ER+, HER2- Chemotherapy 4/23/2015 AC + T (Taxol) Surgery 2/5/2018 Surgery Lumpectomy: Right; Lymph node removal: Underarm/Axillary Radiation Therapy Breast, Lymph nodes Hormonal Therapy Arimidex (anastrozole)
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Dec 4, 2018 05:54AM coachvicky wrote:

Cyto ... I don't know. I think the medical professionals are so focused on saving our lives that often quality of life is, unfortunately, forgotten. Have you thought of seeing a sex counselor?

Coach Vicky

Dx 6/2016, DCIS/IDC, Both breasts, Stage IIA, Grade 3, ER+/PR+, HER2+ (FISH) Dx 6/7/2016, LCIS/DCIS/IDC, Right, 4cm, Stage IIA, Grade 3, ER+/PR+, HER2+ (FISH) Surgery 7/11/2016 Mastectomy; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 8/21/2016 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 8/22/2016 Herceptin (trastuzumab) Surgery 1/20/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 2/22/2017 Prophylactic ovary removal Hormonal Therapy 4/4/2017 Arimidex (anastrozole) Surgery 10/19/2017 Surgery Targeted Therapy

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