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Topic: Everything No One Tells You About Cancer and Your Sex Life

Forum: Sex & Relationship Matters —

A safe place to talk candidly about how your romantic relationships and/or your sex life has changed following your diagnosis and treatment.

Posted on: Nov 20, 2014 10:22AM - edited Jan 19, 2016 07:36AM by OneBadBoob

OneBadBoob wrote:

Everything . . .I found this booklet on line and wanted to share

updated link to this booklet

Jane - Dance as if no one is watching!! Dx 7/7/2007, IDC, <1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2-
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Page 5 of 9 (255 results)

Posts 121 - 150 (255 total)

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Jan 31, 2016 12:46AM cuddyclothes wrote:

Sex is incredibly painful for me and has been for some time. I had menopause about two years ago (I'm 59). Real "sandpaper sex", and the entry hurts like a bitch! For awhile I was using Premarin, which helped some. I'm going to try Vagifem, and Replens. Also, I'll ask to be tested for VVS, since that hurts the worst.

We used KY but that didn't work. So we bought a lube. My doctor said to try Crisco. That's worked best of all but I still have pain!

Dx 6/30/2015, IDC: Papillary, Left, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 7/22/2015 Lumpectomy; Lymph node removal: Sentinel Radiation Therapy 11/11/2015 Dx 6/5/2016, LCIS, Right, <1cm
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Feb 3, 2016 02:16AM yoga_girl wrote:

cuddyclothes

http://katiedenouden.com/blog/ditch-the-k-y-jelly-...

Dx 4/7/2013, IDC, 2cm, Stage IB, Grade 3, 0/2 nodes, ER-/PR-, HER2- Surgery 9/1/2013 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 10/27/2013 3DCRT: Breast, Lymph nodes Hormonal Therapy 6/14/2014 Femara (letrozole)
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Feb 3, 2016 08:05AM FLBuckeye93 wrote:

OndbadBoob Thank you for the booklet. I'm undergoing chemo and have had a period for over four weeks due to a fibroid. No menopause for me yet. So, sex has been non existent for DH and me. The one thing the booklet doesn't say that I am embarrassed to ask about oral sex. Is it ok to swallow? 😳

Dx 10/2015, DCIS/IDC, Left, 3cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Hormonal Therapy 6/21/2016 Aromasin (exemestane) Dx 10/2016, LCIS, Right, 0/1 nodes Surgery 6/20/2017 Mastectomy: Left, Right; Reconstruction (left): SGAP flap/hip flap; Reconstruction (right): SGAP flap/hip flap Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery Lumpectomy: Left Radiation Therapy Whole-breast: Breast, Lymph nodes
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Feb 3, 2016 11:39AM littleblueflowers wrote:

Buckeye- that's a good question! I gave my husband so much oral during chemo that I gave myself TMJ, so watch that. I also swallowed. Unless there is an underlying medical condition I can't see a reason no to.

If it stops the nightmares, it probably won't kill me Surgery 3/8/2015 Mastectomy: Left, Right Dx 3/9/2015, IDC, Left, 1cm, Stage IB, Grade 3, 2/16 nodes, ER-/PR-, HER2- Radiation Therapy Lymph nodes Chemotherapy AC + T (Taxol)
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Feb 3, 2016 05:45PM corky60 wrote:

Vaginal atrophy, oh boy is it causing problems!

Five UTIs since September, plus lots of pelvic pain. I use Carlson vitamin E suppositories (coconut and palm oils) plus Crème de la Femme. But the pelvic pain is nearly constant. Last time I spoke to my oncologist she said absolutely no estrogen due to my being 100%ER positive. But my PCP says that's the only thing that will help. This month I'm getting a pelvic ultrasound, seeing a urologist, plus seeing my oncologist. She won't even consider Vagifem. I really want to try it and get my blood estrogen levels measured before and during. My PCP also wants me to see a gynecologist to see if there's anything new in the way of estrogen for this problem.

Complete hysterectomy years ago and stopped Aromasin and tamoxifen a year and a half ago.

Suggestions, thoughts?

Dx 3/25/2013, IDC, Right, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 4/25/2013 Lumpectomy: Right; Lymph node removal: Right Radiation Therapy 5/28/2013 Breast
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Feb 4, 2016 05:47PM cuddyclothes wrote:

corky60 you might want to consider getting a second opinion. It seems odd to have NO estrogen but I'm not ER+.

There are pain blockers; that was what I was first advised to get. For instance, lidocaine patches.

Dx 6/30/2015, IDC: Papillary, Left, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 7/22/2015 Lumpectomy; Lymph node removal: Sentinel Radiation Therapy 11/11/2015 Dx 6/5/2016, LCIS, Right, <1cm
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Feb 5, 2016 03:00AM - edited Feb 5, 2016 03:04AM by Joiee8

I know I am a very lucky person to have had successful treatment, only needed the lump removed, radiotherapy and about to start Tamoxifen ......BUT it's SO condecinging to be told how lucky you are, and then have no real help with something so basic to your life as your sex life and intimacy with probably the one who has supported you the most.

It seems impossible to just find basic answers to what available, what others have tried and the results if any to help with vaginal dryness

Just a real commentary of what there is? I'm single and not really wanting to have to baste a lover in coconut oil from the hello .... So any practical knowledge out there?

Quality of life is as important as quantity

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Feb 5, 2016 06:52AM Suz-Q wrote:

I Want My MOJO Back!

Joiee8, there might be some tips over at the I Want My Mojo Back! discussion thread. The moderator just compiled a nice list in the last few days. Sorry you have to tackle this without a steady partner. It must make dating extremely tough!


56 at diagnosis. Oncotype DX 10 Dx 9/17/2015, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 11/3/2015 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 12/14/2015 Whole-breast: Breast Hormonal Therapy 1/21/2016 Arimidex (anastrozole) Surgery 8/4/2016 Reconstruction (right): Fat grafting Hormonal Therapy 10/7/2017 Aromasin (exemestane)
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Feb 5, 2016 06:55AM Trvler wrote:

Corky: I agree with a second opinion. My doctor says it is a quality of life issue and although she doesn't prescribe it, she says it's ok to take if I have to. With that said, I am finding a new GYN because my last doctor let me down by not getting me diagnosed earlier.

Allison Dx 1/16/2015, ILC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- Dx 2/26/2015, ILC, Left, 4cm, Stage IIIA, Grade 2, 2/2 nodes, ER+/PR+, HER2- Chemotherapy 3/24/2015 AC + T (Taxol) Surgery 9/1/2015 Mastectomy; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Radiation Therapy 10/15/2015 Whole-breast: Breast, Lymph nodes Hormonal Therapy 1/1/2016
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Feb 5, 2016 02:35PM corky60 wrote:

I don't have a gyno but have a referral for one. I'll call that dr. my second or even third opinion since my PCP and oncologist both say "no."

Dx 3/25/2013, IDC, Right, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 4/25/2013 Lumpectomy: Right; Lymph node removal: Right Radiation Therapy 5/28/2013 Breast
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Feb 5, 2016 10:27PM - edited Feb 5, 2016 10:32PM by sas-schatzi

Okay, hesitated to post here, You are going to want to riddle me with scattershot. I was married for 38 years. DH and I were dx'd 3 months apart. His was lymphoma. We hadn't had sex in about 20 years. He was impotent due to diabetes and just couldn't deal with anything physical.

2 1/2 years after he died, I met a guy. We started a physical relationship. It was a tough go at first. I was 62 he was 54. We worked it out.

What I don't understand is it all works. Not suppose too, but it does. If he takes time I lubricate just fine. If not, I grab the petroleum. Entry is just as it was before Dh and I stopped. Tight, but okay with a bit of a wait, not much, but a bit.

My Gyn doc, and my Gyn oncologist have no explanation. Gyn Oncologist is on board because of problems created by RAI 131 radioactive iodine 131 problems created in the vulva area.

Okay, hate me, but any clue why I'm not having difficulty. Oh yeah, I was on the Ai's for maybe a total time of 2 1/2 years over 3 1/2 years. 2009-2012(2013) Tried all three. Horrible s.e.'s just chose that for me it wasn't worth it. My s.e's were exacerbation of post polio pain >>fibromyalgia to the a degree that was beyond sustainable. That much pain I decided wasn't worth it.

So what's up? Why can I do it without dilating and stuff? Please, don't scream at me. I consider myself pretty weird at this point, 65a nd no problems

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Feb 5, 2016 11:48PM rleepac wrote:

Sas- some women just have more problems than others. I had a heck of a time during chemo but I actually have some discharge with tamoxifen and only occasionally need lube and it's not painful most of the time. Don't ever feel bad that you've got it good...just enjoy it!

Bekah 1/6/15: Excisional biopsy 2.1 cm IDC in axillary tail, Age 42 at diagnosis. Dx 1/6/2015, IDC, Right, 2cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2+ (IHC) Surgery 1/6/2015 Lumpectomy; Lymph node removal Chemotherapy 3/5/2015 AC + T (Taxol) Targeted Therapy 4/30/2015 Herceptin (trastuzumab) Targeted Therapy 4/30/2015 Perjeta (pertuzumab) Surgery 8/18/2015 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 11/13/2015 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant Hormonal Therapy 11/18/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 3/28/2016 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant Surgery 9/8/2016 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant
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Feb 6, 2016 08:41PM Frill wrote:

My surgeon was on the fence about whether I needed to do chemo because of the very tiny amount of cancer in the sentinel node. MO said yes. I'm sort of doing the dog and pony show because I am so incredibly opposed to Tamoxifen afterwards. I want to be able to say - I've done all this cancer cleansing crap, my boobs are gone, I'm not going to ruin the next 5 years of my life afterwards.

Sex at least during first two chemo treatments is still normal. I'm prolly in perimenopause because I can tell things don't get as immediately wet like they used to, but they do. And DBF is amazing. About two weeks after the MX he just woke me up in the middle of the night, "We're doing it---nothing has changed." So it hasn't been a big deal for me, except I'm not hopping into my Victoria's Secret collection the way I did before. I couldn't have reconstruction, yet, so I'm just not that comfortable in true lingerie. He wants me back in it. I'm trying.

I just don't want to lose my sex life. I am back together with my BF from when I was 19, he was an amazing lover then (he's older than I am) and he is incredible now. I just got out of a 10 year relationship where the sex was well, not like this. I guard this jealously. If I get chemopause, that's one thing - I mean, I am 47, but Tamoxifen.....no thank you.

Dx 2/1/2015, LCIS, Left, Grade 1, ER- Dx 9/30/2015, ILC, Left, 6cm+, Stage IIIA, Grade 1, 1/1 nodes, ER+/PR+, HER2- Surgery 11/19/2015 Mastectomy: Left Surgery 12/10/2015 Lymph node removal: Underarm/Axillary Chemotherapy 1/21/2016 Taxol (paclitaxel) Chemotherapy 4/21/2016 FAC Radiation Therapy 10/13/2016 Whole-breast: Breast, Lymph nodes, Chest wall Surgery 8/17/2017 Prophylactic mastectomy: Right; Reconstruction (left): Latissimus dorsi flap, Tissue expander placement; Reconstruction (right): Tissue expander placement
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Feb 6, 2016 10:51PM Fran1969 wrote:

Does anyone else have loss of sensation like almost the same tingly thing I feel in my feet and hands from the neuropathy but in my vagina. I'm super worried going forward with Taxol because that's what I'm told is the real neuropathy monster. Anyone...?

fran:) Dx 10/10/2015, IDC/IDC: Tubular/IDC: Cribriform, Right, 2cm, Stage IIIA, Grade 1, 1/12 nodes, ER+/PR+, HER2- Surgery 11/10/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary Chemotherapy 12/14/2015 AC + T (Taxol)
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Feb 7, 2016 11:25PM Gatomal wrote:

corky-- I'm ER/pr pos and my mo said that estring is okay. Firm circle that slowly releases estrogen over a 90 day period. Changed my life. The dose per month is the equivalent of two hormone replacement tablets per month. Tiny, almost undetectable amount in bloodstream. I'm treated at UCSF.

Pregnant with twins when diagnosed. Saved my hair with cold caps.Ibrance trial 8/21/15. Dx 7/27/2014, IDC, Left, 5cm, Stage IIIA, Grade 2, 2/8 nodes, ER+/PR+, HER2- Chemotherapy 8/21/2014 AC Chemotherapy 11/21/2014 Taxol (paclitaxel) Surgery 3/31/2015 Lumpectomy: Left; Lymph node removal: Left, Sentinel, Underarm/Axillary; Reconstruction (left); Reconstruction (right) Surgery 5/19/2015 Lumpectomy Hormonal Therapy 6/14/2015 Femara (letrozole), Zoladex (goserelin) Radiation Therapy 6/17/2015
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Feb 8, 2016 01:32AM - edited Feb 8, 2016 02:32AM by yoga_girl

Fran 1969

Experience similar SE intermittent throughout the day. My SE are on the more extreme side than most. My OBGYN team is working with me to assist w/ managing SE so I will have some degree of a quality life. All cotton or silk undergarments. Cotton/linen and soft wool (in winter) for next layer of clothes. Must use lub every day to comfortably sit or walk without pain. Neuropathy becomes one more of those SE we seek to find answers as we recover and take it one day at a time. Finding an OBGYN who will work with you can be a challenge.

Vaginal atrophy in breast cancer survivors: role of vaginal estrogen therapy.

http://www.ncbi.nlm.nih.gov/pubmed/22994445

Should urogenital atrophy in breast cancer survivors be treated with topical estrogens

http://www.ncbi.nlm.nih.gov/pubmed/18378532

Vaginal oestrogen therapy in women with hormone-sensitive breast cancer

http://www.ncbi.nlm.nih.gov/pubmed/21362392


Dx 4/7/2013, IDC, 2cm, Stage IB, Grade 3, 0/2 nodes, ER-/PR-, HER2- Surgery 9/1/2013 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 10/27/2013 3DCRT: Breast, Lymph nodes Hormonal Therapy 6/14/2014 Femara (letrozole)
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Feb 9, 2016 11:11AM corky60 wrote:

Gatomal, thanks for the suggestion. I am 100% ER + and 10% PR+. I researched Estring and it says it contains 2mg estrogen and lasts 90 days. As I recall Vagifem has 10 mcg ER. You are supposed to insert 1 tablet per day for two weeks (equals 140 mcg) and then 2 tablets per week (equals 20mcg.) Over the course of 90 days that would be 340 mcg (equals .34 mg.) I am one of those women who don't like the ideas of a ring left inside. But I'll see what the gyno says.

Dx 3/25/2013, IDC, Right, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 4/25/2013 Lumpectomy: Right; Lymph node removal: Right Radiation Therapy 5/28/2013 Breast
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Feb 9, 2016 07:07PM Suz-Q wrote:

Corky60, good to know the amounts of estrogen. I'm not sure I would like a ring, however I'm also not sure how compliant I would be about putting the tablets on twice a week. The tablets hardly have any estrogen in them. I'm doubtful that my MO would let me have them. She is rather old school about allowing any estrogen of any kind. Please update us on what your gyno says

56 at diagnosis. Oncotype DX 10 Dx 9/17/2015, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 11/3/2015 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 12/14/2015 Whole-breast: Breast Hormonal Therapy 1/21/2016 Arimidex (anastrozole) Surgery 8/4/2016 Reconstruction (right): Fat grafting Hormonal Therapy 10/7/2017 Aromasin (exemestane)
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Feb 9, 2016 09:14PM Suz-Q wrote:

yoga_girl, I found the linked articles you shared interesting. I found the following article to be thorough and up to date on available therapies for vaginal atrophy. Of course the ones we can't have (hormone therapies) worked the best!

Atrophic Vaginitis in Breast Cancer Survivors: A Difficult Survivorship Issue


56 at diagnosis. Oncotype DX 10 Dx 9/17/2015, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 11/3/2015 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 12/14/2015 Whole-breast: Breast Hormonal Therapy 1/21/2016 Arimidex (anastrozole) Surgery 8/4/2016 Reconstruction (right): Fat grafting Hormonal Therapy 10/7/2017 Aromasin (exemestane)
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Feb 10, 2016 12:22AM - edited Feb 10, 2016 12:54AM by yoga_girl

Monia Lisa Touch Procedure

MonaLisa Touch is an FDA approved procedure for the treatment of Vulvo-Vaginal Atrophy (VVA), to include but not limited to vaginal dryness, itching, pain, and incontinence.

http://www.medicaldaily.com/fda-approves-mona-lisa...

http://www.thedailybeast.com/articles/2014/12/03/mona-lisa-touch-the-laser-that-could-save-women-s-sex-lives.html

http://www.monalisatouch.com.au/about-monalisa-touch-vaginal-atrophy-treatment.php

http://www.monalisatouchmidwest.com/procedure.html

http://www.femaleplasticsurgeon.com.au/body/monalisa-touch/

Look for doctors in your area that are now offering this procedure, ask for a consult first to understand how it works. It is not currently covered by insurance (new procedures take time to be accepted and coded for coverage, then the AMA has to approve it before it will be covered on insurance policies). OBGYN and Urology specialists have been some of the first medical providers to offer this treatment in the US.

Prices vary and average $1500 per treatment in US.

Risks for patients treated with Mona Lisa Touch are minimal. Most women report temporary side effects, such as slight redness or swelling and some discomfort that usually disappears after one or two days of rest.

During the healing process, it may be recommended to avoid lifting weights or some activities, such as taking a hot bath, or physical exercise. Your doctor will give you specific indications for a speedy recovery.


Factors that determine dryness, fragility, loss of mucosal elasticity, this regenerating treatment can eliminate troublesome itching, irritation and pain, which become particularly acute during intercourse. As a result, most of the treated patients report a substantial improvement in their quality of life and in their sexual life.

The CO2 fractional laser stimulation and rejuvenation process involves cells and tissues and takes a few weeks to be completed. Results will be more noticeable approximately one month and a half after the end of the treatment.

The Mona Lisa Touch is an in office procedure. It is a walk-in — walk-out procedure that does not require any anesthesia (if you prefer anesthesia, it is available) and takes less than ten minutes.



Dx 4/7/2013, IDC, 2cm, Stage IB, Grade 3, 0/2 nodes, ER-/PR-, HER2- Surgery 9/1/2013 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 10/27/2013 3DCRT: Breast, Lymph nodes Hormonal Therapy 6/14/2014 Femara (letrozole)
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Feb 10, 2016 01:56AM Hipline wrote:

In the last year I have experienced more and more painful sex so I asked for Vagifem. It did work but I was too concerned over the whole ER+ thing to keep it up for more than the first month. So I looked into Mona Lisa. I have had the first two of three sessions of the Mona Lisa touch. It has been a big help and I highly recommend it but I will not give up lubricants and moisturizers. I just read the booklet at the beginning of the post and am going to investigate the vaginal dilators too.

I'm 57 and plan on having sex with my DH for a long time!

Pleomorphic ILC, Onco DX score 16 Dx 11/16/2010, ILC, Left, 2cm, Stage IIA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 12/13/2010 Mastectomy: Left; Reconstruction (left): Silicone implant Hormonal Therapy 1/31/2011 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/23/2014 Femara (letrozole) Surgery 12/5/2018 Mastectomy: Right; Reconstruction (right): Silicone implant
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Feb 11, 2016 04:57AM Moderators wrote:

Just thought you guys might like to check out our compilation of member's tips on Improving Sexuality/Libido.

Sexuality Tips from our members

The Mods.

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Feb 13, 2016 08:33PM Katja23 wrote:

My cancer is ER+, and I have read on the Web that a woman's estrogen levels double when having sex. So, I might conclude that having sex is not a good idea, at least before I start taking Tamoxifen. Am I being silly about this? (I won't start Tamoxifen until about a week after radiation, which lasts 6 1/2 weeks and won't start for 2 weeks.)

Dx 1/5/2016, IDC, Left, <1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- Surgery 1/20/2016 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 2/29/2016 Whole-breast: Breast Hormonal Therapy 4/20/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Feb 14, 2016 04:21PM sas-schatzi wrote:

Hmmmmm if that's true I should be in lot's of trouble.

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Feb 14, 2016 07:40PM corky60 wrote:

Katja23, don't believe everything you read on the Internet. There should be a study that shows the specific numbers, I would think. You are bound to feel vulnerable right now and trying to do everything you can to protect yourself. But giving up sex shouldn't have to be one of them.

Dx 3/25/2013, IDC, Right, <1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 4/25/2013 Lumpectomy: Right; Lymph node removal: Right Radiation Therapy 5/28/2013 Breast
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Feb 15, 2016 08:30AM Trvler wrote:

I asked that same question when I was first diagnosed. I think if sex were a problem, the MO would tell you.

Allison Dx 1/16/2015, ILC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- Dx 2/26/2015, ILC, Left, 4cm, Stage IIIA, Grade 2, 2/2 nodes, ER+/PR+, HER2- Chemotherapy 3/24/2015 AC + T (Taxol) Surgery 9/1/2015 Mastectomy; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Radiation Therapy 10/15/2015 Whole-breast: Breast, Lymph nodes Hormonal Therapy 1/1/2016
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Feb 16, 2016 07:18PM Dogsneverlie wrote:

Hi! I just scrolled thru the posts out here - I posted quite a long time ago with this problem as well - SO PAINFUL - someone wrote like sandpaper and man, that sounds about right.

Anyway, my doctor put me on the Estring ring. HUGE DIFFERENCE. Says it lasts about three months and it's close to three months, and it works. HOWEVER (because you knew there would be a however, right?)......this is embarrassing but it's an O ring that you insert.....so I have to have my husband (GOD BLESS HIM) insert and remove, I CAN'T DO EITHER! Man....the first time I tried to remove it, I just couldn't.

So ladies, please ask your doctor if you can try Estring - my doctor did tell me that if I had any problems she could remove it for me but I'd rather pay my DH with a nice kiss than her office visit bill!

April 15, 2016 Additional Reconstruction to repair radiated breast, Feb 24, 2015 BA / 240cc Left and 210cc Right / Allergan Natrelle Silicone Under Muscle Surgery 12/23/2013 Lumpectomy: Left Dx 12/30/2013, DCIS, <1cm, Stage 0, Grade 1, 0/0 nodes, ER+/PR-, HER2- Surgery 2/24/2014 Lumpectomy: Left Radiation Therapy 3/31/2014 Whole-breast: Breast Hormonal Therapy 6/16/2014 Arimidex (anastrozole) Surgery 2/24/2015 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 3/16/2015 Surgery 6/24/2015 Reconstruction (right): Nipple reconstruction
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Mar 7, 2016 09:52AM cuddyclothes wrote:

My insurance is not covering Vagifem, they are covering Premarin, which is way more dangerous. In the meantime, I'm investing in vaginal dilators and vaginal moisturizers. I have Premarin, and I want to use it until I get the Vagifem. Entry pain is unbelievable!

I saw my ob-gyn last week. I don't have VVS, it's vaginal atrophy and dryness. She gave me a long list of products, and found a sheet from a manufacturer so I can order the dilators direct. I haven't had much faith in the ones I've seen sold online.

In the meantime...sigh...

Dx 6/30/2015, IDC: Papillary, Left, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 7/22/2015 Lumpectomy; Lymph node removal: Sentinel Radiation Therapy 11/11/2015 Dx 6/5/2016, LCIS, Right, <1cm
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Mar 7, 2016 09:11PM Hipline wrote:

I ordered the vaginal dilators online at Soul Source and they are quite good and were shipped discretely. I hate that I have to use them too

Pleomorphic ILC, Onco DX score 16 Dx 11/16/2010, ILC, Left, 2cm, Stage IIA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 12/13/2010 Mastectomy: Left; Reconstruction (left): Silicone implant Hormonal Therapy 1/31/2011 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/23/2014 Femara (letrozole) Surgery 12/5/2018 Mastectomy: Right; Reconstruction (right): Silicone implant
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Mar 8, 2016 02:10PM yoga_girl wrote:

cuddyclothes

Have your OBGYN write you a script for the dilator kit so you can turn in your invoice and be reimbursed by your insurance provider. I will check on the medical billing codes and post for you.

Dx 4/7/2013, IDC, 2cm, Stage IB, Grade 3, 0/2 nodes, ER-/PR-, HER2- Surgery 9/1/2013 Lumpectomy: Left; Lymph node removal: Left, Sentinel Radiation Therapy 10/27/2013 3DCRT: Breast, Lymph nodes Hormonal Therapy 6/14/2014 Femara (letrozole)

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