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Topic: Everything No One Tells You About Cancer and Your Sex Life

Forum: Sex & Relationship Matters —

A safe place to talk candidly about how your romantic relationships and/or your sex life has changed following your diagnosis and treatment.

Posted on: Nov 20, 2014 10:22AM - edited Jan 19, 2016 07:36AM by OneBadBoob

OneBadBoob wrote:

Everything . . .I found this booklet on line and wanted to share

updated link to this booklet

Jane - Dance as if no one is watching!! Dx 7/7/2007, IDC, <1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2-
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Posts 241 - 254 (254 total)

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Feb 5, 2018 02:03PM Trvler wrote:

Kali: Thank you for saying that. You made my day! Good luck.

Allison Dx 1/16/2015, ILC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- Dx 2/26/2015, ILC, Left, 4cm, Stage IIIA, Grade 2, 2/2 nodes, ER+/PR+, HER2- Chemotherapy 3/24/2015 AC + T (Taxol) Surgery 9/1/2015 Mastectomy; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Radiation Therapy 10/15/2015 Whole-breast: Breast, Lymph nodes Hormonal Therapy 1/1/2016
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Mar 3, 2018 01:06PM norma6261 wrote:

I just had my first procedure done 3 days ago, fingers crossed

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Mar 3, 2018 01:23PM - edited Mar 3, 2018 01:24PM by norma6261

Mona Lisa touch. I just had my first procedure done 3 days ago, fingers crossed. Mona Lisa touch, Please help me!!!!

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Apr 11, 2018 06:41PM FLBuckeye93 wrote:

Just had my second Mona Lisa yesterday. The first one did make a difference so I’m encouraged.

My gyno also mentioned Intrarosa medication. I may add this in if Mona Lisa doesn’t fully work.

Dx 10/2015, DCIS/IDC, Left, 3cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Hormonal Therapy 6/21/2016 Aromasin (exemestane) Dx 10/2016, LCIS, Right, 0/1 nodes Surgery 6/20/2017 Mastectomy: Left, Right; Reconstruction (left): SGAP flap/hip flap; Reconstruction (right): SGAP flap/hip flap Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery Lumpectomy: Left Radiation Therapy Whole-breast: Breast, Lymph nodes
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May 29, 2018 09:15PM Suz-Q wrote:

I just had my yearly exem with a new gyno. She said that I'm not a candidate for intrarosa because I'm on an aromitase inhibitor.

56 at diagnosis. Oncotype DX 10 Dx 9/17/2015, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 11/3/2015 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 12/14/2015 Whole-breast: Breast Hormonal Therapy 1/21/2016 Arimidex (anastrozole) Surgery 8/4/2016 Reconstruction (right): Fat grafting Hormonal Therapy 10/7/2017 Aromasin (exemestane)
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Jan 9, 2019 09:33PM macb04 wrote:

Hey Suz-Q,

They are actually doing a study on using Intrarosa while women are on AIs.

Effect of Intravaginal Prasterone on Symptoms of VVA in Women Under Treatment With an Aromatase Inhibitor for Breast Cancer The safety and scientific validity of this study is the responsibility of the study sponsor and investigators. Listing a study does not mean it has been evaluated by the U.S. Federal Government. Know the risks and potential benefits of clinical studies and talk to your health care provider before participating. Read our disclaimer for details.ClinicalTrials.gov Identifier: NCT03740945Recruitment Status : Not yet recruitingFirst Posted : November 14, 2018

Last Update Posted : November 14, 2018

See Contacts and Locations

Sponsor:

EndoCeutics Inc.

Collaborator:

AMAG Pharmaceuticals, Inc.

Information provided by (Responsible Party):

EndoCeutics Inc.

Study Description

Go to sections

Brief Summary:

The purpose of this study is to confirm the efficacy of intravaginal prasterone (DHEA) on moderate to severe (MS) and most bothersome symptoms (MBS) of vulvovaginal atrophy (VVA) due to natural, surgical or treatment-induced menopause, in women with breast cancer who are under treatment with an aromatase inhibitor.

Condition or disease Intervention/treatment Phase Vaginal Atrophy in Breast Cancer PatientsDrug: PlaceboDrug: Prasterone (DHEA)Phase 3


Study Design

Go to sections

Study Type :Interventional (Clinical Trial)Estimated Enrollment :500 participantsAllocation:RandomizedIntervention Model:Parallel AssignmentMasking:Quadruple (Participant, Care Provider, Investigator, Outcomes Assessor)Primary Purpose:TreatmentOfficial Title:Effect of Intravaginal Prasterone (DHEA) on Moderate to Severe Symptoms of Vulvovaginal Atrophy Due to Menopause, in Women Under Treatment With an Aromatase Inhibitor for Breast Cancer - (Placebo-Controlled, Double Blind and Randomized Phase III Study)Estimated Study Start Date :December 2018Estimated Primary Completion Date :March 2021Estimated Study Completion Date :June 2021

Resource links provided by the National Library of Medicine

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Aug 14, 2019 08:31PM productsgram wrote:

The Food and Drug Administration approved MonaLisa Touch as a medicaltreatment in 2004. ... A big concern for anyone considering this procedure is that most insurance companies do not cover the MonaLisa Touch procedure and patients must pay an average $2,400 out of pocket to receive treatment

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Sep 24, 2019 04:36AM DonnaLousie wrote:

Thank you. This is an easy read with simple tips

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Oct 3, 2019 11:39AM anotherNYCGirl wrote:

Hi,

After a questionable Pap test, I had a colposcopy done, with more questionable results, so my gyn sent me to an oncological gyn. I saw her yesterday, and she suggested using Estrace cream twice a week, as long as my onc is ok with that. Also suggested was vaginal dilators to keep things open enough to be able to monitor the cervix. Has anyone used them? Are some better/easier to use than others?

Thanks

Dx 1998, DCIS, Stage 0 Surgery 3/17/1998 Lumpectomy: Left Dx 6/2000, ILC, Stage IA, 0/3 nodes, ER+/PR+, HER2- Surgery 7/10/2000 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 7/31/2000 CMF Hormonal Therapy 2/11/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 2/11/2001 Breast Hormonal Therapy 2/11/2006 Femara (letrozole) Dx 2/2014, ILC, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 3/24/2014 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 5/1/2014 AC + T (Taxol) Surgery 11/19/2014 Reconstruction (left); Reconstruction (right) Surgery 1/13/2015 Reconstruction (right): Tissue expander placement Surgery 5/27/2015 Reconstruction (right): Latissimus dorsi flap, Silicone implant Surgery 2/21/2016 Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction
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Oct 3, 2019 07:39PM karen1956 wrote:

My onc is okay with me using estrace - but gyn recommended a new Rx - IMvexxy - use it daily for 2 weeks, then twice week - it is a little capsule - it works great. It is a higher copay as it is not generic but its worth the price to me - my gyn gave me the link for a reduced cost but it was not better price than if I order 3 month supply from my insurance company

Karen in Denver, Dx 02/03/2006, ILC, stage IIIa, ER/PR+, HER2-,
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Oct 4, 2019 02:16PM trinigirl50 wrote:

I used dilators that I purchased online. I also use Vit E capsules vaginally. I use E45 cream for the outer lips of vagina to keep it moist. It has made huge improvement.



trinigirl50 Dx 3/7/2015, ILC, Left, 6cm+, Stage IIIC, Grade 2, 20/24 nodes, ER+/PR-, HER2- Surgery 3/7/2015 Lymph node removal: Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right Chemotherapy 4/14/2015 AC + T (Taxotere) Hormonal Therapy 9/14/2015 Arimidex (anastrozole), Femara (letrozole) Radiation Therapy 10/1/2015 Whole-breast: Breast, Lymph nodes
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Oct 4, 2019 04:17PM anotherNYCGirl wrote:

Thanks, karen and trini, for your responses!

Dx 1998, DCIS, Stage 0 Surgery 3/17/1998 Lumpectomy: Left Dx 6/2000, ILC, Stage IA, 0/3 nodes, ER+/PR+, HER2- Surgery 7/10/2000 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 7/31/2000 CMF Hormonal Therapy 2/11/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 2/11/2001 Breast Hormonal Therapy 2/11/2006 Femara (letrozole) Dx 2/2014, ILC, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 3/24/2014 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 5/1/2014 AC + T (Taxol) Surgery 11/19/2014 Reconstruction (left); Reconstruction (right) Surgery 1/13/2015 Reconstruction (right): Tissue expander placement Surgery 5/27/2015 Reconstruction (right): Latissimus dorsi flap, Silicone implant Surgery 2/21/2016 Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction
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May 13, 2021 07:25PM Socat wrote:

Hi all! One question...does the sex drive EVER come back???? My husband and I got married in 2012, I was diagnosed with DCIS in Sept 2017, had a lumpectomy on Oct 2017, another in Nov 2017 (to get margins), radiation Feb-March 2018, on Tamoxifen 3 years now and libido is below zero! Once I'm off of tamxifen in 2023, does the libido ever go back up? No other real side effects fom tamoxifen, just fatigue and a hot flash here and there, bones hurt a little more than they used to, but the loss of libido is what's been bugging me, and my husband. I am truly blessed to have such an amazing husband, I just hate falling asleep every night on the couch by 8pm, we get up at 5 for work, oh and did I mention my mother in law lives with us too, so no meeting him at the door wearing nothing but an apron after work lol! Just hoping to get back to being awake and enjoying it once the tamoxifen is gone!

Thanks!

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Jun 9, 2021 10:48AM stacy91965 wrote:

Socat i am going to follow this with you because i feel the same. married in 2010 to an amazing man (and lover) i have been taking arimidex but today talked to my oncologist about body aches and sex drive. It was a wonderful conversation, changing med to aromasin ~ i feel like there is hope but i really want to hear what others say.

~S~ Dx 10/15/2020, IDC, Left, 1cm, Stage IA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Radiation Therapy 1/12/2021 Whole-breast: Breast, Lymph nodes Hormonal Therapy Arimidex (anastrozole)

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