Posted on:
Jun 11, 2015 08:22AM
B
st louis, MO
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Jun 2015
Posts:
77
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Sep 26, 2020
Posted on:
Jun 11, 2015 08:22AM
bjb01
wrote:
I am 99% ER+ and PR+, therefore having to stop my HRT. I have read many things with regard to the continued use of vagifem for localized vaginal application. My onc said that if it helps my quality of life then do it. He indicated that there is nothing that points directly to it contributing to a recurrence as it is so localized and no absorbed in the same manner as a patch of pills. Can anyone weigh in on this topic?
Dx
3/23/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2-,
Surgery
3/30/2015 Lumpectomy; Lymph node removal
Chemotherapy
4/8/2015 AC + T (Taxotere)
Chemotherapy
4/8/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Radiation Therapy
7/13/2015 Whole breast: Breast
Hormonal Therapy
9/1/2015 Arimidex (anastrozole), Aromasin (exemestane), Femara (letrozole)
Targeted Therapy
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bjb01
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Sep 26, 2020
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Jun 29, 2016 08:43PM
bjb01
wrote:
lamp......this makes me smile. it does take time and patience is a must. but it pays off. I highly suggest crisco shortening three times a day as a topical vaginal moisturizer. no bigger than the size of a dime. it has really made a difference, again in time. i've said before, i feel like somethings missing when I don't do this at least 2-3 times per day......... :):) the extra virgin olive oil we use for intercourse and he and I just love it
Dx
3/23/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2-,
Surgery
3/30/2015 Lumpectomy; Lymph node removal
Chemotherapy
4/8/2015 AC + T (Taxotere)
Chemotherapy
4/8/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Radiation Therapy
7/13/2015 Whole breast: Breast
Hormonal Therapy
9/1/2015 Arimidex (anastrozole), Aromasin (exemestane), Femara (letrozole)
Targeted Therapy
G
gardengypsy
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Dec 2015
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745
Latest activity:
Jun 18, 2022
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Jun 29, 2016 09:39PM
gardengypsy
wrote:
Lamp
Me, too. Going to my gyn tomorrow and will post here if there's anything new to support us.
From all the reading, I am guessing that the expensive options like Mona Lisa will not work with my budget. I am not sure how much the dilators ost.
Hang in there.
Surgery
12/3/2015 Lymph node removal; Mastectomy; Reconstruction (Left): Tissue Expander
Chemotherapy
1/9/2016 AC + T (Taxol)
Surgery
5/23/2016
Hormonal Therapy
5/28/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Radiation Therapy
6/6/2016 Whole breast: Breast, Lymph nodes, Chest wall
Dx
2/2021, Other, Stage IV, metastasized to other, ER+/PR+, HER2-
Targeted Therapy
Verzenio
F
frill
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Oct 2015
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311
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Apr 17, 2022
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Aug 15, 2016 01:50PM
frill
wrote:
We've been talking about the same thing in the Mojo thread. Maybe it's I've been bitching about it, too. I'm having the whole dryness thing plus some other fun issues, but one woman recommended coconut oil every day during the day. If you're not familiar, coconut oil is solid (like crisco, sort of), so I'm thinking it would be easy to insert. I have some already because I wanted to do something else with it, plus it's organic.
Anyway, there's some great advice over there, too, about things to do not involving hormone options. I'm curious as heck about them, though. I see my GYN/ONC on Thurs, and will be curious to see what she has to say about all my complaints.
Dx
2/1/2015, LCIS, Left, Grade 1, ER-
Dx
9/30/2015, ILC, Left, 6cm+, Stage IIIA, Grade 1, 1/1 nodes, ER+/PR+, HER2-
Surgery
11/19/2015 Mastectomy; Mastectomy (Left)
Surgery
12/10/2015 Lymph node removal
Chemotherapy
1/21/2016 Taxol (paclitaxel)
Chemotherapy
4/21/2016 FAC
Radiation Therapy
10/13/2016 Whole breast: Breast, Lymph nodes, Chest wall
Surgery
8/17/2017 Prophylactic mastectomy; Prophylactic mastectomy (Right); Reconstruction (Left): Latissimus dorsi flap, Tissue Expander; Reconstruction (Right): Tissue Expander
L
lamp
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Nov 2012
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40
Latest activity:
Jan 12, 2023
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Oct 31, 2016 06:30PM
lamp
wrote:
Hi how is everyone doing! Any news to report....
Doesn't seem to matter what remedy I'm using.....vaginal atrophy .....ugh....can't stand it!
Dx
10/15/2012, IDC, 1cm, Stage II, Grade 2, 0/4 nodes, ER+/PR+, HER2-
Surgery
11/8/2012 Lymph node removal; Lymph node removal (Left): Sentinel; Mastectomy; Mastectomy (Left); Mastectomy (Right)
Hormonal Therapy
1/3/2013 Arimidex (anastrozole)
B
bjb01
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77
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Sep 26, 2020
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Oct 31, 2016 07:02PM
bjb01
wrote:
Lamp.....are you using the Crisco daily? that is what I have been instructed to use 2-3 times a day. it takes very little, but it's like using lotion on your hands. you will eventually feel awkward w/o it. I totally swear by that, then using EVOO as a lubricant when having intercourse. of course, there's the vagifem used as directed. doing these 3 things has made a HUGE difference, but it does take months to "get up to speed" so to speak :):)
Dx
3/23/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2-,
Surgery
3/30/2015 Lumpectomy; Lymph node removal
Chemotherapy
4/8/2015 AC + T (Taxotere)
Chemotherapy
4/8/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Radiation Therapy
7/13/2015 Whole breast: Breast
Hormonal Therapy
9/1/2015 Arimidex (anastrozole), Aromasin (exemestane), Femara (letrozole)
Targeted Therapy
B
bevin
Joined:
Dec 2010
Posts:
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Jun 5, 2022
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Oct 31, 2016 07:07PM
bevin
wrote:
My Onco blessed my Gyn ordering and prescribing Vagifem. They both state it stays local. It has helped a great deal. I can actually have intercourse without tremendous pain now. Good luck on your decisions
Age 45, Oncotype 11, Primary Tumor 2.1 cm, smaller satellite tumor nearby
Dx
5/1/2010, IDC, 2cm, Stage IIA, Grade 3, 0/5 nodes, ER+/PR+, HER2-
Surgery
8/10/2010 Lumpectomy; Lumpectomy (Right); Lymph node removal; Lymph node removal (Right): Sentinel
Radiation Therapy
10/10/2010 Breast
F
frill
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Oct 2015
Posts:
311
Latest activity:
Apr 17, 2022
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Nov 1, 2016 12:03PM
frill
wrote:
I have to get MO's permission before Gyn will prescribe Estring. I'm just in between MO's right now - I got rid of the old one and am waiting to see the new one.
Weird question, but I guess I'm desperate enough to try anything. Has anyone tried vaginal weights? They're supposed to help with atrophy. I got a set, but haven't used it yet because I'm waiting for insides to sort of heal from chemo and let the coconut oil do its thing, too.
Dx
2/1/2015, LCIS, Left, Grade 1, ER-
Dx
9/30/2015, ILC, Left, 6cm+, Stage IIIA, Grade 1, 1/1 nodes, ER+/PR+, HER2-
Surgery
11/19/2015 Mastectomy; Mastectomy (Left)
Surgery
12/10/2015 Lymph node removal
Chemotherapy
1/21/2016 Taxol (paclitaxel)
Chemotherapy
4/21/2016 FAC
Radiation Therapy
10/13/2016 Whole breast: Breast, Lymph nodes, Chest wall
Surgery
8/17/2017 Prophylactic mastectomy; Prophylactic mastectomy (Right); Reconstruction (Left): Latissimus dorsi flap, Tissue Expander; Reconstruction (Right): Tissue Expander
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lamp
Joined:
Nov 2012
Posts:
40
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Jan 12, 2023
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Nov 2, 2016 01:21AM
lamp
wrote:
Hi bjb01, that's my problem, I'm trying too many remedies.......I need to stick to one regime! Im not giving anything a chance!
Dx
10/15/2012, IDC, 1cm, Stage II, Grade 2, 0/4 nodes, ER+/PR+, HER2-
Surgery
11/8/2012 Lymph node removal; Lymph node removal (Left): Sentinel; Mastectomy; Mastectomy (Left); Mastectomy (Right)
Hormonal Therapy
1/3/2013 Arimidex (anastrozole)
