Topic: thoughts on vagifem post hormone receptive BC

Forum: Sex & Relationship Matters — A safe place to talk candidly about how your romantic relationships and/or your sex life has changed following your diagnosis and treatment.

Posted on: Jun 11, 2015 08:22AM

Posted on: Jun 11, 2015 08:22AM

bjb01 wrote:

I am 99% ER+ and PR+, therefore having to stop my HRT.  I have read many things with regard to the continued use of vagifem for localized vaginal application.  My onc said that if it helps my quality of life then do it.  He indicated that there is nothing that points directly to it contributing to a recurrence as it is so localized and no absorbed in the same manner as a patch of pills.  Can anyone weigh in on this topic? 

Dx 3/23/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2-, Surgery 3/30/2015 Lumpectomy; Lymph node removal Chemotherapy 4/8/2015 AC + T (Taxotere) Chemotherapy 4/8/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 7/13/2015 Whole breast: Breast Hormonal Therapy 9/1/2015 Arimidex (anastrozole), Aromasin (exemestane), Femara (letrozole) Targeted Therapy
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Jun 29, 2016 08:43PM bjb01 wrote:

lamp......this makes me smile. it does take time and patience is a must. but it pays off. I highly suggest crisco shortening three times a day as a topical vaginal moisturizer. no bigger than the size of a dime. it has really made a difference, again in time. i've said before, i feel like somethings missing when I don't do this at least 2-3 times per day......... :):) the extra virgin olive oil we use for intercourse and he and I just love it

Dx 3/23/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2-, Surgery 3/30/2015 Lumpectomy; Lymph node removal Chemotherapy 4/8/2015 AC + T (Taxotere) Chemotherapy 4/8/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 7/13/2015 Whole breast: Breast Hormonal Therapy 9/1/2015 Arimidex (anastrozole), Aromasin (exemestane), Femara (letrozole) Targeted Therapy
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Jun 29, 2016 09:39PM gardengypsy wrote:

Lamp

Me, too. Going to my gyn tomorrow and will post here if there's anything new to support us.

From all the reading, I am guessing that the expensive options like Mona Lisa will not work with my budget. I am not sure how much the dilators ost.

Hang in there.

Surgery 12/3/2015 Lymph node removal; Mastectomy; Reconstruction (Left): Tissue Expander Chemotherapy 1/9/2016 AC + T (Taxol) Surgery 5/23/2016 Hormonal Therapy 5/28/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 6/6/2016 Whole breast: Breast, Lymph nodes, Chest wall Dx 2/2021, Other, Stage IV, metastasized to other, ER+/PR+, HER2- Targeted Therapy Verzenio
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Aug 15, 2016 01:50PM frill wrote:

We've been talking about the same thing in the Mojo thread. Maybe it's I've been bitching about it, too. I'm having the whole dryness thing plus some other fun issues, but one woman recommended coconut oil every day during the day. If you're not familiar, coconut oil is solid (like crisco, sort of), so I'm thinking it would be easy to insert. I have some already because I wanted to do something else with it, plus it's organic.

Anyway, there's some great advice over there, too, about things to do not involving hormone options. I'm curious as heck about them, though. I see my GYN/ONC on Thurs, and will be curious to see what she has to say about all my complaints.

Dx 2/1/2015, LCIS, Left, Grade 1, ER- Dx 9/30/2015, ILC, Left, 6cm+, Stage IIIA, Grade 1, 1/1 nodes, ER+/PR+, HER2- Surgery 11/19/2015 Mastectomy; Mastectomy (Left) Surgery 12/10/2015 Lymph node removal Chemotherapy 1/21/2016 Taxol (paclitaxel) Chemotherapy 4/21/2016 FAC Radiation Therapy 10/13/2016 Whole breast: Breast, Lymph nodes, Chest wall Surgery 8/17/2017 Prophylactic mastectomy; Prophylactic mastectomy (Right); Reconstruction (Left): Latissimus dorsi flap, Tissue Expander; Reconstruction (Right): Tissue Expander
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Oct 31, 2016 06:30PM lamp wrote:

Hi how is everyone doing! Any news to report....

Doesn't seem to matter what remedy I'm using.....vaginal atrophy .....ugh....can't stand it!

Dx 10/15/2012, IDC, 1cm, Stage II, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 11/8/2012 Lymph node removal; Lymph node removal (Left): Sentinel; Mastectomy; Mastectomy (Left); Mastectomy (Right) Hormonal Therapy 1/3/2013 Arimidex (anastrozole)
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Oct 31, 2016 07:02PM bjb01 wrote:

Lamp.....are you using the Crisco daily? that is what I have been instructed to use 2-3 times a day. it takes very little, but it's like using lotion on your hands. you will eventually feel awkward w/o it. I totally swear by that, then using EVOO as a lubricant when having intercourse. of course, there's the vagifem used as directed. doing these 3 things has made a HUGE difference, but it does take months to "get up to speed" so to speak :):)

Dx 3/23/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2-, Surgery 3/30/2015 Lumpectomy; Lymph node removal Chemotherapy 4/8/2015 AC + T (Taxotere) Chemotherapy 4/8/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 7/13/2015 Whole breast: Breast Hormonal Therapy 9/1/2015 Arimidex (anastrozole), Aromasin (exemestane), Femara (letrozole) Targeted Therapy
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Oct 31, 2016 07:07PM bevin wrote:

My Onco blessed my Gyn ordering and prescribing Vagifem. They both state it stays local. It has helped a great deal. I can actually have intercourse without tremendous pain now. Good luck on your decisions

Age 45, Oncotype 11, Primary Tumor 2.1 cm, smaller satellite tumor nearby Dx 5/1/2010, IDC, 2cm, Stage IIA, Grade 3, 0/5 nodes, ER+/PR+, HER2- Surgery 8/10/2010 Lumpectomy; Lumpectomy (Right); Lymph node removal; Lymph node removal (Right): Sentinel Radiation Therapy 10/10/2010 Breast
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Nov 1, 2016 12:03PM frill wrote:

I have to get MO's permission before Gyn will prescribe Estring. I'm just in between MO's right now - I got rid of the old one and am waiting to see the new one.

Weird question, but I guess I'm desperate enough to try anything. Has anyone tried vaginal weights? They're supposed to help with atrophy. I got a set, but haven't used it yet because I'm waiting for insides to sort of heal from chemo and let the coconut oil do its thing, too.

Dx 2/1/2015, LCIS, Left, Grade 1, ER- Dx 9/30/2015, ILC, Left, 6cm+, Stage IIIA, Grade 1, 1/1 nodes, ER+/PR+, HER2- Surgery 11/19/2015 Mastectomy; Mastectomy (Left) Surgery 12/10/2015 Lymph node removal Chemotherapy 1/21/2016 Taxol (paclitaxel) Chemotherapy 4/21/2016 FAC Radiation Therapy 10/13/2016 Whole breast: Breast, Lymph nodes, Chest wall Surgery 8/17/2017 Prophylactic mastectomy; Prophylactic mastectomy (Right); Reconstruction (Left): Latissimus dorsi flap, Tissue Expander; Reconstruction (Right): Tissue Expander
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Nov 2, 2016 01:21AM lamp wrote:

Hi bjb01, that's my problem, I'm trying too many remedies.......I need to stick to one regime! Im not giving anything a chance!

Dx 10/15/2012, IDC, 1cm, Stage II, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 11/8/2012 Lymph node removal; Lymph node removal (Left): Sentinel; Mastectomy; Mastectomy (Left); Mastectomy (Right) Hormonal Therapy 1/3/2013 Arimidex (anastrozole)

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