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Topic: Vaginal Atrophy solution that is working for me!

Forum: Sex & Relationship Matters —

A safe place to talk candidly about how your romantic relationships and/or your sex life has changed following your diagnosis and treatment.

Posted on: May 5, 2020 02:05PM - edited May 9, 2020 09:38AM by Jinx27

Jinx27 wrote:

Hello all!

Ive been a member for quite some time now and wanted to post about my sexual side effects of my treatment and what Ive been doing to combat them.

I was diagnosed with my ER/PR+ breast cancer and have chosen to take an aromatase inhibitior along with Lupron (ovarian suppression ) injects for the next 5-10 years.

My onco just barely prepared me for all of the changes that I would have living the next 5-10 with lowered estrogen (menopause) as a 30 year old something. She mentioned vaginal dryness but I didnt know that the dryness really meant atrophy! I also suffered from strong vaginal odor without an infection. This also due to the atrophy.

I initially knew something was wrong when I had intercourse and it was terribly painful, I had small microcuts in my vulva and inner vagina due to weakening of my vaginal tissue, not knowing how to deal with this I went online.

Initially I was interesting in the Mona Lisa Touch or Petite Lady procedure that alot of women post about on here but it wasn't in my price range at all.

I stumbled upon a product call NeuEve; a estrogen free vaginal suppository created by a gynecologist for women.

Neu Eve Website

Customers can choose between three options depending on the severity of their atrophy and age. I emailed her asking for guidance and responded back with a warm and informative response. I chose the level 2 suppository due to my age.

She stated the following supplements help with atrophy; OMEGA 3, OMEGA 7, Vitamin D.

She also mentioned purchasing a set of Magnetic Vaginal Dilators and using them twice a day if I have pelvic pain.

I have been using NeuEve for one month along with taking the above supplements and have seen a huge improvement. I use lubrication during self pleasure which helps but I have not had any pain or microcuts in or around the vulva or inside the vaginal canal since finishing my first box of NeuEve.

I used to to have a odor due to the dryness, and a UTI feeling. The odor is completely gone, and the UTI feeling is slowly fading away. I thought Id share here since there are soo many products on the market to choose from.

The price is around $59 for a month supply, if you decide to get a subscription, the cost will be $49 a month. Not too bad. The site recommends using it for 4 months straight, however many women report improvements after one month.

Please feel free to message here with any questions. Im going to continue the product for four months and return back with an update.


Dx 9/8/2015, DCIS/IDC, Both breasts, 4cm, Stage IIB, Grade 3, 3/36 nodes, ER+/PR+, HER2- Surgery 11/17/2015 Reconstruction (left): Free TRAM flap; Reconstruction (right): Free TRAM flap Chemotherapy 1/1/2016 AC + T (Taxol) Hormonal Therapy 8/29/2016 Arimidex (anastrozole)
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May 5, 2020 05:54PM kksmom3 wrote:

I desperately need to do something. I feel like I have a constant UTI, which I don't. I've been checked. Sex is out of the question, I'd sadly settle for not hurting. My PCP prescribed clobetasol, which was expensive, $200, and worked for a couple of weeks, now the soreness is back. This. stuff has glowing reviews, but I'm skeptical. :(.

Dx 8/8/2018, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 10/1/2018 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 10/29/2018 Whole-breast: Breast, Lymph nodes
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May 5, 2020 06:19PM KBL wrote:

Thank you. I’m going to give it a try. I just ordered some. I’m willing to try it, but if this doesn’t work, I’m just going to give up trying to find relief. I hate when stuff leaks out, so I hope this isn’t that bad.

Dx 5/1/2019, ILC, Stage IV, metastasized to other, ER+/PR+, HER2- (FISH) Targeted Therapy 6/23/2019 Ibrance (palbociclib) Hormonal Therapy 6/24/2019 Femara (letrozole)
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May 5, 2020 06:57PM Jinx27 wrote:

Thanks for responding, I get nervous when I post and think no-one will look haha!

Im sure we all have our share of issues that we deal with due to our cancer, Vaginal Atrophy doesnt have to be one of them, using this product made me realize that. I really was about to give up on because I didnt see any affordable or effective stuff on the market and the procedures like the Mona Lisa Touch were too expensive. The use of lubricants during sex doesnt get to the root of the issue either, the thinning of the vaginal tissue needs to be addressed.

@kksmom3 I was super skeptical too, thats why I emailed the company and they quickly responded back to my surprise. She explained to me that most women see results after one month of usage which is exactly one box. The suppository itself is to be inserted at night, Im very clumsy so I had some product come out a little but on my third suppository I didnt have much leakage if any. You can also order a suppository applicator to make the process easier. The suppository should melt overnight inside the vaginal canal.

Its to be inserted every 5-6 days. She also suggested the supplements I listed above to help make it work. For folks with severe atrophy you may need to purchase a set of magnetic dilators to slowly encourage the vagina to respond to stimulation.

There is also a cream that she sells for the vulva only, Im expecting that in the mail soon, while Im waiting Ive been using coconut oil for my vulva and its been a dream!

The constant "UTI" feeling is quite normal for you because of the thinning and atrophy happening. I say try it for one month along with Omega 3 and 7. Get some dilators if you have pelvic pain. I dont have a partner right now so I purchased a high end vibrator, upon my second use of the vibrator I didnt have any tears or pain, only pleasure. I was really in amazement.

if you wind up buying it feel free to post here! Best wishes.

@KBL Im happy you took the plunge! Were you able to figure out which one was best for you, there are three types. I wouldn't want you to purchase the wrong one and yes I say give it a try! If your able to get the supplements I listed above it will make it work better.

Remember it takes time for this to work but within one month you should be able to feel some difference, please post back here. Im hoping it works!!


Dx 9/8/2015, DCIS/IDC, Both breasts, 4cm, Stage IIB, Grade 3, 3/36 nodes, ER+/PR+, HER2- Surgery 11/17/2015 Reconstruction (left): Free TRAM flap; Reconstruction (right): Free TRAM flap Chemotherapy 1/1/2016 AC + T (Taxol) Hormonal Therapy 8/29/2016 Arimidex (anastrozole)
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May 5, 2020 07:23PM - edited May 5, 2020 07:24PM by kksmom3

Ok, you've sold me, I'm going to order it. I don't have pelvic pain. I've tried a few different OTC things, none of them worked. Hopefully, this will. Are you still blocking your hormones? I don't want to go off of letrozole, but it isn't worth this pain. Thank You!

Dx 8/8/2018, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 10/1/2018 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 10/29/2018 Whole-breast: Breast, Lymph nodes
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May 5, 2020 07:36PM Jinx27 wrote:

@kksmom3 Im excited haha!

Yes my estrogen is blocked and ovaries suppressed with Lupron and Arimidex and will be for the next 6 years, I didnt have to change my meds at all , otherwise its not worth the risk of a recurrence.

The Dr. that created it stated that consistent use for 4 months is recommended so I wound up subscribing for a delivery every month. Dont forget the supplements too. You can get them at the pharmacy or online.

Post back here with your results!

Dx 9/8/2015, DCIS/IDC, Both breasts, 4cm, Stage IIB, Grade 3, 3/36 nodes, ER+/PR+, HER2- Surgery 11/17/2015 Reconstruction (left): Free TRAM flap; Reconstruction (right): Free TRAM flap Chemotherapy 1/1/2016 AC + T (Taxol) Hormonal Therapy 8/29/2016 Arimidex (anastrozole)
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May 5, 2020 08:37PM KBL wrote:

I ordered the Silk. I’m over 50 and post-menopausal. Thank you for posting. We all have to try one thing or another to try to help. We shall see. I appreciate it.

Dx 5/1/2019, ILC, Stage IV, metastasized to other, ER+/PR+, HER2- (FISH) Targeted Therapy 6/23/2019 Ibrance (palbociclib) Hormonal Therapy 6/24/2019 Femara (letrozole)
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May 6, 2020 05:12AM gb2115 wrote:

I just ordered a vaginal moisturizer called Ah Yes that my pelvic PT recommended, said many of her patients like it. I don't know if I have atrophy from the tamoxifen (I think probably), but I get stinging and burning just from touching the area. Looks normal though. I hope it helps. I'm also dealing with prolapse so the entire area down there is pretty unhappy.

Dx IDC in October 2016, stage 2A, 1.2 cm ER/PR+ Her2-, Grade 2, 1/3 nodes. Mammaprint low risk luminal A, Lumpectomy + radiation + tamoxifen. Age 38 at diagnosis.
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May 6, 2020 07:14AM Still-me40 wrote:

I am so glad I stumbled across this post. I called my oncologist in tears today because I’ve been unable to shake the constant uti feeling for the past 2 months. I’ve basically told my husband I’m too scared to have sex because of the pain afterwards.

I’m in Australia but am going to order some of this. I don’t feel hopeless anymore, so thank ypu

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May 7, 2020 12:10PM - edited May 8, 2020 07:37PM by Jinx27

gb2115 Im no Dr. but the stinging and burning sounds upon touching sounds like it can also be addressed using this, check out the website. Its lists several symptoms of atrophy or related conditions. https://www.neueve.com

Still-me40 I believe you have the option for international shipping, if you purchase it please post back here with your experience.

Stay safe ladies, I hope this works for you like its working for me.

Dx 9/8/2015, DCIS/IDC, Both breasts, 4cm, Stage IIB, Grade 3, 3/36 nodes, ER+/PR+, HER2- Surgery 11/17/2015 Reconstruction (left): Free TRAM flap; Reconstruction (right): Free TRAM flap Chemotherapy 1/1/2016 AC + T (Taxol) Hormonal Therapy 8/29/2016 Arimidex (anastrozole)
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May 8, 2020 02:26PM LaughingGull wrote:

I just ordered this and will report back with the results. I appreciate that you shared this!

ACx4, THPx4, HP (to complete 1y); Nerlynx (1y); AI (expected 10y), Surgery: BMX + ALND, Reconstruction, Oophorectomy. Radiation. Dx 10/26/2017, IDC, Right, 3cm, Stage IIB, Grade 3, 2/6 nodes, ER+/PR+, HER2+ (IHC)
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May 9, 2020 09:31AM - edited May 22, 2020 05:56PM by Jinx27

Going to start my second set of Silver suppositories this evening, I also bought the NeuEve vaginal cream for occasional vulvar dryness, I think it will be nice to use right after bathing too. I have coconut oil that works well too but the NeuEve has a blend ingredients Id like to try.

Dx 9/8/2015, DCIS/IDC, Both breasts, 4cm, Stage IIB, Grade 3, 3/36 nodes, ER+/PR+, HER2- Surgery 11/17/2015 Reconstruction (left): Free TRAM flap; Reconstruction (right): Free TRAM flap Chemotherapy 1/1/2016 AC + T (Taxol) Hormonal Therapy 8/29/2016 Arimidex (anastrozole)
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May 22, 2020 04:41PM KBL wrote:

Well, I have used the Silk product three times. It was definitely making a difference. Now I have a bladder infection, and whether it is from this product or not, I won’t be using it anymore. Bladder infections are the worst, and I’m prone to them. I hadn’t had one in a long time. I will say I really liked that it was working.

Dx 5/1/2019, ILC, Stage IV, metastasized to other, ER+/PR+, HER2- (FISH) Targeted Therapy 6/23/2019 Ibrance (palbociclib) Hormonal Therapy 6/24/2019 Femara (letrozole)
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May 22, 2020 05:49PM - edited May 22, 2020 08:25PM by Jinx27

@KBL Im soo sorry to hear you have a bladder infection! That is the absolute worse! Your wise in using judgement.

To be fair, I had difficulty putting in the suppository the first two times and my urethra got sensitive, the suppository itself got on my vulve which wasn't bad but it definitely made my urethra sensitive, I had frequent urination etc but it went away and with the 3rd, 4th and 5th application I didnt have any of that.

Im happy it was working for you, maybe it was something in the product that caused the infection! Im hoping you find something to at least give you comfort.

Dx 9/8/2015, DCIS/IDC, Both breasts, 4cm, Stage IIB, Grade 3, 3/36 nodes, ER+/PR+, HER2- Surgery 11/17/2015 Reconstruction (left): Free TRAM flap; Reconstruction (right): Free TRAM flap Chemotherapy 1/1/2016 AC + T (Taxol) Hormonal Therapy 8/29/2016 Arimidex (anastrozole)
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May 22, 2020 06:53PM - edited May 22, 2020 06:53PM by InnaB2018

I use Luvena. It was recommended by my gynecologist, and I'd say it's working. But it's rather messy.


Dx 3/26/2018, IDC, Right, 3cm, Stage IIA, Grade 3, 1/18 nodes, ER+/PR+, HER2- Surgery 4/24/2018 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 6/1/2018 AC + T (Taxol) Radiation Therapy 10/7/2018 3DCRT: Breast, Lymph nodes, Chest wall Surgery 5/21/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 5/22/2019 Prophylactic ovary removal Hormonal Therapy Arimidex (anastrozole)
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May 23, 2020 11:17AM KBL wrote:

Jinx, thank you. It’s okay. It was worth a try. I liked that you only did it every fourth day.

Inna, I hate messy and refuse to use anything like that. Thank you, though, for the suggestion

I miss being able to use Estrace. That stuff was perfect.

Dx 5/1/2019, ILC, Stage IV, metastasized to other, ER+/PR+, HER2- (FISH) Targeted Therapy 6/23/2019 Ibrance (palbociclib) Hormonal Therapy 6/24/2019 Femara (letrozole)
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May 23, 2020 04:56PM sbelizabeth wrote:

KBL, from painful experience, I've learned that anything that causes trauma to the urethra--be it ever so slight-- can lead to a UTI. This includes inserting a suppository into the vagina and inadvertently scraping it along the tissue toward the front, where the urethra lives. I'm venturing a guess that it's not the product's ingredients that lead to your UTI, it's the annoyed urethra that the insertion might have caused. With all the estrogen wrung out of our systems by cancer treatments, our urogenital tissues are fragile and easily damaged. I'm sorry you're battling this UTI. SB

pinkribbonandwheels.wordpress.... Dx 10/20/2011, IDC/IBC, Left, 1cm, Stage IIIA, Grade 2, 6/28 nodes, ER+/PR+, HER2- Chemotherapy 12/15/2011 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 4/18/2012 Mastectomy: Left Radiation Therapy 5/21/2012 Breast, Lymph nodes Hormonal Therapy 7/19/2012 Femara (letrozole) Surgery 4/15/2013 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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May 23, 2020 07:15PM KBL wrote:

Thank you, SB. That makes sense. It definitely sounds plausible. I am, unfortunately used to the infections, even though it’s been a while. I always have a way to get the medication quickly. The only problem I have is they always start later in the day, so if I don’t have the Azo on hand, I have to deal with the intense stinging until the next day. I’m doing okay now since I’ve started on the medication. Thank you, again.

Dx 5/1/2019, ILC, Stage IV, metastasized to other, ER+/PR+, HER2- (FISH) Targeted Therapy 6/23/2019 Ibrance (palbociclib) Hormonal Therapy 6/24/2019 Femara (letrozole)

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