Topic: Vaginal Atrophy solution that is working for me!

Forum: Sex & Relationship Matters — A safe place to talk candidly about how your romantic relationships and/or your sex life has changed following your diagnosis and treatment.

Posted on: May 5, 2020 01:05PM - edited Feb 24, 2021 06:03AM by jinx27

Posted on: May 5, 2020 01:05PM - edited Feb 24, 2021 06:03AM by jinx27

jinx27 wrote:

Hello all!

Ive been a member for quite some time now and wanted to post about my sexual side effects of my treatment and what Ive been doing to combat them.

I was diagnosed with my ER/PR+ breast cancer and have chosen to take an aromatase inhibitior along with Lupron (ovarian suppression ) injects for the next 5-10 years.

My onco just barely prepared me for all of the changes that I would have living the next 5-10 with lowered estrogen (menopause) as a 30 year old something. She mentioned vaginal dryness but I didnt know that the dryness really meant atrophy! I also suffered from strong vaginal odor without an infection. This also due to the atrophy.

I initially knew something was wrong when I had intercourse and it was terribly painful, I had small microcuts in my vulva and inner vagina due to weakening of my vaginal tissue, not knowing how to deal with this I went online.

Initially I was interesting in the Mona Lisa Touch or Petite Lady procedure that alot of women post about on here but it wasn't in my price range at all.

I stumbled upon a product call NeuEve; a estrogen free vaginal suppository created by a gynecologist for women.

Neu Eve Website

NeuEve suppositories and cream help ease menopausal discomforts: vaginal odor, dryness, atrophy, itching, burning, painful sex, and bacterial vaginosis.*

100% all-natural food grade ingredients : Organic palm oil*, organic coconut oil, organic beeswax, organic tapioca starch, organic potato starch, evening primrose oil, organic sea buckthorn fruit oil, organic lavender essential oil, organic orange oil, organic vitamin E (d-α tocopherol), and a proprietary blend of nutrients.

NeuEve is gluten-free, hormone-free and estrogen-free. NeuEve does NOT contain any boric acid, petrochemicals, parabens, BHT, T.E.A, M.E.A, urea, glycols, PEG's, etc. NeuEve has never been tested on animals, and does not contain any animal products.


Customers can choose between three options depending on the severity of their atrophy and age. I emailed her asking for guidance and responded back with a warm and informative response. I chose the level 2 suppository due to my age.

She stated the following supplements help with atrophy; OMEGA 3, OMEGA 7, Vitamin D.

She also mentioned purchasing a set of Magnetic Vaginal Dilators and using them twice a day if I have pelvic pain.

I have been using NeuEve for one month along with taking the above supplements and have seen a huge improvement. I use lubrication during self pleasure which helps but I have not had any pain or microcuts in or around the vulva or inside the vaginal canal since finishing my first box of NeuEve.

I used to to have a odor due to the dryness, and a UTI feeling. The odor is completely gone, and the UTI feeling is slowly fading away. I thought Id share here since there are soo many products on the market to choose from.

The price is around $59 for a month supply, if you decide to get a subscription, the cost will be $49 a month. Not too bad. The site recommends using it for 4 months straight, however many women report improvements after one month.

Please feel free to message here with any questions. Im going to continue the product for four months and return back with an update.


Diagnosed at 27 y/o, synchronous bilateral breast cancer. L. Breast : IDC, R. Breast: DCIS. ER 98%, PR 100% Possible mutation. 5-10 yrs hormonal therapy 08/31/2016 Tamoxifen, 02/01/2017- 06/10/2021 AI + OS,Tamoxifen 08/10/2021 -current Dx 9/8/2015, DCIS/IDC, Both breasts, 4cm, Stage IIB, Grade 3, 3/36 nodes, ER+/PR+, HER2- Surgery 11/17/2015 Reconstruction (Left): Free TRAM flap; Reconstruction (Right): Free TRAM flap Chemotherapy 12/31/2015 AC + T (Taxol) Hormonal Therapy 8/27/2016 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin)
Log in to post a reply

Page 16 of 24 (235 results)

Log in to post a reply

Jan 20, 2022 12:55PM sharon0706 wrote:

Hi LaughingGull.

I might be repeating something that someone else has already said here. My oncologist says the same thing as yours about estrogen creams, but mine does feel comfortable prescribing me the Estring. It's a plastic (?) vaginal ring, not a cream. You stick it in and it stays there for three months, then you replace it. It helps with daily comfort but I still also use hyalo-gyn.

My anatomy is shaped in such a way that although I can insert the ring, I cannot get it out by myself. I go to the gyn every three months and she takes it out for me. Small inconvenience for the improvement in comfort. Hope this is helpful.

Dx 8/1/2001, LCIS Hormonal Therapy 6/29/2008 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 6/29/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 8/24/2020, ILC, Left, 1cm, Stage IA, Grade 3, 1/1 nodes, ER+/PR+, HER2- Surgery 10/20/2020 Lymph node removal; Lymph node removal (Left); Mastectomy; Mastectomy (Left); Mastectomy (Right); Prophylactic mastectomy; Prophylactic mastectomy (Right); Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander Chemotherapy 11/23/2020 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 2/22/2021 Femara (letrozole) Surgery 6/13/2021 Reconstruction (Left): DIEP flap; Reconstruction (Right): DIEP flap Surgery
Log in to post a reply

Jan 20, 2022 02:49PM laughinggull wrote:

Thank you ladies, this is useful

ACx4, THPx4, HP (to complete 1y); Nerlynx (1y); AI (expected 10y), Surgery: BMX + ALND, Reconstruction, Oophorectomy. Radiation. Dx 10/26/2017, IDC, Right, 3cm, Stage IIB, Grade 3, 2/6 nodes, ER+/PR+, HER2-
Log in to post a reply

Jan 20, 2022 07:02PM kbl wrote:

LaughingGull, I totally see where you’re coming from. I am Stage IV and have been for eight years. My time is limited as far as I know, I could have a year, could have many more. I just don’t know. I think my being Stage IV contributes to my quality vs quantity feelings. I’ve had pain from intercourse since my partial hysterectomy in 2012. I was done feeling the pain and am willing to risk it a little bit. I’m also not supposed to be on estrogen because I have a blood clotting disorder. I use such a minute amount, pea-sized, two times a week. I can only hope it won’t create more issues

De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Missed diagnosis from 2013 to 2019 Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- Targeted Therapy 5/1/2019 Ibrance (palbociclib) Hormonal Therapy 5/1/2019 Faslodex (fulvestrant) Chemotherapy 9/27/2021 Xeloda (capecitabine) Hormonal Therapy Femara (letrozole)
Log in to post a reply

Jan 20, 2022 07:48PM lillyishere wrote:

KBL, ask your GYN if you can use lidocaine cream. I was suggested by pelvic PT but I haven't checked with GYN yet. It should numb the area so you won't feel pain.

“Within five years, cancer will have been removed from the list of fatal maladies.” That was the optimistic promise to U.S. President William Howard Taft in 1910 when he visited Buffalo’s Gratwick Laboratory, “What’s taking so long?” Dx 7/31/2019, ILC, Left, <1, Stage IIA, 2/5 nodes, ER+/PR-, HER2- Hormonal Therapy 7/31/2019 Aromasin (exemestane), Femara (letrozole) Surgery 9/1/2019 Lymph node removal (Left); Mastectomy (Left): Nipple Sparing; Mastectomy (Right): Nipple Sparing; Reconstruction (Left): Silicone implant; Reconstruction (Right): Silicone implant Surgery 9/1/2019 Mastectomy (Left): Nipple Sparing; Mastectomy (Right): Nipple Sparing; Prophylactic mastectomy (Right) Surgery 9/19/2019 Lymph node removal; Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): Silicone implant; Reconstruction (Right): Silicone implant Hormonal Therapy 11/29/2019 Femara (letrozole) Hormonal Therapy 12/1/2019 Femara (letrozole), Aromasin (exemestane) Dx LCIS/ILC, Both breasts, 2/5 nodes, ER+/PR-, HER2-
Log in to post a reply

Jan 21, 2022 03:16AM kbl wrote:

LillyIsHere, I had gone to the emergency room for an allergic reaction to some wipes I had used. The itching was intense. They gave me lidocaine. One day months later I tried it. During sex it was awesome. I had no pain. Right after I had intense burning. That was that

De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Missed diagnosis from 2013 to 2019 Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- Targeted Therapy 5/1/2019 Ibrance (palbociclib) Hormonal Therapy 5/1/2019 Faslodex (fulvestrant) Chemotherapy 9/27/2021 Xeloda (capecitabine) Hormonal Therapy Femara (letrozole)
Log in to post a reply

Jan 21, 2022 07:24AM - edited Jan 21, 2022 01:59PM by laughinggull

Hi y'all

Thanks again KBL for sharing your perspective. I bet the pea amount you are using is safe. I root for you and for all other Stage IV patients, and fervently hope for more and more breakthrough treatments that tame this odious cancer beast, either little by little or at once. In my case, the MO told me to ask myself the question: if I use the estrogen cream, and my cancer comes back (even if it's impossible to attribute the recurrence to the estrogen cream), am I going to second-guess myself, regret the decision, and wish I hadn't done it? The honest answer is yes, I think I would. If my cancer returns, I want to know I did everything in my power to prevent it. So I chicken out -no estrogen cream for me.

Thanks Sharon0706. My MO also will prescribe it -as long as I ask myself these questions and sign a paper saying that I understand the risk. My problem is not the prescription, I actually have the estrogen cream at home, which I bought abroad on a trip, where I was you didnt need a prescription. My problem is the recurrence panic and guilt. For now fear and guilt win.

Have a great weekend, everyone,

LaughingGull

ACx4, THPx4, HP (to complete 1y); Nerlynx (1y); AI (expected 10y), Surgery: BMX + ALND, Reconstruction, Oophorectomy. Radiation. Dx 10/26/2017, IDC, Right, 3cm, Stage IIB, Grade 3, 2/6 nodes, ER+/PR+, HER2-
Log in to post a reply

Jan 21, 2022 07:51AM lillyishere wrote:

KBL, thank you for sharing your experience. It is good to know that lidocaine is only a temporary solution with lots of burning after. Oh boy! I don't know how to keep a healthy marriage and deal with cancer treatments.

LaughingGull, I wonder if estrogen cream is like antibiotic oinment that it works locally and doesn't go in bloodstream.


“Within five years, cancer will have been removed from the list of fatal maladies.” That was the optimistic promise to U.S. President William Howard Taft in 1910 when he visited Buffalo’s Gratwick Laboratory, “What’s taking so long?” Dx 7/31/2019, ILC, Left, <1, Stage IIA, 2/5 nodes, ER+/PR-, HER2- Hormonal Therapy 7/31/2019 Aromasin (exemestane), Femara (letrozole) Surgery 9/1/2019 Lymph node removal (Left); Mastectomy (Left): Nipple Sparing; Mastectomy (Right): Nipple Sparing; Reconstruction (Left): Silicone implant; Reconstruction (Right): Silicone implant Surgery 9/1/2019 Mastectomy (Left): Nipple Sparing; Mastectomy (Right): Nipple Sparing; Prophylactic mastectomy (Right) Surgery 9/19/2019 Lymph node removal; Mastectomy; Mastectomy (Left); Mastectomy (Right); Reconstruction (Left): Silicone implant; Reconstruction (Right): Silicone implant Hormonal Therapy 11/29/2019 Femara (letrozole) Hormonal Therapy 12/1/2019 Femara (letrozole), Aromasin (exemestane) Dx LCIS/ILC, Both breasts, 2/5 nodes, ER+/PR-, HER2-
Log in to post a reply

Jan 21, 2022 10:09AM kbl wrote:

LaughingGull, I would definitely think just like you if I wasn’t Stage IV. I totally understand. It did take me three years of pain to finally say I was going on. I also feel a little guilty, but I am going ahead. I want you to know I would think exactly like you otherwise.

LillyIsHere, it may not affect you like that. I’d give it a try to see.

De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Missed diagnosis from 2013 to 2019 Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- Targeted Therapy 5/1/2019 Ibrance (palbociclib) Hormonal Therapy 5/1/2019 Faslodex (fulvestrant) Chemotherapy 9/27/2021 Xeloda (capecitabine) Hormonal Therapy Femara (letrozole)
Log in to post a reply

Jan 21, 2022 04:31PM - edited Jan 21, 2022 04:36PM by mikamika

In my former cancer center ladies who were using estrogen cream got their hormonal levels tested on a regular basis. So you can easily know how this cream affects you (or not).

It's also interesting, we all have different amount of the fat tissue (which produces estrogen) but take same dosage of the pills. In this case MOs do not care that someone gets not enough of estrogen blockers.

Dx at 38 Dx 8/2019, ILC, Stage IIA, Grade 2, ER+/PR+, HER2- Radiation Therapy Hormonal Therapy Arimidex (anastrozole)
Log in to post a reply

Jan 21, 2022 06:38PM ddfair wrote:

KBL

You mention having had a "partial hysterectomy". I'm confused. Exactly what was removed? What was left behind? Did the surgeon only remove part of your uterus? Why would they not remove all of the uterus and the cervix?

Hope keeps you stuck. Give up, and move on. Surgery Lumpectomy; Lumpectomy (Left); Lumpectomy (Right); Lymph node removal; Mastectomy; Mastectomy (Left); Mastectomy (Right); Prophylactic mastectomy; Prophylactic mastectomy (Left)

Page 16 of 24 (235 results)

Scroll to top button