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Topic: Vaginal Atrophy solution that is working for me!

Forum: Sex & Relationship Matters —

A safe place to talk candidly about how your romantic relationships and/or your sex life has changed following your diagnosis and treatment.

Posted on: May 5, 2020 03:05PM - edited May 9, 2020 10:38AM by Jinx27

Jinx27 wrote:

Hello all!

Ive been a member for quite some time now and wanted to post about my sexual side effects of my treatment and what Ive been doing to combat them.

I was diagnosed with my ER/PR+ breast cancer and have chosen to take an aromatase inhibitior along with Lupron (ovarian suppression ) injects for the next 5-10 years.

My onco just barely prepared me for all of the changes that I would have living the next 5-10 with lowered estrogen (menopause) as a 30 year old something. She mentioned vaginal dryness but I didnt know that the dryness really meant atrophy! I also suffered from strong vaginal odor without an infection. This also due to the atrophy.

I initially knew something was wrong when I had intercourse and it was terribly painful, I had small microcuts in my vulva and inner vagina due to weakening of my vaginal tissue, not knowing how to deal with this I went online.

Initially I was interesting in the Mona Lisa Touch or Petite Lady procedure that alot of women post about on here but it wasn't in my price range at all.

I stumbled upon a product call NeuEve; a estrogen free vaginal suppository created by a gynecologist for women.

Neu Eve Website

Customers can choose between three options depending on the severity of their atrophy and age. I emailed her asking for guidance and responded back with a warm and informative response. I chose the level 2 suppository due to my age.

She stated the following supplements help with atrophy; OMEGA 3, OMEGA 7, Vitamin D.

She also mentioned purchasing a set of Magnetic Vaginal Dilators and using them twice a day if I have pelvic pain.

I have been using NeuEve for one month along with taking the above supplements and have seen a huge improvement. I use lubrication during self pleasure which helps but I have not had any pain or microcuts in or around the vulva or inside the vaginal canal since finishing my first box of NeuEve.

I used to to have a odor due to the dryness, and a UTI feeling. The odor is completely gone, and the UTI feeling is slowly fading away. I thought Id share here since there are soo many products on the market to choose from.

The price is around $59 for a month supply, if you decide to get a subscription, the cost will be $49 a month. Not too bad. The site recommends using it for 4 months straight, however many women report improvements after one month.

Please feel free to message here with any questions. Im going to continue the product for four months and return back with an update.


Dx 9/8/2015, DCIS/IDC, Both breasts, 4cm, Stage IIB, Grade 3, 3/36 nodes, ER+/PR+, HER2- Surgery 11/17/2015 Reconstruction (left): Free TRAM flap; Reconstruction (right): Free TRAM flap Chemotherapy 1/1/2016 AC + T (Taxol) Hormonal Therapy 8/29/2016 Arimidex (anastrozole)
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Posts 31 - 47 (47 total)

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Sep 22, 2020 10:24PM Trishyla wrote:

I've had good results using pure hyaluronic acid. Not one of the cremes or lotions. Just pure hyaluronic acid in water. It's completely natural and has no side effects. It really helps with the dryness. The one I use is from Watt's Beauty. I got it on Amazon for under ten dollars.

Dx 8/30/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 8/30/2016, IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2- Dx 9/6/2016, IDC, Left, 1cm, Stage IIA, Grade 2, 1/2 nodes, ER+/PR+, HER2- Chemotherapy 9/28/2016 AC + T (Taxol) Surgery 4/4/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy 8/5/2017 Xeloda (capecitabine)
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Sep 23, 2020 06:14PM Jinx27 wrote:

Soo happy to see this thread is still breathing Hug

Dx 9/8/2015, DCIS/IDC, Both breasts, 4cm, Stage IIB, Grade 3, 3/36 nodes, ER+/PR+, HER2- Surgery 11/17/2015 Reconstruction (left): Free TRAM flap; Reconstruction (right): Free TRAM flap Chemotherapy 1/1/2016 AC + T (Taxol) Hormonal Therapy 8/29/2016 Arimidex (anastrozole)
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Sep 23, 2020 07:52PM Secondtimeround wrote:

I was thrilled to see you posted this topic - thank you! I'm about to start a whole bunch of sex-dampening, vaginal unfriendly hormonal treatments following my BC recurrence surgery next week and I'm dreading the potential side effects; I suspect I'm peri menopausal right now at 47years old as there's a few initial symptoms I've been experiencing which I suspect will be exacerbated by my treatment. So, I've ordered a vaginal dryness relief product hellobonafide.com/products/rev... from bonafide to see how this works out. Completely hormone free which appeals obviously. I have no idea how well it works but I thought I'd add it to the conversation for anyone who may have feedback on it already or for those looking for something else :)

Dx 4/2015, IDC, Left, 2cm, Stage IIA, Grade 2, 0/9 nodes, ER+/PR+, HER2- (IHC) Dx 8/28/2020, IDC, Left, 2cm, Stage IIA, Grade 2, ER+/PR+, HER2- Surgery Mastectomy: Left; Reconstruction (left): Silicone implant, Tissue expander placement Radiation Therapy Whole-breast: Breast, Chest wall Hormonal Therapy Surgery
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Sep 23, 2020 08:34PM KBL wrote:

Please come back and post how it works for you. I did a vaginal insert, but it had different ingredients. I got a bladder infection soon after and have been afraid to try anything else.

Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- (FISH) Hormonal Therapy 6/23/2019 Femara (letrozole) Targeted Therapy 6/23/2019 Ibrance (palbociclib)
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Oct 1, 2020 05:47PM Secondtimeround wrote:

Hi KBL, so far it's absolutely great but I appreciate it early days. I've been inserting a pessary every 3 days and have noticed a vast difference - I hadn't realized just how uncomfortable I had got until I started using the bonafide inserts and I'm very excited to continue with them especially seeing as tamoxifen looms large on my horizon. I think they have some offers on if you order one month supply - and because it's non-hormonal it might be worth a try. Either way, I really hope you find something that suits you and brings relief.

Dx 4/2015, IDC, Left, 2cm, Stage IIA, Grade 2, 0/9 nodes, ER+/PR+, HER2- (IHC) Dx 8/28/2020, IDC, Left, 2cm, Stage IIA, Grade 2, ER+/PR+, HER2- Surgery Mastectomy: Left; Reconstruction (left): Silicone implant, Tissue expander placement Radiation Therapy Whole-breast: Breast, Chest wall Hormonal Therapy Surgery
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Oct 1, 2020 08:54PM KBL wrote:

Thank you, Secondtimearound. I appreciate you keeping me updated.

Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- (FISH) Hormonal Therapy 6/23/2019 Femara (letrozole) Targeted Therapy 6/23/2019 Ibrance (palbociclib)
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Oct 9, 2020 03:53PM - edited Oct 11, 2020 06:39PM by Nsbrown54

I've been having vaginitis issues since I stopped estrace when I was diagnosed. My GYN recently prescribed clobesterol .05% ointment, to be used twice daily for two weeks, then three times per week. Just getting started with treatment. My symptoms have improved, but are a bit bothersome. Has anyone used clobesterol

Dx 6/22/2020, IDC, Right, 6cm+, Stage IIB, ER+/PR+, HER2+ Chemotherapy 6/28/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 11/18/2020 Mastectomy Hormonal Therapy 12/7/2020 Femara (letrozole) Targeted Therapy 1/4/2021 Herceptin (trastuzumab) Targeted Therapy 1/25/2021 Perjeta (pertuzumab)
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Oct 12, 2020 07:46PM kksmom3 wrote:

My PCP prescribed me Clobetasol cream, same thing you have. It is the only thing that has helped. It is $$ but the first tube I got in April is still a quarter full and I use a pea sized amount. I got it under control, then it flared up again. I guess I need to keep up with the Clobetasol cream better, but it concerns me to use it this long. I hate the discomfort though, so I'm willing to keep using it.

Dx 8/8/2018, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 10/1/2018 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 10/29/2018 Whole-breast: Breast, Lymph nodes
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Oct 13, 2020 03:39PM Nsbrown54 wrote:

I’ve had some burning painwith it, so I’m going to cut back to once a day for a while, before I go to 3xs per week.

Dx 6/22/2020, IDC, Right, 6cm+, Stage IIB, ER+/PR+, HER2+ Chemotherapy 6/28/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 11/18/2020 Mastectomy Hormonal Therapy 12/7/2020 Femara (letrozole) Targeted Therapy 1/4/2021 Herceptin (trastuzumab) Targeted Therapy 1/25/2021 Perjeta (pertuzumab)
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Oct 13, 2020 04:32PM kksmom3 wrote:

Everything that is OTC has burned me. I tried to keep up with it by using just coconut oil, but it came back with a vengeance. I still hurt mildly all the time, but not stabbing and burning like I was. I just don't know if it's safe to be on this cream very single day! I have a dr appointment a month from now. so I'll ask then.

Dx 8/8/2018, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 10/1/2018 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 10/29/2018 Whole-breast: Breast, Lymph nodes
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Oct 28, 2020 10:44AM Nsbrown54 wrote:

I’ve started to have burning issues with clobesterol. I have a call into my GYN to see what else would help. I’ve been looking at some of the products suggested from others, but want to discuss with doctor before ordering/ trying something new.

Dx 6/22/2020, IDC, Right, 6cm+, Stage IIB, ER+/PR+, HER2+ Chemotherapy 6/28/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 11/18/2020 Mastectomy Hormonal Therapy 12/7/2020 Femara (letrozole) Targeted Therapy 1/4/2021 Herceptin (trastuzumab) Targeted Therapy 1/25/2021 Perjeta (pertuzumab)
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Oct 31, 2020 08:15AM Jinx27 wrote:

So happy folks are keeping this thread alive and writing down their experiences here Hug Thank you!

I have gotten so busy that I have forgotten my vaginal dryness routine. I still have the NeuEve vaginal balm and suppositories. I have been experiencing vaginal dryness ever since I got my monthly Lupron injection. I will insert a suppository (every 5 days) tonight and then use the balm to moisture myself after I bathe.


Dx 9/8/2015, DCIS/IDC, Both breasts, 4cm, Stage IIB, Grade 3, 3/36 nodes, ER+/PR+, HER2- Surgery 11/17/2015 Reconstruction (left): Free TRAM flap; Reconstruction (right): Free TRAM flap Chemotherapy 1/1/2016 AC + T (Taxol) Hormonal Therapy 8/29/2016 Arimidex (anastrozole)
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Jan 16, 2021 09:57PM Piscean wrote:

Jinx27, thank you so much for this thread. I've recently begun experiencing the effects of vaginal atrophy and the Neu Eve looks like an amazing product! I've been using Vitamin E soft gels emptied into my vagina but I'm definitely going to try the Neu Eve.


Dx at age 44, premenopausal. Oncotype DX score 11. I don't like pink washing. Dx 12/24/2014, DCIS, Left, Stage 0, Grade 3 Surgery 3/22/2015 Lymph node removal: Left; Mastectomy: Left; Reconstruction (left): Tissue expander placement Dx 4/15/2015, IDC, Left, <1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Hormonal Therapy 5/16/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 8/18/2015 Reconstruction (left): Silicone implant
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Jan 17, 2021 09:27AM marie914 wrote:

I have dryness after menopause and I was dreading intercourse because of pain. Then I started taking hormones which helped but then I got breast cancer ER+ :( My breast surgeon said to try coconut oil and it helped a lot. Never had pain during intercourse since. I put it on every day after my shower. It is relatively cheap. I am worried when I start femara next month that the dryness or atrophy might reoccur so I will keep this in mind. Thank you for posting!

Dx 7/31/2020, DCIS/IDC, Left, 2cm, Stage IIA, Grade 2, 0/8 nodes, ER+/PR+, HER2- (FISH) Surgery 9/14/2020 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy Femara (letrozole) Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery Reconstruction (left): Silicone implant
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Jan 18, 2021 07:45PM - edited Jan 18, 2021 10:19PM by Jinx27

Happy New Year Heart

@Piscean let me know if you have any questions, Im still using the products. I have heard that coconut oil works well too @marie914, your dryness may increase a bit with the Femara , if the coconut oil doesnt suffice you can always try a suppository.

Dx 9/8/2015, DCIS/IDC, Both breasts, 4cm, Stage IIB, Grade 3, 3/36 nodes, ER+/PR+, HER2- Surgery 11/17/2015 Reconstruction (left): Free TRAM flap; Reconstruction (right): Free TRAM flap Chemotherapy 1/1/2016 AC + T (Taxol) Hormonal Therapy 8/29/2016 Arimidex (anastrozole)
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Jan 18, 2021 09:43PM FindingOptimism wrote:

Bsed on the recommendations in this thread, I have started Neu Eve. Game changer! I noticed in their materials they talked about “stepping back” to lesser formulas and lower frequency. Does anyone have a maintenance plan that they can recommend?

Dx 8/2018, IDC, Right, 1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- (IHC) Hormonal Therapy 12/12/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lumpectomy; Lymph node removal: Sentinel Radiation Therapy Whole-breast: Breast
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Jan 18, 2021 11:05PM - edited 19 hours ago by Jinx27

@FindingOptimism so happy to hear its working for you. I tried scaling back when my dryness and atrophy improved but they seem to creep back up after my monthly Lupron injection. So I started back up with the suppository every 4-5 days. Along with using the vaginal balm daily for my vulva.

On the side of the box there is a routine checkbox with seven days on it, this is a way for you to keep track of when you use it.When I used it for the first time, 3 months was perfect for me but then my Lupron dosage changed to monthly due to a shortage (COVID 19).

As for lesser formulas, I read on the site that the formula Im taking shouldn't change, I believe its the Silk formula. I did send an email asking about how long should one initially use the product, she stated that three consistent months of using the suppository should really be enough, however some patients may need to use it longer depending on the severity of the atrophy. Since most of us are on our hormonal therapy for an extended period of time you should use as needed.

Also ladies, insert the suppository when lying on your back flat with a pillow below your lower back to elevate your pelvic. This ensures the suppository is inserted all of the way and lowers the risk of the product leaking out. I had the most success inserting the suppository when it was very solid. I placed it in the fridge for storage.

So I would say start with 3 months then see from there how you feel! There is a 3 month subscription option.

I just refilled and here is the message form the website about frequency and other supplements;

IMPORTANT:
Please take sea buckthorn oil (omega-7), vitamin D, vitamin K2 (100 µg/day), calcium (1 g), and omega-3 supplements (either fish oil or flaxseed oil) daily to help NeuEve work better.

NeuEve will work right way if you have just begun to feel vaginal dryness. If you have experienced dryness for more than a year, atrophy has occurred. NeuEve can reverse it, but it may take 1-4 months before recovering from painful intercourse. Before full recovery, if you feel not enough lubrication with NeuEve alone, you can use a regular lubricant during intercourse to ease the dryness, like women who use night cream for wrinkles may also use day cream.

If you are a loving husband or boyfriend, you need to know NeuEve works slowly. Please be patient. Please urinate after intimacy to prevent UTI. After using NeuEve for a while, you will feel like a young woman.

To prevent honeymoon bladder (UTI), we recommend you take daily d-mannose supplements.

Sea buckthorn oil has Omega-7, which is an essential fatty-acid that is a key building block of skin, hair and nails. The human body is incapable of making Omega-7, therefore it must be supplemented by diet.




Dx 9/8/2015, DCIS/IDC, Both breasts, 4cm, Stage IIB, Grade 3, 3/36 nodes, ER+/PR+, HER2- Surgery 11/17/2015 Reconstruction (left): Free TRAM flap; Reconstruction (right): Free TRAM flap Chemotherapy 1/1/2016 AC + T (Taxol) Hormonal Therapy 8/29/2016 Arimidex (anastrozole)

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