Topic: Vaginal Atrophy solution that is working for me!

Forum: Sex & Relationship Matters — A safe place to talk candidly about how your romantic relationships and/or your sex life has changed following your diagnosis and treatment.

Posted on: May 5, 2020 12:05PM - edited Feb 24, 2021 05:03AM by jinx27

Posted on: May 5, 2020 12:05PM - edited Feb 24, 2021 05:03AM by jinx27

jinx27 wrote:

Hello all!

Ive been a member for quite some time now and wanted to post about my sexual side effects of my treatment and what Ive been doing to combat them.

I was diagnosed with my ER/PR+ breast cancer and have chosen to take an aromatase inhibitior along with Lupron (ovarian suppression ) injects for the next 5-10 years.

My onco just barely prepared me for all of the changes that I would have living the next 5-10 with lowered estrogen (menopause) as a 30 year old something. She mentioned vaginal dryness but I didnt know that the dryness really meant atrophy! I also suffered from strong vaginal odor without an infection. This also due to the atrophy.

I initially knew something was wrong when I had intercourse and it was terribly painful, I had small microcuts in my vulva and inner vagina due to weakening of my vaginal tissue, not knowing how to deal with this I went online.

Initially I was interesting in the Mona Lisa Touch or Petite Lady procedure that alot of women post about on here but it wasn't in my price range at all.

I stumbled upon a product call NeuEve; a estrogen free vaginal suppository created by a gynecologist for women.

Neu Eve Website

NeuEve suppositories and cream help ease menopausal discomforts: vaginal odor, dryness, atrophy, itching, burning, painful sex, and bacterial vaginosis.*

100% all-natural food grade ingredients : Organic palm oil*, organic coconut oil, organic beeswax, organic tapioca starch, organic potato starch, evening primrose oil, organic sea buckthorn fruit oil, organic lavender essential oil, organic orange oil, organic vitamin E (d-α tocopherol), and a proprietary blend of nutrients.

NeuEve is gluten-free, hormone-free and estrogen-free. NeuEve does NOT contain any boric acid, petrochemicals, parabens, BHT, T.E.A, M.E.A, urea, glycols, PEG's, etc. NeuEve has never been tested on animals, and does not contain any animal products.

Customers can choose between three options depending on the severity of their atrophy and age. I emailed her asking for guidance and responded back with a warm and informative response. I chose the level 2 suppository due to my age.

She stated the following supplements help with atrophy; OMEGA 3, OMEGA 7, Vitamin D.

She also mentioned purchasing a set of Magnetic Vaginal Dilators and using them twice a day if I have pelvic pain.

I have been using NeuEve for one month along with taking the above supplements and have seen a huge improvement. I use lubrication during self pleasure which helps but I have not had any pain or microcuts in or around the vulva or inside the vaginal canal since finishing my first box of NeuEve.

I used to to have a odor due to the dryness, and a UTI feeling. The odor is completely gone, and the UTI feeling is slowly fading away. I thought Id share here since there are soo many products on the market to choose from.

The price is around $59 for a month supply, if you decide to get a subscription, the cost will be $49 a month. Not too bad. The site recommends using it for 4 months straight, however many women report improvements after one month.

Please feel free to message here with any questions. Im going to continue the product for four months and return back with an update.

Diagnosed at 27 y/o, synchronous bilateral breast cancer. L. Breast : IDC, R. Breast: DCIS. ER 98%, PR 100% Possible mutation. 5-10 yrs hormonal therapy 08/31/2016 Tamoxifen, 02/01/2017- 06/10/2021 AI + OS,Tamoxifen 08/10/2021 -current Dx 9/8/2015, DCIS/IDC, Both breasts, 4cm, Stage IIB, Grade 3, 3/36 nodes, ER+/PR+, HER2- Surgery 11/17/2015 Reconstruction (Left): Free TRAM flap; Reconstruction (Right): Free TRAM flap Chemotherapy 12/31/2015 AC + T (Taxol) Hormonal Therapy 8/27/2016 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin)
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May 29, 2022 05:49AM gb2115 wrote:

Runner70, you are definitely not alone. I've been frustrated since a pelvic PT basically told me that for me all products except estrogen would be useless, and was dead set that estrogen was safe for me. She seemed surprised that I wouldn't embrace it. I was surprised that she still thought that after I explained how this cancer works. I broke down and used it out of desperation, but then had recurrence. Now on exemestane I'm quite wary of doing anything to raise levels. On tamoxifen, at least, there was the possibility of increasing estrogen being blocked at the receptor level. I don't think aromatase inhibitors work the same way. I think the idea is that the meds bring your estrogen down to nil.

So I suffer. I mean, is she right that nothing else will touch it? I use VMagic occasionally but it doesn't really helped. I've tried other things that didn't really help. Coconut oil was ok but ruined my underwear. I'm prone to rashing so I don't want to use pantyliners every day.

First Dx IDC in 10/16 at age 38, stage 2A, 1.2 cm ER/PR+ Her2-, Grade 2, 1/3 nodes. Lumpectomy + radiation + tamoxifen. Second Dx IDC recurrence in original location 5/21. 1.3 cm ER/PR+, Her2 -. Grade 2. 2/2 nodes. UMX + AC/T + Zoladex/Exemestane + Zometa.
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May 29, 2022 10:56AM cardplayer wrote:

I use a vaginal lubricant every other night. My MO and GYN said no to any estrogen, so this is the best that I can do. Wish there were other options.

Targeted Therapy 6/30/2020 Perjeta (pertuzumab) Chemotherapy 6/30/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 6/30/2020 Herceptin (trastuzumab) Surgery 11/19/2020 Mastectomy (Right) Hormonal Therapy 12/3/2020 Arimidex (anastrozole) Surgery 12/9/2021 Prophylactic mastectomy (Left) Dx IDC, Right, 6cm+, Stage IIB, ER+/PR+, HER2+
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Jun 6, 2022 10:38PM - edited Jun 6, 2022 10:40PM by jons_girl

There is another option. Testosterone cream. It may raise estrogen but mine hasn't gone up much at all. Some testosterone does converts to estrogen. It has helped my dryness a lot. I'm pretty much back to normal as far as moisture goes I think.

So that would be a option for those who don't want to go on estrogen. I don't use very much. Just use it three times a wk now.

I am going to talk to my gyn tho about estrogen cream too. I get a compounded testosterone cream. And I thought they could combine them. Just adding a little estrogen.

Breast cancer at age 49. Felt tumor. Wasn’t caught on mammo even after feeling tumor. Ultrasound caught my cancer. Dx 6/2017, IDC, Left, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 7/5/2017 Lumpectomy; Lumpectomy (Left); Lymph node removal
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Jun 21, 2022 12:10PM runrcrb wrote:

Runr70 - I hadn't had sex in 6 years (husband was sicker than I was when I was diagnosed and died shortly thereafter). Having been in menopause pre-cancer I wasn't really thinking about vaginal atrophy. Met a man this spring and am having sex again. Initially painful but I found a caring man who did as much research as I had been doing. I talked to my doctor as well. PCP suggested estrogen cream if the oncologist was OK with it. My oncologist was OK but I did a little more looking around and have been using Replens vaginal moisturizer twice a week. Between Replens and frequent intercourse, the vagina is coming back and sex is pain free. Possibly the hormone free moisturizer will provide some relief for you.

Dx 6/27/2016, IDC, Right, 1cm, Stage IIB, Grade 1, 4/10 nodes, ER+/PR+, HER2- Dx 6/27/2016, ILC/IDC, Right, 2cm, Stage IIB, Grade 1, 4/10 nodes, ER+/PR+, HER2- Surgery 9/21/2016 Lymph node removal; Lymph node removal (Right); Mastectomy; Mastectomy (Right); Reconstruction (Right): Tissue Expander Chemotherapy 10/31/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 2/8/2017 Whole breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 4/22/2017 Aromasin (exemestane) Surgery 12/12/2017 Reconstruction (Right): DIEP flap

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