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Topic: Vaginal Atrophy solution that is working for me!

Forum: Sex & Relationship Matters —

A safe place to talk candidly about how your romantic relationships and/or your sex life has changed following your diagnosis and treatment.

Posted on: May 5, 2020 12:05PM - edited Feb 24, 2021 05:03AM by Jinx27

Jinx27 wrote:

Hello all!

Ive been a member for quite some time now and wanted to post about my sexual side effects of my treatment and what Ive been doing to combat them.

I was diagnosed with my ER/PR+ breast cancer and have chosen to take an aromatase inhibitior along with Lupron (ovarian suppression ) injects for the next 5-10 years.

My onco just barely prepared me for all of the changes that I would have living the next 5-10 with lowered estrogen (menopause) as a 30 year old something. She mentioned vaginal dryness but I didnt know that the dryness really meant atrophy! I also suffered from strong vaginal odor without an infection. This also due to the atrophy.

I initially knew something was wrong when I had intercourse and it was terribly painful, I had small microcuts in my vulva and inner vagina due to weakening of my vaginal tissue, not knowing how to deal with this I went online.

Initially I was interesting in the Mona Lisa Touch or Petite Lady procedure that alot of women post about on here but it wasn't in my price range at all.

I stumbled upon a product call NeuEve; a estrogen free vaginal suppository created by a gynecologist for women.

Neu Eve Website

NeuEve suppositories and cream help ease menopausal discomforts: vaginal odor, dryness, atrophy, itching, burning, painful sex, and bacterial vaginosis.*

100% all-natural food grade ingredients : Organic palm oil*, organic coconut oil, organic beeswax, organic tapioca starch, organic potato starch, evening primrose oil, organic sea buckthorn fruit oil, organic lavender essential oil, organic orange oil, organic vitamin E (d-α tocopherol), and a proprietary blend of nutrients.

NeuEve is gluten-free, hormone-free and estrogen-free. NeuEve does NOT contain any boric acid, petrochemicals, parabens, BHT, T.E.A, M.E.A, urea, glycols, PEG's, etc. NeuEve has never been tested on animals, and does not contain any animal products.


Customers can choose between three options depending on the severity of their atrophy and age. I emailed her asking for guidance and responded back with a warm and informative response. I chose the level 2 suppository due to my age.

She stated the following supplements help with atrophy; OMEGA 3, OMEGA 7, Vitamin D.

She also mentioned purchasing a set of Magnetic Vaginal Dilators and using them twice a day if I have pelvic pain.

I have been using NeuEve for one month along with taking the above supplements and have seen a huge improvement. I use lubrication during self pleasure which helps but I have not had any pain or microcuts in or around the vulva or inside the vaginal canal since finishing my first box of NeuEve.

I used to to have a odor due to the dryness, and a UTI feeling. The odor is completely gone, and the UTI feeling is slowly fading away. I thought Id share here since there are soo many products on the market to choose from.

The price is around $59 for a month supply, if you decide to get a subscription, the cost will be $49 a month. Not too bad. The site recommends using it for 4 months straight, however many women report improvements after one month.

Please feel free to message here with any questions. Im going to continue the product for four months and return back with an update.


Diagnosed at 27 y/o, synchronous bilateral breast cancer. L. Breast : IDC, R. Breast: DCIS. ER 98%, PR 100% Possible familial cancer mutation. 08/31/2016 Started Tamoxifen, 02/01/2017- 02/01/2027 AI + OS Dx 9/8/2015, DCIS/IDC, Both breasts, 4cm, Stage IIB, Grade 3, 3/36 nodes, ER+/PR+, HER2- Surgery 11/17/2015 Reconstruction (left): Free TRAM flap; Reconstruction (right): Free TRAM flap Chemotherapy 1/1/2016 AC + T (Taxol) Hormonal Therapy 8/28/2016 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin)
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Feb 10, 2021 12:20PM cah21 wrote:

KBL,

I'm glad a found your thread. I thought I was going crazy! I am having that very problem right now. I have always been prone to UTIs. Even before my BC, I had problems with painful intercourse. Shortly after my marriage I got diagnosed iwth vaginismus. I was told to use 1% Hydrocortizone twice a day for a while and it made things somewhat better for many years. After my BC, I also had my ovaries removed and caused extreme atrophy. Unlike some of the women here, I don't have uncomfort anytime except when trying to have intercourse. My OBGYN told me to try Replens. After two doses, I got a UTI. I stopped for a few months and tried again. I got another UTI. So about a month ago on this thread I found the NeuEve. I purchased the silk. Well, after two doses here I am with burning and some frequency. The quick test came back negative, but I am waiting on the results of the culture to come back. I read that the burning could be from my atrophy being so severe. The physicians don't know anything about these products because they aren't prescriptions. I'm at my wits end. I can't even stand to have my husband touch me down there. If you find anything that works, please let me know!

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Feb 10, 2021 12:36PM Jinx27 wrote:

@cah21

Thank you for posting here, when I created this thread I remember reading that some patients have different levels of atrophy. I didnt even know what atrophy was until I was dry and had pain.

Some people discover it when its beyond mild and in need of other attention besides OTC suppositories.

Im truly sorry you are having a hard time finding something that help ease your atrophy. Severe atrophy requires a different approach. I hope you dont give up! I like to research this stuff online and will post here.

Because of you Im thinking of finding an vaginal atrophy chart...maybe I post it in here so that the various "levels" are in one spot.

Diagnosed at 27 y/o, synchronous bilateral breast cancer. L. Breast : IDC, R. Breast: DCIS. ER 98%, PR 100% Possible familial cancer mutation. 08/31/2016 Started Tamoxifen, 02/01/2017- 02/01/2027 AI + OS Dx 9/8/2015, DCIS/IDC, Both breasts, 4cm, Stage IIB, Grade 3, 3/36 nodes, ER+/PR+, HER2- Surgery 11/17/2015 Reconstruction (left): Free TRAM flap; Reconstruction (right): Free TRAM flap Chemotherapy 1/1/2016 AC + T (Taxol) Hormonal Therapy 8/28/2016 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin)
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Feb 10, 2021 05:19PM KBL wrote:

cah21, I know UTIs are so distressing. I haven’t found anything really to stop the pain with sex, but I don’t think mine is as bad as some. I hope you find relief soon.

De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- (FISH) Targeted Therapy 6/23/2019 Ibrance (palbociclib) Hormonal Therapy 6/24/2019 Femara (letrozole)
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Feb 17, 2021 01:59PM JustG22 wrote:

Does anyone have anything to add of the subject of a spouse that does not understand that sex in really painful and with things slow to heal after tearing the risk of infection is concerning. Also, I feel that my husband, by not taking care of himself is not is a state to understand or be a caregiver if I need him to be.

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Feb 17, 2021 02:39PM - edited Feb 17, 2021 02:46PM by Jinx27

@JustG22

I wasn't in a relationship when I was diagnosed nor am I in one now. But I can say for sure maybe trying a new approach to your new normal..

- Maybe having a conversation about how things are different, and therefore your needs will be too. Do you need different things to help you stimulate your self. Redefine pleasure for yourself...maybe its not intercourse just yet...maybe its just sexual touch.Im hoping your husband can meet you where you are.

- Im not afraid to share that I was very nervous about approaching pleasure for myself as a patient...my therapist is also a sex therapist. She encouraged me to explore self pleasure and after I was able to maintain my atrophy I began a health habit of self pleasure. I invested in a very nice self pleasure tool and its help me keep my vagina and the rest of my body healthy. Vaginal dilators also help too!

Maybe some other folks can chime in...

Please explore this specific forum!

Wishing you well!

Diagnosed at 27 y/o, synchronous bilateral breast cancer. L. Breast : IDC, R. Breast: DCIS. ER 98%, PR 100% Possible familial cancer mutation. 08/31/2016 Started Tamoxifen, 02/01/2017- 02/01/2027 AI + OS Dx 9/8/2015, DCIS/IDC, Both breasts, 4cm, Stage IIB, Grade 3, 3/36 nodes, ER+/PR+, HER2- Surgery 11/17/2015 Reconstruction (left): Free TRAM flap; Reconstruction (right): Free TRAM flap Chemotherapy 1/1/2016 AC + T (Taxol) Hormonal Therapy 8/28/2016 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin)
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Feb 22, 2021 02:15PM sharon0706 wrote:

Hi all. Glad to find this thread. I finished TC last week and am wiped out. Today I had my second Lupron shot and started taking letrozole. My oncologist prescribed Estring when I told her sex was painful. About to go pick it up at the pharmacy. Does anyone who has used it have any tips?

Dx 8/1/2001, LCIS Hormonal Therapy 6/30/2008 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 6/30/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 8/24/2020, ILC, Left, 1cm, Stage IA, Grade 3, 1/1 nodes, ER+/PR+, HER2- Surgery 10/20/2020 Lymph node removal: Left; Mastectomy: Left, Right; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/24/2020 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 2/22/2021 Femara (letrozole) Surgery Prophylactic ovary removal Surgery Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Feb 23, 2021 08:47AM Moderators wrote:

Jumping in to let you know that HEAL magazine (part of CURE Media Group) is interested in interviewing people about the sexual side effects of cancer treatment,. The writer is on a tight deadline, so in case you may be interested in sharing your experiences, please email or call Katherine Malmo katherinemalmo.com/portfolio, Phone: 206-498-4783

Thanks!

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Feb 26, 2021 05:17PM sharon0706 wrote:

I installed Estring last night and am feeling hopeful. I was also advised by an oncologist friend to try Hyalogyn. Does anyone have any experience with that moisturizer?

Dx 8/1/2001, LCIS Hormonal Therapy 6/30/2008 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 6/30/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 8/24/2020, ILC, Left, 1cm, Stage IA, Grade 3, 1/1 nodes, ER+/PR+, HER2- Surgery 10/20/2020 Lymph node removal: Left; Mastectomy: Left, Right; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/24/2020 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 2/22/2021 Femara (letrozole) Surgery Prophylactic ovary removal Surgery Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Mar 3, 2021 09:28AM - edited Mar 3, 2021 09:32AM by Jinx27

@sharon0706 Ive never heard of Estring before, I hope it works out for you. Do you mind posting here and letting us know?

Effects of sea buckthorn oil intake on vaginal atrophy in postmenopausal women: A randomized, double-blind, placebo-controlled study


https://www.maturitas.org/article/S0378-5122(14)00239-4/fulltext


Diagnosed at 27 y/o, synchronous bilateral breast cancer. L. Breast : IDC, R. Breast: DCIS. ER 98%, PR 100% Possible familial cancer mutation. 08/31/2016 Started Tamoxifen, 02/01/2017- 02/01/2027 AI + OS Dx 9/8/2015, DCIS/IDC, Both breasts, 4cm, Stage IIB, Grade 3, 3/36 nodes, ER+/PR+, HER2- Surgery 11/17/2015 Reconstruction (left): Free TRAM flap; Reconstruction (right): Free TRAM flap Chemotherapy 1/1/2016 AC + T (Taxol) Hormonal Therapy 8/28/2016 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin)
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Mar 4, 2021 06:18AM - edited Mar 4, 2021 06:18AM by sbelizabeth

Estring is a product that provides estrogen locally to the urogenital tract. It works fabulously for many women, but it also comes with a boxed warning about using it with a history of breast cancer. For some women, the risk of waking up sleeping cancer cells isn't worth the benefit. For others, their symptoms of vaginal atrophy are intolerable, and to them, using this product is worth the risk.

https://www.estring.com/?source=google&HBX_PK=s_estring&skwid=43700054283704470&gclid=CjwKCAiAp4KCBhB6EiwAxRxbpL8qZ0iU56yzn4AGC-dNm566okxEzRYeqKPheHkAG7c8o6_SyXFHYhoCWy4QAvD_BwE&gclsrc=aw.ds

pinkribbonandwheels.wordpress.... Dx 10/20/2011, IDC/IBC, Left, 1cm, Stage IIIA, Grade 2, 6/28 nodes, ER+/PR+, HER2- Chemotherapy 12/15/2011 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 4/18/2012 Mastectomy: Left Radiation Therapy 5/21/2012 Breast, Lymph nodes Hormonal Therapy 7/19/2012 Femara (letrozole) Surgery 4/15/2013 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Mar 24, 2021 06:45AM momand2kids wrote:

Interested in this Neu Eve product-is its something that your dr approved? I have vaginal shortening that has been very painful- able to do a little bit of vagifem weekly but the atrophy is tough-- not sure that this product helps with that? would love to hear about success stories on this--- I am really frustrated with my lack of progress in this area.


Dx 10/29/2008, ILC, 2cm, Stage IIA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 11/24/2008 Lumpectomy: Right Chemotherapy 1/15/2009 Adriamycin (doxorubicin) Radiation Therapy 3/22/2009 Breast Hormonal Therapy 6/14/2009 Femara (letrozole)
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Mar 26, 2021 07:08AM Laketartan wrote:

I've tried the Ah Yes and love it, but I'm finding it hard to get now. Everything is short dated and appears unavailable to order. Is anyone else having this problem? Are there any alternatives

Laketartan, ILC E+P+H- Dx 10/25/2017, ILC, Right, 3cm, Stage IIB, 0/4 nodes, ER+/PR+, HER2- Surgery 12/8/2017 Mastectomy: Right; Reconstruction (right): Silicone implant Surgery 1/9/2018 Reconstruction (right): Silicone implant Surgery 4/16/2018 Prophylactic ovary removal Hormonal Therapy
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Mar 26, 2021 08:18AM LaughingGull wrote:

Hi momand2kids,

I have significant atrophy too unfortunately, and I gave the NeuEve a good try. The moisture and lubrication that it provides feels very similar to the natural thing. The ingredients are mysterious, you need to take at face value the description of the seller that it has no estrogen. It unfortunately did NOT help with atrophy in my experience. Moisture yes, elasticity nope. I am out to see the gyn to get some estrogen-based solution with the permission of my MO.

Hope this helps,

LaughingGull

ACx4, THPx4, HP (to complete 1y); Nerlynx (1y); AI (expected 10y), Surgery: BMX + ALND, Reconstruction, Oophorectomy. Radiation. Dx 10/26/2017, IDC, Right, 3cm, Stage IIB, Grade 3, 2/6 nodes, ER+/PR+, HER2+ (IHC)
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Mar 28, 2021 06:34AM - edited Mar 28, 2021 06:48AM by Jinx27

Im so happy this thread is being used as a place to express our experiences with vaginal atrophy, thank you soo much for posting everyone, this is not always discussed amongst women. HeartKeep in mind everyone's severity of atrophy may be different so experiences may vary greatly.

momand2kids

I explained the product to my MO at Penn Med and she was completely fine with it. After doing alot of learning about how vaginal atrophy happens, the levels of severity etc, I made the decision to purchase this over doing a medical procedure (Mona Lisa Touch) or using and low dose estrogen based products. Im a young high risk bc patient (family history, genetics) so I stay away from estrogen based vaginal products.

From your post, I understand that you are experiencing vaginal shortening which is a bit different than atrophy, however the website has an excellent customer service service where you can email with any questions and get a response. I think doing this along with consulting with your MO and GYN would be a nice first step. I hope everything works out for you.

Feel free to explore the FAQ page, a link to the email address is at the bottom of the FAG page.

https://neueve.reamaze.com

LaughingGull

I hope your search for a permanent solution goes well, I know it can be frustrating to find a solution to all of this. One last thing, it is mentioned on the website that Omega 7 and 3 should be taken orally also when using the suppository. These fatty acids actually help improve elasticity internally, the suppository alone won't do that.

Best wishes with your search!

Laketartan

Ive heard of AH Yes! before and just visited the website, I absolutely love it and will give it a try. Before I found NeuEve, I used Good Clean Love its found at Target. Try a detailed google search too maybe you can find some alternatives. Let us know what you have found!

Diagnosed at 27 y/o, synchronous bilateral breast cancer. L. Breast : IDC, R. Breast: DCIS. ER 98%, PR 100% Possible familial cancer mutation. 08/31/2016 Started Tamoxifen, 02/01/2017- 02/01/2027 AI + OS Dx 9/8/2015, DCIS/IDC, Both breasts, 4cm, Stage IIB, Grade 3, 3/36 nodes, ER+/PR+, HER2- Surgery 11/17/2015 Reconstruction (left): Free TRAM flap; Reconstruction (right): Free TRAM flap Chemotherapy 1/1/2016 AC + T (Taxol) Hormonal Therapy 8/28/2016 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin)
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Mar 28, 2021 06:49AM InnaB2018 wrote:

Here’s my routine approved by my oncologist and gynecologist: Luvena every other day, Key-E suppository on alternate days. Aloe Cadabra moisturizer for intimacy. All estrogen free

Dx 3/26/2018, IDC, Right, 3cm, Stage IIA, Grade 3, 1/18 nodes, ER+/PR+, HER2- Surgery 4/24/2018 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 6/1/2018 AC + T (Taxol) Radiation Therapy 10/8/2018 3DCRT: Breast, Lymph nodes, Chest wall Surgery 5/22/2019 Prophylactic ovary removal Surgery 5/22/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy Arimidex (anastrozole)
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Apr 5, 2021 10:23AM wallycat wrote:

Many oncologists say vaginal estrogen is safe. The black-box warnings are for HRT but because these inserts contain estrogen, they are mandated to label it with the scary warnings.

I started using vag. estrogen not because of atrophy but because of my bladder. It was unreal...never had UTIs but the frequency was ungodly. We make choices based on quality of life. This issue cropped up during a tremendous amount of stress and estrogen was the only thing that worked.

Dx 4/07 1 month before turning 50; ILC 1.8cm, ER+/PR+, HER2 neg., Stage 1, Grade 2, 0/5 nodes. Onco score 20, Bilateral Mast., tamoxifen 3-1/2 years, arimidex-completed 4/20/2012
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Apr 5, 2021 04:07PM Christmascarol wrote:

agree with wallycat! Same here, poor bladder. I use a wee bit of estrogen plus repagyn. Helps the bladder and tissue. GL ladies!

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Apr 13, 2021 01:33PM Nsbrown54 wrote:

I asked my GYN about vaginal estrogen (like estrace) usage. She said would not prescribe or recommend since I have triple positive BC.

Does anyone else feel like they are more uncomfortable for a week or so after chemo? I felt like I had been doing well with Luvena every other day, but am very uncomfortable a week after my HP treatment.

Dx 6/22/2020, IDC, Right, 6cm+, Stage IIB, ER+/PR+, HER2+ Chemotherapy 6/29/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 11/19/2020 Mastectomy Hormonal Therapy 12/8/2020 Femara (letrozole) Targeted Therapy 1/4/2021 Herceptin (trastuzumab) Targeted Therapy 1/26/2021 Perjeta (pertuzumab)
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Apr 14, 2021 05:04PM wallycat wrote:

My onco would also NOT rx any hormonal cream. The dose is too high and most women have a hard time dosing less. The vagifem (or generic), imvexxy or estring is 10 mcg. MICROgrams. She's fine with that.


Dx 4/07 1 month before turning 50; ILC 1.8cm, ER+/PR+, HER2 neg., Stage 1, Grade 2, 0/5 nodes. Onco score 20, Bilateral Mast., tamoxifen 3-1/2 years, arimidex-completed 4/20/2012
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Apr 23, 2021 08:17AM cah21 wrote:

InnaB2018 does this routine with the products work for you?

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Apr 27, 2021 04:09PM Jinx27 wrote:

Just dropping a line to say hello ladies!

Diagnosed at 27 y/o, synchronous bilateral breast cancer. L. Breast : IDC, R. Breast: DCIS. ER 98%, PR 100% Possible familial cancer mutation. 08/31/2016 Started Tamoxifen, 02/01/2017- 02/01/2027 AI + OS Dx 9/8/2015, DCIS/IDC, Both breasts, 4cm, Stage IIB, Grade 3, 3/36 nodes, ER+/PR+, HER2- Surgery 11/17/2015 Reconstruction (left): Free TRAM flap; Reconstruction (right): Free TRAM flap Chemotherapy 1/1/2016 AC + T (Taxol) Hormonal Therapy 8/28/2016 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin)
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Apr 27, 2021 04:35PM Chicagoan wrote:

Hi Jinx-Thank you so much for tending to this thread. A few years ago I went for a pap smear-it was so painful but my PCP didn't even suggest any vaginal atrophy solutions despite knowing I'm on cancer treatments. I started New Eve-it's really a big help. It's just nice to feel a little more normal and healthier.

Dx 9/21/2016, IDC, Left, Stage IV, metastasized to bone, Grade 1, ER+/PR+, HER2- Radiation Therapy 9/27/2016 Hormonal Therapy 10/5/2016 Femara (letrozole) Targeted Therapy 10/27/2016 Ibrance (palbociclib)
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May 3, 2021 01:22PM sharon0706 wrote:

I am about two months into my first estring. It has improved my personal comfort but not enough to have successful sex, even with lube.

I am currently auditioning two vaginal moisturizers, hyalo-gyn and replens. So far I like hyalo-gyn better.

The instructions are to insert the moisturizer twice a week or so, but at that frequency, sex was still not possible for me. My NP says some women have more success when they use it daily. So now I'm inserting moisturizer every freaking night before bed, and I use lidocaine (script from gyn) on the vaginal entrance before sex.

I would say that the pain with sex is a 4 out of 10 but it's tolerable, and I'm hoping with time it will get easier.

My NP also had these two other ideas: - daily coconut oil, inside and outside - Albolene, the old-school face cream

A pelvic floor PT also recommended Revaree.

I found out that my hospital has a Sexual Health Program. It is booking out months in advance but I got an appointment and am hoping to get more information.

Would love to hear what is working for others!



Dx 8/1/2001, LCIS Hormonal Therapy 6/30/2008 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 6/30/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 8/24/2020, ILC, Left, 1cm, Stage IA, Grade 3, 1/1 nodes, ER+/PR+, HER2- Surgery 10/20/2020 Lymph node removal: Left; Mastectomy: Left, Right; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/24/2020 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 2/22/2021 Femara (letrozole) Surgery Prophylactic ovary removal Surgery Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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May 4, 2021 11:25AM Jinx27 wrote:

Im thinking about finding a chart that shows the varying degrees of atrophy and posting it here. Its soo important to to know that atrophy has stages.

Diagnosed at 27 y/o, synchronous bilateral breast cancer. L. Breast : IDC, R. Breast: DCIS. ER 98%, PR 100% Possible familial cancer mutation. 08/31/2016 Started Tamoxifen, 02/01/2017- 02/01/2027 AI + OS Dx 9/8/2015, DCIS/IDC, Both breasts, 4cm, Stage IIB, Grade 3, 3/36 nodes, ER+/PR+, HER2- Surgery 11/17/2015 Reconstruction (left): Free TRAM flap; Reconstruction (right): Free TRAM flap Chemotherapy 1/1/2016 AC + T (Taxol) Hormonal Therapy 8/28/2016 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin)
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May 4, 2021 03:28PM kksmom3 wrote:

I'd like to see a chart to know where I'm at in this nasty process. Thank you

Dx 8/8/2018, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 10/1/2018 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 10/29/2018 Whole-breast: Breast, Lymph nodes
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May 4, 2021 05:38PM jennyjo20 wrote:

I have only been on OS+AI for about 9 months, so I'm well aware I will eventually need stronger tools in my arsenal. However, for now I am doing pretty well using coconut oil internally and externally twice a day. Externally, I also use a product called VMagic by Medicine Mama. It is a vulvar balm made of natural organic ingredients (olive oil, avocado oil, beeswax, and sea buckthorn oil). I cannot recommend this product highly enough. I am trying to stave off the vaginal effects of an early menopause for as long as possible, but I will certainly be keeping my eye on this thread if my challenges intensify. So far, these two products have allowed me to continue having pain-free sex. If and when I need it, I will probably add estring. My oncologist and gynecologist both feel that it is safe to use and reassured me that the estradiol was a very low dose that acts locally and will not raise systemic levels, which my oncologist monitors when I get my monthly Lupron shot.

Also, a friend of mine recommended a product called V Fit. It uses infra red light and heat to stimulate moisture and collagen production in the vaginal canal. I have not used it myself, but it has hundreds of positive reviews and the friend who recommended it swears it was a life saver. It's expensive (about $500). I'm thinking about purchasing it in the future and will be back to give a review if I do.

Diagnosed at 42 - Oncotype 24; CHEK2 mutation Dx 2/2020, IDC, Right, 1cm, Stage IIA, Grade 2, 1/5 nodes, ER+/PR+, HER2- (FISH) Surgery 3/18/2020 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 4/17/2020 Abraxane (albumin-bound or nab-paclitaxel), Cytoxan (cyclophosphamide) Hormonal Therapy 7/6/2020 Zoladex (goserelin) Radiation Therapy 7/13/2020 Whole-breast: Breast, Lymph nodes Hormonal Therapy 8/17/2020 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/6/2021 Arimidex (anastrozole)

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