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All TopicsForum: Share Your Experiences Of Life After A Breast Cancer Diagnosis → Topic: 2014 Diagnosed - How are you doing?

Topic: 2014 Diagnosed - How are you doing?

Forum: Share Your Experiences Of Life After A Breast Cancer Diagnosis —

Share your experiences of life after a breast cancer diagnosis and offer advice on how you cope with life's daily challenges, including how you develop a new daily/weekly routine while you deal with breast cancer.

Posted on: Aug 1, 2017 04:56AM

PerAngusta wrote:

This month marks my third anniversary - for diagnosis of intermediate breast cancer. August 2014 at age 48, happily married mother of two children aged 9 and 11......thought I was attending an appointment to talk about biopsy results for my "breast cyst". I rarely write anything on this site anymore but from time to time, I still check in and read for hours. I find myself looking for names and stories that I have been following all along. I was inspired by the topic entitled "2012 How are you doing?" and wondered if it might be okay for me to ask the same sort of question? I am attaching a you tube link to my personal video journal (during breast cancer) but I am honestly not sure if the mods allow this sort of thing? :) Certain I will find out shortly!! :) In any event, the video shows PART of my physical journey....at the end of radiation, I continued on with Herceptin and from start to finish, completed cancer treatments and surgeries (NO RECON - chose flat) within 18 months. Today, I gladly share my stories with anyone who wishes to hear them but I ALWAYS caution that every single one of us is as unique and intricate (by design) as our breasts might have been!! But since we all share this common illness, I'd love to know....how are you doing today? What would you like to share with one another at this stage? I still care, still wonder, still feel connected (LOL...albeit, not unlike invisible thread...since I have never met one of you)....and so here you have it!!! I miss you folks, have the best of wishes for each of you and hope you are doing well.

https://youtu.be/dlXnuenojak


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Sep 11, 2017 02:45PM Agent99 wrote:

Hi there,

I was diagnosed 3/2014 triple positive, lumpectomy, chemo, radiation you know the drill. 3 years later I am a wreck. I have complained to my oncologists so much that she sent me to a psychiatrist. I can't think, really cant think and I used to be quite capable. I can't lose the weight, hurt, heartburn, problems swallowing etc etc etc. I know Im boring you. What really gets me is the depression. I was so happy, and involved before this little journey that I can't get over what has happened. I am grateful to be alive and cancer free (I hope) But I have extensive cording that hurts and so many other side effects that just have not gotten better and NO ONE to talk to. I am still pissed that the oncologist PA sent me to a psychiatrist. I am not crazy, excuse me I am now going to have a good cry. I feel like I have let everyone down no one understands and I think about dying all the time. sorry to be a downer but there you go. Please tell me you felt just like this but you have gotten better


J

Dx IDC, 2cm, Grade 3, 0/4 nodes, ER+/PR+, HER2+
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Sep 11, 2017 04:47PM MeToo14 wrote:

Same. I feel like I can't shake this depression and nobody understands why. I do have my good days where I barely think of cancer but I live under this shadow of death and fear. I get up and live my life. I put on a smile because no-one wants to see otherwise. I have chemo brain, thin hair, slight lymphedema, I can't lose weight. I can't he around babies or pregnant women. I was diagnosed less than a year into my marriage and we were going to start trying for a baby. Now I'm unable to have children and it hurts more than words can say. I resent those who think I should be happy to be alive and should just put it all behind me.

I'm not the same, physically, mentally, emotionally. I'm only 38 but I feel and look so much older. I hate how I will never be the same.

But with that said, I am happy to still be here and enjoy my family and friends. I don't want life to end anytime soon. I keep marching and am thankful for what I have, I know it could be so much worse.

.

35 when diagnosed. I had isolated tumor cells in my nodes and was told I am considered node negative, I do not. Dx 7/2014, IDC, 5cm, Stage IIIA, Grade 2, 2/3 nodes, ER+, HER2- Chemotherapy 7/13/2014 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 11/24/2014 Lumpectomy: Right; Lymph node removal: Right, Sentinel Surgery 12/25/2014 Lumpectomy: Right Chemotherapy 1/1/2015 Carboplatin (Paraplatin) Radiation Therapy 4/27/2015 Hormonal Therapy 7/19/2015 Aromasin (exemestane), Zoladex (goserelin)
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Sep 11, 2017 05:43PM Agent99 wrote:

I am so sorry that this awful damn disease took babies from you. you are so young! I am thankful for chemo and radiation BUT it did change me physically, mentally and the doctors don't get it. None of them. I keep being told that my treatment was 2 years ago that can't be what is responsible for my "issues". My poor husband,a great guy, doesn't want to hear it or see it because he can't fix it. I wish someone somewhere would study what is left of us after treatment is over and figure out how to reboot our systems! I am 55. 53 when I was diagnosed, and I was an attractive fit woman for any age but now I have lost all muscle tone and my skin has aged 20 years, I regrew normal hair but 6 months ago it has started falling out it is very thin. I can't believe nobody has done the research for after the cancer is treated!

I too get up and live my life, I love my family and friends but what is left inside my head is scary!

One foot in front of the other. Thank you so much for your reply knowing someone else feels the same helps
Dx IDC, 2cm, Grade 3, 0/4 nodes, ER+/PR+, HER2+
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Sep 11, 2017 06:13PM Traveltext wrote:

PerAugusta, that video link is not working.

I'm doing so well today, three years post treatment, even though I picked up a second cancer last year.

But, I'm really sorry to hear from those of you that aren't and I wish that this disease didn't such crappy, differing outcomes that followed treatment. In a way it's worse post treatment, since the security blanket of a team of professionals has been removed and replaced by...nothing very much. My solution was to train as a volunteer counsellor and visit the local oncology ward to help cheer people up. I also telephone counsel guys wanting help with their breast cancer journey. I've spoken to many volunteers who agree that the benefits are two-ways; by talking about cancer and connecting with people in a similar situation, you lighten your load and face up to what has come before you.

Anyway, I truely understand the different situations for women, and particularly younger women, since my mum died aged 40, leaving four young sons. That was worse for me than my cancer.

Best wishes for the future to everyone here. Try to believe that there can be bright times ahead.


Have breast & prostate cancer. NED both. More on Male BC

Dx 03/14, IBC, L. 2cm, S IIIB, G 2B, ER+/PR+, HER2- FEC x3, Taxol x3

Mx & 2/23 nodes 07/14

Rads x 33 09/14 and now on Tamox

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Sep 11, 2017 07:47PM ShetlandPony wrote:

Hello, PerAngusta. I remember you and am glad to hear you are doing well. The year 2014 was my second diagnosis. Ironically, considering the difficulties some of the above posters, I am doing quite well. Only minor physical complaints and enjoying my life and my loved ones. I guess I'm one of the lucky ones of the very unlucky ones these days. Carpe diem.

Obviously we need more attention paid to life after treatment and to mitigating side effects. Now there's a good place to put some of those pink dollars.

2011 Stage I ILC ER+PR+ Her2- 1.5 cm grade 1, ITCs sn. Lumpectomy, radiation, tamoxifen. 2014 Stage IV ILC ER+PR+Her2- grade 2, mets to breast, liver, retroperitoneal nodes. Taxol NEAD. 2015,2016 Ibrance+letrozole. 2017 Faslodex+Afnitor; Xeloda
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Sep 11, 2017 09:24PM Susug wrote:

PerAugusta

I'm doing good , three years post treatment , even though I also picked up a second cancer last year in my other breast. I do worry a little more after this second cancer but over all I don't let it get to me that much. I lost my twin sister at 57 I was diognosed at 59 and again at 61. Loosing my twin has been the hardest thing my heart has ever gone through. I do come to this board and read a lot and sometimes I will respond. There are so many women that know so much and ca offer more than I can on some of the information but I will encourage and let them know I'm thinking ofly. Thank you for asking and starting this post. Hugs Sus

Surgery 6/19/2014 Lumpectomy: Left Surgery 7/1/2014 Lymph node removal: Left, Sentinel Radiation Therapy 9/29/2014 Breast Dx 5/10/2016, DCIS, Right, 1cm, Stage 0, Grade 3, 0/0 nodes, ER+/PR+, HER2- Surgery Lumpectomy Radiation Therapy
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Sep 11, 2017 09:59PM Susug wrote:

ok a couple of more things. Trying to post on here is CRAZY! It does all sorts of weird things I'm married to my high school sweetheart We have been married 37 year. Dated 7 before we married. He has been great through all of this with me. I know I'm in denial about what I have been through. Today I had appointment with md for my yearly talked about some of the normal question drs ask during yearly he ask if I had any stress. Sure.. don't we all. The said well, you have had to deal with your mortality twice.. WTH. I couldn't believe he said that. Came home and ask my husband if he thought I was I. Denial. I just think I want to believe that that I'm cured. Wake up call for me. I guess being in denial isn't a bad place to be it could be worse. In that state you don't worry as much Loopy

Surgery 6/19/2014 Lumpectomy: Left Surgery 7/1/2014 Lymph node removal: Left, Sentinel Radiation Therapy 9/29/2014 Breast Dx 5/10/2016, DCIS, Right, 1cm, Stage 0, Grade 3, 0/0 nodes, ER+/PR+, HER2- Surgery Lumpectomy Radiation Therapy
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Sep 13, 2017 12:14AM clarrn wrote:

It has been a roller coaster since 2014! I really struggled after treatment with feeling depressed with the losses (job, body, memory, concentration, fertility, etc). But I am having more good days than bad now, and feeling less worried about my cancer returning. We miraculously got pregnant last fall, but were devastated at the end of January with a silent miscarriage at 10 weeks. My fertility specialist was floored that we conceived and we are now almost 13 weeks pregnant! I am so grateful that I get to take back something we thought cancer had stolen and will be forever thankful for an oncologist who believed in miracles and let us off tamoxifen to try to conceive.

I hope that this all gets easier in time for all of us. I know that I am so lucky to be where I am at and hope for sunny days ahead for each of you.

30 years old at dx, Implant lost due to infection. Open wound packing for 108 days :( Dx 12/4/2013, DCIS, 6cm+, Grade 3, ER+/PR+ Dx 1/29/2014, IDC, 1cm, Stage IIB, Grade 3, 1/3 nodes, ER+/PR+ Surgery 2/28/2014 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Silicone implant, Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 4/8/2014 AC + T (Taxol) Radiation Therapy 10/15/2014 Breast, Lymph nodes Surgery 2/27/2015 Reconstruction (right): Silicone implant Surgery 3/23/2015 Reconstruction (right): Silicone implant
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Sep 13, 2017 07:50AM Agent99 wrote:

Clrrn

So happy for you! Your story made me smile this morning!

J

Dx IDC, 2cm, Grade 3, 0/4 nodes, ER+/PR+, HER2+
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Sep 13, 2017 02:27PM Susug wrote:

Hello Clarrn, congratulations I'm am so happy for you.

Surgery 6/19/2014 Lumpectomy: Left Surgery 7/1/2014 Lymph node removal: Left, Sentinel Radiation Therapy 9/29/2014 Breast Dx 5/10/2016, DCIS, Right, 1cm, Stage 0, Grade 3, 0/0 nodes, ER+/PR+, HER2- Surgery Lumpectomy Radiation Therapy

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