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All TopicsForum: Share Your Experiences Of Life After A Breast Cancer Diagnosis → Topic: 2017 Diagnosed-- A Place To Share "What's Next"

Topic: 2017 Diagnosed-- A Place To Share "What's Next"

Forum: Share Your Experiences Of Life After A Breast Cancer Diagnosis —

Share your experiences of life after a breast cancer diagnosis and offer advice on how you cope with life's daily challenges, including how you develop a new daily/weekly routine while you deal with breast cancer.

Posted on: Nov 30, 2017 04:37PM

DodgersGirl wrote:

thought I would start this thread to give those who were diagnosed in 2017 or underwent treatments in 2017 a common place to share our lives and adventures

Welcome to all. Together we can learn from each other, lean on each other, and celebrate the good moments in life

Dx 3/10/2017, IDC, Right, Stage IIIB, Grade 2, ER+/PR+, HER2- Chemotherapy 4/4/2017 AC + T (Taxol) Surgery 9/10/2017 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Radiation Therapy 10/23/2017 Whole-breast: Breast, Lymph nodes
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Dec 6, 2017 09:48AM - edited Dec 6, 2017 01:12PM by 53nancy

Legomaster and Tpralph, congratulations on your good news. So hapoy for you.

Linwentz, congratulations on your weight loss. Was some of that during rads? I was told not to lose weight, but am managing to maintain it. I had lost 16 lbs between July surgery and start of rads. Can't wait to get back to my diet as I want to lose 20-25 more. Healthy lifestyle for me from now on; hope I can stick to it. I go to see my doctor to get blood sugar results today and hoping they're good

Surgery 7/18/2017 Lumpectomy: Right; Lymph node removal: Right, Sentinel Dx 8/16/2017, DCIS, Right, Stage 0, Grade 3, 0/0 nodes Dx 10/12/2017, IDC, Right, 1cm, Stage IA, Grade 3, 0/3 nodes, ER-/PR-, HER2- (IHC)
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Dec 6, 2017 05:56PM OCDAmy wrote:

I would like to give my support team (friends and family) who have been there for me during this crappy year of my life sometgung meaningful for Christmas. Anyone have good ideas?

Dx 2/2017, IDC, Left, 4cm, Stage IIB, Grade 2, 2/13 nodes, ER+/PR+, HER2- Radiation Therapy Whole-breast Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery Lymph node removal; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
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Dec 6, 2017 06:17PM Tpralph wrote:

OCD, how many people are you talking about?

Dx 3/10/2017, IDC, Right, 2cm, Stage IIB, Grade 2, 1/21 nodes, ER+/PR+, HER2- (IHC) Dx 4/10/2017, IDC, Right, <1cm, Grade 1, ER+/PR+, HER2- Surgery 5/18/2017 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy 6/28/2017 AC + T (Taxol)
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Dec 6, 2017 06:26PM OCDAmy wrote:

6-7 people.

Dx 2/2017, IDC, Left, 4cm, Stage IIB, Grade 2, 2/13 nodes, ER+/PR+, HER2- Radiation Therapy Whole-breast Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery Lymph node removal; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
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Dec 6, 2017 06:32PM Linwentz wrote:

53 Nancy--most of my weight loss was like yours--between July's surgeries and the start of RADS. I have lost a couple of pounds during RADS but it hasn't been intentional. I am just trying very consciously to maintain the healthy lifestyle I have begun to get used to.

OCDAmy--I also am on the lookout for meaningful gifts to give to my "support team." Any ideas & suggestions are welcome

Dx 7/12/2017, DCIS, Left, 4cm, Stage 0, Grade 3, ER-/PR- Surgery 7/28/2017 Lumpectomy: Left Surgery 9/12/2017 Lumpectomy: Left Surgery 9/22/2017 Lumpectomy: Left Radiation Therapy 10/23/2017 Whole-breast: Breast
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Dec 6, 2017 06:39PM Tpralph wrote:

OCD, take them out for dinner? gift baskets or decorative Seasonal baskets?  OR, a lovely thankyou card with a little letter in each one- personalize it.

Dx 3/10/2017, IDC, Right, 2cm, Stage IIB, Grade 2, 1/21 nodes, ER+/PR+, HER2- (IHC) Dx 4/10/2017, IDC, Right, <1cm, Grade 1, ER+/PR+, HER2- Surgery 5/18/2017 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy 6/28/2017 AC + T (Taxol)
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Dec 6, 2017 06:39PM EastcoastTS wrote:

I'm big on candles. You can get really nice ones (and super reasonable, I think) at Good Home/Marshalls. Even if someone is not a candle person, if the container is pretty enough, they can display. Place into cute bag and viola! nice gift. (I use these a lot for babysitters and teachers, not the main one maybe). Stuff like that.

Also, truly, it's the thought that counts. I'm sure they will be pleased to be remembered.

Dx@ 49. Oncotype: 14, BRCA 1/2- Dx 1/4/2017, ILC, Left, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 2/26/2017 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 9/7/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Dec 6, 2017 06:56PM 53nancy wrote:

Hi, Tpralph. Nice to meet another Ontarioan here, though I haven't lived there for years, Mind if I ask where you are? I originally came from Welland. I like the idea of personalized notes. I have many from over the years that I read often.

Eastcoast, I like candles, too. I like to watch them while I meditate, especially in the evening.

Linwentz, I plan to keep up with my new diet, which is Alkaline, plus a little more protein than I used to. I find I am doing great on higher protein, though I don't think it would be good in the long term. Saw my doctor today and my A1C was 5.9. Best I've ever had!!

Surgery 7/18/2017 Lumpectomy: Right; Lymph node removal: Right, Sentinel Dx 8/16/2017, DCIS, Right, Stage 0, Grade 3, 0/0 nodes Dx 10/12/2017, IDC, Right, 1cm, Stage IA, Grade 3, 0/3 nodes, ER-/PR-, HER2- (IHC)
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Dec 6, 2017 07:15PM OCDAmy wrote:

I am kind of crafty. If I have enough time and energy I want to paint ornaments that say "no one fights cancer alone". I also saw some braclets that said that on Etsy.

Dx 2/2017, IDC, Left, 4cm, Stage IIB, Grade 2, 2/13 nodes, ER+/PR+, HER2- Radiation Therapy Whole-breast Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery Lymph node removal; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
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Dec 6, 2017 07:31PM PauletteK wrote:

Amy, I didn’t do that much because I’m kind of short of time and energy, so I bought them chocolate. My husband won’t let me spend too much money this year because he said we will have higher medical bill from now on. Also I am not planning to go back to work, so will take early retirement.


Dx 4/1/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 2/8 nodes, ER+/PR+, HER2- Surgery 6/15/2017 Lumpectomy: Left; Lymph node removal: Left, Underarm/Axillary Chemotherapy 7/19/2017 AC + T (Taxol) Radiation Therapy Whole-breast: Breast Hormonal Therapy Arimidex (anastrozole)
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Dec 6, 2017 08:18PM VL22 wrote:

Nice to see everyone in one place! Wonderful to have such a positive vibe going! Last Taxol for me is 12/21, then on to 6 weeks of rads. I’m just really looking forward to getting back to my running schedule and getting back my energy - although afternoon naps with the cat aren’t all bad!

Tpralph- you have inspired me to start my vacation planning! We had to cancel a big trip in June and I’ve been frozen with anxiety over the last few months. But now is the time!

Legomaster - I am getting my port out the day of my final chemo - this was my MO’s suggestion and to be honest it really has set my mind at ease in a weird way. I was surprised she’d suggest having it out so fast But I was assured it would be “easy”, Now I wonder!


Dx 5/5/2017, IDC, Right, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 6/15/2017 Lumpectomy: Right; Lymph node removal: Sentinel Dx 6/23/2017, IDC, Right, 1cm, Stage IB, Grade 3, ER-/PR-, HER2- Chemotherapy 8/10/2017 AC + T (Taxol)
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Dec 6, 2017 08:30PM DodgersGirl wrote:

VL22, glad to see you here!!

I am planning a big vacation in 2018, too! It's a lot of fun sprinkled with that voice that asks "what if" and asks if I think I will be up to a big trip. So to quiet that voice, we joined the Y today. Hoping to make exercising easy over the winter plus RO says swimming is the best exercise to fight off lymphodema (which I don't have and hope it stays that way)

You are almost done with chemo!! That is such a good feeling.

Dx 3/10/2017, IDC, Right, Stage IIIB, Grade 2, ER+/PR+, HER2- Chemotherapy 4/4/2017 AC + T (Taxol) Surgery 9/10/2017 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Radiation Therapy 10/23/2017 Whole-breast: Breast, Lymph nodes
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Dec 6, 2017 09:09PM Legomaster225 wrote:

VL- Almost done!! I think getting the port out right away is a good idea and it is supposed to be easy. I honestly think mine took longer because the alloderm from my prepec implant was covering the port. That's just my guess though. I just hope everything heals up normally and nothing needs to be fixed. I'm not sure why they didn't take it out at the time of my BMX last June. My chemo was done already. I'm still bruised but it doesn't hurt anymore.

OCDamy Ilike the ornament idea. Personal, practical and pretty. And they will think of you every year. Today is one year from the day I was diagnosed. I had a couple emotional moments. I wrote a thank you to my long time friend/coworker who was there when my gyn called that day thanking her for being there for me then and for all the support throughout this year. Brought us both to tears. I was trying to think of special things to do for my family and close friends as well.

Dx 12/3/2016, IDC, Right, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- Chemotherapy 1/19/2017 AC + T (Taxol) Dx 6/22/2017, IDC, Left, <1cm, Stage IB, Grade 1, ER+/PR+ Dx 6/22/2017, DCIS, Left, <1cm, Stage 0, Grade 1 Surgery 6/22/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Radiation Therapy 8/22/2017 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 10/17/2017
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Dec 6, 2017 10:38PM LoJo100 wrote:

The port was removed yesterday, without incident! I didn't even need twilight drugs, just local numbing agent. It was pretty amazing. As they rolled me into the OR, the nurses, residents and main Dr. were all congratulating me and saying what a good and happy day this was.

Then, when the port was officially out, the main Dr. declared to the entire room, "The port... is out!" Then everyone did a "Woo Hoo!" and "Congratulations" and I did too! I almost cried, as it felt like a big moment to mark the end of the big treatment.

Today I'm feeling good. Haven't needed any pain meds, not even tylenol. Much less painful than putting it in.

I take my first tamoxifen tonight! Onward and upward we go!

-LoJo

Dx 4/24/2017, IDC, Right, 6cm+, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 5/25/2017 Lymph node removal: Right, Sentinel; Mastectomy: Right; Prophylactic mastectomy: Left Chemotherapy 6/30/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy 8/17/2017 Abraxane (albumin-bound or nab-paclitaxel), Carboplatin (Paraplatin) Radiation Therapy 10/2/2017 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Dec 6, 2017 11:06PM DodgersGirl wrote:

LoJo100-- congrats to you and port removal!!!

Best of luck to you with Tam

Dx 3/10/2017, IDC, Right, Stage IIIB, Grade 2, ER+/PR+, HER2- Chemotherapy 4/4/2017 AC + T (Taxol) Surgery 9/10/2017 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Radiation Therapy 10/23/2017 Whole-breast: Breast, Lymph nodes
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Dec 7, 2017 12:46AM PauletteK wrote:

hi everyone.... so good to see more people to join.

LoJo - life is going back to normal for you! Yay!!!

VL22 - you are getting 5err .... happy for you!

I would love to make plans for 2018, just need to finish radiation before I make any plans..


Dx 4/1/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 2/8 nodes, ER+/PR+, HER2- Surgery 6/15/2017 Lumpectomy: Left; Lymph node removal: Left, Underarm/Axillary Chemotherapy 7/19/2017 AC + T (Taxol) Radiation Therapy Whole-breast: Breast Hormonal Therapy Arimidex (anastrozole)
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Dec 7, 2017 06:19AM Legomaster225 wrote:

Congrats LoJo. — yes, onward and upward! It’s nice that your team made it a celebration of sorts! Good luck with the tamoxifen. Hopefully, you will have little to no side effects. It’s been rather uneventful for me and I’m grateful

I just had lidocaine shots too. It was just a but weird carrying on a conversation for 30 minutes while he was digging around in my chest. I do like my surgeon though.

Dx 12/3/2016, IDC, Right, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- Chemotherapy 1/19/2017 AC + T (Taxol) Dx 6/22/2017, IDC, Left, <1cm, Stage IB, Grade 1, ER+/PR+ Dx 6/22/2017, DCIS, Left, <1cm, Stage 0, Grade 1 Surgery 6/22/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Radiation Therapy 8/22/2017 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 10/17/2017
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Dec 7, 2017 07:55AM Linwentz wrote:

Congrats to you LoJo with the port removal. As you say, onward and upward! It was wonderful that your team made a celebation of it!

Dodgergirl--how is your skin doing?

Two more rads treatments to go... although it hasn't been nearly as bad as I feared, I am ready for this chapter to come to a close. Almost there

Dx 7/12/2017, DCIS, Left, 4cm, Stage 0, Grade 3, ER-/PR- Surgery 7/28/2017 Lumpectomy: Left Surgery 9/12/2017 Lumpectomy: Left Surgery 9/22/2017 Lumpectomy: Left Radiation Therapy 10/23/2017 Whole-breast: Breast
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Dec 7, 2017 10:19AM Tara17 wrote:

Thank you all for th4 birthday wishes. I hear completely the wishes to get off the daily grind — with having gone through this, life is so much more precious ,and wasting it on the pettiness of the daily grind seems wrong somehow ....

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Dec 7, 2017 11:16AM Gigilala wrote:

i just finish my Last radiation 30/30

😁😁😁😁😁

Dx 2/13/2017, Left, 2cm, Stage IIB, ER+/PR+, HER2+ Chemotherapy 3/12/2017 Other Targeted Therapy 7/16/2017 Herceptin (trastuzumab) Surgery 7/23/2017 Lymph node removal: Left; Mastectomy: Left, Right; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Dec 7, 2017 11:35AM DodgersGirl wrote:

Gigilala-- congrats on finishing rads!!! Woot Woot!!


Dx 3/10/2017, IDC, Right, Stage IIIB, Grade 2, ER+/PR+, HER2- Chemotherapy 4/4/2017 AC + T (Taxol) Surgery 9/10/2017 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Radiation Therapy 10/23/2017 Whole-breast: Breast, Lymph nodes
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Dec 7, 2017 11:38AM DodgersGirl wrote:

Linwentz-- skin is healing!! Still going to RO's office for skin care -- just a few areas to tend to but the weepy/oozy old skin is gone!!

One week ago today was my last rad session so hoping a week from now that my skin is all healed.

Dx 3/10/2017, IDC, Right, Stage IIIB, Grade 2, ER+/PR+, HER2- Chemotherapy 4/4/2017 AC + T (Taxol) Surgery 9/10/2017 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Radiation Therapy 10/23/2017 Whole-breast: Breast, Lymph nodes
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Dec 7, 2017 01:17PM Linwentz wrote:

Gigilala--congrats on finishing Rads! Woohoo! Time to celebrate!

Dodgersgirl--glad to hear that your skin is beginning to heal and that you're seeing an end to the oozing weeping mess.

Dx 7/12/2017, DCIS, Left, 4cm, Stage 0, Grade 3, ER-/PR- Surgery 7/28/2017 Lumpectomy: Left Surgery 9/12/2017 Lumpectomy: Left Surgery 9/22/2017 Lumpectomy: Left Radiation Therapy 10/23/2017 Whole-breast: Breast
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Dec 7, 2017 01:49PM - edited Dec 7, 2017 01:51PM by LeesaD

I'll join in. I turned 49 in Jan. and said to my husband that I was going to start a year long project to celebrate my last year in my forties and mark my 50th trip around the sun and we would then plan something very special for my 50th. Well little did I know a few weeks later that the project was chosen for me on February 3rd when I was dx. Not exactly what I had in mind. It has really been the year from hell and I'm not sad at all to say good bye to 2017. Just had my ooph almost three weeks ago and I still have my exchange to do which I'd like to get in before my insurance resets on Feb 1. One benefit was I got a full year out of insurance coverage and it was a lot. My plastic surgeon will determine in a couple of weeks if I'm healed enough from rads to do exchange in Jan. Hoping so. So now I will turn 50 in Jan. Still haven't made plans as it's not as joyous as I hoped it would be. My husband says we will plan a huge trip and go big. It just might be in the Spring. Facebook released the year end videos today and I watched mine and they did happen to catch the few happy moments of 2017. Highlights of my son and husband and definitely the support from my family and friends. Other than that 2017 can go away now. Here's to a better 2018 for all 😘

Oncotype Score 3, 2/4 Sentinal Nodes micromestasis so pushed for ALND for 'peace of Mind' and surprise found 2/14 positive axillary nodes Dx 2/3/2017, IDC, Right, 3cm, Stage IIB, Grade 2, 4/18 nodes, ER+/PR+, HER2- Surgery 3/27/2017 Lymph node removal: Right, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 4/17/2017 Lymph node removal: Underarm/Axillary Chemotherapy 5/9/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 8/2/2017 Hormonal Therapy 9/7/2017 Arimidex (anastrozole), Zoladex (goserelin) Surgery 11/17/2017 Prophylactic ovary removal
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Dec 7, 2017 01:54PM DodgersGirl wrote:

LeeseD-YES to kicking 2017 to the curb and beyond and then welcoming in a NEW year!!

Dx 3/10/2017, IDC, Right, Stage IIIB, Grade 2, ER+/PR+, HER2- Chemotherapy 4/4/2017 AC + T (Taxol) Surgery 9/10/2017 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Radiation Therapy 10/23/2017 Whole-breast: Breast, Lymph nodes
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Dec 7, 2017 02:26PM MarilynIllinois wrote:

Hello All, Thanks Dodgers Girl for starting this thread. It's a good opportunity to share reflections on this life altering year.

LoJo, how kind that your doctor and OR team celebrated the port removal in such a happy tribute! What a considerate group!

Leesa, I hope you can get back to planning and celebrating your upcoming birthday! I hope you will have a wonderful birthday and year!

I started out 2017 with the birth of a grandchild (my 5th). Then a routine breast MRI in March followed by 2 MRI guided biopsies. The recommendation was for a mastectomy. It was Pleomorphic LCIS. Pathology came back finding nothing invasive.

I was able to enjoy a lovely vacation in July with the whole family before surgery. And I am going to Disney World in January.

I am so grateful for all the online support of this community. All the information, tips, shared resources and experiences have been invaluable to me!

Happy new year to everyone

Dx 4/2017, LCIS, Right, 6cm+, Grade 2, ER+/PR-, HER2- Surgery 8/1/2017 Mastectomy
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Dec 7, 2017 02:31PM OCDAmy wrote:

Can't wait to say goodbye to 2017.


Dx 2/2017, IDC, Left, 4cm, Stage IIB, Grade 2, 2/13 nodes, ER+/PR+, HER2- Radiation Therapy Whole-breast Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery Lymph node removal; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
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Dec 7, 2017 03:10PM DodgersGirl wrote:

MarilynIllinois-- welcome!! WDW next month!! Sounds like a great way to bring in 2018! I am planning a trip for later in 2018


Dx 3/10/2017, IDC, Right, Stage IIIB, Grade 2, ER+/PR+, HER2- Chemotherapy 4/4/2017 AC + T (Taxol) Surgery 9/10/2017 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Radiation Therapy 10/23/2017 Whole-breast: Breast, Lymph nodes
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Dec 7, 2017 03:54PM Linwentz wrote:

I think we all will be clinking our glasses to a more joyous and stress-free 2018. Good riddance 2017!

LeesaD--Enjoy celebrating your 50th in style. After a crappy 49th you deserve something special!

MarilynIllinois-welcome! We went to Disney right before I started Rads and there is something about being "in the happiest place on Earth" that truly makes your worries disappear for awhile! Have a blast😁

I agree that the online support from this community is immeasurable. Have a great day, everyone

Dx 7/12/2017, DCIS, Left, 4cm, Stage 0, Grade 3, ER-/PR- Surgery 7/28/2017 Lumpectomy: Left Surgery 9/12/2017 Lumpectomy: Left Surgery 9/22/2017 Lumpectomy: Left Radiation Therapy 10/23/2017 Whole-breast: Breast
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Dec 7, 2017 05:29PM - edited Dec 7, 2017 05:29PM by 53nancy

Gigala, congrats on finishing rads. I hope your healing phase goessuperbly.

Dodgersgirl, am so glad your skin has started healing. I have two treatments left - Monday and Tuesday. Yesterday, I had a bit of rash. Calendula ointment took care of it. I applied it immediately after treatment today; now six hours without any ssues and just applied more.

Linwentz, one left to go. Yaay! Wishing you all the best on your healing journey, too

Surgery 7/18/2017 Lumpectomy: Right; Lymph node removal: Right, Sentinel Dx 8/16/2017, DCIS, Right, Stage 0, Grade 3, 0/0 nodes Dx 10/12/2017, IDC, Right, 1cm, Stage IA, Grade 3, 0/3 nodes, ER-/PR-, HER2- (IHC)

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