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May 1, 2020 08:18PM
May 1, 2020 08:26PM
Thank you DodgersGirl.
I'm very close with my GrandChuckles. I named them the Chuckles because even befor the first one could talk, we laughed together so much. Three of them, girl 10, girl 8, and boy 6. They each call me something different. Funny story for another day.
Already have CT results — cannot say enough how much I appreciate the people in the hospital's radiology dept — I'm the only outpatient they've done in 10 days and are not scheduling any until May 18. Told them how honored I felt. They teased me. “Of course we going to take care of you, you're a known," comparing me to a frequent flyer, TSA trusted traveler. They were impressed I was off crutches, not even using a cane. They are so sweet.
Cancer's moving fast — multiple new mets in ilium (top of left hip) and L2 and L4. Six weeks since pelvic MRI and these weren't there.
Somethings going on in my hepatobiliary region. Last time mentioned an abnormal issue with pancreas; today same pancreas issue but now mentioned liver and fluid&air in common bile duct. Doesn't say suspicious for mets. I'm concerned because in 2013, pre- IDC, I had a major problem with an obstructed common bile duct. Took ten surgeries to fix, the last one was an open transduodenalspincterotomy. I was in the hospital three weeks after. It's a very big word to say moved the “downspout" from one side of the driveway to the other.
All went well during CTs today. Not even a woozy after the contrast but a first new weird thing. In right forearm and hand (iv was in knuckles of left hand) I felt the warm rushing water sensation that always starts in my throat and goes down my back to my girly parts.
What a difference, the new MO — his nurse called 30 minutes after I faxed him the radiologist's report. He'd looked at the actual images. Spread expected and the treatment plan set to begin next week stays the same.
Didn't use the port. Proximity to the ER they don't want any Cvirus risk or delay to bring down from upstairs a chemo certified person. Not too bad, only two sticks to get the iv, but had a new experience. With my approval the nurse went deep to go after one of my big, but rolling veins inside left elbow. Yowza — OUCH OUCH OUCH. She hit a nerve. My oh my oh my, that thing hurt for several minutes. Bless her heart, she kept apologizing. I felt so bad for her. She's excellent. First time she didn't get me on the first stick.
Flour — Still no yeast anywhere here local or online. Next door neighbor found flour at grocery store this week. We both had been looking since February. LOL, it was 5 lbs of self rising which she didn't notice until she got home. She uses all purpose, so she offered it to me. That morning, I'd said yes to my friend when she called from Costco. She brought me a 25 lb bag of all purpose. I have baking powder and baking soda. Was planning to share with my neighbor. She'd already gone back and bought 5 lbs of all purpose. I went from zero flour to 30 lbs. 😱
Toilet paper - have not needed yet, but our business Costco store has had In stock all along the supersized rolls used in office building bathroom dispensers. That's my back up plan.
Meat — I've been looking at a small upright freezers. I first looked what the cubic feet of my side by side freezer was to compare. The manual defrost aren't too pricy, but me defrosting — not on the top of my to do priority list. 🤪
Asked Nurse. No, I can't spend my stimulus $ to fly to see the GrandChuckles this weekend. Would have to quarantine for 14 days if I did.
Your thoughts of is this how our stories will end is something heavy on my mind. It was a God Thing which brought me to this thread. Our MBC situations parallel so closely. Stay at home and be safe or risk travel? I pondered whether to do the Taxol. Since infusions begin next week, at least three months before I'll get another chance to go anywhere. If I don't, will I ever go anywhere other than a doc ofc or hospital again?
I'll miss all three of the Chuckles' birthdays. Your idea of looking at home movies gave me the idea to try and make a “This is your life CD" for each of them for their birthday gift. I'm not very tech savvy or crafty, but I can copy photos. LOL
Well, I've written a novel. Still wired from the 150 mg of Prednisone, think I go pull up the video of the day the May bd Chuckle was born.
11/18/2016, IDC, Right, 2cm, Stage IIA, Grade 2, ER+/PR+, HER2+ (IHC)
1/30/2017 Lumpectomy: Right
11/18/2019, IDC, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (FISH)
11/18/2019 External: Bone
3/13/2020, IDC, Stage IV, metastasized to bone
3/18/2020 External: Bone
5/7/2020 Herceptin (trastuzumab)
5/19/2020 Taxol (paclitaxel)