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Topic: 2017 Diagnosed-- A Place To Share "What's Next"

Forum: Share Your Experiences Of Life After A Breast Cancer Diagnosis —

Share your experiences of life after a breast cancer diagnosis and offer advice on how you cope with life's daily challenges, including how you develop a new daily/weekly routine while you deal with breast cancer.

Posted on: Nov 30, 2017 04:37PM

DodgersGirl wrote:

thought I would start this thread to give those who were diagnosed in 2017 or underwent treatments in 2017 a common place to share our lives and adventures

Welcome to all. Together we can learn from each other, lean on each other, and celebrate the good moments in life

Dx 3/10/2017, IDC: Mucinous, Right, Stage IIIB, Grade 2, ER+/PR+, HER2- Surgery 9/10/2017 Mastectomy: Right Dx 12/2019, IDC, Right, Stage IV, metastasized to bone Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy AC + T (Taxol) Hormonal Therapy Arimidex (anastrozole)
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Posts 1981 - 1995 (1,995 total)

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Jun 10, 2020 09:00PM DodgersGirl wrote:

ByHisGraceTwice—- sorry I mixed up your chemo days. Have to do better at remembering. 😞

Tuesday didn’t sound like fun. 20 trips to the throne definitely brings back not-fond memories. Keep in mind Welchol. That’s the repurposed cholesterol med being used now for diarrhea from rads and/or chemo. Hope you won’t need it, but it’s something to have up your sleeve

Herceptin causes nosebleeds? Is it from a drying of the sinuses?

Hope the dentist corrects strike #3 with your bridge.

What a day. Ouch.

Did you sleep last night?

Hoping you start feeling better real soon

I am determined to get laundry done tonight. One load done. 2nd load in dryer, fluffy dry. And last load is in washing machine. Laundry is a tough task for me. I have a front loader washer so I have to bend and twist a lot which kills my back. Probably why I put off laundry as long as possible

Ibrance has been good so far. My arthritis pains are noticeable now so I am thinking Ibrance must be shrinking bone mets lessening their pain so arthritis pain can be felt. That’s my theory and I am sticking to it.

Did I mention my Vit D levels had dropped again? I would suggest for everyone to ask to have their Vit D levels checked when bloodwork is ordered. I know a lot of Stage 4 people have a lower than normal level of Vit D. I don’t know if the cancer causes the drop or if having a lower Vit D gives cancer an environment to wake up and grow?? In January my Vit D was 17 and I was put on 50,000 units once a week for 8 weeks followed by daily 800 units of Vit D. Count in May was down to 13 so I now take 5,000 IU daily. Hope that raises my Vit D


Dx 3/10/2017, IDC: Mucinous, Right, Stage IIIB, Grade 2, ER+/PR+, HER2- Surgery 9/10/2017 Mastectomy: Right Dx 12/2019, IDC, Right, Stage IV, metastasized to bone Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy AC + T (Taxol) Hormonal Therapy Arimidex (anastrozole)
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Jun 11, 2020 09:29PM ByHisGraceTwice wrote:

DG — I’ll ask about Vit D level check. I already was way beLow normal before MBC and chemo. I take 2,000 units of D2 and 2,000 units if D3 daily. Your vitamin D levels were below the bottom of the barrel. When will they retest?

Dentist able to do a temporary fix, at least it’s not cutting into the side of my cheek. With coronavirus restrictions they are into July for being able to do regular full repairs.

Did get about six hours asleep in the last 24, so that’s a vast improvement. Herceptin does cause a drying of the sinuses, I’ve been staying on top of it with saline spray solution and gel, but not sure what happened on Tuesday, it was a mess but fortunately no repeat.

D has not reappeared thank goodness.

One advantage to not going anywhere except chemo, is a much reduced laundry load around my house. Front loaders are literally “a pain“ to get in and out of even without the back issues

Wore wig to the dentist today. That was the first experience. Not sure I like it. I’m glad I actually had the mask on; it held the wig in place.

We had about 100 protesters about a mile from my house today. Trump was in town at a neighborhood church. Fortunately, no violence.

Hope your back eases off, not to do laundry, just so you won’t have as much pain.

My biggest problem right now is lack of energy. All my RBC counts are below normal, but it helps steady the last two weeks After resting, I feel like I can get up and do something and my energy lasts about seven minutes and I’ve hit the wall. Back to bed I go resting but not sleeping.

🌈

j


Dx 11/18/2016, IDC, Right, 2cm, Stage IIA, Grade 2, ER+/PR+, HER2+ (IHC) Surgery 1/29/2017 Lumpectomy: Right Radiation Therapy 11/17/2019 External: Bone Dx 11/18/2019, IDC, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (FISH) Dx 3/13/2020, IDC, Stage IV, metastasized to bone Radiation Therapy 3/17/2020 External: Bone Targeted Therapy 3/31/2020 Targeted Therapy 5/6/2020 Herceptin (trastuzumab) Chemotherapy 5/18/2020 Taxol (paclitaxel)
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Jun 13, 2020 04:59PM DodgersGirl wrote:

ByHisGraceTwice—. I hear you on hitting the wall ref energy. My red blood counts are low. Way lower than on chemo. I sit in my recliner and feel like I could jump up and do this and that. As you wrote, I tackle something for about 10 mins before needing to sit down. I sit for literally 1 minute before my mind is convinced I am ready to go. Ha Ha Ha. Too bad my mind and body aren’t in agreement.

Ref my Vit D levels, I think I get them checked again in 2 months. That’s just a guess. The news reports that a good chunk of CoVid deaths were people with low Vit D. So this nags at me. I faithfully take 5,000 IU of Vit D3 daily.

You mentioned no big D for you this go round. Well, I know where it went. ☹️ Last 3 days. It’s a known SE of Ibrance. Hoping 3 days us all. So far so good today.

I only slept until 3 am today (went to bed at midnight) I think I was just too hot to sleep Hoping you are getting sleep as well

Do you have a dentist appointment for July?

Weird weekend. We always watched Live PD Friday and Saturday nights. Now I have to build a new norm. We started watching Live PD with my original BC diagnosis. It just was something we could watch and it was ok if I fell asleep here and there.


Dx 3/10/2017, IDC: Mucinous, Right, Stage IIIB, Grade 2, ER+/PR+, HER2- Surgery 9/10/2017 Mastectomy: Right Dx 12/2019, IDC, Right, Stage IV, metastasized to bone Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy AC + T (Taxol) Hormonal Therapy Arimidex (anastrozole)
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Jun 22, 2020 11:04PM DodgersGirl wrote:

ByHisGraceTwice— keeping you in my thoughts fir tomorrow’s chemo.

Hope all goes well without any hicc

Dx 3/10/2017, IDC: Mucinous, Right, Stage IIIB, Grade 2, ER+/PR+, HER2- Surgery 9/10/2017 Mastectomy: Right Dx 12/2019, IDC, Right, Stage IV, metastasized to bone Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy AC + T (Taxol) Hormonal Therapy Arimidex (anastrozole)
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Jun 28, 2020 12:56AM ByHisGraceTwice wrote:

thanks dg — Tuesday didn’t go well. Fever spiked to [102 over the weekend with O2 sats in the 80s. After doing new labs tues am, seeing my Homemade Bp, o2, temp, charts over the weekend, NP consulted my asthma doc. The MO said — you’re going across the street to the ED not the infusion clinic. 12 hours later, full of a ringers and IV anabiotic’s,: with far less blood and urine with which I came that had been cultured and chested —— I am COVID-19 negative, and sent home.wirh a DX of kidney infection and infection in my lower lung lobes and a bottle of oral antibiotics to begin taking the next day.

Happy with the outstanding service, a relatively few patients in the ER at the time I was, and vegetable going on with a negative COVID-19 diagnosis to sleep in my own bed.

Feeling much better now. Skipped second week of chemo but it’s al good for next week.

🌈

j

Dx 11/18/2016, IDC, Right, 2cm, Stage IIA, Grade 2, ER+/PR+, HER2+ (IHC) Surgery 1/29/2017 Lumpectomy: Right Radiation Therapy 11/17/2019 External: Bone Dx 11/18/2019, IDC, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (FISH) Dx 3/13/2020, IDC, Stage IV, metastasized to bone Radiation Therapy 3/17/2020 External: Bone Targeted Therapy 3/31/2020 Targeted Therapy 5/6/2020 Herceptin (trastuzumab) Chemotherapy 5/18/2020 Taxol (paclitaxel)
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Jun 28, 2020 01:07AM DodgersGirl wrote:

ByHisGraceTwice—- first, good news and no CoVid19 and good news on being home now.

Sorry you had such an adventure with last treatment. Hopefully, the kidney infection and infection in your lungs heal quickly.

Is your BP and O2 back in range?

Hope sleeping in your bed will give you good sleep and that tomorrow is a better day.

Hugs to you

Dx 3/10/2017, IDC: Mucinous, Right, Stage IIIB, Grade 2, ER+/PR+, HER2- Surgery 9/10/2017 Mastectomy: Right Dx 12/2019, IDC, Right, Stage IV, metastasized to bone Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy AC + T (Taxol) Hormonal Therapy Arimidex (anastrozole)
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Jun 30, 2020 11:33PM DodgersGirl wrote:

ByHisGraceTwice— did you have your next treatment today?


Dx 3/10/2017, IDC: Mucinous, Right, Stage IIIB, Grade 2, ER+/PR+, HER2- Surgery 9/10/2017 Mastectomy: Right Dx 12/2019, IDC, Right, Stage IV, metastasized to bone Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy AC + T (Taxol) Hormonal Therapy Arimidex (anastrozole)
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Jul 4, 2020 06:17PM ByHisGraceTwice wrote:

DodgersGirl — I did, thank you for checking up on me. this week has gone well. More fatigue but none of the other nasty side effects. How are you?

🌈

j

Dx 11/18/2016, IDC, Right, 2cm, Stage IIA, Grade 2, ER+/PR+, HER2+ (IHC) Surgery 1/29/2017 Lumpectomy: Right Radiation Therapy 11/17/2019 External: Bone Dx 11/18/2019, IDC, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (FISH) Dx 3/13/2020, IDC, Stage IV, metastasized to bone Radiation Therapy 3/17/2020 External: Bone Targeted Therapy 3/31/2020 Targeted Therapy 5/6/2020 Herceptin (trastuzumab) Chemotherapy 5/18/2020 Taxol (paclitaxel)
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Jul 7, 2020 09:39PM DodgersGirl wrote:

been pretty quiet here. Hope that means everyone is out enjoying their summer.

I had my annual mammogram last week. I see in my patient portal today that all is clear on the mammogram. I wasn’t happy with the tech. I told her I was dx’d Metastatic in December. She asked me how that happened? Did they miss part of my tumor? And when I told her my mets were in my bones, she said, “oh, you have bone cancer, too?” I explained the mets were from my breast cancer. She asked how I could know that? I wanted to ask if she knew anything about breast cancer.

Also on my patient portal were the results of my blood work from 2 weeks ago. I hate having to wait this long for results. Blood work looks stable and again, my tumor markers continue to go down. In fact, my CA 15-3 is back in normal range.

I started cycle 6 recently.

Dx 3/10/2017, IDC: Mucinous, Right, Stage IIIB, Grade 2, ER+/PR+, HER2- Surgery 9/10/2017 Mastectomy: Right Dx 12/2019, IDC, Right, Stage IV, metastasized to bone Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy AC + T (Taxol) Hormonal Therapy Arimidex (anastrozole)
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Jul 8, 2020 10:15AM GoKale4320 wrote:

DodgersGirl - so glad to hear about your good test results! The tech was really clueless about breast cancer. Her lack of knowledge and her questions sound off-putting.

Sending you best wishes for continued improvement.

I started Raloxifene (generic Evista) 3.5 months ago and extra bone vitamins for my osteoporosis 2.5 months ago. I won’t know if they are working for a very long time. Fingers crossed for that. But since COVID, I have gained weight. To be fair, it probably started in December. I really think my metabolism has slowed down. Combine that with extra snacks. Then a few weeks ago, I hurt my foot. I have to ice it daily. So I need to reign in grazing especially while I’m resting my foot.




Dx: January 2017, IDC, Stage IIa, 1/23 nodes, <1cm Chemo 2/16/17 Cytoxan Taxotere x4 Radiation 6/8/2017, natural alternative to tamoxifen Dx 1/2017, IDC, Right, <1cm, Stage IIA, Grade 2, 1/23 nodes, ER+/PR+, HER2- Hormonal Therapy Evista (raloxifene)
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Jul 8, 2020 01:33PM Scottie719 wrote:

That's great news about your test results, DG - Thanks for the update. Here's to the start of baseball [such as it is] in a couple of weeks - For those of us who love the game, it will be a welcomed distraction.

Dx 1/6/2017, IDC, Right, 0/12 nodes, ER+/PR-, HER2+ Chemotherapy 1/23/2017 AC + T (Taxol) Targeted Therapy 3/21/2017 Herceptin (trastuzumab) Targeted Therapy 3/21/2017 Perjeta (pertuzumab) Surgery 7/17/2017 Mastectomy: Right Radiation Therapy 9/6/2017 Whole-breast: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
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Jul 8, 2020 04:15PM DodgersGirl wrote:

Scottie719– baseball was one of the positive things that I saw from moving to Stage 4. Since I retired after my 7 stay in the hospital in February, I thought at least I could watch a full season on games! Boom, enter CoVid and here we are in July with no baseball. LA was supposed to have the All Star game this year. That’s been pushed to 2022. Something to hope to see.

Sure is going to be a weird season playing west coast teams plus AL teams.

Dx 3/10/2017, IDC: Mucinous, Right, Stage IIIB, Grade 2, ER+/PR+, HER2- Surgery 9/10/2017 Mastectomy: Right Dx 12/2019, IDC, Right, Stage IV, metastasized to bone Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy AC + T (Taxol) Hormonal Therapy Arimidex (anastrozole)
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Jul 8, 2020 04:21PM DodgersGirl wrote:

GoKale4320– I think the world has gained CoVid pounds. I started snacking on fruit and nuts instead of junk food. Seems to be helping.

Sure hope your new treatment does wonders for bone strength. I never thought I was going to have to worry about breaking bones as I aged. Surprise.

Sorry to learn of your foot injury and pain. My DD had surgery on her Achilles Tendon last year and had to stay completely off of it for 3 months. Ouch. Hope your foot heals soon. Take care of that injury.

Dx 3/10/2017, IDC: Mucinous, Right, Stage IIIB, Grade 2, ER+/PR+, HER2- Surgery 9/10/2017 Mastectomy: Right Dx 12/2019, IDC, Right, Stage IV, metastasized to bone Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy AC + T (Taxol) Hormonal Therapy Arimidex (anastrozole)
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16 hours ago runor wrote:

Good news, Dodge, except for the mamm tech who they obviously yanked from her usual job working in the cafeteria. Jeez.

Dx 3/23/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 4/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 7/5/2017 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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14 hours ago DodgersGirl wrote:

Runor—- so funny!! They are really behind after being shut down for months due to CoVid. Maybe she is more comfortable asking , “do you want fries with that?”

Dx 3/10/2017, IDC: Mucinous, Right, Stage IIIB, Grade 2, ER+/PR+, HER2- Surgery 9/10/2017 Mastectomy: Right Dx 12/2019, IDC, Right, Stage IV, metastasized to bone Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy AC + T (Taxol) Hormonal Therapy Arimidex (anastrozole)

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