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Topic: 2017 Diagnosed-- A Place To Share "What's Next"

Forum: Share Your Experiences Of Life After A Breast Cancer Diagnosis —

Share your experiences of life after a breast cancer diagnosis and offer advice on how you cope with life's daily challenges, including how you develop a new daily/weekly routine while you deal with breast cancer.

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Posted on: Nov 30, 2017 01:37PM

DodgersGirl wrote:

thought I would start this thread to give those who were diagnosed in 2017 or underwent treatments in 2017 a common place to share our lives and adventures

Welcome to all. Together we can learn from each other, lean on each other, and celebrate the good moments in life

Dx 3/10/2017, IDC: Mucinous, Right, Stage IIIB, Grade 2, ER+/PR+, HER2- Surgery 9/10/2017 Mastectomy: Right Dx 12/2019, IDC, Right, Stage IV, metastasized to bone Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy AC + T (Taxol) Hormonal Therapy Arimidex (anastrozole)
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Jul 15, 2020 10:59PM runor wrote:

Dodge, I can understand how this response from the govt makes it feel like they agree with your terminality and that makes it seem really real. One must remember that govts have no brains. Lots of workers, but no central brain that does any large amount of thinking so....take thier opinion with a grain of salt. But I do know that it would be a galvanizing moment. I hope your exhausting shopping excursion brought you a few goodies to smile about when you get your wind back. And you will. 

Dx 3/23/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 4/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 7/5/2017 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 16, 2020 07:03AM DodgersGirl wrote:

Runor— I am enjoying the fruits of my labor (grocery shopping yesterday) this morning as I have a slice of strawberry bread toasted for breakfast

And I slept ALL night (so will probably ignore a possible connection between heavy walking and good sleep at night) so feel ready to charge the world this morning (from inside my house void of contact with CoVid19)


Dx 3/10/2017, IDC: Mucinous, Right, Stage IIIB, Grade 2, ER+/PR+, HER2- Surgery 9/10/2017 Mastectomy: Right Dx 12/2019, IDC, Right, Stage IV, metastasized to bone Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy AC + T (Taxol) Hormonal Therapy Arimidex (anastrozole)
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Jul 17, 2020 07:04PM LKinKC wrote:

Hi Ladies,

I just found this group also after I went to the starting chemo February 2018 and saw the link. I have been doing good until this 6 month check up with OD, found a axillary node, I had a biopsy on Wednesday the 15 th. but don't have the results yet. Did get the results of the PET scan. I feel numb about by what I read, it states I have presumptive mets in lung, liver, and axillary node. Does that mean I have reoccurrence. STAGE IV, just asking for your input. I see my OD on July 23. Thank's
Dx 12/26/2017, IDC, Right, 5cm, Stage IIA, Grade 2, ER-/PR-, HER2+ (IHC) Targeted Therapy 1/22/2018 Perjeta (pertuzumab) Chemotherapy 1/22/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 1/22/2018 Herceptin (trastuzumab) Surgery 6/24/2018 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
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Jul 17, 2020 07:17PM moth wrote:

Hi LKinkC - oh dear, if those PET results are confirmed, yes that would be stage IV. Hang in there. Hugs.

Feb 2020 - Stage IV, mets to lung, liver, mediastinal lymph. Dx at 50 in Dec 2017; Left, IDC, 1.7 cm, Stage I, Grade 3, 0/5 nodes, TNBC Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab)
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Jul 17, 2020 07:44PM DodgersGirl wrote:

LKinKC—- as Moth wrote, if the PET scan is accurate, having mets outside the breast area would be Metastatic, yes.

Take a deep breath. PET scans can be wrong and it isn’t cancer until PET results are confirmed.

We are here with you. Moth and I just went thru a Metastatic BC diagnoses. Feel free to ask questions or just vent and we all will listen. Great ladies are here.

Sending you hugs.

Dx 3/10/2017, IDC: Mucinous, Right, Stage IIIB, Grade 2, ER+/PR+, HER2- Surgery 9/10/2017 Mastectomy: Right Dx 12/2019, IDC, Right, Stage IV, metastasized to bone Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy AC + T (Taxol) Hormonal Therapy Arimidex (anastrozole)
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Jul 17, 2020 07:47PM LKinKC wrote:

Thanks moth for your reply. I remember you from the starting chemo feb 2018 posts. Sorry to hear about what you are going through.


Dx 12/26/2017, IDC, Right, 5cm, Stage IIA, Grade 2, ER-/PR-, HER2+ (IHC) Targeted Therapy 1/22/2018 Perjeta (pertuzumab) Chemotherapy 1/22/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 1/22/2018 Herceptin (trastuzumab) Surgery 6/24/2018 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
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Jul 17, 2020 09:14PM CindyNY wrote:

LKinKC - so hard to hear the PET results. Life changing, but as DodgersGirl said not confirmed yet. My heart goes out to you. HUGS


dx at 58, no family history, onco = 19 Dx 10/6/2017, DCIS/IDC, Left, 1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 11/1/2017 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 11/13/2017 Lumpectomy: Left Radiation Therapy 12/26/2017 Whole-breast: Breast Hormonal Therapy 3/1/2018 Arimidex (anastrozole)
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Jul 20, 2020 02:07AM ByHisGraceTwice wrote:

DG — in the SS disability, so few of those are approved on the first application. Stage 4 cancer is on a rubber stamp. If you have that Dx you’re approved. The rationale is to get the clock ticking on one’ eligibility for Medicare. There’s Stage 4 and then there’s Stage 4, you’re not at the jumping off place Stage 4. That’s a reference to One of my favorite movies, fried green tomatoes. “jumping off place” meaning the character is old, not that she’s ready to jump off the Brooklyn Bridge. You’re neither, but it is a reference I applied to our circumstances.

🌈

j

Dx 11/18/2016, IDC, Right, 2cm, Stage IIA, Grade 2, ER+/PR+, HER2+ (IHC) Surgery 1/30/2017 Lumpectomy: Right Dx 11/18/2019, IDC, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (FISH) Radiation Therapy 11/18/2019 External: Bone Dx 3/13/2020, IDC, Stage IV, metastasized to bone Radiation Therapy 3/18/2020 External: Bone Targeted Therapy 4/1/2020 Targeted Therapy 5/7/2020 Herceptin (trastuzumab) Chemotherapy 5/19/2020 Taxol (paclitaxel)
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Jul 20, 2020 07:10AM DodgersGirl wrote:

ByHisGraceTwice— now I want some fried green tomatoes!!! And I do have green tomatoes on the vine.

Dx 3/10/2017, IDC: Mucinous, Right, Stage IIIB, Grade 2, ER+/PR+, HER2- Surgery 9/10/2017 Mastectomy: Right Dx 12/2019, IDC, Right, Stage IV, metastasized to bone Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy AC + T (Taxol) Hormonal Therapy Arimidex (anastrozole)
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Jul 20, 2020 08:09PM ByHisGraceTwice wrote:

DG — not a fan of the real Fried green tomatoes but am fried okra. Had three ready today. In a few more days, I’ll be covered in them. Can hardly wait

🌈

j

Dx 11/18/2016, IDC, Right, 2cm, Stage IIA, Grade 2, ER+/PR+, HER2+ (IHC) Surgery 1/30/2017 Lumpectomy: Right Dx 11/18/2019, IDC, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (FISH) Radiation Therapy 11/18/2019 External: Bone Dx 3/13/2020, IDC, Stage IV, metastasized to bone Radiation Therapy 3/18/2020 External: Bone Targeted Therapy 4/1/2020 Targeted Therapy 5/7/2020 Herceptin (trastuzumab) Chemotherapy 5/19/2020 Taxol (paclitaxel)
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Jul 20, 2020 08:18PM DodgersGirl wrote:

ByHisGraceTwice— there is a restaurant in Missouri called Lambert’s (I think there a few Lambert’s here and there. I’ve only been to the 2 in Missouri). They are known for their “throwed rolls”. They come by each table and serve side dishes that are extra to whatever comes with your meal. One of those extra sides is fried okra. Lambert’s is the first place I had eaten fried okra. Found out I like fried okra.

Dx 3/10/2017, IDC: Mucinous, Right, Stage IIIB, Grade 2, ER+/PR+, HER2- Surgery 9/10/2017 Mastectomy: Right Dx 12/2019, IDC, Right, Stage IV, metastasized to bone Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy AC + T (Taxol) Hormonal Therapy Arimidex (anastrozole)
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Jul 21, 2020 02:02PM LKinKC wrote:

I like fried green tomato's and fried Okra. Would highly recommend Lambert's it is a great place. Not sure if it's open during this Covid-19 stuff. When things open go.

I also got a call from one of my doctor's today. My biopsy was positive.😥 Don't see the MO till Thursday for a plan. So I guess the PET scan was correct. 😟


Dx 12/26/2017, IDC, Right, 5cm, Stage IIA, Grade 2, ER-/PR-, HER2+ (IHC) Targeted Therapy 1/22/2018 Perjeta (pertuzumab) Chemotherapy 1/22/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 1/22/2018 Herceptin (trastuzumab) Surgery 6/24/2018 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement
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Jul 21, 2020 02:16PM ByHisGraceTwice wrote:

LKinKc — 😔 — I’m sorry the biopsy results were positive. Even when we “know” what the result will be, it’s still disappointing and scary when the words are said out loud. Going to feel like twenty years before Thursday gets here 🙏

🌈


Dx 11/18/2016, IDC, Right, 2cm, Stage IIA, Grade 2, ER+/PR+, HER2+ (IHC) Surgery 1/30/2017 Lumpectomy: Right Dx 11/18/2019, IDC, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (FISH) Radiation Therapy 11/18/2019 External: Bone Dx 3/13/2020, IDC, Stage IV, metastasized to bone Radiation Therapy 3/18/2020 External: Bone Targeted Therapy 4/1/2020 Targeted Therapy 5/7/2020 Herceptin (trastuzumab) Chemotherapy 5/19/2020 Taxol (paclitaxel)
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Jul 21, 2020 02:18PM moth wrote:

LKinKC, oh crap. I am sorry to hear that. Big hugs.

Feb 2020 - Stage IV, mets to lung, liver, mediastinal lymph. Dx at 50 in Dec 2017; Left, IDC, 1.7 cm, Stage I, Grade 3, 0/5 nodes, TNBC Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab)
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Jul 21, 2020 06:41PM DodgersGirl wrote:

LKinKC—- in your pocket for Thursday. And sending you hugs, virtually now.

Tomorrow I see MO. Hoping my blood work behaves so I can start next cycle of Ibrance. MO will probably tell me scans will be scheduled for August. I have scans every 3 months. Those 3 months go very fast. Sigh.


Dx 3/10/2017, IDC: Mucinous, Right, Stage IIIB, Grade 2, ER+/PR+, HER2- Surgery 9/10/2017 Mastectomy: Right Dx 12/2019, IDC, Right, Stage IV, metastasized to bone Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy AC + T (Taxol) Hormonal Therapy Arimidex (anastrozole)
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Jul 22, 2020 09:33AM moth wrote:

DG fingers crossed for your bloodwork! I'm waiting for blood results too to see if I'm good to go tomorrow :)

Feb 2020 - Stage IV, mets to lung, liver, mediastinal lymph. Dx at 50 in Dec 2017; Left, IDC, 1.7 cm, Stage I, Grade 3, 0/5 nodes, TNBC Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab)
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Jul 22, 2020 02:23PM - edited Jul 28, 2020 06:58PM by DodgersGirl

Mot- good luck back at you!

My ANC was 2.0 so I was cleared to start my next cycle


Dx 3/10/2017, IDC: Mucinous, Right, Stage IIIB, Grade 2, ER+/PR+, HER2- Surgery 9/10/2017 Mastectomy: Right Dx 12/2019, IDC, Right, Stage IV, metastasized to bone Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy AC + T (Taxol) Hormonal Therapy Arimidex (anastrozole)
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Jul 22, 2020 04:40PM moth wrote:

My anc is good as well and I'll be getting both taxol and atezolizumab tomorrow. Yay us!

Reminded me of thread here "you know you're a breast cancer pt when" - someone said

"you're hoping your bco sister's blood counts are high enough so she CAN get chemo!"

Feb 2020 - Stage IV, mets to lung, liver, mediastinal lymph. Dx at 50 in Dec 2017; Left, IDC, 1.7 cm, Stage I, Grade 3, 0/5 nodes, TNBC Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab)
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Jul 22, 2020 05:27PM - edited Jul 28, 2020 06:58PM by DodgersGirl

Moth- ha ha ha. We do live in an odd world, don't we.

Good luck with your chemos tom

Dx 3/10/2017, IDC: Mucinous, Right, Stage IIIB, Grade 2, ER+/PR+, HER2- Surgery 9/10/2017 Mastectomy: Right Dx 12/2019, IDC, Right, Stage IV, metastasized to bone Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy AC + T (Taxol) Hormonal Therapy Arimidex (anastrozole)
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Jul 28, 2020 07:05PM DodgersGirl wrote:

Got my bloodwork back faster this month than any month since Stage 4 diagnosis

Platelets are up and almost to the low end of normal. Maybe next month?

WBC and RBC are both low. That’s expected with Ibrance

Both tumor markers continue to drop. Hoping that means Ibrance and Letrozole are doing their thing.

Started the next cycle of Ibrance tonight.

Having some arthritis pain in knee and thumbs. I am hoping I feel the arthritis pain because meds are helping knock down bone mets pain which allows arthritis pain to be noticed. Don’t know if that’s a thing but it’s my story and I am going with it!!

Hope you all are enjoying what you can during this weird 2020 year.

Waving hello to you all 👋

Dx 3/10/2017, IDC: Mucinous, Right, Stage IIIB, Grade 2, ER+/PR+, HER2- Surgery 9/10/2017 Mastectomy: Right Dx 12/2019, IDC, Right, Stage IV, metastasized to bone Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy AC + T (Taxol) Hormonal Therapy Arimidex (anastrozole)
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Jul 28, 2020 07:17PM illimae wrote:

Hey gang, I haven’t posted here in a long time and am not caught up but wanted to check in and let you all know that I’m still here.

It’s been a tough year so far with a craniotomy in January and a damaged nerve that paralyzed my left vocal cord, I still don’t speak or swallow properly but after 5 1/2 months on soup and boost drinks, I can finally eat! All bucket list trips cancelled but the hubs and I get along well, so being home bound has been fine.

I’m happy to see this thread still active and hope you’re all managing life ok despite everything.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/1/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/1/2017 Herceptin (trastuzumab) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/22/2019 External: Brain Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 28, 2020 07:27PM DodgersGirl wrote:

Illimae—. Hello!!

2020 has been a crappy year thus far, for sure.

Hoping your paralyzed left vocal chord wakes up and plays nicely.

Stop by an

Dx 3/10/2017, IDC: Mucinous, Right, Stage IIIB, Grade 2, ER+/PR+, HER2- Surgery 9/10/2017 Mastectomy: Right Dx 12/2019, IDC, Right, Stage IV, metastasized to bone Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy AC + T (Taxol) Hormonal Therapy Arimidex (anastrozole)
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Jul 29, 2020 07:36PM runor wrote:

Dodge, it makes me happy to read this. I am punching you in the shoulder and smiling stupidly at you. I look in on you often, even though you don't know it. 

Dx 3/23/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 4/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 7/5/2017 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jul 29, 2020 08:12PM DodgersGirl wrote:

Runor, thanks!

Now I know why my shoulder is sore! Hee hee

Hope you are doing well.

Gosh, can’t believe it’s almost August.

Dx 3/10/2017, IDC: Mucinous, Right, Stage IIIB, Grade 2, ER+/PR+, HER2- Surgery 9/10/2017 Mastectomy: Right Dx 12/2019, IDC, Right, Stage IV, metastasized to bone Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy AC + T (Taxol) Hormonal Therapy Arimidex (anastrozole)
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Aug 2, 2020 02:04PM Georgia1 wrote:

Hey DodgersGirl and all. So good to read through the posts and catch up with you. DG, sounds like you are getting mostly good results and I second what others have said about SSDI -- although I totally get the initial gut reaction. People who never dreamed they'd need government help are now unemployed, enrolling their kids in the school lunch program, and waiting for Congress to get their act together to help all the small businesses hanging on by a thread. All of that is why you and I paid taxes all these years! So I'm always happy when Medicare, Medicaid, or SSDI can help make someone's life a tiny bit less stressful.

I'm doing fine although I never did start the recommended Prolia shot. It feels too risky to go to a doctor's office, and I'm instead walking, lifting weights, and being more careful about getting enough vitamin D and calcium. My last mammogram was in March and was A-OK.

And baseball is also making me happy! Too many players are testing positive for covid to be sure the season will continue much longer, but it sure is relaxing to watch a game on a hot and steamy summer evening.

You are all in my thoughts.

Cancer touched my breast so I kicked its ass. Dx 9/3/2017, ILC/IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Dx 10/10/2017, LCIS, Right, 0/1 nodes Surgery 10/10/2017 Lumpectomy; Lymph node removal: Right, Sentinel Radiation Therapy 11/27/2017 Whole-breast: Breast Hormonal Therapy 1/2/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Aug 2, 2020 08:08PM DodgersGirl wrote:

Georgia1–. Waving hello to you 👋

Reference prolia— do you get Dexa scans to check bone density?

Baseball- haven’t missed a game yet this year. Being retired allows me that bit of fun!

Dx 3/10/2017, IDC: Mucinous, Right, Stage IIIB, Grade 2, ER+/PR+, HER2- Surgery 9/10/2017 Mastectomy: Right Dx 12/2019, IDC, Right, Stage IV, metastasized to bone Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy AC + T (Taxol) Hormonal Therapy Arimidex (anastrozole)
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Aug 3, 2020 05:32PM Georgia1 wrote:

Yep DG, my MO has tricked my insurance company into paying for annual scans. I’ve seen modest improvement but still classified as osteoporosis. Hoping it cools down so I can get back to the daily walks.

Cancer touched my breast so I kicked its ass. Dx 9/3/2017, ILC/IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Dx 10/10/2017, LCIS, Right, 0/1 nodes Surgery 10/10/2017 Lumpectomy; Lymph node removal: Right, Sentinel Radiation Therapy 11/27/2017 Whole-breast: Breast Hormonal Therapy 1/2/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Aug 3, 2020 05:47PM DodgersGirl wrote:

Georgia1— that’s great news that you were able to get that Dexa Scan. Wish for you stronger bones!

I never thought I would have to worry about osteoporosis. My first Dexa scan showed my bones had the strength of someone many years younger than my actual age. Knowing AIs were detrimental to bone health, I took supplements and did weight baring exercises. I was actually looking forward to my 2029 Dexa Scan cause I was sure my results would still show strong, healthy bones. My bone mets had a different idea. I guess I take bone strength more seriously than I did previously.

Enjoy your daily walks.

Dx 3/10/2017, IDC: Mucinous, Right, Stage IIIB, Grade 2, ER+/PR+, HER2- Surgery 9/10/2017 Mastectomy: Right Dx 12/2019, IDC, Right, Stage IV, metastasized to bone Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy AC + T (Taxol) Hormonal Therapy Arimidex (anastrozole)

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