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Topic: 2017 Diagnosed-- A Place To Share "What's Next"

Forum: Share Your Experiences Of Life After A Breast Cancer Diagnosis —

Share your experiences of life after a breast cancer diagnosis and offer advice on how you cope with life's daily challenges, including how you develop a new daily/weekly routine while you deal with breast cancer.

Posted on: Nov 30, 2017 03:37PM

DodgersGirl wrote:

thought I would start this thread to give those who were diagnosed in 2017 or underwent treatments in 2017 a common place to share our lives and adventures

Welcome to all. Together we can learn from each other, lean on each other, and celebrate the good moments in life

Dx 3/10/2017, IDC: Mucinous, Right, Stage IIIB, Grade 2, ER+/PR+, HER2- Surgery 9/10/2017 Mastectomy: Right Dx 12/2019, IDC, Right, Stage IV, metastasized to bone Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy AC + T (Taxol) Hormonal Therapy Arimidex (anastrozole)
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Aug 13, 2020 01:14PM LKinKC wrote:

Thanks DodgersGirl, I am Her2+, yes the diarrhea hit but the doctor had given me meds to take so. I started taking them right way. Hope your having a good day. Virtual hugs to you to.

Dx 12/26/2017, IDC, Right, 5cm, Stage IIA, Grade 2, ER-/PR-, HER2+ (IHC) Targeted Therapy 1/23/2018 Perjeta (pertuzumab) Chemotherapy 1/23/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 1/23/2018 Herceptin (trastuzumab) Surgery 6/25/2018 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 7/15/2020, IDC, Right, 2cm, Stage IV, metastasized to liver/lungs/other, Grade 2, 0/5 nodes, ER-/PR-, HER2+ (FISH)
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Aug 19, 2020 06:49PM DodgersGirl wrote:

Had another MO appointment this morning. Blood work showed numbers high enough to start my next cycle of Ibrance/Letrozole.

I haven’t looked over my numbers yet. I just glanced at the paper and think most looked good so I am pleased

Had my monthly XGEVA shot. Nurse was so good, I didn’t feel the shot at all. Normally there is a bit of a burn while getting the shot. Not today!

I had a Shingles Shot Monday and was a bit concerned I might show a low grade fever today and not be allowed in the cancer center. Lucked out. No fever!!!



Dx 3/10/2017, IDC: Mucinous, Right, Stage IIIB, Grade 2, ER+/PR+, HER2- Surgery 9/10/2017 Mastectomy: Right Dx 12/2019, IDC, Right, Stage IV, metastasized to bone Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy AC + T (Taxol) Hormonal Therapy Arimidex (anastrozole)
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Aug 20, 2020 11:20AM Scottie719 wrote:

Good news all around, DodgersGirl - Thanks for the update!

Dx 1/6/2017, IDC, Right, 0/12 nodes, ER+/PR-, HER2+ Chemotherapy 1/23/2017 AC + T (Taxol) Targeted Therapy 3/21/2017 Herceptin (trastuzumab) Targeted Therapy 3/21/2017 Perjeta (pertuzumab) Surgery 7/17/2017 Mastectomy: Right Radiation Therapy 9/6/2017 Whole-breast: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
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Aug 21, 2020 01:20AM ByHisGraceTwice wrote:

Great news DodgersGirl — keep those good numbers coming.

🌈

Dx 11/18/2016, IDC, Right, 2cm, Stage IIA, Grade 2, ER+/PR+, HER2+ (IHC) Surgery 1/30/2017 Lumpectomy: Right Dx 11/18/2019, IDC, Stage IV, metastasized to bone, Grade 2, ER+/PR+, HER2+ (FISH) Radiation Therapy 11/18/2019 External: Bone Dx 3/13/2020, IDC, Stage IV, metastasized to bone Radiation Therapy 3/18/2020 External: Bone Targeted Therapy 4/1/2020 Targeted Therapy 5/7/2020 Herceptin (trastuzumab) Chemotherapy 5/19/2020 Taxol (paclitaxel)
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Aug 23, 2020 01:06AM runor wrote:

Dodge, that news is good. We'll take it. 

Dx 3/23/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 4/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 7/5/2017 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 28, 2020 11:50AM Scottie719 wrote:

Just checking in with everyone - This board has been uncharacteristically quiet for way too long! Hope all is well.

Dx 1/6/2017, IDC, Right, 0/12 nodes, ER+/PR-, HER2+ Chemotherapy 1/23/2017 AC + T (Taxol) Targeted Therapy 3/21/2017 Herceptin (trastuzumab) Targeted Therapy 3/21/2017 Perjeta (pertuzumab) Surgery 7/17/2017 Mastectomy: Right Radiation Therapy 9/6/2017 Whole-breast: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
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Sep 28, 2020 04:17PM moth wrote:

Hi Scottie, hope you're doing well!

may it remain quiet & serene & may as many as possible just fade away to their happily ever after life after cancer :)

Initial dx at 50. Seriously???? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: nevertellmetheodds2017.tumblr.... Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/18/2020 Tecentriq (atezolizumab) Chemotherapy 11/25/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 12/9/2020 External Dx 12/10/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Hormonal Therapy 12/15/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone, Grade 3 Radiation Therapy 3/3/2021 External: Bone
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Sep 28, 2020 05:57PM Scottie719 wrote:

Amen, Moth! My hope is that there's nothing new to report, and that "the sounds of silence" is indeed a positive development!

Dx 1/6/2017, IDC, Right, 0/12 nodes, ER+/PR-, HER2+ Chemotherapy 1/23/2017 AC + T (Taxol) Targeted Therapy 3/21/2017 Herceptin (trastuzumab) Targeted Therapy 3/21/2017 Perjeta (pertuzumab) Surgery 7/17/2017 Mastectomy: Right Radiation Therapy 9/6/2017 Whole-breast: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
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Sep 28, 2020 10:08PM runor wrote:

Waving. Silnetly. Shhhhh.

Dx 3/23/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 4/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 7/5/2017 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Nov 28, 2020 04:46PM pink_is_my_colour wrote:

Hi guys, Just catching up.

Dodgers and Moth, hang in there. It's not a death sentence. Lots of people are stage iv and live twenty more years. Who knows maybe they'll find a cure soon.

Mostly good for me. Tired of Covid. Have been purposely staying away from the site hoping I can forget about bc. I guess bc cancer has a way of making life difficult. Looks like I've got lymphedema in my left arm. Hurt like hell and thought it looked swollen but couldn't really be sure. I figured that would teach me for shoveling off the deck. Then finally decided to go see the doctor. She measured and yup that arm is 2 1/2 inches bigger than the right. Every time I drive by the Cross Cancer I think please don't let me have to ever go back there. I use to go there to pickup my Letrozole there but said mail it to me so I don't have to ever step foot in there again. So, back to the Cross Cancer I go for treatment. I suppose it'll have to be a love/hate relationship with that place.

You talk about stupid things people say. When I tell people I have Lymphedema the first thing they say is so the cancer is back. Oh gosh I want to slap them. And this is from people who've already had BC. I tried to explain it to DH but finally ended up saying oh go look it up on the internet.

pink_is_my_colour Dx 4/4/2017, DCIS, Right, <1cm, Stage 0, Grade 1, ER+/PR+, HER2- Dx 4/4/2017, IDC, Left, 1cm, Stage IIA, Grade 1, 2/6 nodes, ER+/PR+, HER2- Surgery 4/24/2017 Lumpectomy: Left, Right; Lymph node removal: Left, Sentinel Chemotherapy 6/16/2017 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil) Chemotherapy 8/18/2017 Taxotere (docetaxel) Radiation Therapy 10/23/2017 Whole-breast: Breast, Lymph nodes Hormonal Therapy Femara (letrozole)
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Nov 29, 2020 02:22PM runor wrote:

Hi Pink and other 2017ers. PINK : That lymphedema can be a bear. I suffer with it but it's a lot better than it was at first.It requires constant management. I was lucky that I was able to get mine under control, mostly by accident. I don't wear my arm thingy anymore, god I hated that thing! But I still daily have swelling on my ribs below my bra wire, under my arm, around the back onto my shoulder blade and the breast itself is sometimes hard and very sore by the end of the day. Like you, if I put in any length of time, say splitting a whole box of kindling, my arm will let me know. Concussive force seems to trigger it.

I'm sick of covid too but unlike many, hell most, I do not support anything that has been done and if you don't stand in the camp with everyone else, they think they get to throw rocks at you. I have had a lot of rocks thrown at me for speaking my mind, rocks thrown by people who, to my way of seeing the world, abdicated their right and responsibility to examine what their govts and leaders were telling them. We know, KNOW from the written history of humankind that people in power tend to go mad if not kept in check and its' like every leader has caught rabies and gone berserk. But I can't say that. I have lost friends. Despair is creeping into so many houses and hearts. People are losing faith in each other, themselves and the people in charge. This has torn families apart and communities. I rarely post on BCO anymore because it seems the vast majority here, as everywhere, feel that its' the govs job to keep them safe. No matter what. Right or wrong, good or bad, we can face no risk and no price is too high to pay to keep us safe. Only the price IS too high. But I get a rock in my eye when I say that. So most often, I don't. 

I have been waiting almost 2 months now for the phone call telling me  to come in for my annual mamm. I hate that I still get so tense over this. Not the mamm itself, but knowing that all it takes is for the tech to walk back out and ask to take a 2nd set of pictures. We all know what that means. Oh, we may tell ourselves that they're just being thorough. They just want to make sure the pictures are accurate. But we know. We're not stupid. I have reached a place where I think about cancer less, think about dying less. But still way more than I did pre-2017. WAAAAY more. Late at night when I can't sleep my mind goes to bleak, awful, terrifying places. Love and hugs, health, hope and healing to everyone!

Dx 3/23/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 4/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 7/5/2017 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Nov 29, 2020 02:51PM Scrafgal wrote:

Greetings, all!

I haven't been here since the time the pandemic went full force here! My job and life just got too stressful, and to pink's point, I just wanted to avoid to bc stress by avoiding this site. Then again, to runor's point, I had my routine mammogram, bloodwork, and bone density tests this week. All went well, but I was stressed just waiting for them to tell me to either go home or give them more pictures. Even though I had plenty of time to work for the rest of the day, I was mentally wiped out by the stress involved in the appointments--not to mention the whole pandemic scene at the cancer center.

I was diagnosed 2 days after Christmas in 2016...met my oncologist for the first time on Jan 2, 2017. This time of year is great, but in some ways, it reminds me of getting diagnosed. I, too, think about bc less, but still more than before my diagnosis

Dx 12/2016, IDC, Right, 4cm, Stage IIA, Grade 3, 0/7 nodes, ER+/PR+, HER2- Surgery 2/6/2017 Mastectomy: Right; Reconstruction (right): Silicone implant, Tissue expander placement Chemotherapy 3/22/2017 Taxol (paclitaxel) Chemotherapy 6/15/2017 FAC Hormonal Therapy 9/25/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 10/13/2017 Reconstruction (right): Fat grafting, Silicone implant Surgery 5/9/2018 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting Surgery 10/16/2018 Reconstruction (right): Nipple tattoo Surgery 5/9/2019 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Hormonal Therapy 7/23/2019 Arimidex (anastrozole) Surgery 9/6/2019 Reconstruction (right): Nipple tattoo
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Nov 29, 2020 05:23PM illimae wrote:

I’m tired of Covid too, I assume the whole world is. Like runor, I’m for gov to do what was intended long ago and not much more, definitely not dictating to us. I just wish more people took it upon themselves to be cautious and responsible where and when appropriate.

Happy to see you all checking in. I’m improving but still sound like phillis diller with my vocal cord problem. Oh well, I can eat and had a great thanksgiving meal and company.

Wrapping up our house to sell and permanently relocate to our cabin, finally feeling well enough to get back in action.

I hope everyone else is good :)

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/1/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/1/2017 Herceptin (trastuzumab) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, 5cm, Stage IV, metastasized to brain, Grade 3, 3/13 nodes, ER+, HER2+ (IHC) Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/22/2019 External: Brain Surgery 1/21/2020 Radiation Therapy 2/16/2020 External: Brain Radiation Therapy 7/20/2020 External: Bone Radiation Therapy 12/4/2020 External: Brain Targeted Therapy Tukysa (tucatinib) Chemotherapy Xeloda (capecitabine) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Nov 29, 2020 09:29PM runor wrote:

Illiame, Phyliss Diller was a class act and had the best legs I've ever seen on a woman! I hope to be her one day or Dorothy Zbornack from Golden Girls. That's who I want to be when I grow up!

Dx 3/23/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 4/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 7/5/2017 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Nov 29, 2020 10:07PM Scottie719 wrote:

Greetings all, and happy 'holiday formerly known as Thanksgiving'. It warms my heart to know we share a brain on COVID - I've really dialed back my news watching because the constant pandemic updates [and wildly contradictory pronouncements] were making me both nuts and angry. I finally realized that it was all just too familiar - That the "mixed messages" were taking me back [almost four years - how can that BE?] to the early days of dx and tx, and my finally having to come to terms with the fact that there is just a boatload of conflicting information and that we all just have to make the best decisions for ourselves - and then live our lives.

All is well with me - but the upcoming "anniversary" dates looming on the calendar have me thinking more about BC than I had for a while. Here's to good health and much happiness all around - Certainly more of a challenge to spot those 'slices of joy' this year, but we all know they're out there, just waiting to light us up when we least expect it!

Dx 1/6/2017, IDC, Right, 0/12 nodes, ER+/PR-, HER2+ Chemotherapy 1/23/2017 AC + T (Taxol) Targeted Therapy 3/21/2017 Herceptin (trastuzumab) Targeted Therapy 3/21/2017 Perjeta (pertuzumab) Surgery 7/17/2017 Mastectomy: Right Radiation Therapy 9/6/2017 Whole-breast: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
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Nov 30, 2020 06:57AM CindyNY wrote:

I too think of bc as the holidays loom. My first rads was 12/26/17, yes - the day after Christmas. I barely remember that Christmas as my focus was fuIl on bc.

This year focusing on remote kearning with my grand niece. What doesn't kill us makes is stronger. Be kind, be safe.


dx at 58, no family history, onco = 19 Dx 10/6/2017, DCIS/IDC, Left, 1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 11/1/2017 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 11/13/2017 Lumpectomy: Left Radiation Therapy 12/26/2017 Whole-breast: Breast Hormonal Therapy 3/1/2018 Arimidex (anastrozole)
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Dec 9, 2020 03:50AM Insideout2 wrote:

Hello Everyone,

Checking in. I often browse, but seldom post. This site and various posts helped me a lot. I chose reconstruction after my treatment. I am happy with the results. I get tense after each PET scan. We chose to do scans every three months due to family hx. No changes, extended the last one to six ( one in March, then September)and now testing back to three. A spot on my right side is of concern. I was like really. We agreed to do another before the end of the year. I called yesterday to set it up for December 17th and will follow-up with the doctor the following Tuesday. I know its the week of Christmas, but results are results. I got my first notification December 13, 2017 from the radiologist. I figure get my results and take whatever I need to do in stride. My heart and mind at this point in time says either I will celebrate and continue to monitor my health or prepare to kick cancer's butt again. We are so strong. I remember reading and sharing the beginning steps of our journey. We constantly were there for one another. Some chose to post, some come to read. Either way a connection was felt and made. It took me a while to find this post. I went to others because many move on and for some this site is a reminder of a difficult time. I feel if we can look back, then we accomplished moving forward. Sounds crazy, but I remember us discussing getting ports placed in, first rounds of Chemo and radiation, anticipating what was next.

We are now in 2020, all living in a time where COVID is presents an additional challenge. Regardless of your current situation there are so many fellow sisters here to support us.

For those with an additional dx stay strong you got this, take one moment and step at a time. For those hitting their next mile stone celebrate each moment. I was finally able to lift a 20lb weight and can do ten push ups straight. Am I a fit guru no. I am overweight. 5'5 200 plus Lbs. Could be smaller yes, but when I loose weight I stress out. I lost weight before being dx and tend to tie weight loss to cancer and sabotage weight loss efforts. Hey I am sure we all have quirky things cancer has left us with.

All this typing to say sending love and prayers to everyone. The support given here is real and makes more of an impact that any of us individually can measure.

Insideout2



Dx 12/2017, Left, Stage IIA, ER-/PR-, HER2- (FISH) Chemotherapy 1/30/2018 FAC Chemotherapy FAC
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Feb 3, 2021 08:56PM Cpeachymom wrote:

Stopping by to say hi. Thank you ladies for being here! I haven’t logged in really since the whole Covid thing, too much going on.

But when unexpected scans come up, or mammo time rolls around, and the fear and anxiety start to rear their stupid heads...well here I am. You ladies are my support group. I scan the boards and look for familiar faces and smile to “see” you.

Illimae...congrats on the move! Hope it went off without a hitch and you are enjoying your cabin! We just bought a house in small town NH, haven’t closed on it yet though.

Runor ... I got chickens! You are the only person on the board that I knew had chickens. (I’m sure there are others) We’re raising them for eggs, soy free for my little girl.

Speaking of little girl... we now have two! We are in the process of adopting a two year old who has been living with us since 2019. With my two oldest still living home, that’s 6 of us under one roof.

I hope you are all well. May your scans be clear and your se’s minimal!



39 at Dx. Fate whispers to the warrior, 'You can not withstand the storm.' The warrior whispers back, 'I am the storm.' Dx 6/21/2017, IDC, Right, 4cm, Stage IIB, Grade 1, 1/3 nodes, ER+/PR+, HER2- Surgery 7/5/2017 Lymph node removal: Sentinel; Mastectomy: Right Hormonal Therapy 9/11/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 9/18/2017 Lymph nodes, Chest wall Surgery 10/10/2018 Reconstruction (right): Tissue expander placement Surgery 3/24/2019 Reconstruction (right): Saline implant Hormonal Therapy Zoladex (goserelin)
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Feb 4, 2021 05:00PM Scottie719 wrote:

Perfect timing for your post, cpeachymom. I had my annual imaging yesterday, and all was clear - but I surprised myself with my anxiety level [which my BP readings sure confirmed!]. I also got the good news that my bone density has improved from two years ago [I doubled my calcium intake and added Vitamin D - along with walking 4 miles/day when it's not ridiculously cold and windy!], so I have much for which to be thankful. My really sore hips from Arimidex are my only BC-related complaint at this point [you'd swear I was 92 when I get out of bed in the morning...], and for that, I know I am truly blessed.

Be well, all - I check this board almost every day, and love seeing posts from fellow 2017 sisters. Four freaking years ago. Amazing.

Dx 1/6/2017, IDC, Right, 0/12 nodes, ER+/PR-, HER2+ Chemotherapy 1/23/2017 AC + T (Taxol) Targeted Therapy 3/21/2017 Herceptin (trastuzumab) Targeted Therapy 3/21/2017 Perjeta (pertuzumab) Surgery 7/17/2017 Mastectomy: Right Radiation Therapy 9/6/2017 Whole-breast: Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
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Feb 6, 2021 08:20AM Tpralph wrote:

hi 2017 ers. Missed you all. Have been off board for the last month and prior to that was about two years ago. Wow does time fly.

Update. Now only see my MO yearly. She doesn't do much just "feels" me up and reorders my tamoxifen.

U had the euro flap which some of u will know. It's .. Fair.

My abdominal scar us long and still tight. Part of it a brownish red.

My uterus is filling with enlarging fibroids and I'm a little concerned about it. When they scan it they can't see much due to the vast numbers. My MO doesn't seem to be concerned. I'll be in tamoxifen for another year or so

I too have osteopenia or "low bone mass" and have increased my gut d to 2000 and try to remember the calcium supplement. Hard taking calcium as it has to be taken alone otherwise it interacts with other meds.

So good to see some familiar names and that you are doing so well.


So what do you think. Should u oush to get that uterus out?

Teresa

Dx 3/10/2017, IDC, Right, 2cm, Stage IIB, Grade 2, 1/21 nodes, ER+/PR+, HER2- (IHC) Dx 4/10/2017, IDC, Right, <1cm, Grade 1, ER+/PR+, HER2- Surgery 5/18/2017 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy 6/28/2017 AC + T (Taxol) Surgery 11/29/2017 Lymph node removal: Underarm/Axillary Radiation Therapy 1/15/2018 Whole-breast: Lymph nodes, Chest wall
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Feb 7, 2021 11:30AM runor wrote:

Hi all. Logged in today and this was flagged in my fave list and it's timely. I am shortly out the door to my mamm, coming 4 months late due to covid. I have been noticing some weird physical changes over the last several months and then had a weird event of vaginal bleeding and now I'm waiting for an ultrasound appointment to see what's going on with my uterus. So, I am nodding my head in absolute understanding over the heightened anxiety. As I was watching tv last night and trying to NOT be anxious I was anyway. It was like being dragged across concrete by my ankles while I tried to hold on with my fingernails chanting no no no over and over. I went to bed in a bad mental place. Now my big worry is how not to be sweaty and stinky as some poor tech lady handles my roast sized boob onto a tray where it wants to stick and not co-operate. What a yucky job that must be. I also worry about my blossoming gut, which tends to also get in the way. This is never a good day. If I hear results in less than 3 weeks I'll be amazed! Hugs to all.

CPeachy - yes! I have chickens. I love my chickens. I have light mocha eggs, dark eggs, the odd green egg. My eggs are beautiful !  If I had a rooster I'd be putting eggs in the incubator (I built the incubator!) but I got rid of the boys - they are so noisy!- and now I regret it. Had some very nice black copper marans boys that I should have crossed back to my black copper marans girls. Oh well. I might just buy a dozen or so hatching eggs from someone and toss them in the bator and see what pops out. Word of caution, do not ask me about chickens, I will talk on like an idiot for ages!

Dx 3/23/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 4/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 7/5/2017 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Feb 7, 2021 02:31PM Castigame wrote:

Hi sisters.

Time heals quite a bit. I had 4yr DX anniversary which coincides w my birthday. Less and less cancer related tv commercials bother me. I don't get the urge to break TV. I also accepted that no children. My older sisters became grandmas recently so I get to smile at the pictures instead. Damned COVID.

I really try not to be hypochondriac. But I had a little neck nodule appearing w little puss. Right now it looks like thyroidectomy sutures from 7 yrs ago caused little infection. I had no choice of dropping $1,000.00 for the ck up and test at the same cancer center.

Still getting every 6mo for Onco and yrly for surgeon yes that reminds me next time I go there I will grab at least 5 hand sanitizer kits to my pocket book.

Have been working from home has been doing wonders for my mental health enough I got off of one happy pill completely and reduced the second by at least 25%. Most importantly no weight gain due to staying home.


This COVID thing brought layoffs by my employer recently. Came on my birthday and the next day again. I have a feeling my extended diarrhea aka breast cancer saved me from layoffs. Still I am frazzled. Time to get our bleep to the daily grind plan in drive mode.

Mimi Dx 1/11/2017, IDC: Papillary/IDC: Cribriform, Right, 3cm, Stage IIIA, Grade 2, 4/17 nodes, ER+/PR+, HER2- (IHC) Dx 1/11/2017, IDC, Left, <1cm, Stage IA, 0/2 nodes Surgery 2/15/2017 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic ovary removal Chemotherapy 3/21/2017 Radiation Therapy 7/31/2017 Whole-breast: Breast, Lymph nodes, Chest wall Surgery 10/30/2017
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Feb 7, 2021 06:36PM ctmbsikia wrote:

Hi there . Just stopping in while watching the super bowl. I think I participated in this topic some years ago. Still trying to move on. I’m doing well, just still every 6 months of something. I’d like to get released from bs and maybe get annual mo. Appointments. Not there yet. What I want and what happens aren’t the same. I realize it could be worse as some of you lovely women will always be going and checking. So, happy to see you all. It’s good to know the anxiety of going tothese tests and appts. are shared by many of us. Keeps me from thinking I’m not actually going crazy. I should take a couple months break from here til next mammo and bs appt. Got a birads 3 on the last one, and just got another see you on 6 months on a recent mri. With an $1800. Bill.

Staying as strong and positive as possible. Most days are good but there’s still some hard ones.

Take care.

Dx 12/14/2017, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 1/16/2018, LCIS, Right Surgery 1/30/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/10/2018 Whole-breast: Breast Hormonal Therapy 6/25/2018 Arimidex (anastrozole)
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Feb 8, 2021 12:18AM - edited Feb 10, 2021 02:53AM by runor

This Post was deleted by runor.
Dx 3/23/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 4/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 7/5/2017 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 3, 2021 01:36PM - edited Mar 3, 2021 01:46PM by GoKale4320

I just learned a couple hours ago that my MRI today shows bone Mets in my sacrum and lumbar vertebrae. I had been dealing with pain and discomfort for 3 months.

I'm in shock and I don't know what to do next. I did order a couple books on battling cancer holistically and nutritionally. I am sure I need to tackle this with more than conventional medicine. My primary care physician is calling the oncologist for me. Not sure if I should also call him. I haven't called my husband yet.

Also looking at integrative medicine in other states. Has anyone heard of a great place to go? Would the Osher Center for Integrative Health in Nashville be just as good as the one in San Francisco?



Dx: January 2017, IDC, Stage IIa, 1/23 nodes, <1cm Chemo 2/16/17 Cytoxan Taxotere x4 Radiation 6/8/2017, natural alternative to tamoxifen Dx 1/2017, IDC, Right, <1cm, Stage IIA, Grade 2, 1/23 nodes, ER+/PR+, HER2- Hormonal Therapy Evista (raloxifene)
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Mar 3, 2021 01:48PM Scrafgal wrote:

GoKale

I am so sorry to hear of your diagnosis. I don't know of integrative medical centers but I did find the various therapies/services useful at my cancer cernter's integrative unit. I particularly found acupuncture quite useful for pain (and relaxatioan, believe it or not) and they offered nutritional advice etc. I think that there is an integrative healing thread here at bc.org. They probably have lots of resources.

I am just so sorry to hear this, and hope that you meet with an oncologist who can give you a lot of good data about how to best move forward. As you know, you are not alone in this.


Dx 12/2016, IDC, Right, 4cm, Stage IIA, Grade 3, 0/7 nodes, ER+/PR+, HER2- Surgery 2/6/2017 Mastectomy: Right; Reconstruction (right): Silicone implant, Tissue expander placement Chemotherapy 3/22/2017 Taxol (paclitaxel) Chemotherapy 6/15/2017 FAC Hormonal Therapy 9/25/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 10/13/2017 Reconstruction (right): Fat grafting, Silicone implant Surgery 5/9/2018 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting Surgery 10/16/2018 Reconstruction (right): Nipple tattoo Surgery 5/9/2019 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Hormonal Therapy 7/23/2019 Arimidex (anastrozole) Surgery 9/6/2019 Reconstruction (right): Nipple tattoo
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Mar 3, 2021 02:14PM - edited Mar 3, 2021 02:14PM by moth

GoKale, oh I hate your news. Come join us in the stage 4 forums There's an active bone mets thread and Mel's living room (my husband, my life...thread) and all the treatment threads.

I'm wrapping you up in a big blankie and giving you a big hug. It gets better. It's crazy and seems impossible but it does. But it also effing sucks so much.

Initial dx at 50. Seriously???? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: nevertellmetheodds2017.tumblr.... Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/18/2020 Tecentriq (atezolizumab) Chemotherapy 11/25/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 12/9/2020 External Dx 12/10/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Hormonal Therapy 12/15/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone, Grade 3 Radiation Therapy 3/3/2021 External: Bone
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Mar 3, 2021 05:19PM pink_is_my_colour wrote:

GoKale: My heart goes out to you. Big hugs to you.

pink_is_my_colour Dx 4/4/2017, DCIS, Right, <1cm, Stage 0, Grade 1, ER+/PR+, HER2- Dx 4/4/2017, IDC, Left, 1cm, Stage IIA, Grade 1, 2/6 nodes, ER+/PR+, HER2- Surgery 4/24/2017 Lumpectomy: Left, Right; Lymph node removal: Left, Sentinel Chemotherapy 6/16/2017 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil) Chemotherapy 8/18/2017 Taxotere (docetaxel) Radiation Therapy 10/23/2017 Whole-breast: Breast, Lymph nodes Hormonal Therapy Femara (letrozole)
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Mar 3, 2021 10:52PM CindyNY wrote:

GoKale - not news any of us wants to hear. HUGS I know are not enough. Much love to you.

dx at 58, no family history, onco = 19 Dx 10/6/2017, DCIS/IDC, Left, 1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 11/1/2017 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 11/13/2017 Lumpectomy: Left Radiation Therapy 12/26/2017 Whole-breast: Breast Hormonal Therapy 3/1/2018 Arimidex (anastrozole)
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Mar 5, 2021 01:33PM runor wrote:

GoKale, that is horrible news and I am so sorry to hear it. Moth gives good advice, head to Mel's thread for some serious support. Hugs.

Dx 3/23/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 4/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 7/5/2017 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

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