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Topic: Diagnosed/treated 2018 -- Sharing our "what's next"

Forum: Share Your Experiences Of Life After A Breast Cancer Diagnosis —

Share your experiences of life after a breast cancer diagnosis and offer advice on how you cope with life's daily challenges, including how you develop a new daily/weekly routine while you deal with breast cancer.

Posted on: Dec 10, 2018 09:53AM

Beaverntx wrote:

As this year is drawing to a close, thought it would be helpful to have a place to keep in contact as we move forward. Personally I have found tremendous help here and am interested in how everyone is doing.




Diagnosed at age 77-- dealing with this bump in the road of life!!🎆 Dx 1/24/2018, IDC, Right, 2cm, Stage IB, Grade 3, 0/9 nodes, ER+/PR+, HER2- (IHC) Dx 1/30/2018, DCIS, Right, <1cm, Stage 0 Surgery 1/30/2018 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 3/11/2018 Whole-breast: Breast Surgery 6/15/2018 Prophylactic ovary removal Hormonal Therapy 6/19/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 8, 2019 11:08PM JosieO wrote:

Alice,

What a cascading series of events...when you write it all down and read it, it’s a wonder that you survived it.

Kudos to you for looking for the good things, and I hope 2019 brings you many more in a more calm and healthy year

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Jan 9, 2019 04:41AM Rah2464 wrote:

Beaverntx thats the way to start of 2019! Great news! AliceBastable what a year 2018 was for you (mine wasn't too great either) so I stand with you on being happy to kiss 2018 goodbye. And I hope the Tamo treats you gently. You are due for an easy step in this journey.

Dx 5/23/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 6/27/2018 Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 7/27/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 9, 2019 06:43AM GreenHarbor wrote:

Beaverntx, great news!

AliceB, WOW what a year you had! I’m hoping the crap of 2018 is in your rear view mirror. I’m on a thread for people starting/declining hormone treatment in November, December and January. It’s one of my favorite threads. Everyone is supportive, and respectful of others’ choices. Come check us out if you’re so inclined

Dx 7/5/2018, IDC, Left, 1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- (FISH) Surgery 8/23/2018 Lumpectomy: Left Hormonal Therapy 9/15/2018 Radiation Therapy 10/1/2018
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Jan 9, 2019 06:48AM wanderweg wrote:

Hi all, I have been on this train since I went for a mammogram in April and got the usual called back for second views. This time a biopsy and diagnosed on May 10. I had a BMX June 11 followed by reconstruction in August and the last of four rounds of Cytoxan and Taxotere November 2nd. And ankle surgery late November to correct nerve damage from one of the earlier surgeries! Anyway, I’ve been on tamoxifen for the last five weeks without any real side effects. I see my MO for the first post-chemo feb 1st and am compiling a list of questions. I’m sure hoping this year goes more smoothly.

Beaverntx - I curious about the ovary removal?I didn’t know they even did that post-menopause (I’m 56).

weakly ER+, TNBC on oncotype Dx 5/10/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR-, HER2- Surgery 6/10/2018 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 8/6/2018 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Chemotherapy 8/31/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/1/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 9, 2019 09:22AM - edited Jan 9, 2019 09:23AM by jo6359

alice and wanderweg- it's great you can put 2018 in your rearview mirror. Move on to a new and better year.

My brief hx: dx IDC 12/12/17, lumpectomy scheduled for 1/ 0 9/18. 1/ 0 7/18 MRI found second tumor same breast. Lumpectomy canceled BMX scheduled for January 29th. During my BMX they found one positive node. February 16th tchp began 6 rounds. Then 25 radiation treatments. I continued with h&p for the whole year and I have one more treatment session left. In spite of all that the side effects were minimal. I still look at 2018 as being a wonderful year. These bco threads constantly provided me with support during the anxiety-ridden periods. These women provided me with a kick butt attitude when I was feeling overwhelmed and feeling sorry for myself. I'm looking forward to 2019. May we all have a wonderful 2019 with minimal or no side effects.

Dx 1/29/2018, DCIS, Right, Stage 0 Dx 1/29/2018, IDC, Right, 2cm, Stage IIB, Grade 2, 1/18 nodes, ER-/PR-, HER2+ (FISH) Targeted Therapy 2/16/2018 Perjeta (pertuzumab) Targeted Therapy 2/16/2018 Herceptin (trastuzumab) Chemotherapy 2/16/2018 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Jan 9, 2019 10:42AM Beaverntx wrote:

wanderweg, had a total hysterectomy after pre Tamoxifen pelvic ultrasound showed a thickened endometrium. After follow-up tests it was decided to do the surgery. Ovary removal was because the other surgery was being done (hysterectomy is not an option in the reporting list) to avoid them as a source of concern. Path report said ovaries were OK but there were some malignant cellular changes in the uterus. Since I've also had two premalignant colon polyps, some days I feel like a cancer factory! Am doing what I can to avoid any more production by that factory. Taking the Tamoxifen, losing weight, exercising, eating healthier, drinking lots of water...

As with most of us some days I feel like I am waiting for the other shoe to drop, but most of the time that is not the primary thought of the day!

Diagnosed at age 77-- dealing with this bump in the road of life!!🎆 Dx 1/24/2018, IDC, Right, 2cm, Stage IB, Grade 3, 0/9 nodes, ER+/PR+, HER2- (IHC) Dx 1/30/2018, DCIS, Right, <1cm, Stage 0 Surgery 1/30/2018 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 3/11/2018 Whole-breast: Breast Surgery 6/15/2018 Prophylactic ovary removal Hormonal Therapy 6/19/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 9, 2019 07:22PM wanderweg wrote:

beaverntx - Ah, that makes sense. I had a partial hysterectomy when I had cervical cancer in 2010, but my ovaries were left because I was still premenopausal. And I'm trying to be as healthy now as possible given that my body also seems to like making cancer. I'm exercising every day, doing intermittant fasting (16 hours between dinner and breakfast) and eating a mostly plant-based diet.

weakly ER+, TNBC on oncotype Dx 5/10/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR-, HER2- Surgery 6/10/2018 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 8/6/2018 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Chemotherapy 8/31/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/1/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 9, 2019 07:52PM jo6359 wrote:

wanderweg- What is the purpose of the intermittent fasting?

Dx 1/29/2018, DCIS, Right, Stage 0 Dx 1/29/2018, IDC, Right, 2cm, Stage IIB, Grade 2, 1/18 nodes, ER-/PR-, HER2+ (FISH) Targeted Therapy 2/16/2018 Perjeta (pertuzumab) Targeted Therapy 2/16/2018 Herceptin (trastuzumab) Chemotherapy 2/16/2018 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Jan 9, 2019 08:19PM wanderweg wrote:

jo6359 - There's some evidence that nightly fasting reduces breast cancer recurrence risk. Here's one article from JAMA: https://jamanetwork.com/journals/jamaoncology/full...

Most of the research though, has been done on mice. Still, it's intriguing. Here's another article from the NIH that looks at the possible benefits of IF: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3680567/

weakly ER+, TNBC on oncotype Dx 5/10/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR-, HER2- Surgery 6/10/2018 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 8/6/2018 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Chemotherapy 8/31/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/1/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 9, 2019 08:24PM jo6359 wrote:

wanderweg- thanks for sharing the link to the article. I'm going to read it now.

Dx 1/29/2018, DCIS, Right, Stage 0 Dx 1/29/2018, IDC, Right, 2cm, Stage IIB, Grade 2, 1/18 nodes, ER-/PR-, HER2+ (FISH) Targeted Therapy 2/16/2018 Perjeta (pertuzumab) Targeted Therapy 2/16/2018 Herceptin (trastuzumab) Chemotherapy 2/16/2018 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Jan 9, 2019 08:53PM Lindachow01 wrote:

so how was the taxol

I'm starting on it jan 29 along with herceptin.


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Jan 11, 2019 12:27AM JosieO wrote:

Beaverntx,


Not sure how I missed your news but YAY and I am happy for you! On to good things in 2019

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Jan 11, 2019 10:49AM Beaverntx wrote:

Thank you, JosieO. Was glad to get the report because I was feeling something different in the operated breast and, of course, I was concerned about recurrence! The radiologist was quite emphatic that post treatment changes and recurrence look very different and mine was not recurrence. As I was telling him that my mind knew they were different but my worrywort couldn't be convinced without the ultrasound, the ultrasound tech was nodding her head yes! Nice to be affirmed that of course I was concerned.

Diagnosed at age 77-- dealing with this bump in the road of life!!🎆 Dx 1/24/2018, IDC, Right, 2cm, Stage IB, Grade 3, 0/9 nodes, ER+/PR+, HER2- (IHC) Dx 1/30/2018, DCIS, Right, <1cm, Stage 0 Surgery 1/30/2018 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 3/11/2018 Whole-breast: Breast Surgery 6/15/2018 Prophylactic ovary removal Hormonal Therapy 6/19/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 11, 2019 06:14PM - edited Jan 11, 2019 06:15PM by AliceBastable

I had a CT scan this morning for my twofer monitoring (breast and kidney). This was ordered by the urologist, and it came back clear - hope he meant all of it since it was chest, abdomen, and pelvis. I have an appointment with MO next week, so I guess if there was anything questionable above the waist, she'll tell me then. I have to do a PET scan in April because the kidney cancer was right on the border between stage I and II, and he believes in close watching since I didn't have chemo. So that should be another twofer scan. After that, I can go a whole six months! Hope I don't start glowing in the dark with all these scans. I have so many appointments this month: urologist, MO, BS, dentist, and PCP. Starting in February, I am determined to live a normal life!

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Cancer's a bitch, but I'm a bigger one with more practice. Dx 5/2018, ILC/IDC, Left, 2cm, Stage IA, Grade 2, 1/1 nodes, ER+/PR+, HER2- Surgery 7/10/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/7/2018 Radiation Therapy 10/28/2018 Whole-breast: Breast, Lymph nodes
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Jan 11, 2019 06:17PM jo6359 wrote:

Alice- congrats on good scans. Hoping the next scan will be just as good. February is right around the corner. So hopefully fewer doctor's appointment and starting to live a normal life for you. Go for it

Dx 1/29/2018, DCIS, Right, Stage 0 Dx 1/29/2018, IDC, Right, 2cm, Stage IIB, Grade 2, 1/18 nodes, ER-/PR-, HER2+ (FISH) Targeted Therapy 2/16/2018 Perjeta (pertuzumab) Targeted Therapy 2/16/2018 Herceptin (trastuzumab) Chemotherapy 2/16/2018 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Jan 12, 2019 12:04AM JosieO wrote:

Alice,

That has been a fair amount of scanning-I give you credit for your patience and toleration of it. Strength and good health to you as we move further into 2019

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Jan 12, 2019 12:09AM JosieO wrote:

Beaverntx,

Sounds like you have a good medical team, and that is very important as you go forward. It’s natural to worry, but if you have those kind of quality medical professionals looking after you, I think you should know that whatever you have to face, you won’t ever face it alone. And of course, we are also here for you.

Best wishes as 2019 progresses

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Mar 5, 2019 12:22AM Veeder14 wrote:

Hi,

I started back on Tamoxifen on 3/1 so I'm on Day 4. So far my stomach isn't too irritated but I can tell I'm taking it. If I didn't have to start on it I probably would have been able to reduce the stomach medicine as it feels like my stomach has somewhat healed after surgery meds/anesthesia, pain meds. I'm keeping the stomach medicine at the same level. I have a referral for GI but will probably wait a few months to see how it goes. I really don't know what else they can do for me. I'm taking the max amount of stomach meds, and eating a very bland diet.

The breast surgeon has written me an order to get the two seromas in my arm pit drained again. Not sure if these will ever stay drained but it's worth trying again next month. I'm working on getting back in shape from the hysterectomy surgery. This is taking longer than I thought ~ between the bad weather (not able to walk or bike ride outside very often), using the gym, and how irritated my back, neck, and shoulder got.

Next follow up with the MO in April.




Dx 1/2/2018, ILC, Left, <1cm, Stage IB, Grade 1, 0/7 nodes, ER+/PR+, HER2- Surgery 1/26/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 3/8/2018 Hormonal Therapy 2/28/2019 Hormonal Therapy
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Mar 5, 2019 11:40AM Beaverntx wrote:

Vedder

Good to hear from you. I think this winter may have slowed our progress for many of us. Between historic low temps and winds getting outside here has been a challenge. Adding to that I picked up a virus--the one with the nonproductive cough that hangs on. That is improving so there is hope for warmer and more energetic days ahead! At least I can speak now without initiating a coughing spell.😊

Diagnosed at age 77-- dealing with this bump in the road of life!!🎆 Dx 1/24/2018, IDC, Right, 2cm, Stage IB, Grade 3, 0/9 nodes, ER+/PR+, HER2- (IHC) Dx 1/30/2018, DCIS, Right, <1cm, Stage 0 Surgery 1/30/2018 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 3/11/2018 Whole-breast: Breast Surgery 6/15/2018 Prophylactic ovary removal Hormonal Therapy 6/19/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 5, 2019 11:20PM JosieO wrote:

Hi Veeder and Beaverntx,

Good to read your posts!

Veeder, you are a trooper for doing all that you have to keep moving forward. Unless it is happening to you, one can’t truly understand how stomach issues affect one’s overall health. Fingers crossed and a prayer that your stomach stays somewhat under control. And those pesky seroma...sheesh. Hoping that they will stop re-filling themselves.

Beaverntx, your comments are very apt. I also had that annoying cough in January, thought I was never going to get rid of it. And I join you in wishing for weather more supportive of our intentions to exercise outside.

My own seroma appears stable, so I don’t expect my surgeon will take any action on it. But glad to know that it is not anything cancerous. Don’t know if one can ever let one’s guard down, but thankfully good doctors arewatching and checking.

HURRY SPRING!!!

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Mar 6, 2019 12:05PM Beaverntx wrote:

JosieO, I keep reminding myself that come August or so, when we have triple digit temps and high humidity, I'll be wishing for cooler weather! Somehow that image isn't helping me feel any warmer just now. So, bring on spring. After 3 consecutive nights with freezing temperatures, our redbud tree is still in full bloom and looks to be unscathed so we are hoping our other plants will do as well. Having one night of deep freeze around here is unusual enough but three in a row apparently is newsworthy.

As to seromas, I have been fortunate in that I have never had to have it drained. Also it recently is feeling much smaller again. Wondering if it will ever disappear completely?

Diagnosed at age 77-- dealing with this bump in the road of life!!🎆 Dx 1/24/2018, IDC, Right, 2cm, Stage IB, Grade 3, 0/9 nodes, ER+/PR+, HER2- (IHC) Dx 1/30/2018, DCIS, Right, <1cm, Stage 0 Surgery 1/30/2018 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 3/11/2018 Whole-breast: Breast Surgery 6/15/2018 Prophylactic ovary removal Hormonal Therapy 6/19/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 6, 2019 08:35PM jo6359 wrote:

I developed a seroma the day after my BMX. I was still in the hospital so I went back to the OR for drainage. Since then, I have never had issues with seromas.

Dx 1/29/2018, DCIS, Right, Stage 0 Dx 1/29/2018, IDC, Right, 2cm, Stage IIB, Grade 2, 1/18 nodes, ER-/PR-, HER2+ (FISH) Targeted Therapy 2/16/2018 Perjeta (pertuzumab) Targeted Therapy 2/16/2018 Herceptin (trastuzumab) Chemotherapy 2/16/2018 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Mar 8, 2019 12:13AM JosieO wrote:

Beaverntx,

Yes, much colder weather in many parts of the country this winter. Harder to get outside for exercise, which many people count on. Hopefully spring will be enjoyable.

Not sure if seromas ever dissolve on their own or not. Have to ask that question at my next appointment. At least mine is not painful.

Stay warm as we move toward spring

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Mar 20, 2019 06:06PM flowergal wrote:

Hello Everyone and happy Spring!! For some reason , I was not getting notifications of a post on this thread so I hope I fixed it. I had my 1 year mammo in Feb and was all good. But it sure aggravated the lymphedema. It is back to baseline now and I am exercising daily, and playing with our new dog that we got in January. He keeps me hopping!

Veeder, glad the tamoxifn is doing OK so far.

Josie, I was told I had a seroma in August but in Feb was told it had resolved. The area is still hard and a little sore at times , but I think that will always be the case.

Dx 1/2018, IDC, Left, 1cm, Stage IB, Grade 1, 1/1 nodes, ER+/PR+, HER2- (IHC) Hormonal Therapy Arimidex (anastrozole)
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Mar 20, 2019 09:58PM Beaverntx wrote:

flowergal, good to hear from you and that you are enjoying a new dog. Our two dogs have been a great joy and comfort for me over the last year (even though one of them did piddle on the new wood floor today!) Assuming that no news is good news, it seems that our crew is doing OK, thank goodness. I still feel as if I am waiting for the other shoe to drop at times but don't dwell on it. My next BC related dr. visit is next month, I' m still on the every three month schedule, probably until next January.

Diagnosed at age 77-- dealing with this bump in the road of life!!🎆 Dx 1/24/2018, IDC, Right, 2cm, Stage IB, Grade 3, 0/9 nodes, ER+/PR+, HER2- (IHC) Dx 1/30/2018, DCIS, Right, <1cm, Stage 0 Surgery 1/30/2018 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 3/11/2018 Whole-breast: Breast Surgery 6/15/2018 Prophylactic ovary removal Hormonal Therapy 6/19/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 20, 2019 10:20PM JosieO wrote:

Hi Flowergal and Beaverntx,

Glad to hear from both of you!

Flowergal - thanks for the words of encouragement on my seroma. Hoping that it does resolve itself in time, as I don’t think my surgeon wants to aspirate it. But I do hope your lymphedema stays under control. You’ve put a lot of work into it. A new dog is great-such a source of joy. Congrats on your one year mammogram.

Beaverntx- glad that you know the joy of dogs as well. Hoping you will continue to get positive news on each of your exams, and that they will become less frequent.

Continued good wishes and good healthto all of us.


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Mar 21, 2019 01:04AM jo6359 wrote:

flowergal-what kind of dog? My cats and dogs provide me with endless hours of pleasure.

Dx 1/29/2018, DCIS, Right, Stage 0 Dx 1/29/2018, IDC, Right, 2cm, Stage IIB, Grade 2, 1/18 nodes, ER-/PR-, HER2+ (FISH) Targeted Therapy 2/16/2018 Perjeta (pertuzumab) Targeted Therapy 2/16/2018 Herceptin (trastuzumab) Chemotherapy 2/16/2018 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Mar 21, 2019 11:21AM flowergal wrote:

Hi jo- he is a terrier mix . Kind of wire haired and scruffy looking. 14 pounds and about a year old so he is very puppy like and energetic but sweet as he can be. We had to put our other two very old and sick dogs to sleep this past July but we have always had dogs and there was an emptiness in the house but not any more! LOL !

Dx 1/2018, IDC, Left, 1cm, Stage IB, Grade 1, 1/1 nodes, ER+/PR+, HER2- (IHC) Hormonal Therapy Arimidex (anastrozole)
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Mar 21, 2019 12:45PM jo6359 wrote:

flower gal- I couldn't imagine a home without a pet. I have seven dogs and three cats. Way too many. They bring me such joy and a little bit of aggravation. LOL

Dx 1/29/2018, DCIS, Right, Stage 0 Dx 1/29/2018, IDC, Right, 2cm, Stage IIB, Grade 2, 1/18 nodes, ER-/PR-, HER2+ (FISH) Targeted Therapy 2/16/2018 Perjeta (pertuzumab) Targeted Therapy 2/16/2018 Herceptin (trastuzumab) Chemotherapy 2/16/2018 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Mar 21, 2019 03:38PM InnaB2018 wrote:

Hi, ladies. 2018 was a year from hell for me and my family. I was diagnosed with melanoma in January and breast cancer in March. My husband’s cousin, only 51 years old, died suddenly in April and his aunt died in October. I went through surgery, chemo, and radiation. Was diagnosed with radiation induced pneumonitis and got lymphedema to boot. Can’t believe I survived it all.

Dx 3/26/2018, IDC, Right, 3cm, Stage IIA, Grade 3, 1/18 nodes, ER+/PR+, HER2- Surgery 4/24/2018 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 6/1/2018 AC + T (Taxol) Radiation Therapy 10/8/2018 3DCRT: Breast, Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)

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