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Topic: 2019 Diagnosed -- How are you doing

Forum: Share Your Experiences Of Life After A Breast Cancer Diagnosis —

Share your experiences of life after a breast cancer diagnosis and offer advice on how you cope with life's daily challenges, including how you develop a new daily/weekly routine while you deal with breast cancer.

Posted on: Feb 12, 2020 04:31PM

cathy67 wrote:

Sounds there is no such thread here, I just created one to share what's the next.

I will have my first follow-up this summer, six months after radiation, then after that, yearly mammography for both sides.



Oncotype 6, Dx 08/06/2019, IDC, Right, 2.1 cm, Grade2, 1/1 nodes,ER+/PR+, HER2- Surgery 9/9/2019 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 11/20/2019 Arimidex (anastrozole) Radiation Therapy 11/26/2019 Whole-breast: Breast, Lymph nodes
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Feb 13, 2020 05:26AM ajminn3 wrote:

I was dx’d in dec of 2019 so I am just kinda at the start of my breast cancer marathon since I’m triple positive. I get the full year of infusions followed by 5-10 years hormone tx. So far I’m handling things well now that I have a plan and am moving forward with treatment. Hoping to be one who posts on here regularly my success of beating this shit in the future

Dx 12/2019, DCIS, Left, 6cm+, Stage 0, Grade 2 Dx 1/2020, IDC, Left, <1cm, Stage IIA, 1/3 nodes, ER+/PR+, HER2+ Hormonal Therapy Aromasin (exemestane), Zoladex (goserelin) Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab) Chemotherapy Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall
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Feb 13, 2020 11:48AM - edited Feb 13, 2020 01:15PM by Yogatyme

I had bmx on 8/13/19 and am doing well. I have BRCA1 mutation, so opted for bmx. Therefore, no radiation and Oncotype score indicated no benefit from chemo. I feel physically fully recovered other than chest tightness which I manage well w stretching. Emotionally, I am pretty labile still but that may be more about my brother recently losing his battle w esophageal cancer than about my own cancer (it's weird and irrational, but I have guilt about my cancer being so easily treated while he went through so much more and still died). I am eating well and exercising regularly. I decided to decline an AI and that does cause some intermittent anxiety but I keep reminding myself that no decision is without risks. Generally I feel good and hope the recurrence fears begin to diminish soon. I saw my breast specialist in Dec for 6 mo check and will see her again in June.

Yogatyme Surgery 3/2/2019 Prophylactic ovary removal Dx 7/19/2019, IDC: Papillary, Right, <1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 8/12/2019 Mastectomy: Left, Right
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Feb 14, 2020 12:43AM cathy67 wrote:

Yogatyme,


I am taking arimidex, the side effect is tolerable. I am sorry to hear your brother's story, my friend's boyfriend and his sister have similar experience. Among all cancer patients, we are lucky to have this one.

Hopefully, those diagnosed in year 2019 will report cancer free continuously year by year, that is why I created this thread.

I see my MO every three months, for arimidex refill.

Oncotype 6, Dx 08/06/2019, IDC, Right, 2.1 cm, Grade2, 1/1 nodes,ER+/PR+, HER2- Surgery 9/9/2019 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 11/20/2019 Arimidex (anastrozole) Radiation Therapy 11/26/2019 Whole-breast: Breast, Lymph nodes
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Feb 14, 2020 02:08AM Prahan wrote:

Diagonised mar 2019. Presently under lupron and Tamoxifen. Lumpectomy, completed radiation by may 2019. Diagonised at the age 36. Hoping to live.

Dx 3/18/2019, IDC, Left, 1cm, Stage IB, Grade 1, 1/1 nodes, ER+/PR+, HER2- (IHC) Surgery 3/28/2019 Lumpectomy: Left Hormonal Therapy 5/8/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin) Radiation Therapy 5/8/2019 Whole-breast: Breast, Lymph nodes
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Feb 14, 2020 09:17AM Yogatyme wrote:

Thank you, Cathy. You are so right about being fortunate to have this cancer in comparison to what others deal with, including many on this forum who are at higher stages/rougher treatments. When I was dxed, my breast specialist told me, “If you’re going to get breast cancer, this is a good one to have b/c it’s so treatable”.

Yogatyme Surgery 3/2/2019 Prophylactic ovary removal Dx 7/19/2019, IDC: Papillary, Right, <1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 8/12/2019 Mastectomy: Left, Right
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Feb 14, 2020 09:41AM AngieB92 wrote:

Diagnosed August 2019. Finished chemo 12/31/19. Doing Herceptin infusions every three weeks. Double mastectomy surgery w/reconstruction scheduled 3/3/20. Feeling really good and ready for surgery.

Dx 8/8/2019, IDC, Left, 1cm, Stage IA, Grade 2, 0/6 nodes, ER+/PR+, HER2+ (IHC) Targeted Therapy 9/16/2019 Perjeta (pertuzumab) Targeted Therapy 9/16/2019 Herceptin (trastuzumab) Surgery 3/3/2020 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 4/9/2020 Kadcyla (T-DM1, ado-trastuzumab)
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Feb 14, 2020 11:27AM LiveLoveLaugh2020 wrote:

Diagnosed at 34 with DCIS. Bilateral NSM 09/2019. Just had implant exchange with FG last month. Doing good overall on this emotional roller coaster (even though we have those days). Hope you all are as well! :)

DCIS Dx @ 34 - Bil NSM 09/2019 - Bil implant exchange with FG 01/2020.
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Feb 14, 2020 12:48PM cathy67 wrote:

Thanks ladies!


Please come here to update your routine followup, now we are at same age, the survival age. Lets celebrate every b-day after followup.

Oncotype 6, Dx 08/06/2019, IDC, Right, 2.1 cm, Grade2, 1/1 nodes,ER+/PR+, HER2- Surgery 9/9/2019 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 11/20/2019 Arimidex (anastrozole) Radiation Therapy 11/26/2019 Whole-breast: Breast, Lymph nodes
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Feb 14, 2020 02:28PM marinochka wrote:

I was diagnosed in november 2019 with DCIS. I had lumpectomy and re incision. My DCIS was small, so now is discussing with RO if i need radiation or not. I have UV sensitivity because of auto immune disorder, and concerned how radiation would effect me because of that.

Planning to have hormonal therapy as well.


Dx 11/4/2019, DCIS, Right, Stage 0, Grade 2, ER+/PR- Surgery 12/19/2019
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Feb 14, 2020 09:58PM Dish0207 wrote:

I was diagnosed in Dec 2019 with high grade DCIS in my left breast. I had a lumpectomy in Jan, but after surgery found out they did not get clear margins in all six directions, which is what my surgeon told me we needed. Second lumpectomy should have been a quick in and out, to get one "fingerling" area. However, surgery took three hours, as they checked pathology while I was under and surgeon went back in twice more to get more margins. Now I'm wondering if that changes my diagnosis, if the original area they discovered, 1.8cm, was bigger, and the cancer/pre-cancer has breached the duct walls. If that's the case, does that change the diagnosis and course of treatment. I'm anticipating 7 weeks of daily (M-F) radiation treatments starting in a few weeks.
Has anyone out there had anything similar? Unfortunately I did not have all these questions in my head while I was with my surgeon at my post-op today, and now my head is spinning. I would love to hear from you guys.

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Feb 14, 2020 10:08PM Yogatyme wrote:

This did not happen to me, but I think there may be a thread here about that. If not, you could start a new thread. Surely, there are others who have had this happen and could share their experiences with you. I hope all turns out well.

Yogatyme Surgery 3/2/2019 Prophylactic ovary removal Dx 7/19/2019, IDC: Papillary, Right, <1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 8/12/2019 Mastectomy: Left, Right
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Feb 15, 2020 05:14PM ChaClarey wrote:

I was diagnosed in August 16, 2019 and finished active treatment January 16, 2020. Surgery in September and October and started radiation in December. Oncotype 16 so chemo not recommended. Tamoxifen started in December during radiation, but stopped due to hip pain.Restarted January. Still dealing with physical and emotional side effects. Going to physio for range of motion and cording. Surprised how tired I still am

Oncotype 16 Dx 8/16/2019, DCIS/IDC, Left, 2cm, Stage IIA, Grade 2, 0/2 nodes, ER+/PR+, HER2- (DUAL) Surgery 9/17/2019 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 10/22/2019 Lymph node removal: Sentinel Radiation Therapy 12/13/2019 Whole-breast: Breast Hormonal Therapy 1/22/2020 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Feb 15, 2020 05:34PM DogMomRunner wrote:

Class of 2019!

I was diagnosed in April, had port placement and a lumpectomy in May. Clean margins with a relatively small tumor. I did 12 weeks of Taxol with Herceptin. Some mild SE (tingling in my toes, hair loss, fingernails splitting and very thin) and more bothersome (nausea, eyelid papilloma, fatigue, bloody nose). I got 20 radiation treatments (16 full breast and 4 to the tumor bed).

I continue with Herceptin every 3 weeks until June of this year and echocardiograms every 3 months to check for heart issues. My hair is back but very short. Facial, armpit and leg hair came back first. Of course.

I am 57 and managed to work full time (geriatric social worker) during all treatments. My only real problem right now is fatigue and the port being a pain in the ass (sleeping and when wearing a bra).

Sorry to hear about your brother Yogatyme.

You ain't run far enough to say My legs have failed You ain't gone far enough You ain't worked hard enough You ain't run far enough to say It ain't gonna get any better. Nathaniel Rateliff Dx 4/24/2019, DCIS/IDC, Left, 1cm, Stage IA, Grade 3, 0/8 nodes, ER-/PR-, HER2+ (FISH) Surgery 5/17/2019 Lumpectomy: Left; Lymph node removal: Left, Sentinel Targeted Therapy 6/5/2019 Herceptin (trastuzumab) Chemotherapy 6/5/2019 Taxol (paclitaxel) Radiation Therapy 9/21/2019 Whole-breast: Breast
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Feb 15, 2020 06:49PM LiveLoveLaugh2020 wrote:

Sorry about your brother as well Yogatyme. Praying for all of you. Hope everyone recovers well.

DCIS Dx @ 34 - Bil NSM 09/2019 - Bil implant exchange with FG 01/2020.
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Feb 15, 2020 11:04PM - edited Feb 15, 2020 11:06PM by GlobalGal

Dear Class of 2019,

Diagnosed in March 2019, de novo stage four, with breast cancer found in 3 central neck lymph nodes following a thyroidectomy for papillary thyroid cancer (surprise! 2 synchronous cancers), but no evidence of breast cancer was found elsewhere.

No surgery, no radiation, and no hard core chemo as there is nothing to go after (yet). Will be on anastrozole for the rest of my life, according to my MO.

Things I don't know —as there was not enough surgical tissue—the type of breast cancer (possibly lobular), ER status (equivocal, not enough tissue remaining for FISH testing). So, I may be triple positive lobular or maybe not.

Since March 2019, had 2 PET scans with no signs of metastasis and nothing showed up on my December mammogram. Color testing showed no inherited cancer mutations.

Like many others, I am trying to figure out how to live under the threat of a Chernobyl-size cancer bomb going off. My current slution, lots of daytime napping, needs work!

GlobalGal



De novo stage IV metastatic breast cancer with metastases to 3 central lymph nodes in neck following complete thyroidectomy for papillary thyroid cancer WITH NO PRIMARY BREAST CANCER IDENTIFIED and NO OTHER METS (so far) Dx 3/20/2019, Stage IV, metastasized to other, ER+/PR+ Hormonal Therapy 6/4/2019
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Feb 16, 2020 08:18PM Mazzanja wrote:

I’m 37 was diagnosed Sept. 2019 with TNBC, stage 2a bc of tumor size (2.3 cm), grade 3 (most TNBC is grade 3 due to no targeted therapies and aggressiveness). Had lumpectomy (clear margins), sentinel lymph node removed (negative), and port placed October 2019. BRCA negative, no lymph node involvement or vascular feeding. My treatments last 20 weeks of chemo having 16 treatments total. The regimen is AC-T but I’ve taken the Taxol first. I am one treatment into AC and so far so good. I get labs tomorrow to make sure my WBC is ok. Once chemo is complete, I will have 6 weeks of radiation, 5 days a week.

My TNBC Stats based on universal treatment:
TNBC usually responds to chemo really well bc of rapid cell division.
16% chance of recurrence 10-15 years out. 19% chance of recurrence 20 years out. TNBC if it comes back generally will within 1.5-2years out. If you make it without recurrence for 5 years, you are considered “cured” of course there are many variables to consider. Tumor size, grade, vascular feeding, lymph node involvement are some of the primaries. Change in diet, life habits, exercise can help prevent recurrence. 

It has been terrifying and traumatic. It is a marathon for sure and I have to do it to get thru it. 🙏🏽

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Feb 16, 2020 11:09PM cathy67 wrote:

Hi GlobalGal,

I am sorry to hear that, just wonder we're already doing so many routines, why this still happened?

I have been on six months follow up for seven years, it is never a surprise for me cause I am preparing for it for seven years, but it is already lymph node positive, 2.1 cm. How could they tell me six months ago that my diagnosis mammography was clear?

Hopefully this thread will be active for ten years, ten years is a milestone that we all cured. Let's grow up together, till we are 10 years old girl.

Oncotype 6, Dx 08/06/2019, IDC, Right, 2.1 cm, Grade2, 1/1 nodes,ER+/PR+, HER2- Surgery 9/9/2019 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 11/20/2019 Arimidex (anastrozole) Radiation Therapy 11/26/2019 Whole-breast: Breast, Lymph nodes
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Feb 17, 2020 09:55AM Yogatyme wrote:

Cathy, my bc never showed up on mammogram either. If it weren’t for close monitoring b/c I have BRCA1 mutation I would still be walking around w breast cancer and not know it. It was picked up on MRI and followed up w US and biopsy. Mammogram can give us a false sense of security. I’m so sorry this happened to you and I hope your treatment kicks this bc in the butt.

Yogatyme Surgery 3/2/2019 Prophylactic ovary removal Dx 7/19/2019, IDC: Papillary, Right, <1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 8/12/2019 Mastectomy: Left, Right
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Feb 17, 2020 04:01PM cathy67 wrote:

Hi Yogatyme,

I am in Canada, my follow up will be mammography, I already asked around, no doctor will order CT or MRI for me.

My friends also said, if I were not on six months followup, how terrible. I've trusted screening program for six months, end of the day I found it cannot be trusted. If so, why not tell women the false negative rate it gives out. any least we have preparation for it.

Oncotype 6, Dx 08/06/2019, IDC, Right, 2.1 cm, Grade2, 1/1 nodes,ER+/PR+, HER2- Surgery 9/9/2019 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 11/20/2019 Arimidex (anastrozole) Radiation Therapy 11/26/2019 Whole-breast: Breast, Lymph nodes
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Feb 17, 2020 04:44PM Yogatyme wrote:

Cathy, I had no idea about the rate of false negatives on mammogram until my dx. Had heard much more about false positives on mammogram. Many women get call backs and are found to be negative. I wish you the very best.

Yogatyme Surgery 3/2/2019 Prophylactic ovary removal Dx 7/19/2019, IDC: Papillary, Right, <1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 8/12/2019 Mastectomy: Left, Right
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Feb 18, 2020 06:52AM DogMomRunner wrote:

Mazzanja- my possibility of recurrence is similar to yours. At first I thought I was going to be TN because the HER-2 was equivocal. The first 2-5 years out from treatment will be anxiety producing for me. At least I can get Herceptin unlike the TNBC. And that makes a big difference. Good luck with your chemo. I had only Taxol and amazed how some of you get through the harsher chemo treatments

You ain't run far enough to say My legs have failed You ain't gone far enough You ain't worked hard enough You ain't run far enough to say It ain't gonna get any better. Nathaniel Rateliff Dx 4/24/2019, DCIS/IDC, Left, 1cm, Stage IA, Grade 3, 0/8 nodes, ER-/PR-, HER2+ (FISH) Surgery 5/17/2019 Lumpectomy: Left; Lymph node removal: Left, Sentinel Targeted Therapy 6/5/2019 Herceptin (trastuzumab) Chemotherapy 6/5/2019 Taxol (paclitaxel) Radiation Therapy 9/21/2019 Whole-breast: Breast
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Feb 18, 2020 11:50PM blue22 wrote:

I was diagnosed in January of 2019 with Inflammatory Breast Cancer (IBC). At the time of diagnosis, the cancer had already spread to multiple lymph nodes, and was in the dermal lymphatics. I did 12 rounds of taxol, followed by 4 rounds of AC. I was also in a clinical trial - so had extra treatment thrown in on top - this was additional infusions as well as injections into the tumor. In the summer I had a mastectomy with axillary lymph node dissection on the left, as well a lumpectomy on the right where they found DCIS. I luckily had clear margins, but not pCR. I had a total of 33 rounds of radiation on the left, including 8 boosts. My initial biopsies were HER2 - , but the tumor removed during surgery was HER2+, so I am now getting Herceptin and Perjetta infusions every three weeks. I am also getting Zoladex injections every 4 weeks.

It has been one hell of a year!

Dx 1/2019, IBC, Left, 6cm+, Stage IIIB, Grade 3, ER+/PR+, HER2- (FISH) Chemotherapy 2/14/2019 Abraxane (albumin-bound or nab-paclitaxel), Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxol (paclitaxel) Surgery 7/29/2019 Lumpectomy: Right; Lymph node removal: Underarm/Axillary; Mastectomy: Left Dx 7/30/2019, IDC/IBC, Left, 6cm+, Stage IIIC, Grade 3, 4/14 nodes, ER+/PR+, HER2+ (IHC) Dx 8/2019, DCIS, Right, <1cm, Stage 0, ER+/PR+ Radiation Therapy 10/8/2019 Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab) Chemotherapy Xeloda (capecitabine)
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Feb 19, 2020 09:51AM cathy67 wrote:

Hi blue22,

Yes, for each of us, this year was a hell.

Oncotype 6, Dx 08/06/2019, IDC, Right, 2.1 cm, Grade2, 1/1 nodes,ER+/PR+, HER2- Surgery 9/9/2019 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 11/20/2019 Arimidex (anastrozole) Radiation Therapy 11/26/2019 Whole-breast: Breast, Lymph nodes
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Feb 19, 2020 12:07PM LiveLoveLaugh2020 wrote:

Blue you can say that again! Hope all is well.

DCIS Dx @ 34 - Bil NSM 09/2019 - Bil implant exchange with FG 01/2020.
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Feb 19, 2020 02:07PM SeattleSunshine wrote:

I am 67, diagnosed July 2019. So far, my treatments have gone reasonably well. The lumpectomy with SLNB was the easiest part. I insisted on propofol instead of general anesthesia and I recovered quick and easy. The lump (spider) was in the inner left quadrant. The surgeon could not a get clear margin on the underside so he removed the muscle fascia and called it a day.

We decided to forego chemo. My oncotypeDX score was 27. The safe cutoff is 25. But that standard was determined by an extended trial on younger women. There is not nearly as much research on older women. And chemo causing permanent cognitive decline for older women is well documented. So I roll the dice.

The radiation seems esp important because of the margin issue. I had 16 hypofractionated sessions and 4 boosts. Great treatment team but I hated going. I used Mepitel film to protect my skin. No burns on breast but some blistering on my armpit. Now, three months out from radiation, my breast is developing fibrosis. I went for my 6 mo baseline mamography. The plates squashed my breast and it won’t bounce back—just lies there dented and flattened! My breast has also retracted by a couple of inches so it is perkier/harder than the other breast. I find if I massage the radiated tissue for a few minutes 2xday, it is breaking up the internal scarring. I go into this detail because I wish I had been more prepared.

I started Arimidex 7 weeks ago. I have 10 or so hot flashes/day. Mostly at night. Skin is dryer. So far, so good.

I am intrigued by this thread because I am finding that the biggest issue is that psychologically I am still gobsmacked. Some residual denial (I don’t really have cancer, I am just humoring my doctors), some minimizing (Since I didn’t do chemo, I just had cancer lite), some avoidance ( time wasted on my IPad, reading, etc.), some obsessing (who would like to talk about cancer again?), some depression (what is the point of exercising? Nothing will help), some morbid thoughts (funeral is all planned), some anxiety (is that tickle in my throat really cancer?) and malaise (I can do less than half of what I got done prior to my dx).

I read in Cancer Aftermath that physically however many months your treatment was, it will take at least that long to physically recover. And that it takes 18-24 months to psychologically find your new normal. In which case, I am right on track. Best of luck to all of us🤗
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Feb 19, 2020 04:44PM cathy67 wrote:

Thank you Seattlesunshine,

I understand what your ID means, I am in Vancouver. We all look for the beauty of every day life.

I am on arimidex as well, I also worry about the mammography, is there any way to check the breast again, without touching it? Will mammography be very painful? Since both of us skipped chemo, the baseline mammography will be less than one year from surgery date, when I really wonder if everything back to the normal. I also had 20 radiations, my margin is negative but close, with 0.1mm margin. The radiation team are all so lovely persons, but I hate going there, day by day, my friend counted down the days with me together, starting from 19 days left.. That six month journey was a hell, I wish it never came again. Lets pray for each other, year by year, ..


Oncotype 6, Dx 08/06/2019, IDC, Right, 2.1 cm, Grade2, 1/1 nodes,ER+/PR+, HER2- Surgery 9/9/2019 Lumpectomy: Right; Lymph node removal: Sentinel Hormonal Therapy 11/20/2019 Arimidex (anastrozole) Radiation Therapy 11/26/2019 Whole-breast: Breast, Lymph nodes
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Feb 20, 2020 06:45AM DogMomRunner wrote:

SeattleSunshine- I am also having a lot of those same feelings. Some days it's easy to throw myself into work and a class I'm taking but others (especially at night) it's hard to turn that anxiety (recurrence) off. I'm coming up on my yearly mammogram and I'm really worried that they'll find another mass.

Plus my port makes sleeping uncomfortable in any position other than my back and I'm a side/stomach sleeper. Devil

You ain't run far enough to say My legs have failed You ain't gone far enough You ain't worked hard enough You ain't run far enough to say It ain't gonna get any better. Nathaniel Rateliff Dx 4/24/2019, DCIS/IDC, Left, 1cm, Stage IA, Grade 3, 0/8 nodes, ER-/PR-, HER2+ (FISH) Surgery 5/17/2019 Lumpectomy: Left; Lymph node removal: Left, Sentinel Targeted Therapy 6/5/2019 Herceptin (trastuzumab) Chemotherapy 6/5/2019 Taxol (paclitaxel) Radiation Therapy 9/21/2019 Whole-breast: Breast
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Feb 22, 2020 08:35PM LiveLoveLaugh2020 wrote:

I agree ladies. I don't think we realize at first how much it's going to affect us psychologically/physically. We are so caught up in the moment of shock with the diagnosis and eventual treatment or surgery. It's after everything is completed that our minds start going, especially at night time!

Most people think once your done with everything you are good to go. They don't realize the fear and anxiety we have to live with. But I'm glad that we understand one another and can relate! It can really drive you crazy sometimes.

I hope that things continue to get better for everyone! :)

DCIS Dx @ 34 - Bil NSM 09/2019 - Bil implant exchange with FG 01/2020.
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Feb 25, 2020 10:07PM LillyIsHere wrote:

Hi Ladies,

Diagnosed on July 2019. I was lucky to have a wonderful and genius doctor who was able to see my Invasive lobular carcinoma in mammogram that is almost impossible. Rushed to check my genes, negative, rushed for surgery that was scheduled in 2 months. I was told to have lumpectomy and radiation since MRI didn't show lymph node involvement but I didn't follow the order and and I asked for double mastectomy. Breast was removed and two nodes were found positive. In a month I started Lupron shots, and then Letrozole in december. Jan. 2020 I had breast reconstruction, last week in February I had prophylactic ovaries removed in order not to get lupron injections anymore. 3 surgeries in 4 months! I can deal with surgeries, but I am having hard time with toxic letrozole that will continue for several years.

Yogatyme, I am sorry you lost your brother.

I wish us all healthy years to come.

“Within five years, cancer will have been removed from the list of fatal maladies.” That was the optimistic promise to U.S. President William Howard Taft in 1910 when he visited Buffalo’s Gratwick Laboratory, “What’s taking so long?” Dx 7/31/2019, ILC, Left, <1cm, Stage IIA, 2/5 nodes, ER+/PR-, HER2- Surgery 9/19/2019 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 11/30/2019 Femara (letrozole) Targeted Therapy
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Feb 26, 2020 12:46AM Yogatyme wrote:

Thank you, Lilly. You have been through it! Hoping for the best for all us as well. Hang tight everyone!!

Yogatyme Surgery 3/2/2019 Prophylactic ovary removal Dx 7/19/2019, IDC: Papillary, Right, <1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 8/12/2019 Mastectomy: Left, Right

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