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Topic: How Did Your Choose Your Forum Name?

Forum: Share Your Experiences Of Life After A Breast Cancer Diagnosis —

Share your experiences of life after a breast cancer diagnosis and offer advice on how you cope with life's daily challenges, including how you develop a new daily/weekly routine while you deal with breast cancer.

Posted on: Apr 12, 2020 11:15AM

Sunshine99 wrote:

I love seeing all the names of my sisters (and brothers) on this forum and would love to hear how or why you chose your forum name.

I'll start: When I was a little girl, my mother used to call me Carol Sunshine. I was a pretty happy kid (not a pretty, happy kid! :) ). Anyway, I liked that name and would like to think that I am living up to that name so I chose it as my forum name. I added the 99 because I think back in 2007 when I joined, "Sunshine" was already taken. I'd rather be known as Carol Sunshine than Carol Gloomy Pants. haha

Your turn!


Cancer has progressed to my bones. I pray that it never enters my soul. Dx 11/2/2007, IDC, 3cm, Stage IIA, 0/3 nodes, ER+/PR+, HER2- Dx 3/26/2020, ILC/IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Hormonal Therapy 4/22/2020 Arimidex (anastrozole) Radiation Therapy 5/5/2020 External: Bone Radiation Therapy 5/12/2020 External: Bone Targeted Therapy 6/10/2020 Ibrance (palbociclib)
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Apr 12, 2020 11:30AM - edited Apr 12, 2020 12:31PM by Peregrinelady

I am a birdwatcher and I worked as a hack site attendant in the 80's which means I camped out and released young peregrine falcons into the wild. One of the highlights of my life.

Dx 4/24/2015, IDC, Left, 2cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Surgery 5/18/2015 Mastectomy: Left Hormonal Therapy 6/1/2015 Liquid tamoxifen (Soltamox) Surgery 4/19/2016 Mastectomy: Right; Prophylactic ovary removal; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy 8/1/2016 Arimidex (anastrozole) Hormonal Therapy 7/20/2020 Femara (letrozole) Hormonal Therapy 3/4/2021 Arimidex (anastrozole)
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Apr 12, 2020 11:41AM SpecialK wrote:

When I was a young Air Force spouse one of my husband's fellow flight crew members gave me the "call sign" SpecialK, my first name starts with K.

BMX w/ TE 11/1/10, ALND 12/6/10. 16 additional surgeries. TCHx6 2/17-6/2/11. Herceptin until 1/19/12. Femara 8/1/11, Arimidex 6/20/12, back to Femara 2013-2018. Dx 9/27/2010, DCIS, Stage 0, Grade 3 Dx 9/27/2010, IDC, Right, 2cm, Stage IIB, Grade 3, 2/14 nodes, ER+/PR+, HER2+ (IHC)
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Apr 12, 2020 11:42AM Beesie wrote:

Mine is a childhood nickname too. This nickname was only used by one special person, and was derived in a rather obscure way from my real name; it makes sense if I explain it, but it's not obvious. I smile when I think of myself being called this nickname as a child - good memories.

And no, my real name (and my screen name) is not Bessie.

Dx 9/15/2005 Right, 7cm+, DCIS-Mi, Stage IA, Gr 3, 0/3 nodes, ER+/PR- ** Dx 01/16/2019 Left, 8mm, IDC, Stage IA, Gr 2, 0/3 nodes, ER+/PR-, HER2- (FISH) ** Surgery 11/30/2005 MX Right, 03/06/2019 MX Left ** Hormonal Therapy 05/2019 Letrozole
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Apr 12, 2020 12:24PM exbrnxgrl wrote:

Easy! I was born and raised in the Bronx. I have lived in CA for over 30 years, but the Bronx holds my roots.

Bilateral mx 9/7/11 with one step ns reconstruction. As of 11/21/11, 2cm met to upper left femur Dx 7/8/2011, IDC, Left, 4cm, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Surgery 9/7/2011 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Dx 11/2011, IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 11/21/2011 Arimidex (anastrozole) Radiation Therapy 11/21/2011 Bone Hormonal Therapy 6/19/2014 Femara (letrozole) Hormonal Therapy Aromasin (exemestane)
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Apr 12, 2020 12:27PM voraciousreader wrote:

voracious reader. Nuf said

Doctor told me regarding my prognosis that I WASN'T on the Titanic! Hmmm...Really?....Okay! 02/2010 Pure Mucinous Breast Cancer, Oncotype DX 15, Stage 1, Grade 1, 1.8 cm, 0/2 nodes, ER+ 90% /PR+ 70% HER2- (+1)
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Apr 12, 2020 12:38PM Spookiesmom wrote:

The real Spookie is my avatar. I’m mom.

First time IDGgrade 3, stage 3. Second time, found lump myself. That made me stage 4. Dx IDC, Stage IIIA, Grade 3
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Apr 12, 2020 12:56PM - edited Apr 12, 2020 12:57PM by Moderators

We just LOVE this! Please, keep them coming! Winking

The Mods

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Apr 12, 2020 02:13PM MountainMia wrote:

I'd love to live in the mountains, and MIA refers to a screen name I used to use at another site. MountainMia. I have a whole back story made up about the character Mountain Mia, which has little to do with my real life. :)

The rain comes and the rain goes, but the mountain remains. I am the mountain.
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Apr 12, 2020 03:09PM DogMomRunner wrote:

I identify as a dog mom, having only had 4 legged kids. When I was diagnosed last April, I was training for a half marathon. I run/train and then stop for awhile and then pick it back up.

I should change it to DogMomReader, considering how well my running is going lately. :(

You ain't run far enough to say My legs have failed You ain't gone far enough You ain't worked hard enough You ain't run far enough to say It ain't gonna get any better. Nathaniel Rateliff Dx 4/24/2019, DCIS/IDC, Left, 1cm, Stage IA, Grade 3, 0/8 nodes, ER-/PR-, HER2+ (FISH) Surgery 5/17/2019 Lumpectomy: Left; Lymph node removal: Left, Sentinel Targeted Therapy 6/5/2019 Herceptin (trastuzumab) Chemotherapy 6/5/2019 Taxol (paclitaxel) Radiation Therapy 9/21/2019 Whole-breast: Breast
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Apr 12, 2020 03:30PM JCSLibrarian wrote:

JCS are my initials and I was a public librarian for 30 years before retiring in 2017. Actually is something I can remember easily!Happy

Dx 11/5/2018, IDC, Left, 4cm, Stage IV, metastasized to lungs, Grade 2, ER-/PR-, HER2- Chemotherapy 12/19/2018 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 3/22/2019 Surgery 7/16/2019 Lumpectomy: Left Radiation Therapy 8/12/2019 External
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Apr 12, 2020 03:48PM - edited Apr 12, 2020 03:49PM by moth

mine is an anagram of a phrase i use commonly. the phrase is even one of my email addresses

I wish I had thought about it harder for this forum because I can't search for my own posts on a page as "moth" brings up all the times che'moth'erapy is mentioned Happy

anyway, I do also think kinda suits me. i like moths & try to rescue any that accidentally get stuck in the house. but I admit they also always look a bit dazed & anxious & unsure where they're going SillyHeartand that feels like me a lot of the time

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External Hormonal Therapy 12/16/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
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Apr 12, 2020 03:58PM SerenitySTAT wrote:

Mainly from Seinfeld, but SerenityNow was taken. SerenitySTAT addressed my urgent need for calmness.

It's still a work in progress.

"Do not overlook the little joys!" (Hesse, 1905) 💉💉🐶☕️🛀🖼🥐🌲🎭 Dx 11/2015 IDC L IIIC 10/11 nodes ++-, 12/2015 L Mast, 2/2016 4 AC+12 Taxol fasted, 9/2016 Rads Nodes Chest wall 15+4 boosts, 10/2016 Tamox, 4/2019 Exemestane, 12/2019 Ibrance/Xgeva
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Apr 12, 2020 05:26PM Beaverntx wrote:

childhood nickname plus state I live in; wasn't feeling very creative at the time!

Diagnosed at age 77-- Oncotype 17, dealing with this bump in the road of life!!🎆 Dx 1/24/2018, IDC, Right, 2cm, Stage IB, Grade 3, 0/9 nodes, ER+/PR+, HER2- (IHC) Dx 1/30/2018, DCIS, Right, <1cm, Stage 0 Surgery 1/30/2018 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 3/11/2018 Whole-breast: Breast Surgery 6/15/2018 Prophylactic ovary removal Hormonal Therapy 6/19/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 12, 2020 05:28PM fishingal68 wrote:

I'd rather be fishing...thus 'Fishingal'!

Dx 9/7/2017, DCIS/IDC/IDC: Cribriform, Right, 2cm, Stage IIB, Grade 3, 1/3 nodes, ER-/PR-, HER2+ Targeted Therapy 10/9/2017 Herceptin (trastuzumab) Chemotherapy 10/9/2017 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 2/16/2018 Mastectomy; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Radiation Therapy 5/14/2018 Whole-breast: Breast, Lymph nodes, Chest wall
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Apr 12, 2020 06:04PM AliceBastable wrote:

Alice Bastable is a character in a couple of children's books by Edith Nesbit, written at the turn of the century (19th to 20th, I'll never get used to specifying!). Alice was a tough cookie, and even got in at least one fistfight for a good cause.

I love this topic. 💛💚💙💜♥️


Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Boring. Hope it stays that way. Dx 5/2018, ILC, Left, 2cm, Stage IA, Grade 1, 1/1 nodes, ER+/PR+, HER2- Surgery 7/11/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/8/2018 Radiation Therapy 10/29/2018 Whole-breast: Breast, Lymph nodes
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Apr 12, 2020 06:07PM GoldensRBest wrote:




it should be obvious - lol! All our other goldens have crossed the rainbow bridge.

If there are no dogs in heaven, then when I die, I want to go where the dogs are.

Dx 6/1990, IDC, Right, 2cm, Stage IIA, 1/20 nodes, ER+/PR+ Dx 7/1999, IDC, Right, <1cm Dx 7/26/2019, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- (IHC) Hormonal Therapy 8/31/2019 Femara (letrozole) Targeted Therapy 9/25/2019 Ibrance (palbociclib) Hormonal Therapy 1/30/2020 Arimidex (anastrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy CMF Surgery Mastectomy Surgery Lumpectomy; Lymph node removal Radiation Therapy Whole-breast: Breast, Lymph nodes
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Apr 12, 2020 06:45PM Spookiesmom wrote:

Me too❤️❤️❤️❤️❤️

First time IDGgrade 3, stage 3. Second time, found lump myself. That made me stage 4. Dx IDC, Stage IIIA, Grade 3
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Apr 13, 2020 12:18AM LiveLoveLaugh2020 wrote:

I picked mine trying to think/be positive in a time of darkness! Smile

Live, love, and laugh is something I try to live by!

DCIS Dx @ 34 - Bil NSM 09/2019 - Bil implant exchange with FG 01/2020.
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Apr 13, 2020 04:04AM amygil81 wrote:

The start of my first and last name. And 81 was the year I was diagnosed with bone cancer in my leg, at age 13. I put it in for strength as I dealt with my new cancer here

Osteosarcoma in left leg at age 13. DCIS in left breast at 33. IDC recurrence in left chest wall at 42. Dx 12/2000, DCIS, Left, 1cm, Stage 0, 0/3 nodes, ER-/PR- Surgery 12/10/2000 Lymph node removal: Sentinel; Mastectomy: Left Dx 12/2009, IDC, Left, 1cm, Stage IIIB, 3/10 nodes Surgery 12/17/2009 Lumpectomy: Left; Lymph node removal: Left, Underarm/Axillary Chemotherapy 1/11/2010 CMF Chemotherapy 5/31/2010 Taxol (paclitaxel) Radiation Therapy 10/31/2010 External: Lymph nodes, Chest wall
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Apr 13, 2020 05:07AM Rah2464 wrote:

Initials and the birth years of myself and my beautiful mother

What a great topic!

Dx 5/23/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 6/26/2018 Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 7/26/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 13, 2020 09:47AM Beesy_The_Other_One wrote:

When I joined, I used a childhood nickname, Beesy, on a whim, based on my maiden name which ends in BEE. Little did I know that there was another very well-known BEESIE here (see above). As time went by, I bumped into Beesie and we have become friends in the process, which may not have happened had we not chosen the same name, spelled differently. When people started confusing us, since she had been here so long, I changed my "name" to Beesy_The_Other_One.


1997: Phyllodes, R breast. 2018: IDC, L breast. TCHP, BMX, Radiation, Nerlynx. Dx 8/20/2018, IDC, Left, Grade 3, 0/1 nodes, ER-/PR-, HER2+ (IHC)
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Apr 13, 2020 10:44AM Beesie wrote:

Hi, Beesy_The_Other_One!

Sunshine, this is a great thread!

Dx 9/15/2005 Right, 7cm+, DCIS-Mi, Stage IA, Gr 3, 0/3 nodes, ER+/PR- ** Dx 01/16/2019 Left, 8mm, IDC, Stage IA, Gr 2, 0/3 nodes, ER+/PR-, HER2- (FISH) ** Surgery 11/30/2005 MX Right, 03/06/2019 MX Left ** Hormonal Therapy 05/2019 Letrozole
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Apr 13, 2020 11:14AM Sunshine99 wrote:

These are great! Thank you for all the contributions - please keep them coming! :)

Cancer has progressed to my bones. I pray that it never enters my soul. Dx 11/2/2007, IDC, 3cm, Stage IIA, 0/3 nodes, ER+/PR+, HER2- Dx 3/26/2020, ILC/IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Hormonal Therapy 4/22/2020 Arimidex (anastrozole) Radiation Therapy 5/5/2020 External: Bone Radiation Therapy 5/12/2020 External: Bone Targeted Therapy 6/10/2020 Ibrance (palbociclib)
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Apr 13, 2020 11:30AM SarahSmilesatMe wrote:

Sarah was my mother’s name. She died suddenly / unexpectedly in 2012. She was outgoing, strong, fun, faithful, tough. I think of her daily!

Dx 6/2019, IDC, Left, 1cm, Stage IA, Grade 3, 0/6 nodes, ER+/PR-, HER2- (FISH)
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Apr 13, 2020 03:29PM Moderators wrote:

Dear Sunshine99,

Thanks again for starting this lovely topic. Clearly it is much appreciated.

The Mods

To send a Private Message to the Mods: community.breastcancer.org/mem...
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Apr 13, 2020 04:06PM Sunshine99 wrote:

You are most welcome, Moderators! Thank you for keeping this a safe place for us.

Cancer has progressed to my bones. I pray that it never enters my soul. Dx 11/2/2007, IDC, 3cm, Stage IIA, 0/3 nodes, ER+/PR+, HER2- Dx 3/26/2020, ILC/IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Hormonal Therapy 4/22/2020 Arimidex (anastrozole) Radiation Therapy 5/5/2020 External: Bone Radiation Therapy 5/12/2020 External: Bone Targeted Therapy 6/10/2020 Ibrance (palbociclib)
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Apr 13, 2020 04:33PM SummerAngel wrote:

Mine is the names of my two children, Angel and Summer.

Age at dx: 45. Oncotype, left-side tumor: 9. Right side had multifocal IDC and "extensive" LCIS. Isolated tumor cells in 1 right-side node. Dx 3/27/2015, IDC, Left, 2cm, Stage IIA, Grade 1, 0/3 nodes, ER+/PR+, HER2- (FISH) Dx 4/27/2015, IDC, Right, 1cm, Grade 1, 0/2 nodes, ER+/PR+, HER2- (FISH) Surgery 6/1/2015 Lymph node removal: Sentinel; Mastectomy: Left, Right Surgery 6/1/2015 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 8/27/2015 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant Surgery 12/3/2015 Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction
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Apr 13, 2020 04:36PM bcincolorado wrote:

I am from Colorado (duh!) and I have breast cancer (bc), Not as creative as some of you are!!!

Dx 8/2009, IDC, Left, 5cm, Stage IIA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 1/6/2010 Lumpectomy: Left; Lymph node removal: Left Hormonal Therapy 1/14/2010 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/29/2016 Femara (letrozole)
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Apr 13, 2020 05:31PM grammamuses wrote:

Grammamuses is ----take your pick, Gram amuses or Gramma muses. I do both sometimes to the chagrin of my 12 grandchildren and sometimes I leave them in stitches. An d sometimes I muse and give them some advice. Or want to, but they are all pretty sensible so they don't need too much of it.

Nerdy


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Apr 13, 2020 08:52PM bcincolorado wrote:

Love it gramma!!!!

Happy

Dx 8/2009, IDC, Left, 5cm, Stage IIA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 1/6/2010 Lumpectomy: Left; Lymph node removal: Left Hormonal Therapy 1/14/2010 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/29/2016 Femara (letrozole)

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