Topic: Zoom meetup Bonded by Breast Cancer place to keep chatting

Forum: Share Your Experiences Of Life After A Breast Cancer Diagnosis — A place to talk about how your diagnosis has affected you after active treatment ends. Discuss long-term side effects, fears and joys, silver linings and other ways your diagnosis has impacted your life.

Posted on: May 6, 2022 01:45PM

Posted on: May 6, 2022 01:45PM

moderators wrote:

Hey Everyone,

Here is a place to keep sharing between meetups.

Warmly,

The Mods

To send a PM to the Mods: community.breastcancer.org/my/...
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May 7, 2022 11:25AM cardplayer wrote:

Thank you for setting this up Melissa

Targeted Therapy 6/30/2020 Perjeta (pertuzumab) Chemotherapy 6/30/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 6/30/2020 Herceptin (trastuzumab) Surgery 11/19/2020 Mastectomy (Right) Hormonal Therapy 12/3/2020 Arimidex (anastrozole) Surgery 12/9/2021 Prophylactic mastectomy (Left) Dx IDC, Right, 6cm+, Stage IIB, ER+/PR+, HER2+
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May 24, 2022 03:58PM jullyn wrote:

Hi all. Looks like a quiet thread. Hope everyone is doing well. I've missed the last few meet ups and will miss this week as well. Just busy getting back to life stuff now that I'm done with chemo and radiation. Who knew wed have to jump back into the normal everyday stuff so quickly!

Julie

Chemotherapy 9/1/2021 Other Targeted Therapy 9/1/2021 Perjeta (pertuzumab) Surgery 1/26/2022 Lumpectomy (Right); Lymph node removal (Right): Sentinel Immunotherapy Targeted Therapy Herceptin (trastuzumab)
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May 25, 2022 03:42PM cardplayer wrote:

No meeting this week. I hope everyone is having a good week.

Had something odd happen this week. A profile picture from 2 years ago popped up on my Facebook memories. Made me realize how much I've changed in the last two years. I've lost weight in my face and my hair is thinner. Didn't show my body, where I had many change. Kind of a weird feeling. All of the changes that I've gone through since my breast MRI June 2020. Didn't know if anyone else had a similar experience.

Nancy

Targeted Therapy 6/30/2020 Perjeta (pertuzumab) Chemotherapy 6/30/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 6/30/2020 Herceptin (trastuzumab) Surgery 11/19/2020 Mastectomy (Right) Hormonal Therapy 12/3/2020 Arimidex (anastrozole) Surgery 12/9/2021 Prophylactic mastectomy (Left) Dx IDC, Right, 6cm+, Stage IIB, ER+/PR+, HER2+
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Jan 13, 2023 08:41PM jakeinva wrote:

This is the forum i mentioned on the call today - looking forward to connecting in this format.

So doc visit went really well today -- said my reimplant "infection" wasn't one, just a bad reaction to "something". Not too happy about nebulous info, but glad I guess and super glad I didn't get too worried. My bod seems to not like implants, but they make me feel more normal for whatever that's worth. Off the RX and on to Cortizone to banish the crazy itching. Already feel better! Fingers crossed - Johnna.

Hormonal Therapy 10/1/2022 Arimidex (anastrozole)
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Jan 13, 2023 09:03PM collijr wrote:

I’m glad it wasn’t anything moreserious. I’m glad you’re feeling better already! Jodi

Surgery 6/22/2022 Lumpectomy (Left); Lymph node removal (Left): Sentinel Hormonal Therapy 8/19/2022 Femara (letrozole) Radiation Therapy 9/6/2022 Whole breast, Radiation boost: Left breast
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Jan 13, 2023 09:23PM k-gobby wrote:

GOOD TO HEAR. I tell myself when i read something i do not understand in a report, to look up the words on med sites. Then go to the portal and ask the question.

Today i messaged the plastics doctor who did my emergency surgery for a letter for my employer. Same day the letter was done. He gave me till the 23rd. I called them and please said revise. I was back the 13th. I do not have state disability at my college. I may have taken that week if I did. For now I must use sick hours.

So they sent the revised letter. I also had the cover on where my drain is, and I was told to remove it and shower then add bacterial cream, gauze and tape. Praying i get it off the 17th.

Wow. My hardest part of the journey is done. My medical oncologist now has tons more new patients. For today, I am on the maintain and watch side.

June 2021. It all began.

Chemotherapy 8/14/2021 Other Surgery 2/1/2022 Lymph node removal (Left): Sentinel; Mastectomy (Left): Skin Sparing; Reconstruction (Left): Tissue Expander Targeted Therapy 2/1/2022 Talzenna (talazoparib) Targeted Therapy 2/1/2022 Perjeta (pertuzumab)
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Jan 14, 2023 02:26AM moderators wrote:

Kathy, you're such an inspiration! It's been an honor to be along on this ride with you, and we're so appreciative of the encouragement, guidance, and advice you are always so quick and eager to share, not to mention the humor and brevity you bring at just the right moments. This feels quite a bit like a milestone, and we are thrilled for you!

The Mods

To send a PM to the Mods: community.breastcancer.org/my/...
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Jan 20, 2023 04:38PM collijr wrote:

I just got finished at the optometrist. My vision problem is Posterior Vitreous detachment. It's common with aging and nearsightedness. It can lead to retinal detachment. I'm keeping my fingers crossed that it doesn't. Still not convinced the Letrozole didn't have something to do with it.

https://my.clevelandclinic.org/.../14413-posterior...

Surgery 6/22/2022 Lumpectomy (Left); Lymph node removal (Left): Sentinel Hormonal Therapy 8/19/2022 Femara (letrozole) Radiation Therapy 9/6/2022 Whole breast, Radiation boost: Left breast

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