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Topic: Illinois ladies facing bc

Forum: Member Matchup & Local Support Groups —
A place for members to request and respond to requests from women looking for a one-on-one mentor, or to connect with others living in similar geographic areas.

Posted on: Jan 13, 2007 04:10AM - edited Jan 9, 2009 09:29AM by ritajean

ritajean wrote:

I'm very curious about all the Illinois ladies who are making this breast cancer journey or who have finished it. Where are you located? What's your diagnosis? Where are you in your treatment plan? How's it going for you?

I thought we might be surprised to find somebody right in our own back yard that could use some encouragement or company.

I'll start us out. I live in Bloomington. I was diagnosed in Nov. 2006 with IDC cancer, 1.4 cm. er-, pr+, her2-. Stage 1 but that horrid Grade 3. Had an excisional biopsy that came back without clear margins. Went to Peoria to an excellent breast surgeon. Had a lumpectomy with sentinel node biopsy. Nodes and margins were both clear. Now I'm headed for my first CMF chemo on Jan. 26th. I'm very nervous about the chemo, which I dread more than any other part of the journey, I think.

Hop on here and tell us about yourself. There may be some of us that are even close enough we could meet for an outing some time.

Rita
Dx 11/21/2006, IDC, 1cm, Stage I, Grade 3, 0/4 nodes, ER-/PR+, HER2-
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Posts 32371 - 32386 (32,386 total)

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Aug 11, 2017 11:44PM ChiSandy wrote:

(((Red)))

Last very warm day here for awhile—tonight we go back to having San Diego’s summer, with warmish days and cool nights. Last night it rained, but they’ve taken the rain out of the forecast until next Thurs., followed by another dry spell. So I have to water every day, lest any new tomatoes get blossom-end rot again. The tomatoes are ripening fast & furious, but I wish I could let them fully ripen on the vine. Instead, I’ve sort of been playing chicken with the squirrels and snatching them once they turn mostly red or even orange. Got three ripe ones on the vine and about 25 or so in varying stages of green-ness and size. The green ones that got shaken off the plant in the storm are resolutely refusing to ripen on the sill, so I put them in a paper bag with a ripe banana…or so I thought…turns out it’s a plantain that somebody put back with the conventional bananas at WF (so I paid only 37 cents for it). One of the green ones in the bag seems to have shown the tiniest hint of blush, so it’s back on the sill—along with 7 fully-ripe and one almost-ripe ones.

Slowly eating my way through the gigantic zucchini Bob brought home from one of his patients. Grilled a couple of slices that were left over after spiralizing a chunk of it, and cooked the zoodles with some marinara sauce & Parm-Regg. Also sliced and grilled a small eggplant. “Umami,” my @$$--I’m jonesing for meat. Red meat.

Really, really sore from yesterday’s workout—and have another training session tomorrow. Trying to somewhat reverse my kyphosis and keep it from becoming hyperkyphosis (hunchback). Sitting and standing up straight is torture on my neck & shoulders, but that’s what both my PCP and trainer want me to do. Ugh.

Diagnosed at 64 on routine annual mammo, no lump. OncotypeDX 16. I cried because I had no shoes...but then again, I won’t get blisters.... Dx 9/9/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 9/23/2015 Lumpectomy: Right Radiation Therapy 11/2/2015 3DCRT: Breast Hormonal Therapy 12/31/2015 Femara (letrozole)
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Aug 12, 2017 09:40AM IllinoisLady wrote:

If the things of this world neither delight nor threaten us they are often dismissed,
ignored, or simply missed. The tree outside our window, made familiar by time,
no longer appears to offer anything to attract our attention. We fail to notice the
texture of its leaves, its changing colors, its growing and aging, the way the sun
reflects on its leaves. We believe we need something more stimulating and exciting
for it to be worthy of our attention. In learning to stay in the present, we discover
that it is the power of our attention that makes all things worthy.

Christina Feldman

Each day I am thankful for nights that turned into mornings, friends that turned into family, dreams that turned into reality and likes that turned into love. ~~~Elizabeth Kuebler-Ross Dx 9/27/2007, IDC, 5cm, Stage II, Grade 3, 0/3 nodes, ER+/PR-, HER2-
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Aug 12, 2017 10:10AM IllinoisLady wrote:

Redheaded, your hands are so full right now --- so many issues and details of life -- your own and that of your family. While I'm sure it could sound somewhat glib, it all tends to work out. The trick seems not to let any one thing exert so much pressure we lose touch with ourselves and become frazzled to the point of being in-effective. Sounds like you have taken a good attitude -- face it all, do what you can, and knowing that you have, resolve to be satisfied. It all feels like so much ( and it is ) but it will change. I always fall back on knowing that we are here in this world ( at least in my humble opinion ) to learn a certain amt. through different adverse situations and we learn best by going through those adversities in the ways that seem best to us. If all were perfect -- what would be learn about ourselves and our abilities. So, it is not easy, but at some point you will get to see how you expanded yourself to meet your adversities and hopefully see that you did just fine. I'm thinking of you and hoping lots of positive energies ( I'm trying to send some ) come to you to lighten your load.

Sandy, I get sort of tickled ( since Dh and I have done it so often ) listening to you about the constant struggle with your squirrels. We have too much shade for a garden where we live now, but at our other house we had a really nice sized garden. Seemed to always be trying to keep critters large and small away. Lots of deer in the area as well as a woods full of squirrels, possums, wild rabbits, all sorts of birds and insects. All of them hungry. Had a neighbor who had a bird's eye view of our garden ( and could get anything they desired out of it ) who would help to keep to much feasting of wildlife at bay. We tied tin pans on the plants, got artificial owls -- always had a highly decorated garden.

Dh doesn't always stand up too straight either. He has one of those gizmo's that you get on and flip yourself upside down and hang for a bit --- swears by it, but to me, I'd like to see him do some stretching exercises and make sure his muscles get a proper work-out. Then he can get on that contraption. So far, exercise 0, contraption - almost daily. Hmmm, so I hope it gets easier for you.

Each day I am thankful for nights that turned into mornings, friends that turned into family, dreams that turned into reality and likes that turned into love. ~~~Elizabeth Kuebler-Ross Dx 9/27/2007, IDC, 5cm, Stage II, Grade 3, 0/3 nodes, ER+/PR-, HER2-
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Aug 12, 2017 07:18PM - edited Aug 12, 2017 07:20PM by ChiSandy

Found out why the fig tree isn't bearing: first, it's too young; second, most of it is already in shade. As to the tomatoes, I went outside to check a ripe one for firmness, and it actually fell from the vine and developed a small split. So it'll be dinner. As to the green ones on the sill, for all except the smallest one the banana-and-paper-bag trick seems to have worked. All but the “runt" developed some blush, so they're back on the sill. Running out of room there.

Had a temporary setback this a.m. Leaned over to face-cuddle my cat and I felt my lower back catch sharply on the right. Uh-oh. So I immediately began kneading it and kept moving. Slathered it with Voltaren gel, then Bio-Freeze and later, lidocaine roll-on. Figured that just this once, an NSAID was in order, so I popped two Aleve & a baclofen. Sat with a heating pad as I typed. (Gentle heat seems to work better than ice for me, so long as there's no swelling). By the time I had to leave for the gym I was much better. My trainer warned me not to try to stretch that muscle but instead to mobilize the surrounding structures. So we got a decent workout in. When I started out on the “standing row" resistance machine, I was doing 20 lbs. with both hands. Today, we did it single-armed, and I managed 27 lbs. My posture is better too. I still can't stand on one leg w/o support and raise the other w/o touching it back down, but at least I didn't keel over. And tried again to use the elliptical, but gave up after one minute because my quads were on fire. Wish the gym had a recumbent one like the PT clinics do. So it was back to the treadmill. (No rowing machine till my back is healed). Maybe next time I'll bring my little folding classical-guitar footstool to help me get up on to one of the spin bikes.

Jackie, I thought about trying one of those inversion thingies (Teeter Hang-Ups), but my PCP said definitely not with a hiatal hernia.

Diagnosed at 64 on routine annual mammo, no lump. OncotypeDX 16. I cried because I had no shoes...but then again, I won’t get blisters.... Dx 9/9/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 9/23/2015 Lumpectomy: Right Radiation Therapy 11/2/2015 3DCRT: Breast Hormonal Therapy 12/31/2015 Femara (letrozole)
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Aug 13, 2017 10:08AM IllinoisLady wrote:

Whatever is hateful to you, do not do to your neighbor. That is the whole Torah. The rest is commentary.

Hillel, in the Talmud. Shabbat 31A

Each day I am thankful for nights that turned into mornings, friends that turned into family, dreams that turned into reality and likes that turned into love. ~~~Elizabeth Kuebler-Ross Dx 9/27/2007, IDC, 5cm, Stage II, Grade 3, 0/3 nodes, ER+/PR-, HER2-
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Aug 13, 2017 03:24PM ChiSandy wrote:

Yup, the original Golden Rule.

Diagnosed at 64 on routine annual mammo, no lump. OncotypeDX 16. I cried because I had no shoes...but then again, I won’t get blisters.... Dx 9/9/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 9/23/2015 Lumpectomy: Right Radiation Therapy 11/2/2015 3DCRT: Breast Hormonal Therapy 12/31/2015 Femara (letrozole)
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Aug 14, 2017 01:35PM IllinoisLady wrote:

Sometimes you cannot believe what you see.
You have to believe what you feel.

Morrie Schwartz

Each day I am thankful for nights that turned into mornings, friends that turned into family, dreams that turned into reality and likes that turned into love. ~~~Elizabeth Kuebler-Ross Dx 9/27/2007, IDC, 5cm, Stage II, Grade 3, 0/3 nodes, ER+/PR-, HER2-
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Aug 15, 2017 10:06AM IllinoisLady wrote:

A friend is one to whom we may pour out the contents of our hearts, chaff and grain together, knowing that the gentlest of hands will sift it, keep what is worth keeping, and with a breath of kindness blow the rest away. -Arabian saying

Each day I am thankful for nights that turned into mornings, friends that turned into family, dreams that turned into reality and likes that turned into love. ~~~Elizabeth Kuebler-Ross Dx 9/27/2007, IDC, 5cm, Stage II, Grade 3, 0/3 nodes, ER+/PR-, HER2-
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Aug 16, 2017 12:23AM ChiSandy wrote:

Jackie, you okay today? Hope you got good results.

I was going to slice the split tomato but it had disappeared off the sill. Hadn’t fallen on the floor, and Gordy hates tomatoes (except as sauce on pizza or pasta). Drove me nuts until Bob admitted he had eaten it, out of hand, like an apple. Most of our tomatoes seem to be ripening all at once—we have a dozen inside on the sill and in the “eat now” basket (all but one tiny green one began ripening when placed in a paper bag with what I thought was a ripe banana but turned out to be a plantain), and about five more in various shades of orange on the vine. Very few green ones left on the plants, and no new blossoms. No early-bearing plants this year (nursery and WF out of “Early Girl”), but most of the plants weren’t supposed to be spent till at least Labor Day. (Last year we had some ripening on the sill through November). Next year I will have to stagger different gestation-lengths to assure a consistent supply from mid-July on. Surprised that as recently as Aug. 5 (our block party) I had only one tomato ripe enough to put in the Caprese salad and actually bought three heirlooms to supplement it. All the rest of the tomatoes (except the blossom-end-rot one, of which I ate the top 2/3) on the sill were green and hard. Next year, I will also put only one green tomato at a time into the "ripening bag."

Diagnosed at 64 on routine annual mammo, no lump. OncotypeDX 16. I cried because I had no shoes...but then again, I won’t get blisters.... Dx 9/9/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 9/23/2015 Lumpectomy: Right Radiation Therapy 11/2/2015 3DCRT: Breast Hormonal Therapy 12/31/2015 Femara (letrozole)
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Aug 16, 2017 10:04AM IllinoisLady wrote:


The smallest actual good is better than the most magnificent promises of impossibilities. -Thomas B. Macauley

Each day I am thankful for nights that turned into mornings, friends that turned into family, dreams that turned into reality and likes that turned into love. ~~~Elizabeth Kuebler-Ross Dx 9/27/2007, IDC, 5cm, Stage II, Grade 3, 0/3 nodes, ER+/PR-, HER2-
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Aug 16, 2017 10:16AM IllinoisLady wrote:

I'm not due for results until Friday on my biopsy. When I started with the V.A. they were so good at keeping me informed and setting appts. This last round of yearly tests etc. were so much different. I thought it might be due to the fact that I took advantage of Choice Care and had all my appts. here at home. I've begun to wonder about that. Even the hospital doing the tests had to call the V.A. several times.

Due to that -- one of the nurses from the hospital ( registered ) has kindly offered to hand over the results to me rather than making me wait and pry it out of the V.A. who knows when. Not sure what has changed at the V.A. but some buck passing while waiting for paycheck seems to be happening. I'll just have to figure how to get things done on my own I guess.

It has rained a bit this a.m. Funny thing -- my car is parked behind Dh's about 15 feet. It is so wet compared to his truck that is showing hardly a drop. It can happen strangely here. We might drive into town and find huge puddles while we have nothing here --- and town is only 2 miles away. Our little portion of southern ( just barely in there ) Illinois is strange that way as we often get way less of what everyone around us is getting. I do think we will get more rain. Temps. aren't really improving though, nor do they sound like they will much no matter what the weather.

Hope you all have a stunning day. I'm enjoying gifted tomatoes from my cousin's garden. They always have so many and are willing to share.

Each day I am thankful for nights that turned into mornings, friends that turned into family, dreams that turned into reality and likes that turned into love. ~~~Elizabeth Kuebler-Ross Dx 9/27/2007, IDC, 5cm, Stage II, Grade 3, 0/3 nodes, ER+/PR-, HER2-
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Aug 16, 2017 03:58PM ChiSandy wrote:

Jackie, you going to watch the eclipse? I had planned to go down to Sparta (w/in the totality belt) and combine it with a recording session, but every room in town is sold out (my engineer’s B&B is chock-full too).

Diagnosed at 64 on routine annual mammo, no lump. OncotypeDX 16. I cried because I had no shoes...but then again, I won’t get blisters.... Dx 9/9/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 9/23/2015 Lumpectomy: Right Radiation Therapy 11/2/2015 3DCRT: Breast Hormonal Therapy 12/31/2015 Femara (letrozole)
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Aug 16, 2017 04:23PM IllinoisLady wrote:

Don't have glasses for the eclipse. Had some but don't know where they are grrrr.

Each day I am thankful for nights that turned into mornings, friends that turned into family, dreams that turned into reality and likes that turned into love. ~~~Elizabeth Kuebler-Ross Dx 9/27/2007, IDC, 5cm, Stage II, Grade 3, 0/3 nodes, ER+/PR-, HER2-
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21 hours ago IllinoisLady wrote:

It is not true that nice guys finish last.
Nice guys are winners before the game ever starts.

Addison Walker

Each day I am thankful for nights that turned into mornings, friends that turned into family, dreams that turned into reality and likes that turned into love. ~~~Elizabeth Kuebler-Ross Dx 9/27/2007, IDC, 5cm, Stage II, Grade 3, 0/3 nodes, ER+/PR-, HER2-
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17 hours ago NavyMom wrote:

Jackie,

I loved the quote from your August 15 post. I have shared it with my 3 closest friends. They loved it, too.

Thanks for keeping this thread going.

Navymom

TAC X6 BMX with recon Dx 5/27/2009, IDC, 2cm, Stage IIA, Grade 3, 3/17 nodes, ER-/PR-, HER2-
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15 hours ago IllinoisLady wrote:

((( NavyMom ))) Your so welcome.

Each day I am thankful for nights that turned into mornings, friends that turned into family, dreams that turned into reality and likes that turned into love. ~~~Elizabeth Kuebler-Ross Dx 9/27/2007, IDC, 5cm, Stage II, Grade 3, 0/3 nodes, ER+/PR-, HER2-

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