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Topic: Any Michigan Ladies?

Forum: Member Matchup & Virtual Support Meetups —
A place for members, in similar geographic areas, to connect for support, local resources and referrals as well a place to meet up within the community virtually.

Posted on: Aug 21, 2013 03:10PM

IrishDancingMom wrote:

Hi...

I'm newly diagnoised and would love to not only talk with all ladies going through our breast cancer journey together but especially Michigan ladies.

Kirsty



Love is all you need..Beatles Dx 8/9/2013, DCIS, 3cm, Stage 0, Grade 3, 0/0 nodes, ER-/PR-, HER2- Surgery 8/22/2013 Lumpectomy: Left Radiation Therapy 9/29/2013 Breast
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Posts 511 - 535 (535 total)

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Jun 13, 2019 12:42AM JosieO wrote:

Butterfly,

Yes...the entire staff there is great. They love Drs. Brown and Gold and do their best for every patient. I’ve always left the office with gratitude and appreciation for the outstanding care I receive

Best wishes to you.

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Jun 14, 2019 08:18PM Suz-Q wrote:

Hi Lifeisbeautiful ,

I used Dr. Edwin Wilkins out of U of M and Ann Arbor. His bedside manner is a little offputting at times however he's an excellent surgeon. He's very detailed and a perfectionist. I had to have my implants taken out because of capsular contracture in February and my surgical results are amazing. I used Dr. Ian Lytle for my reconstruction the first time around. He has the most nicest bedside manner however I ended up getting capsular contracture. He did not diagnose me with cc Dr. Wilkins did. My breasts were two distinct shapes and sizes and Dr. Lytle, said he really couldn't do anything more for me after the revision I had with him. Nice guy but Dr. Wilkins did such an amazing job making me look normal. Amazing results are what you want!

56 at diagnosis. Oncotype DX 10 Dx 9/17/2015, DCIS/IDC, Right, <1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 11/3/2015 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 12/14/2015 Whole-breast: Breast Hormonal Therapy 1/21/2016 Arimidex (anastrozole) Surgery 8/4/2016 Reconstruction (right): Fat grafting Hormonal Therapy 10/7/2017 Aromasin (exemestane)
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Jul 8, 2019 01:35PM RedemptiveSufferer wrote:

Hi, all!

I don't post on this forum a lot, but thought I'd search to see if there were other ladies in Michigan, and lo and behold, yes, there are! :-)
We relocated from AL to SE MI 3 wks ago for my husband's job.

I was part of an amazing BC support group prior to moving, but admit I began finding myself in a strange place. I was 2.5 yrs post diagnosis and doing well and in some ways wanted to distance myself from cancer. And yet, it's always part of your psyche - you can't run from it or pretend it didn't happen. Right now, we're busy looking for a house and then I'll need to get kids in school, but I can't help but to think I'd benefit from finding other women who've walked a similar journey where cancer is concerned. Not to mention I'd love input on recommended oncologists as I'll need on-going check-ups for the next 2.5 yrs.

Are any of you aware of support groups in SE MI that meet in person? Do any of you near Detroit meet in person? Would be good to connect with someone other than my realtor, lol.

Blessings,
~ Kim

Author of Joy Is Contagious...Cancer Isn't: 12 Women Share How Faith Shaped Their Breast Cancer Journey Dx 11/4/2016, ILC/IDC, Left, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 12/6/2016 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 2/19/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 4/25/2017 Reconstruction (left): Saline implant
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Jul 9, 2019 01:30AM JosieO wrote:

Hi Redemptive,

Welcome to MI! I hope your husband’s job and your family life settles in. Summer is a good time to move here.

As for breast cancer groups that meet, I’m sorry to say that I don’t personally know of any, but would be interested as well. I think some of the hospital systems have them, but I’ve not heard of any that might be an outgrowth of this website. I’m only one year out from diagnosis and treatment, so there might be more experienced members who can help us out.

As for an oncologist, I can recommend an outstanding one, so please send me a private message and I’ll be happy to share.

Best wishes,

Josie

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Jul 9, 2019 09:15AM RedemptiveSufferer wrote:

Josie,

Thank you for the reply! My husband is really enjoying his job and we all really like it here so far. I know we'll be much happier once we're in a home - the house hunt continues. This area isn't foreign to me, as my mom was born in Detroit and lived in Mt. Clemens for part of her childhood. I spent years visiting my grandmother in both Detroit and later Warren when she moved. We had other family members here as well when I was young. I also attended Macomb Community College for a semester. I know you didn't ask for all of that, but just letting you and others know I'm not a total "outsider" haha.

I hope you are doing well now that you're one year out. I'll send you a PM as I really have no idea which cancer centers/oncologists here are good and which ones to avoid - if there are any.
Thank you!
~ Kim

Author of Joy Is Contagious...Cancer Isn't: 12 Women Share How Faith Shaped Their Breast Cancer Journey Dx 11/4/2016, ILC/IDC, Left, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 12/6/2016 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 2/19/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 4/25/2017 Reconstruction (left): Saline implant
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Jul 10, 2019 10:21PM Butterfly1234 wrote:

Redemptive - sent you a PM.

Not sure where everyone lives. I know Troy Beaumont has support groups. Maybe we should start our own.Hugs all.

No matter what you look like or think you look like, you're special and loved and perfect just the way you are. Ariel Winter Dx 1/24/2017, IDC, Left, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 2/27/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/11/2017 Whole-breast: Breast Hormonal Therapy 5/9/2017 Arimidex (anastrozole)
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Jul 18, 2019 04:56PM Stix wrote:

I did not have good luck with my surgeons in Michigan. I was told my breast care surgeon left too much fat in one side and too little in the other making it hard to even things out. I would not use her again. It makes sense though. I can pinch one side and its half the thickness than the other

stix Dx 1/22/2010, DCIS, 1cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR- Surgery 4/8/2010 Mastectomy: Right Surgery 8/15/2010 Mastectomy: Right; Reconstruction (right) Surgery 4/30/2013 Mastectomy: Left; Prophylactic mastectomy: Left Surgery 9/11/2013 Reconstruction (left) Surgery 7/29/2014 Reconstruction (left) Surgery 1/11/2015 Reconstruction (left)
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Jul 18, 2019 11:44PM JosieO wrote:

Stix,

Sorry that your experience was not a good one. Although there are a fair number of surgeons among the different hospital systems in the larger cities, it can be hard to get good referrals and especially to compare. When I was diagnosed I did not have family or friends who had experienced breast cancer, so I read everything I could get my hands on, asked a lot of questions, and tried to make the best choice among the professionals I identified. Since my treatments, I try to help others whenever possible, because I know how stressful it is, and yet how important it is to get the correct assistance. May others benefit from what we learned.

Best wishes to you

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Nov 4, 2019 03:38PM RedemptiveSufferer wrote:

I realize this isn't the most active thread, but personally I'm just now "waking up" on social media after focusing on our move here, enrolling kids in school, finding doctors, etc... and wanted to pop on to say hello and that I hope all are enjoying fall! Sure, it's chilly, but fall in Michigan is undeniably stunning!

Author of Joy Is Contagious...Cancer Isn't: 12 Women Share How Faith Shaped Their Breast Cancer Journey Dx 11/4/2016, ILC/IDC, Left, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 12/6/2016 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 2/19/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 4/25/2017 Reconstruction (left): Saline implant
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Nov 5, 2019 12:03AM - edited Nov 5, 2019 12:05AM by JosieO

Hi Redemptive,

Glad you and your family are settling in. Yes, the colors are great this year, but the cold seems earlier than in the last few years. But on dry and sunny days there is still outdoor enjoyment to be had. Cider mills are still fun until about Thanksgiving.

Continued best wishes, and hi as well to our fellow MI ladies.

(Continuing to edit-keep making the same typo!

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Nov 10, 2019 06:03PM queenmomcat wrote:

Redemptive: well, spectacular until the first winter storms come through! (I live in SW Michigan just downwind of Lake Michigan. Still explaining to my relatives elsewhere in the country the difference between system snow and lake-effect snow.)

Dx 5/27/2015, DCIS, Left, 1cm, Stage 0, Grade 2, ER+/PR+, HER2- (IHC) Surgery 7/7/2015 Lumpectomy: Left Radiation Therapy 9/1/2015 Whole-breast: Breast Hormonal Therapy 11/1/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 12/10/2015 Reconstruction (left)
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Nov 10, 2019 08:18PM JosieO wrote:

Hi queenmomcat,

You are in a picturesque part of the state, but agree that lake-effect snow can be heavy. Are you getting snow this weekend? Lots of snow around the Midwest. Please staysafe and warm.

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Nov 16, 2019 03:45PM queenmomcat wrote:

We did, though not the snowmageddon predicted; it's pretty much all melted now. Thank deity.

Dx 5/27/2015, DCIS, Left, 1cm, Stage 0, Grade 2, ER+/PR+, HER2- (IHC) Surgery 7/7/2015 Lumpectomy: Left Radiation Therapy 9/1/2015 Whole-breast: Breast Hormonal Therapy 11/1/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 12/10/2015 Reconstruction (left)
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Jan 25, 2020 10:47AM pabl48 wrote:

Hi Ladies,

I also live in Michigan. I have just been diagnosed again with breast cancer. I am going to U of M in Ann Arbor for to their Breast Care center on Monday. I have oncologist out of Troy and Royal Oak Beaumont.


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Feb 23, 2020 07:28PM Stix wrote:

how is it going?

stix Dx 1/22/2010, DCIS, 1cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR- Surgery 4/8/2010 Mastectomy: Right Surgery 8/15/2010 Mastectomy: Right; Reconstruction (right) Surgery 4/30/2013 Mastectomy: Left; Prophylactic mastectomy: Left Surgery 9/11/2013 Reconstruction (left) Surgery 7/29/2014 Reconstruction (left) Surgery 1/11/2015 Reconstruction (left)
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Apr 9, 2020 09:44AM OnlyGirlof5 wrote:

So Michigan ladies, anyone out there? It looks like the last post was in 2014!

Michigander here. Ann Arbor area to be specific.

Age at dx: 50. Oncotype score 4. ICD (2 masses) and DCIS (1 mass); 1/3 nodes (microscopically positive) Dx 12/11/2019, DCIS/IDC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- (FISH) Dx 12/11/2019, DCIS, Left, <1cm, Stage 0, Grade 1 Surgery 2/26/2020 Mastectomy: Left Dx 2/27/2020, IDC, Left, 1cm, Stage IIB, Grade 2, 1/3 nodes, ER+/PR+, HER2- Hormonal Therapy 3/31/2020 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 2/16/2021 Zoladex (goserelin)
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Apr 10, 2020 01:35AM JosieO wrote:

Hi OnlyGirlof5,

I’m a Michigan gal, just east of you in western Wayne county. No, there were a few posts over the last few years, but not a large orbusy group.

I see from your profile stats that you recently had surgery-my goodness. I can imagine there was extra stress given the emphasis on treating virus patients. I wish you a safe recovery, and hope that you can get the necessary treatments/tests that you need. I had my surgery and treatment during most of 2018, so right now am taking an AI, trying to replace my normal gym-based exercise at home, and taking care of an elderly parent. Thankful to be able to manage, and trying to stay healthy.

Please let me know if there is anything I can share. Will answer via PM if appropriate.

Best wishes for a good recovery.

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Apr 11, 2020 11:37PM toria1212 wrote:

I'm in Brighton, Michy. I will receive surgery and treatment in Novi....the virus is still taking up most of our energy. BC thoughts come and go, and I just began the AI this week, every other day, so day 3 was this a.m. I am feeling fine and blessed to have had sunny weather to play some tennis today.

Hope you are well JosieO!

OnlyGirlof5, how are you?

xx

Dx 3/19/2020, IDC, Right, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR-, HER2-
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Apr 12, 2020 08:56AM OnlyGirlof5 wrote:

Hi Toria,

We met on another thread. I didn't realize you were so close. I'm in "Ann Arbor" but northern side and do 99% of my shopping/errands/entertainment in Brighton.

I am doing well except for being on hold which is a struggle.

I had my RO consult on Thursday and am leaning to get a second opinion. RO indicated the risks outweighed the expected benefits. She left it up to me, as some women choose to still have it as a precautionary method. I had a very low oncotype score which is part of the consideration she made in her recommendation. She told me it was essentially more risk than potential benefits (especially to the final reconstruction). I had 1 node "microscopically" positive but with EE. She said it was so minimal, they weren't concerned. If it was not for the EE, I would probably not worry.

Not even sure how to go about getting a second opinion in this environment.

Age at dx: 50. Oncotype score 4. ICD (2 masses) and DCIS (1 mass); 1/3 nodes (microscopically positive) Dx 12/11/2019, DCIS/IDC, Left, 3cm, Stage IIB, Grade 2, ER+/PR+, HER2- (FISH) Dx 12/11/2019, DCIS, Left, <1cm, Stage 0, Grade 1 Surgery 2/26/2020 Mastectomy: Left Dx 2/27/2020, IDC, Left, 1cm, Stage IIB, Grade 2, 1/3 nodes, ER+/PR+, HER2- Hormonal Therapy 3/31/2020 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 2/16/2021 Zoladex (goserelin)
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Aug 20, 2020 04:03PM carebearkid4life wrote:

Hi Ladies,

I can't believe I am just finding this board! This forum was so helpful to me, just to read and soak up everyone's insight. It helped me to understand my diagnosis last year and ask the right questions about my medical treatment options. Thankfully, I am now cancer free, however, I'm having a few issues with my implant based reconstruction. If you have a recommendation for a PS in metro Detroit, I would love your recommendations. I have been happy with my care to date, but just need to consult with another specialist to see if there are other options available or whether I just need to accept my current state. Thank you!

Dx 7/7/2019, ILC/IDC: Tubular, Right, <1cm, Stage IA, Grade 1, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 8/13/2019 Lumpectomy: Right; Lymph node removal: Underarm/Axillary Dx 8/18/2019, LCIS/DCIS, Both breasts, Stage 0 Surgery 11/15/2019 Mastectomy: Left, Right
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Sep 9, 2020 11:16PM pabl48 wrote:

Hi I am in Michigan This will be my second time around with BC. Had a BMX in 2004 followed by 4 rounds of AC.

Back again for 4 rounds of TC FOLLOWED BY 6 weeks of radiation. This is all been surreal for me.




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Oct 11, 2020 04:18PM Maureen1 wrote:

Hello from another Michigan girl...I haven't been on the Boards for quite some time so I am just catching up on posts. I'm so sorry you are facing chemo again after so many years...I have had several scares and am currently waiting for CT results from my latest issue. The pain has been pretty consistent so my oncologist is concerned. I hope you are doing well and the beast is in retreat, hugs, Maureen1

Dx 7/31/2012, IDC, Left, 1cm, Stage IIA, Grade 2, 3/11 nodes, ER+/PR+, HER2- Surgery 8/6/2012 Lumpectomy: Left; Lymph node removal: Left, Underarm/Axillary Chemotherapy 9/19/2012 AC + T (Taxol) Surgery 3/4/2013 Prophylactic mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Hormonal Therapy 3/19/2013 Aromasin (exemestane) Hormonal Therapy 7/22/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 11/23/2013 Reconstruction (left): Silicone implant
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Oct 12, 2020 06:24AM NancyHB wrote:

*waving* Hi Maureen! Sorry to hear you’re dealing with pain and worry; sending love your way

Maybe come spring we can all plan a get-together and meet-up somewhere central?

"Be happy for this moment. This moment is your life." - Omar Khayyam Dx 11/22/2011, IDC, Left, 1cm, Grade 2, ER+/PR-, HER2- (FISH) Surgery 12/4/2011 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 1/18/2012 AC + T (Taxol) Radiation Therapy 6/11/2012 Whole-breast: Breast, Lymph nodes Dx 1/27/2016, IDC, Left, 1cm, Grade 3, 0/4 nodes, ER-/PR-, HER2- Surgery 2/14/2016 Lumpectomy; Lymph node removal: Left Chemotherapy 2/29/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 7/20/2016 Mastectomy: Left; Reconstruction (left): DIEP flap Dx 1/31/2017, IDC, Stage IV, metastasized to bone
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Oct 12, 2020 10:27AM NancyHB wrote:

...obviously I have high hopes for a return to normalcy in the spring, but I’m not holding my breath. One day we’ll make it happen, though!

"Be happy for this moment. This moment is your life." - Omar Khayyam Dx 11/22/2011, IDC, Left, 1cm, Grade 2, ER+/PR-, HER2- (FISH) Surgery 12/4/2011 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 1/18/2012 AC + T (Taxol) Radiation Therapy 6/11/2012 Whole-breast: Breast, Lymph nodes Dx 1/27/2016, IDC, Left, 1cm, Grade 3, 0/4 nodes, ER-/PR-, HER2- Surgery 2/14/2016 Lumpectomy; Lymph node removal: Left Chemotherapy 2/29/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 7/20/2016 Mastectomy: Left; Reconstruction (left): DIEP flap Dx 1/31/2017, IDC, Stage IV, metastasized to bone
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Oct 12, 2020 06:52PM Maureen1 wrote:

Hi Nancy Smile waving back!! So good to hear from you...I hope you're doing well. It would be great to get together. Our lunches at the winery were such a great source of support and FUN so I'm with you, crossing my fingers for that return to normalcy. Take care - (Hugs) Maureen

Dx 7/31/2012, IDC, Left, 1cm, Stage IIA, Grade 2, 3/11 nodes, ER+/PR+, HER2- Surgery 8/6/2012 Lumpectomy: Left; Lymph node removal: Left, Underarm/Axillary Chemotherapy 9/19/2012 AC + T (Taxol) Surgery 3/4/2013 Prophylactic mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Hormonal Therapy 3/19/2013 Aromasin (exemestane) Hormonal Therapy 7/22/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 11/23/2013 Reconstruction (left): Silicone implant

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