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Topic: Any Michigan Ladies?

Forum: Member Matchup & Virtual Support Meetups —
A place for members, in similar geographic areas, to connect for support, local resources and referrals as well a place to meet up within the community virtually.

Posted on: Aug 21, 2013 04:10PM

IrishDancingMom wrote:

Hi...

I'm newly diagnoised and would love to not only talk with all ladies going through our breast cancer journey together but especially Michigan ladies.

Kirsty



Love is all you need..Beatles Dx 8/9/2013, DCIS, 3cm, Stage 0, Grade 3, 0/0 nodes, ER-/PR-, HER2- Surgery 8/22/2013 Lumpectomy: Left Radiation Therapy 9/29/2013 Breast
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Mar 7, 2014 05:38PM - edited Mar 7, 2014 05:39PM by Stix

hi. Ally my roommate in the hospital had that pain device. It didn't work very well for her. I would ask how many patients they have done them on. I had a pain pump inserted onto the chest wall. It was sticking out of the chest was....looked like a straw with a ball on the end. When the ball flattened I pulled it and threw it out. It worked wonderful. ..... how did u find your new doctor? What recommendations did u get?

stix Dx 1/22/2010, DCIS, 1cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR- Surgery 4/8/2010 Mastectomy: Right Surgery 8/15/2010 Mastectomy: Right; Reconstruction (right) Surgery 4/30/2013 Mastectomy: Left; Prophylactic mastectomy: Left Surgery 9/11/2013 Reconstruction (left) Surgery 7/29/2014 Reconstruction (left) Surgery 1/11/2015 Reconstruction (left)
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Mar 7, 2014 06:00PM Allydp wrote:

Stix, that's good to know it didin't work that well for her. You pain device sounds great, too. I'll add that to my list of questions for the doc. It's funny, I had no idea there were any such pain devices even out there like my friend's or yours. I'm so glad there's options. I actually haven't decided yet if I'm going to use Dr. Sherick. He was recommended to me by my BS, so that's how I found him. But I want to find some more info on him and meet with him before I make a final decision. I also feel like I should get more than just the one opinion, so I'll probably try and find a second surgeon to interview. We'll see. 

Alicia - Dx at 33, BRCA2+ Dx 1/30/2014, IDC, 2cm, Stage IIA, Grade 3, 0/2 nodes, ER-/PR-, HER2- Surgery 2/5/2014 Lymph node removal: Sentinel Chemotherapy 2/25/2014 Adriamycin (doxorubicin), Carboplatin (Paraplatin), Cytoxan (cyclophosphamide), Taxol (paclitaxel) Surgery 8/16/2014 Mastectomy; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 12/8/2014 Prophylactic ovary removal Surgery 1/20/2015 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Mar 7, 2014 06:11PM - edited Mar 7, 2014 06:12PM by Dulcigirl

Ally, I had an On-Q ball after bmx/te surgery. Might be the same thing Stix had. It was a plastic ball shaped thing full of pain reliever. It hung in a cloth bag. Tiny wires were inserted around the surgical area and they delivered pain meds for about 3 days. When the ball was totally deflated I (a bit hesitantly!) pulled the wires out as directed by my PS.

It looked kind of like this:

http://www.iflo.com/prod_onq_classic.php

"I believe in being strong when everything seems to be going wrong. I believe that happy girls are the prettiest girls. I believe that tomorrow is another day, and I believe in miracles." ~ Audrey Hepburn Dx 9/12/2012, IDC, Stage I Surgery 10/15/2012 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 2/13/2013 Reconstruction (left); Reconstruction (right) Surgery 10/21/2013 Reconstruction (left); Reconstruction (right)
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Mar 8, 2014 10:33AM - edited Mar 8, 2014 10:36AM by Stix

ally, I think the anesthesiologist places the pain device you are talking about- check with your doctor. My PS placed my pain device that I mentioned earlier. Ally, have you tried U of M?  another member I am chatting with just had diep there and they also do implants... I also did talk to another member that had implants done there. PM me and I can give you her name...

stix Dx 1/22/2010, DCIS, 1cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR- Surgery 4/8/2010 Mastectomy: Right Surgery 8/15/2010 Mastectomy: Right; Reconstruction (right) Surgery 4/30/2013 Mastectomy: Left; Prophylactic mastectomy: Left Surgery 9/11/2013 Reconstruction (left) Surgery 7/29/2014 Reconstruction (left) Surgery 1/11/2015 Reconstruction (left)
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Mar 12, 2014 10:17PM Mich71 wrote:

Hi girl strong;  I have an upcoming appointment with Dr Wilkins.  Left UMX done at U of M Nov 2013 but couldn't commit to Reconstruction at the time.   I had a wonderful experience at U of M for mastectomy, can I expect the same with reconstruction?  Any wisdom from Michigan Ladies appreciated!! 

Dx 7/16/2013, DCIS, Left, <1cm, Stage 0, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 8/13/2013 Lumpectomy: Left Surgery 11/7/2013 Lymph node removal: Left, Sentinel; Mastectomy: Left Surgery 12/1/2014 Reconstruction (left): Tissue expander placement Surgery 4/27/2015 Reconstruction (left): Silicone implant
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Mar 13, 2014 08:39AM - edited Mar 13, 2014 08:40AM by Stix

I have an appointment with wilkins.  Pm me....what experience did u have with the mx?  PM me...your giving me hope with u of m...

stix Dx 1/22/2010, DCIS, 1cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR- Surgery 4/8/2010 Mastectomy: Right Surgery 8/15/2010 Mastectomy: Right; Reconstruction (right) Surgery 4/30/2013 Mastectomy: Left; Prophylactic mastectomy: Left Surgery 9/11/2013 Reconstruction (left) Surgery 7/29/2014 Reconstruction (left) Surgery 1/11/2015 Reconstruction (left)
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Mar 13, 2014 09:19AM mmtagirl wrote:

hi all, can't provide much input on BS and PS at U of M since I decided to stay local because I loved my BS and she works closely with my PS.  I heard good things about my PS and he did some wonderful revisions on a friends sister.  His wife is his nurse so it is interesting how the three of us consult on my questions nd I like that he seeks her opinion as validation.  He only does implants and I wasn't interested in anything else or I would have gone to U of M.  My onc is part of the U of M system.  Have liked the consults with him so far and my parents LOVE him, my mom being his patient for years.  I am a bit frustrated at the moment because my oncotype test didn't get ordered when I thought so I am waiting another couple of weeks to finalize my plan.  Was hoping to have it understood before I head back to work on Monday.

I have a friend who had reconstruction with a female Ps in Novi and ended up in Gr Rapids for extensive revisions with diep that she is very pleased with.  Ally,I can pm you those names, if interested.

Dx 12/26/2013, IDC, 1cm, Stage IIA, Grade 1, 1/9 nodes, ER+/PR+, HER2- Surgery 1/28/2014 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 4/14/2014 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxol (paclitaxel), Taxotere (docetaxel) Hormonal Therapy 10/5/2014 Radiation Therapy 11/2/2014 Breast
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Mar 13, 2014 02:49PM Stix wrote:

mmtagirl....can you post those  names so other michigan girls know who they had a good experience with....thank s

stix Dx 1/22/2010, DCIS, 1cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR- Surgery 4/8/2010 Mastectomy: Right Surgery 8/15/2010 Mastectomy: Right; Reconstruction (right) Surgery 4/30/2013 Mastectomy: Left; Prophylactic mastectomy: Left Surgery 9/11/2013 Reconstruction (left) Surgery 7/29/2014 Reconstruction (left) Surgery 1/11/2015 Reconstruction (left)
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Mar 16, 2014 12:31PM jpteacher1 wrote:

I live in Allegan and was treated in Kalamazoo .  I can not say enough good things about Bronson Hospital Women 's Breast Health Clinic.  The entire staff only deals with breast health.  They are highly recommended throughout Michigan. My cancer was diagnosed at such an early stage.  This center is affiliated with the West Michigan Cancer Center.  My oncologist (Dr Liepman)and radiologist  (Dr.Grossheim ) are nationally known in their field.  I feel I'm getting excellent care.

Dx 10/2013, IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 12/3/2013 Lumpectomy: Right Radiation Therapy 1/27/2014 Breast
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Mar 16, 2014 02:45PM Stix wrote:

Please ladies- post where you are getting excellent care in Michigan- so newbies know where to go..... It is so important.  That way people won't feel like they have to go out of state for care- like nola or Chicago- who do awesome work also. And, please when you are all completed- please post on the picture forum- It is so helpful

Thanks jpteacher1

stix Dx 1/22/2010, DCIS, 1cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR- Surgery 4/8/2010 Mastectomy: Right Surgery 8/15/2010 Mastectomy: Right; Reconstruction (right) Surgery 4/30/2013 Mastectomy: Left; Prophylactic mastectomy: Left Surgery 9/11/2013 Reconstruction (left) Surgery 7/29/2014 Reconstruction (left) Surgery 1/11/2015 Reconstruction (left)
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Mar 16, 2014 02:59PM - edited Mar 16, 2014 04:27PM by Dulcigirl

Dr. Deborah Ruark is my BS at Troy Beaumont. 

Dr. Michael Meininger is my PS at Somerset Plastic Surgery in Troy. 

I would highly recommend both of them. Dr. Meininger also does some teaching on reconstruction. 

Edited to add: I'm Pamelita in the pic forum.

"I believe in being strong when everything seems to be going wrong. I believe that happy girls are the prettiest girls. I believe that tomorrow is another day, and I believe in miracles." ~ Audrey Hepburn Dx 9/12/2012, IDC, Stage I Surgery 10/15/2012 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 2/13/2013 Reconstruction (left); Reconstruction (right) Surgery 10/21/2013 Reconstruction (left); Reconstruction (right)
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Mar 16, 2014 04:20PM - edited Mar 16, 2014 05:25PM by Stix

Thanks Dulcigirl ! 

It would be great if everyone participated in this. I don't think its approp. to name doctors that people don't have good luck with-   Please ladies post those who you have had good cosmetic results with- and plz put  your results on   the picture board.  I think if we have  ATLEAST three or more ladies say they have had good results from a PS/BS then  a consult could be reasonable if there are newbies looking for a PS in the area.

And, not everyone is going to have the same results either- at least three or more thumbs up. Nobody really wants to go out of state for surgery or pay extra fees.  I also heard someone had good luck with a diep at u of m- dr. momoh ( I didn't see pictures though) and also implants two people have had excellent   cosmetic outcome from dr. Wilkins at u of m- and their pictures are on the picture forum. I have a consult with dr. Wilkins in a few weeks- will update you on this 

Thanks!

stix Dx 1/22/2010, DCIS, 1cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR- Surgery 4/8/2010 Mastectomy: Right Surgery 8/15/2010 Mastectomy: Right; Reconstruction (right) Surgery 4/30/2013 Mastectomy: Left; Prophylactic mastectomy: Left Surgery 9/11/2013 Reconstruction (left) Surgery 7/29/2014 Reconstruction (left) Surgery 1/11/2015 Reconstruction (left)
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Mar 16, 2014 05:26PM Stix wrote:

jpteacher, did you get reconstruction?  if so, are you happy with your results?  thanks!

stix Dx 1/22/2010, DCIS, 1cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR- Surgery 4/8/2010 Mastectomy: Right Surgery 8/15/2010 Mastectomy: Right; Reconstruction (right) Surgery 4/30/2013 Mastectomy: Left; Prophylactic mastectomy: Left Surgery 9/11/2013 Reconstruction (left) Surgery 7/29/2014 Reconstruction (left) Surgery 1/11/2015 Reconstruction (left)
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Mar 16, 2014 05:33PM mmtagirl wrote:

I am not far enough through recon or treatment plan to comment.  3rd fill coming this week.  Waiting on test results from onco.  Will post specifics once I am through and can give a definitive thumbs up or down.

Dx 12/26/2013, IDC, 1cm, Stage IIA, Grade 1, 1/9 nodes, ER+/PR+, HER2- Surgery 1/28/2014 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 4/14/2014 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxol (paclitaxel), Taxotere (docetaxel) Hormonal Therapy 10/5/2014 Radiation Therapy 11/2/2014 Breast
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Mar 16, 2014 05:49PM Stix wrote:

Great!  Thank You. 

I will keep track of the thumbs up. It is important to know how many surgeries people went through to get to this point if you are going to say thumbs up re: a PS.  then possibly you could email me why it took 3 or 4 surgeries.... like asymmetry or you wanted TWEAKS...etc... We'll give everyone  3-6  months after reconstr. for things to settle and LET us know how the TATTOOS went and who you used!!!!   For  those people who don't feel comfortable with posting their docs names.... that is OKAY. Just PM me and I will keep track of these - I will start a reference log in my computer of who has had great results from their surgeons- please lady's get a pic. posted 3-6 months after your reconstruction...

I am sure every new person going through this will appreciate your effort. 

Thank You!!!! 

stix Dx 1/22/2010, DCIS, 1cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR- Surgery 4/8/2010 Mastectomy: Right Surgery 8/15/2010 Mastectomy: Right; Reconstruction (right) Surgery 4/30/2013 Mastectomy: Left; Prophylactic mastectomy: Left Surgery 9/11/2013 Reconstruction (left) Surgery 7/29/2014 Reconstruction (left) Surgery 1/11/2015 Reconstruction (left)
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Mar 16, 2014 09:32PM jpteacher1 wrote:

I had a lumpectomy so didn't need further surgery. 

Dx 10/2013, IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 12/3/2013 Lumpectomy: Right Radiation Therapy 1/27/2014 Breast
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Mar 17, 2014 02:19AM klanders wrote:

good idea, Stix. U of M couldn't/wouldn't do what I wanted - they said my only option was implants (because I'm thin) and no nipples. Part of the problem, too, was that I needed a bilateral mastectomy so it took two surgeons 10+ hours. Dr Momah would have had to do my surgery (he was willing to use my thigh fat to make me A cup breasts) one breast at a time (3 months apart) and that wasn't a good option since I had active cancer in both.  So I had to do NOLA which, as you know, was a very expensive way of going but I'm thrilled with the results and wouldn't change a thing.  I've since heard that there is a doc in Grand Rapids - Dr Hammond - who might have been able to do a DIEP for me. It's too late for me but I'd love to hear if anyone has experience with him. 

Dx 2/1/2013, IDC, 1cm, Grade 2, 0/3 nodes, ER+/PR+, HER2- Dx 2/6/2013, IDC, 3cm, 0/2 nodes, ER+/PR+, HER2- Surgery 3/29/2013 Lymph node removal: Left, Right, Sentinel Surgery 4/24/2013 Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Dx 1/27/2015, IDC, Left, <1cm, Stage IIIC, Grade 2, 1/3 nodes, ER+/PR+, HER2- (FISH) Surgery 4/3/2015 Lumpectomy; Lymph node removal: Left, Sentinel Chemotherapy 4/30/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 8/18/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 8/27/2015 Arimidex (anastrozole), Zoladex (goserelin)
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Mar 17, 2014 09:40AM carol57 wrote:

It sounds from these posts that Michigan choices have grown since I went to Chicago for my diep in 2011. At that time I was referred initially through Borgess in Kalamazoo to a local PS who seemed intent on keeping me in his practice for implants.  He told me with a straight face that diep was available only somewhere in the Carolinas; that it was not covered by insurance; that you have to spend a month in a hotel and it cost one of his colleagues $80,000 out of pocket when his wife went this route.  He matter-of-factly told me to just get implants and be happy I could have them.  

Having read many posts in this forum, I drove home to Allegan and within ten minutes found three options in Chicago. Another 30 minutes and I knew my insurance would work with two of them.  One point the unethical PS in Kzoo did make that may have merits is that hospitals providing microsurgery options need to have more than one microsurgeon PS, as well as residents who are training in microsurgery, to have an in-OR team that can complete the reconstruction as speedily as possible, and to provide 24/7 monitoring coverage at the hospital in the 2 days following surgery.  I had heard of one PS in Grand Rapids (at Spectrum) doing diep recons, but with a non-microsurgery PS assistant in the OR and no residents to help with the monitoring. I don't know if that was and is still the case there; I called her practice to ask how many dieps she had done and they would not answer the question, so I did not consider or research that option any further.

I'm pleased with my Chicago outcome, but it sure would be simpler to have done it nearer to home. A simple follow-up visit becomes an all-day project, and we spent nights prior to the original and revision surgeries in Chicago, which was not inexpensive.  You all are doing a great service in profiling and reviewing the Michigan options in this thread, for those who need in-state choices now and in the future. My experience with the Kzoo PS makes me quite suspicious that at least some of the local PS's are not going to try very hard to help women locate microsurgery options that would send the patients elsewhere.  

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Mar 17, 2014 04:51PM BayouBabe wrote:

Dr. Hammond is my PS, and I absolutely love him!  I did not have Diep, however, but implants.  His website for those who are interested can google PIPSMD, Grand Rapids, MI (Partners In Plastic Surgery).

BRCA1+, IDC
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Mar 17, 2014 10:38PM Mich71 wrote:

Thank you Bayou Babe.  All of the input of our options in Michigan is so incredibly helpful as we go through this process.  My oncologist indicated some of her patients had good results with   Dr Hammonds partner (Van Pelt) as well so it is super to hear from a patient of his.  Can I ask if your experience from start to finish with their office was all positive?  I have a consult with both PIPSMD and U of M before I decide.

Dx 7/16/2013, DCIS, Left, <1cm, Stage 0, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 8/13/2013 Lumpectomy: Left Surgery 11/7/2013 Lymph node removal: Left, Sentinel; Mastectomy: Left Surgery 12/1/2014 Reconstruction (left): Tissue expander placement Surgery 4/27/2015 Reconstruction (left): Silicone implant
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Mar 18, 2014 03:32PM Allydp wrote:

Stix, what a great idea! As someone just embarking on the PS route, I greatly appreciate this. And yes, I had a second opinion at UofM and got the name of a plastic surgeon there. Right now I'm kind of leaning towards just going with Dr. Sherick out of St. Joes, since he does a lot of reconstruction with my BS, but I want to meet with him first and get a vibe. 

Dulcigirl, thanks for that pic of your pain device! It will give me a good reference when I talk to my BS about it. 

Hope everyone is doing well this week. Chemo's kicking in for me after my second round last Tuesday. My taste buds are shot, my (buzzed) hair started falling out, and I've been a little blah feeling…BUT…I got up the courage to feel my tumor and it's definitely SMALLER!!! Such a huge relief!!! My onc plans on measuring it this Monday at my pre-chemo appt and I can't wait. Makes all these side effects so much more tolerable knowing it's working and blasting those cells. 

If anyone has any experience, good or bad, with PS Dr. Daniel Sherick out of St. Joe's Ann Arbor, please let me know! I'd love to hear your experience!

Alicia - Dx at 33, BRCA2+ Dx 1/30/2014, IDC, 2cm, Stage IIA, Grade 3, 0/2 nodes, ER-/PR-, HER2- Surgery 2/5/2014 Lymph node removal: Sentinel Chemotherapy 2/25/2014 Adriamycin (doxorubicin), Carboplatin (Paraplatin), Cytoxan (cyclophosphamide), Taxol (paclitaxel) Surgery 8/16/2014 Mastectomy; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 12/8/2014 Prophylactic ovary removal Surgery 1/20/2015 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Mar 18, 2014 03:36PM Allydp wrote:

I've had a wonderful experience with my team out of St. Joe's Ann Arbor. 

My BS is Dr. Jennifer Kulick. She's repeatedly gone way above and beyond for me and is the reason I stuck with St. Joe's over UofM. I absolutely love her.

My onc is Dr. Kathleen Beekman. She's been great as well, even calling me on her personal time to discuss chemo options. 

I'd highly recommend either one of them and am extremely satisfied with St. Joe's Health System. I've made many connections with the staff and feel like they take a personal interest in my well being. 

I've yet to meet with a PS, but will update when I do. :)

Alicia - Dx at 33, BRCA2+ Dx 1/30/2014, IDC, 2cm, Stage IIA, Grade 3, 0/2 nodes, ER-/PR-, HER2- Surgery 2/5/2014 Lymph node removal: Sentinel Chemotherapy 2/25/2014 Adriamycin (doxorubicin), Carboplatin (Paraplatin), Cytoxan (cyclophosphamide), Taxol (paclitaxel) Surgery 8/16/2014 Mastectomy; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 12/8/2014 Prophylactic ovary removal Surgery 1/20/2015 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Mar 19, 2014 09:59PM Stix wrote:

Thanks for posting ally....  When you do meet dr. Sherrick.  Please ask him for references you can call....ask for ones somewhere around your age that had your same PS. If he can't give them to you then I would  think twice about using him..

stix Dx 1/22/2010, DCIS, 1cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR- Surgery 4/8/2010 Mastectomy: Right Surgery 8/15/2010 Mastectomy: Right; Reconstruction (right) Surgery 4/30/2013 Mastectomy: Left; Prophylactic mastectomy: Left Surgery 9/11/2013 Reconstruction (left) Surgery 7/29/2014 Reconstruction (left) Surgery 1/11/2015 Reconstruction (left)
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Mar 31, 2014 12:29AM sunkistmi wrote:

Hi MI ladies,

It's nice to have a second "MI" site. There is a "MI Survivors" site that we had been meeting on, although it has been a long time since I was on. A group of us met for several years and did the 5K Komen walk downtown together and also met for several get-togethers. I miss many of the friends I met. I guess with Facebook, the sites here aren't getting used as much. I pray everyone is doing as well as they can be. I noticed there was a post for positive experiences with doctors in the area. When I was first diagnosed  in 2006, in right breast, there were only 6 doctors in the country doing the microsurgery reconstruction. I ended up having the SIEA flap surgery with Dr. Robert Allen, who had trained most of the 6, in SC. I was VERY pleased with the results. I was not a candidate for implants due to my RA and did not want to lose my stomach muscle because of back issues for any of the traditional flap surgeries. Two years later when it showed up in the left side, I was able to see Dr. Rebecca Studinger, a PS who practices out of Providence Hospital in the Detroit area, who had interned with Dr. Allen in SC after seeing the results of my first surgery. At that time, she was the only PS doing the perforator flap surgery in MI. Because I no longer had any stomach fat, she used the fat in my left leg, doing the TUG for the first time in MI. I was up at the Dream Cruise 3 weeks after surgery, I felt so good. I have not regretted using her. She is a wonderful, caring doctor and 5 years later, I am still pleased with the results. I'm so happy there are so many more options for people now, although I still think the traditionalists do not get the word out about the perforator flap options. When I was looking, I was absolutely amazed that U of M, Karmanos or any other big hospital in the area did them. Luckily, there are more now.

Hopefully, spring has finally arrived and we all will be able to get out of our homes. I need to start training for the 3-Day walk in August so it better start warming up, lol. Take care everyone and good thoughts to all.

Dx 5/27/2008, DCIS, 1cm, Stage 0, Grade 3, 0/2 nodes, ER-/PR-
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Mar 31, 2014 08:29AM Stix wrote:

dear all.  Could you let me know who else used Rebecca studunger....  and did you have implants or microsurgery? She must do some implants also....i was thinking of consulting with her. Thank you.

stix Dx 1/22/2010, DCIS, 1cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR- Surgery 4/8/2010 Mastectomy: Right Surgery 8/15/2010 Mastectomy: Right; Reconstruction (right) Surgery 4/30/2013 Mastectomy: Left; Prophylactic mastectomy: Left Surgery 9/11/2013 Reconstruction (left) Surgery 7/29/2014 Reconstruction (left) Surgery 1/11/2015 Reconstruction (left)
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Apr 22, 2014 12:11AM Stix wrote:

HI  again... anybody use rebeecca studinger?


stix Dx 1/22/2010, DCIS, 1cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR- Surgery 4/8/2010 Mastectomy: Right Surgery 8/15/2010 Mastectomy: Right; Reconstruction (right) Surgery 4/30/2013 Mastectomy: Left; Prophylactic mastectomy: Left Surgery 9/11/2013 Reconstruction (left) Surgery 7/29/2014 Reconstruction (left) Surgery 1/11/2015 Reconstruction (left)
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Apr 22, 2014 10:45AM mmtagirl wrote:

I have a friend who used her.  Said she was a lovely woman but the outcome, not so much.  That is the only reference point I have and it is 2nd hand.

Dx 12/26/2013, IDC, 1cm, Stage IIA, Grade 1, 1/9 nodes, ER+/PR+, HER2- Surgery 1/28/2014 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 4/14/2014 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxol (paclitaxel), Taxotere (docetaxel) Hormonal Therapy 10/5/2014 Radiation Therapy 11/2/2014 Breast
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Apr 23, 2014 04:03PM lynnlyre wrote:

Well I guess I'll add to the MI group.  I had a right mastectomy on March 28th.  No reconstruction started at time of surgery since PS refused to to surgery unless I loose 100 pounds.  I live in Gregory, MI (11 miles from Hell).  Treatment has been through Sparrow Hospital using MSU Surgery for the BS and PS.  Hospital choice really did not exist as my BCBS only pays 70% after a $2,500 deductible and my husband's works for Sparrow and his insurance covers 100% if done in Sparrow facilities.  My husband was planning to retire at the end of the year and I'm not sure what I will do to cover the remaining treatment/medication after that.  Still in the waiting stage at this point to determine if I need Chemo/Radiation.  Tumors were hormone sensitive so the I will be embarking on a 10 year treatment of Tamoxifen.  Anyone paying for this out of pocket.  My insurance has a $100 a month co-pay for medication so when we loose Sparrow coverage I will need to pick-up a good portion of the price.  

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Apr 23, 2014 05:50PM - edited Apr 23, 2014 09:27PM by Infobabe

Lynn, on this web site, go to the home page.  In the purple bar that runs across the page, there is a subject called Day to Day matters->Paying for Care.  You will get some help there.  There are a lot of sources for you to checkout.  I believe the Suzan B. Koman program has info on paying and I also believe there is a national program for payment of treatment fro breast cancer.  You will have completed a lot of treatment by the time your husband retires.

You are correct to start researching now so you will be prepared when the time comes.  There is also a thread in this board on insurance.  Upper left, All Topics, Day to Day Matters, Financial and Insurance, about the third topic down.  There is a lot of help here.

Dx 3/15/2012, DCIS, <1cm, Stage 0, Grade 1, ER+/PR+ Surgery 5/1/2012 Lumpectomy: Left
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Apr 23, 2014 06:56PM Allydp wrote:

Hi ladies, I was previously going to use Dr. Sherick out of St. Joe's Ann Arbor, but after doing some research, I think I'm going to go with Dr. Izenberg. He's also out of St. Joe's, but has more experience with breast reconstruction. I have a consultation with him May 5. 

Lynn, I'm so sorry you're also faced with this financial burden. I hope you're able to find some answers here on the boards. 

Alicia - Dx at 33, BRCA2+ Dx 1/30/2014, IDC, 2cm, Stage IIA, Grade 3, 0/2 nodes, ER-/PR-, HER2- Surgery 2/5/2014 Lymph node removal: Sentinel Chemotherapy 2/25/2014 Adriamycin (doxorubicin), Carboplatin (Paraplatin), Cytoxan (cyclophosphamide), Taxol (paclitaxel) Surgery 8/16/2014 Mastectomy; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 12/8/2014 Prophylactic ovary removal Surgery 1/20/2015 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant

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